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soulangel
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/1/2008 6:34 PM (GMT -7)   
Hi! I have been recently diagnosed with diffused adenomyosis. I am 32 yrs old, 6 yrs married, and childless. My doctor says that there is no permanent cure for this other than hysterectomy, which she doesn't recommend at this point since i still don't have kids yet. There are supportive treatments that I can take, but all these will only serve as temporary remedies. I have always been a strong person, but last night, while I was lying in bed, scenes from my past visits to the hospital and my last procedure just came into mind and I was just suddenly overcame with depression. I cried uncontrollably. My husband kept on asking me why but I couldn't explain why I was crying. I couldn't understand it myself. This morning I woke up with a heavy head due to last night's incident. What I want to understand is, is depression part of the condition? and I am interested to know how some people cope up with adenomyosis. I've read some materials dismissing it as somewhat common and harmless. But judging from the way I've been experiencing the symptoms these past few months, if this gets worse I might end up giving up a lot of activities, which I don't want to do. Can somebody relate to this?

Post Edited (soulangel) : 7/1/2008 8:02:22 PM (GMT-6)


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 7/1/2008 8:59 PM (GMT -7)   
Hi soulangel and welcome.

I'm so sorry this is causing you such misery, especially since you don't have any children yet. I must confess I had to look up this disorder since I had not heard of it before. It does sound very painful but I guess the good news is it's not life threatening nor will it make you more prone to cancer.

One thought that I had was to possibly get counseling for you and hubby related to having children. Ask your doc if a pregnancy is possible with this condition. If your sadness and crying doesn't ease up in a week or 2 you should talk to your doc about depression. I sure can see why this would do it. You may be losing your chance to have your own children. That's a terrible loss. I hope someone on the forum has some experience with this disorder and can give you more help.

Hugs and keep in touch,
CHutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 7/2/2008 6:51 AM (GMT -7)   
Soulangel,

I too, wanted to wish you a warm welcome to Healing Well Pain forum. Thanks for joining us. Hope you will stay and continue posting.

Because I was a nurse, I know the pain you are going through with this condition. Are you considering having children any time soon? You may feel relief once you are pregnant. Then if the condition persists to a greater degree, you may opt for the oral contraceptive treatments that limit the estrogen that aids in the proliferation of this disease.

At any case, I wish you well. I know how hard it is to put up with the symptoms. It can be a real drag always feeling bad and tired out all the time.

God bless you. Again, welcome and continue posting. There are a lot of great members on this forum.

Gentle Hugs Soulangel,

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/2/2008 10:01 AM (GMT -7)   
Hi, soulangel,
I also wanted to welcome you to the HW forum. I don't know much about your physical problem but Lindaloo took care of that! I do know more about the mental health aspects, and any condition which affects our lives - especially in such a profound way as chronic pain, and the many losses it can bring - can bring depression. Also, something that impacts a future dream such as wanting children in and of itself can create some depression. I would also recommend seeking a therapist, having the depression assessed, and then likely including your husband in part of the process. This doesn't mean you are mentally ill, but that you are going through a rough time and having some professional support to make sure the depression doesn't worsen can be important. Having other supports in your life is also important - so use your family and friends, but especially if the depression doesn't improve at least talk with your doctor.

All the best to you.

PaLady

soulangel
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/2/2008 7:56 PM (GMT -7)   
Thanks so much to those who have responded. Chutz, I asked my doctor and she said it's still possible for me to have kids :) The thought definitely boosted my spirit.

Lindaloo, yeah I really want to have kids of my own. You're right, it can really be quite a drag, I've experienced bleeding for 3 consecutive weeks, it stopped for 5 days, and bled again for another week. and this has been going on for a couple of months now. Started to have blood clots and pain, so much that there were many times in the past that I just confined myself inside our bedroom.

Palady, thanks for the advise. I guess the emotional and mental stress of the past months caught up with me. I am feeling better now, been praying a lot and reading a lot. It's great to have supportive family and friends. I will definitely stay around and continue posting and reading, seeing that there are lots of nice people in this forum :)

garcan
New Member


Date Joined Jul 2008
Total Posts : 1
   Posted 7/11/2008 2:38 PM (GMT -7)   
Hi there. I am new to this site but feel that it's time for me to start communicating with others that suffer from adenomyosis. I am 29 years old with a 2 year old son. I had all of the symptoms immediately following the delivery of my son but was only diagnosed with adenomyosis in November 2007. My doctor assured me I would not have any problems conceiving, but he would be willing to do a full hysteroctomy if I did not want any other children. This is my second month of trying to conceive a second child and I'm worried my adenomyosis will have an impact on my success.

Soulangel....please keep us posted on your success as it will keep me hopeful if you are able to conceive with adenomyosis. I'll do the same.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/11/2008 2:43 PM (GMT -7)   
Hi, Garcan,
I wanted to welcome you to the Healing Well forum. I don't know much about adenomyosis, and childbearing issues are long behind me, but I hope you find the support you're seeking here. It's a great group of people.

I'm sure soulangel will appreciate having someone who's experiencing the same thing. And you both can educate the rest of us.

Again, welcome

PaLady

soulangel
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/15/2008 6:27 PM (GMT -7)   
hi garcan! i recently switched doctors and am currently undergoing a fertility work up.  Like my first doctor, she assured me that I can still conceive.  I'm also seeing a cardiologist because I am hypertensive, I don't want it to complicate my pregnancy in the future.  Right now I am very hopeful, I'm praying a lot.  Nothing is impossible with God :)
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