Sandi, you have given me some great advice! Thank you! And you might think that I would have asked all those questions, but I hadn't and I think I will! I appreciate that!
I am finding that as time passes, I really DID get more relief than just 30%, but maybe not quite 50 though either, but I haven't responded well to other treatments, even the decompression that I had in January made me feel worse! So I don't know if my doc thinks that since I am getting even just that 30%, MAYBE, just maybe he thinks that it's enough to implant? I don't know!? But that is something to think about, thank you!!
If anyone else has something to add, please do, I'm really just, uh, well, confused, there isn't any other explaination!! LOL! And I appreciate any help, and if I can help someone, I'd be GLAD to! This isn't fun to go through, and it's SO nice to have some help and guidance, you all are SO great! Thank you!
Good luck to all!!
You don't know how GRATEFUL I am that I have you all to "talk" to!! You have given me a lot to think about!! And yes, I am trying to find out as much as possible before I go for it. I did make the appointment anyway, it's on Aug 18th, but I can always cancel, I just thought that if I make the appointment later, I can do some research, and if I decide that I don't want to, I will cancel!
Thank you PALady for the web site, I will definitely look on there for some info!! And you are right, I need to relax about it! I need to make the best educated decision I can, right?! Thank you for all your support!
And Mami, thank you too, you have given me some good information, and yes, you did answer my questions, that's exactly what I needed to know!! Thank you! And thank you for your support as well!!
I would love to try out other leads, but I was SO uncomfortable with the trial, that I DON'T want to do another one, but I see exactly what you are saying! And my doc seems to think I had a successful trial?! I might just be very nervous about having surgery too, this would be the first time being cut open too!!
I did get a lot of relief, especially in my leg, and a bit in my back, it was just the hip, and he seems to think that it wouldn't be a problem with extra electrodes. And being that he is SO optimistic, it makes me think that it might be a good thing. He is a good doc, just a person that is very to the point, and has tried to do what he can to help, and physically I could tell that he felt bad when it wasn't working! I guess as Mami has said, I can always have it removed, right?!
I appreciate all the support, it really helps, a LOT!! Thank you all!! And yes, I am very ready for some pain relief, as you said PALady!! But I do want to make sure that I am prepared and 100% ok with it! That is why I'm asking so many questions, I guess! LOL!!
Good luck to all, and please, if anyone has more to add, I'm open to any and all advice! Thank you all and wish you all some pain relief!
I have been reading thru here. While I have no real experience with the SCS, we do have a couple of people here that has tried or have the SCS implanted and I don't think they are getting good results. With one I remember the leads kept migrating and they would go back in and fix it. One had like I think it was 3 surgeries to correct the problem. From what I have read here on them and knowing one person personally that had one, they were not of much help with nerve pain. Its suppose to be I thought a device to help with nerve pain. I don't think people get near the pain relief they need with them an the drs are all too quick to recommend them to patients. Its almost like trying to give a patient a quick fix. Lets face it, doctor's don't like to think they can't fix a patient.
I have the pump and mine was implanted June of 05. Let me tell you, I have had numerous surgeries, that surgery was one of the hardest to recoup from. My dr truly down played the surgical part, but I'm over the mad for that because the pump is working very well for me. I have a nasty scar on my back that is fairly big per hubby and a nasty looking scar on my stomach. Of course, my bikini days are long well past,lol. I do know Medtronic has a recall on certain pumps because the gears have stopped working in some of the pumps, and another alert is masses developing at the tip of the catheter. I spoke with my dr while having mine refilled yesterday about these masses. He told me the biggest problem is uneducated drs having these implanted in patients and they don't which kinds of meds can be used or can not used. Also if a patient is on a high dose then they are a prime canidate for granulomas to occur. Alot of people are not aware but high does of Morphine will cause an infection and I am talking oral Morphine.
You have been given some excellent tips here and I know you will follow up on this and do your homework. You can also Google the stimulators as well and get a ton of info. Try to relax somewhat if you can. You have plenty of time to make a good educated decision. I know it can be overwhelming just the same. But, just take a big deep breath and kick back and collect your thoughts,lol. Gentle Hugs coming your way. Susie
Straydog, what a cool name! LOL! I'm a BIG dog lover! Anyway, thank you very much for your information and support as well! And I definitely still am doing a good bit of research, everyday!! And yes, I've gotten some great tips from everyone, and I do plan on following up on that information as well! I thank you all!!
Good luck to you and everyone! I hope that we all get the relief we SO desperately need!!
Keep the advice coming, I really need it!! I love to hear what people say too, rather than just what I find, because the information a lot of the time is doctor based or product based, so finding GOOD information can be hard! Thank you very much, I really do appreciate the advice!!