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tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 7/9/2008 7:59 PM (GMT -7)   
My name is Tom, 55 years old and 100 % disabled as a result of two horrible auto accidents. My entire neck is fused and considered a failed surgery.
From the bone graft for the neck fusion I got meralgia parasetica to both hip which has been called RSDS. Also from one of the surgeries I came down with a severed facial trigeminial
nerve problem. Also my left shoulder has a rotor cuff tear ( yet to be addressed )
My Left knee was total replaced and that failed and has to be replaced once again and then there is the constant lumbar pain. total major surgeries 57
with so many out-patient procedures for nerve blocks and other stuff I have lost count.
I am presently on Kadian with Norco for breakthru pain and my Pain Doc informs me that the next move is to install a "pain pump" ?
I was in a wheelchair and hated it so much somehow I managed ( with Angels on my shoulders ) to work my way out of it. I walk like a turtle and have a bad limp and my back constantly hurts. When I come into a dark room I light it up with all the xrays I have had.
Life in pain really sucks but talking and sharing with others in "all" time pain to me really helps me deal with my problems.
I belonged to another group about a year ago and stopped simply because of the negative comments almost everyone had. I look forward to being a
useful member and really enjoy reading everyones comments and suggestions.
To keep my sanity I try and train K9 Dogs for therapy and service work, presently I have two Dogs, one Dutch Shepherd and One German Shepherd
on days that I have a hard time even moving the Dogs inspire me to do something positive. I was wondering if anyone else uses animals to keep their sanity ?
I know a lot of people have "pain pumps" I believe that is my next option and I need to get feedback and knowledge on everything from installation to maintence of the pump if anyone cares to share this information with me. Cordially, Tom

Post Edited (tom inpain) : 7/9/2008 9:11:12 PM (GMT-6)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/9/2008 9:56 PM (GMT -7)   

Hi Tom and welcome to Healing Well. I am sorry to read of all your troubles, but believe me you have come to a great place. The people on here are very compassionate and caring. We exchange as many tips as possible, but always remain with what may work for me, may not work for you. As you know with chronic pain it is a very individual disease. I found HW after having a complete blockage and abscess and an emergency bowel resection in o2, that was when I was d'x w/crohns. This place saved my life learning about crohns, I had no clue and was into denial.

I have dealt with chronic pain for over 20yrs, mostly it has been my lower back involved. I was referred to a pain mgt dr in 04 and I have been with him since. I am a successful pump patient. Mine was implanted June of 05. The 2 keys things that made me a canidate is I had pain in so many areas of my body and the dr said no could oral meds touch it, and I had a very difficult time tolerating the oral meds. If the side effects did not get me, then my body would have its own revolt and we ran out of options. The surgery was pretty major as far as I am concerned. Granted I have many health issues and due to them it affects my ability to heal quickly. My immune system is compromised due to my crohns medications.

You must have a physch consult which is required by the law, its no big deal. The trial was awesome, I was nearly pain free and thought I had died & gone to heaven. But, I assure you once you have the pump implanted in the beginning, you do feel near that great. The key is the correct medications used in the pump and getting increases until the pain is in better control. My dr gives 20% increases when titrating the doseage, but due to other health issues my increases were given at 10%. I did this for a year and became extremely frustrated because I was still in so much pain. He finally started increasing me 20% and did this over 2 week intervals to make sure I tolerated it. He then increased the Dilaudid to a 15mg concentration and finally I could say great, it was worth it. Along with the Dilaudid I have 3 other medications in my pump. My meds come from a pharmacy all packaged & sealed in one big syringe.

For some reason my surgery was done as an out patient and I do not agree with this. They do make a rather large incision in the middle of your back to feed the catheter around to the front. They make a decent size incision on your stomach, mine is on the right side of my stomach and thats where they make a flap for the pump. I have seen mine on xrays and it is really small, including the catheter, I was shocked. I sure do have big scars for such tiny equipment,lol. You are limited with the pump as far as lifting, bending, reaching over head and ect. Most of the things you are cautioned on, you can't do with a bad back anyway.

I have a Medtronic pump and its one of the older ones. Mine is currently on recall for gears not working properly. However, I am having no problems with my pump at all, and the dr & I agree if ain't broke don't fix it. This problems has occurred in some of these particular models but that is not saying all of them will fail. The other alert is masses developing at the tips of the catheter. I had my pump refilled yesterday and my dr says its uneducated drs causing this problem. He says its due to not using the correct medications in these pumps and people being on too high of doses. The dr needs to know what meds he can and what meds he cannot use in the pumps. Alot of medications will cause granulomas if given in high doses and this is not limited to people with a pump. When I read the alert from the FDA it pretty much said the same thing. My current doseage is less than 3 1/2 milligrams of meds in 24 hrs so I am not worried. You should also be given BT meds with the pump. I do better taking a muscle relaxer because its usually spasms causing the pain. 

You will find some people have had great success and then those it did not work for. I love it and I am very thankful I have it. It also allows me to spend good time with my 3yr old grandson. I planted flowers this past spring, something I haven't done in awhile. I am free from clock watching waiting till its time to take the next pill. I have no highs or low, its constant relief. I am usually up every morning very early watering all my flowers and hosing off the patio and deck. I sometimes rest in between, its best to learn to pace yourself. My husband does help with the housework, he does most of the sweeping & mopping.

If there is any thing else you need to know, please post it and I will try to help you. Susie



Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 7/9/2008 10:09 PM (GMT -7)   
Hi Tom,

And welcome to our oasis in this desert of pain!...lol It is helpful to talk to people who truly understand pain. I'm so sorry you've had more than your share of misery. Maybe by getting the pump you can have some decent quality to your life.

I have fibromyalgia which is all over pain and not a candidate for a pump, but as you've already seen we have members who will share their experience with you. Remember tho...that most people who do well don't rant about them. They quietly live their lives. The ones who have problems are often the ones who post. At "our age" ;-) I'm sure you already realize this.

Hugs,
CHutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/10/2008 7:14 AM (GMT -7)   
Hi Tom and nice to meet you, wish it was under better circumstances though.
my pain is from a car wreck too and it wasn't our fault, plus insurance isn't paying for it anymore. It happened over 10 years ago and the doctor's at the time said i had sprained the whole left side of my spine and I still have a pinched nerve they can't seems to find. been thru injection hell, like you. Plus I need a procedure insurance keeps denying, yet they'll pay for surgery.
Your job sure sounds like fun being able to train dogs to help others must give you a good feeling!
I have two cats and they sure do help, cause I can focus on them and not the pain sometimes. To me (and this might sounds crazy) animals are like angels cause they can help us so much. Animals (pets) can be the best physical therapy anyday. So hold on tight to that job of yours.
I wish you a pain free day and good luck with that knee and shoulder too!
Lots of soft hugz
Sorry I couldn't help you with info on the pain pump, as it'll be in my future.
************************
* Asthma
* Allergies
* Osteoarthritis
* Spinal Stenosis
* Mild DDD
* Enlarged
Pituitary Gland
* Fibromyalgia
*************************

Patient: "I always see spots with my eyes"
Doctor: "Didn't the new glasses help?"
Patient "Yes, now I see the spots clearer"

Post Edited (Chartreux) : 7/10/2008 8:20:01 AM (GMT-6)


tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 7/10/2008 7:24 PM (GMT -7)   
Hi : thanks for caring comments. One thing that really bugged me was the insurance company comment that they will not pay for pain relief but they will pay to cut You open !!! Surgery should always be the very last resort. When i go to my pain doc i always speak to everyone and everyone there so far is a surgical victim. When asked if they could turn the hands of time back and reconsider surgery they always stated they would rather put up with the "original "
pain vs what they have now.
I had no choice as my neck was broken in three places yet i had no pain and had full range of motion just some discomfort right after the accident. While being xrayed in the e/r they discovered the fractures and put me in retraints so i could not move and the rest is my history of pain and extreme discomfort
Sometimes I sit around and wonder how I could start a revolt against the insurance companies for everyone has a horror story. Thanks again ,Tom

Morgoth
Regular Member


Date Joined May 2008
Total Posts : 177
   Posted 7/10/2008 7:45 PM (GMT -7)   
Oh Boy, you're a mess ... so welcome to our Forum, you'll fit right in.

Insurance companies can be a pain in the ***, never done much good except for themselves if you ask me, but I think ust people agree on this one.

Animals, yes, well, that's a bit diffirent with me. I've been having internal bleedings (mostly abdominal) since 1993, but in 2000 I was ran over by a car; bad. After three months hospital (August - October), I got back home for further revalidation (rev
To stand and be still at the Birkenhead Drill is a mighty bullet to shew.


Morgoth
Regular Member


Date Joined May 2008
Total Posts : 177
   Posted 7/10/2008 7:45 PM (GMT -7)   
Oh Boy, you're a mess ... so welcome to our Forum, you'll fit right in.

Insurance companies can be a pain in the ***, never done much good except for themselves if you ask me, but I think ust people agree on this one.

Animals, yes, well, that's a bit diffirent with me. I've been having internal bleedings (mostly abdominal) since 1993, but in 2000 I was ran over by a car; bad. After three months hospital (August - October), I got back home for further revalidation (rev
To stand and be still at the Birkenhead Drill is a mighty bullet to shew.


Morgoth
Regular Member


Date Joined May 2008
Total Posts : 177
   Posted 7/10/2008 7:45 PM (GMT -7)   
Oh Boy, you're a mess ... so welcome to our Forum, you'll fit right in.

Insurance companies can be a pain in the ***, never done much good except for themselves if you ask me, but I think ust people agree on this one.

Animals, yes, well, that's a bit diffirent with me. I've been having internal bleedings (mostly abdominal) since 1993, but in 2000 I was ran over by a car; bad. After three months hospital (August - October), I got back home for further revalidation (rev
To stand and be still at the Birkenhead Drill is a mighty bullet to shew.


Morgoth
Regular Member


Date Joined May 2008
Total Posts : 177
   Posted 7/10/2008 7:45 PM (GMT -7)   
Oh Boy, you're a mess ... so welcome to our Forum, you'll fit right in.

Insurance companies can be a pain in the ***, never done much good except for themselves if you ask me, but I think ust people agree on this one.

Animals, yes, well, that's a bit diffirent with me. I've been having internal bleedings (mostly abdominal) since 1993, but in 2000 I was ran over by a car; bad. After three months hospital (August - October), I got back home for further revalidation (rev
To stand and be still at the Birkenhead Drill is a mighty bullet to shew.


Morgoth
Regular Member


Date Joined May 2008
Total Posts : 177
   Posted 7/10/2008 7:45 PM (GMT -7)   
Oh Boy, you're a mess ... so welcome to our Forum, you'll fit right in.

Insurance companies can be a pain in the ***, never done much good except for themselves if you ask me, but I think ust people agree on this one.

Animals, yes, well, that's a bit diffirent with me. I've been having internal bleedings (mostly abdominal) since 1993, but in 2000 I was ran over by a car; bad. After three months hospital (August - October), I got back home for further revalidation (rev
To stand and be still at the Birkenhead Drill is a mighty bullet to shew.


Morgoth
Regular Member


Date Joined May 2008
Total Posts : 177
   Posted 7/10/2008 7:51 PM (GMT -7)   
Sorry about that, I'll start again.

Oh Boy, you're a mess ... so welcome to our Forum, you'll fit right in.

Insurance companies can be a pain in the ***, never done much good except for themselves if you ask me, but I think ust people agree on this one.

Animals, yes, well, that's a bit diffirent with me. I've been having internal bleedings (mostly abdominal) since 1993, but in 2000 I was ran over by a car; bad. After three months hospital (August - October), I got back home for further revalidation (they do it at home here in Belgium sometimes). Early November 2000 a crippled tommycat walked in (actually I had to earn his thrust first). The poor little fellow is a mess. His ribs are broken and pointing in various directions, his chest bone is broken and points downwards, he has virtually no teeth left, some liver problems, infections, etc. We (my family and I) took care of him with the help of several vets and now he is a happy cat who knows what pain is. He is a great support. Animals feel when you re in pain and often try to confort you. Similarly, we have learned to see when something is the matter with him. We've all become very close friends and I must say a couple of friendly words from the cat in the morning make my day.

Take care.


--------------------------------------------------------------------------------
To stand and be still at the Birkenhead Drill is a mighty bullet to shew.


JulietteSuzanne
Regular Member


Date Joined Dec 2007
Total Posts : 104
   Posted 7/10/2008 8:57 PM (GMT -7)   
Tom,

This is a great place and you will find lots of supportive people here. I don't post much, but just reading about the support others give to members on a daily basis, helps me cope vicariously!

I have Trigeminal Neuralgia as well (Type Two- which translates to mean "CHRONIC!!!") and Atypical Face Pain and I can't imagine having this painful condition ALONG with the multitude of other conditions that you have. You are a trooper!

My former next door neighbor was an ex-FBI agent who also trained German Shepherd's for police dogs. They are awesome, highly intelligent animals. (Kinda like the people on this forum! :-)

I hope the pain pump will help some. Keep us posted on the progress.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/10/2008 9:16 PM (GMT -7)   
Dear Tom,
It's late and I'm exhausted, but I've not yet welcomed you to the forum, so I wanted to say hello. Certainly am sorry you have to be here, but glad you found us.

As far as animals, I've always had either a cat or dog (sometimes both), but 3 years ago I had to put my 20 year old cat down. I'd love to get another, but I live alone and with all my health and financial problems now is not the time. So I visit relatives and cuddle with their pets from time to time. Animals are true blessings and caregivers without even trying.

Again, welcome.

PaLady
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