Post Edited (MMMNAVY) : 7/13/2008 4:46:26 PM (GMT-6)
Browneyes, I have just went through the trial myself!! I have to say, check and make sure that your stimulation isn't too high, I think that gave me a feeling like I had noodle legs!! LOL! Try that, don't know!
I am still considering getting the permanent myself, so I can't help there, but this forum has TONS of great info about them! People here are VERY helpful!!
I did get a LOT of pain at the lead site, and it seemed to wrap around to the side and front with that, but I hear that the permanent doesn't have that problem because everything is under the skin.
Please make sure to have a sucessful trial before you decide ANYTHING!! I had a successful trial, according to my doc, but I'm still not so sure about it because of all the problems I hear!! I still have to see another doc to see what he says too!
Best wishes to you, and I hope this helps a little! Please write if you have any more questions!! Oh, and I would talk to your doc if you are having that much pain!! I wasn't given any extra pain meds and that made it VERY hard to tell if the device was helping at first or not!!
Good luck to you, and all!!
Thank you so much everyone for all your help and your advise.. I called my doctor today. He said it was normal to have the pain I was having.. But am going to have the "trial" removed Wendsday. The doctor said he would put the permament one in if it is needed.. I was only able to get about 1/3 of my pain relieved.. But again from all the pain in the area the leads are coming out.. Who really knows if it helped or not.. Again thank you all for all your help...
Rare neurodegenerative disease called “Multiple System Atrophy”. Wheelchair, O2, & Bipap, intrathecal pump, Neurostimulator, dystonia, neuropathic pain and spasticity.
I had a medtronic neurostimulater implanted in October 2006. I have failed back surgery syndrome, aka there's nothing more the dr's can do surgically. I have pain in my lower back, down both sides of my legs and feet. The neurostimulator has reduced my pain by 60 to 70%. I take Ultram and Lyrica to augment the 30 to 40%. For me, it's better than wearing a fentanyl patch.
Good luck making your decision. Let me know if you have any further questions.
Post Edited (nclee) : 2/21/2009 2:53:26 PM (GMT-7)