Post Edited (tom inpain) : 7/15/2008 8:25:35 PM (GMT-6)
Thank you Sandi and Tom!! I appreciate your support!
I'm very concerned now because this has been going on for about 2 or so years!! The only real trauma I had was being rear ended, that is what caused my back trouble, I had a little urgency, but it really started about 2 or so years after the accident! I went to a urologist and he was only able to tell me that it wasn't stuctural, which my PM doc said that it means it has to be nerve related. I stopped seeing the urologist because all he was doing was try this med, try that med, and he is a very well know doc in the area! I know that just because he's so good doesn't mean that he didn't miss something! So, I've been dealing with this for a good while, so if it is CES, then wouldn't I be in bad shape? Did I wait too long?
The only surgery I had was the decompression in my back for L3-4, but that only made my pain worse!! But that was the begining of this year, so I don't think it was that!
I'm really nervous now, if I should be seen about this right away, and I've been dealing with this for so long, what's going to happen? Could it get worse?
What do they do for CES?
Sandi, I have to ask, what did you mean by the decompression? Are you talking about the decompression in the back, or is there another procedure for the CES?
Also, Tom, thank you for the advice about going to the University, but they won't see me because I have a lawyer!! They don't want to take away from their other patients!! I have my issues with that, but that's another story!! LOL!
Thank you very much for your advice and support!!
Good luck to you all!!
Post Edited (tom inpain) : 7/16/2008 9:35:55 PM (GMT-6)
OMG, Sandi, I'm SO sorry about what happened to you! You should NEVER have had to go through all that, I'm SO, SO sorry! That is what I don't understand about doctors, they are just trying to make room for the next "victim"! I was talking with my boyfriend about all the great info that you all have given me, and my Urologist NEVER did urodynamic testing!! I told him from the get, that I was there because we suspected that it has to do with my back!! And he said, well, we are going to start from the begining, because it could be an infection or something that is treatable, he tried med after med, test after test, but NEVER the urodynamics!! I am beside myself that even the referral to go to him was from my PM, not my PCP, so there is NO reason for him NOT to have done that for me! So, I could have had this all these years, and no one EVER did anything for me! I have to see about another urologist!! Thank you all for such GREAT info!!
And yes, thank you PALady for answering that question for me!! You had it all right, thank you! And Tom, I'm SO glad that things worked out in your case!!
Sandi, you are doing a wonderful job, and thank you for telling me about your condition! I know it must be hard. I pray for you, and everyone here.
I am VERY nervous about this now, considering that it could be a varied symptom of the CES! I will seek another urologist, or my boyfriend had a good idea too, is get the PCP or the PM to write a script for the urodynamics test! I had a scope done, that determined how much my bladder could hold, and it was about 4 oz before I felt like I had to go, then about 6 oz. I felt like I was going to burst, he said he found nothing stuctural, and he wanted me to come back! I was SO sick of going time after time, we are thinking that he was just drawing out the treatment, so he could get more money from me and my visits! He sees mostly older people and I think he is trying to get over on them, he's an older fellow himself, and I think that maybe he is trying to get his retirement funded! But, he is supposedly well known, and that is what really gets me!
Thank you all for your valued support!! I appreciate all your info, and Sandi, you can always PM me too with that website?! Anyone can PM me, for anything, I don't mind! Hearing what has happened to you, Sandi, has me really concerned! Thank you for answering all my questions too, and I think that you have helped a number of us understand what this is, and that we really have to be careful, and sometimes fight with our docs to do the right thing!
I have a L3-4 impingment, a L4-5 herniation (which never really bothered me before the accident, and even during the discogram- this was from a prior thing, but never created a problem with my playing softball, or functioning), and the rest is in my neck. Now, I had a decompression in the L3-4 and it made my pain worse. The symptoms of the bladder didn't change. The pain was in both of my legs, but seems to have leveled off to where my right leg is my main problem, though I get some pain in my left thigh too, but my doc seems to ignore that because my main problem is the right. And I had my years off a little too, the accident was about 5 years ago, then I started to get some of the urgency about a year later is when I was noticing it, then about 2 years after the accident, I was peeing the bed, and having a hard time getting to the bathroom. At first I though it might be the meds, but then when I didn't take them, I still wet the bed! So, that is when I talked to the doc and he sent me to the uro, and here I am now, still with the problem! I have to say, the Cranberry really helps to keep it at bay! If I don't take the Cranberry, I WILL wet the bed. I have adult diapers, I've even had bed liners, and I have that waterproof mattress cover. Before I was trying the cranberry, I was really bad, I was doing this EVERY night! Now it's occassional, with the cranberry, but God forbid if I forget to take it!! LOL! So, I don't know if that give you better insight on my issues, but I certainly still will look for another uro!! Thank you SO much!
I wish you all well, and I do keep everyone in my thoughts and prayers too!
Sandi, thank you SO much! I really appreciate this a LOT!! I didn't know that there are some urogynocologists! That is very interesting and will look into that! I have an OB and I can check with them to see if they do those tests! I don't know though, but it's worth a shot, because I have to make my annual appt anyway! Thank you for that great info!
Also very good to know that the cytoscope was worse than the uro testing! That cytoscope was SO uncomfortable, I agree, even that numbing didn't help!! That burning wasn't pleasant at all!!
Ok, so maybe the doc wasn't drawing things out as much as I thought, but he still didn't listen when it came down to the main issue I was there for! So, I thank you for correcting my thoughts on that one! I don't like to think poorly of doc's unless they give me good reason, because I know they are human and make mistakes too, but hey, if someone comes in and tells you why you are there, and they don't test for it, what's the use, right?! LOL! I appreciate that correction, and I think that was what he was doing at first too, checking to see if different meds would help. The Detrol was the only thing that gave me a little relief in the begining (that was the first med I took) and it helped for about a month, then from then I was switched many times, and nothing even put a dent in it, so you are right, if it's nerve it probably isn't going to help!
Again, thank you, thank you, thank you!!! I can't thank you enough for helping me through my confusion and difficulty! I see a couple new docs soon, so I will ask them about a good uro that is informed about spinal problems, as you said! I will keep you posted as I find out what is going on! Thank you SO much!
I have you in my thoughts and prayers with everything that you are going through with that, I feel terrible that you, or anyone has to go through that! You know, I was angry when I was first rear ended, so I know how you feel, but it's life and I think with time, you start to realize that. Also, as I said before, I think this has made me more compassionate of a person, though I was very compassionate to begin with, it really has made me a better person because of it! Thank you again! Good luck to you and everyone here!!
Post Edited (~Cloe~) : 7/23/2008 8:20:01 PM (GMT-6)