Any helpful advice

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d_davis777
Regular Member


Date Joined Oct 2006
Total Posts : 101
   Posted 7/15/2008 4:14 PM (GMT -7)   
I know its been a while but i have been going out of my mind! On top of all my medical issues and since my brain surgery in dec. of this past year (still having problems with it) it seems everything has gone to he** in a hand basket well now on top of it my 5 year old daughter was just dx with scoliosis. For at least a year she has complained of her back and we have pushed it off and as well as the MD did too. She has chronic bowel issues so thats what the blame was for her back pain. I have been reading so many stories about the braces or shall i say the three types of braces and how much they hurt. Im so scared for my daughter she is so bright and is taking two languages and speaks both well. She was inspired by Dora the Explorer. So she takes dual language. I cant see her go through all this when i know how much as well as a lot others know the amount of pain and suffering. I am at a loss right now. I am having a hard time taking all this in. Any suggestions or positive feed back would be great! Thank you and i pray everyone is at the lowest amount of pain possible!
Asthma,Chiari Malformation,Arachnoid cyst on temporal lobe,Hypertension
Gerd, Severe nerve pain, Severe DDD, Osteoartheritis, Herniated disks,bilateral papiledema
Constent sinus infection, Bladder/Bowel problems, Depression,allergies and cervical cancer surviver,had a av shunt placed in my head,hyatel hernia,a.v. shunt placed,bilateral papiledema and scoliosis
 
 
God Bless You All!!
Donna


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/15/2008 5:52 PM (GMT -7)   
I am so sorry your daughter has to go through this but as I am sure you know the consequences of not doing it are much worse and think of her having to do it as a teenager instead. Plus, you say she already complains of back pain that will only get worse if it isn't corrected and she may have trouble breathing etc.
Anyway I am sure you already know all of that its just sometimes when we do something like put a back brace on a child we feel we are imposing pain on them-in reality you are sparing her pain later in life-the pain is already there you are just helping to correct the problem and make the pain go away.
Good luck with what ever you decide to do for her.
Sj

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 7/16/2008 10:53 AM (GMT -7)   
Hi Donna,

As parents we often impose unpleasant things on our children for their well being. We make them get immunizations that are no fun but it's far worse than the diseases. It's the same with scoliosis. Without the treatment she will be so much worse off that you don't even want to consider not doing it. You are doing it out of love and one day she will understand that too.

Hugs,
Chutz
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


Dragoness Warrior
Regular Member


Date Joined Jun 2008
Total Posts : 96
   Posted 7/16/2008 11:22 AM (GMT -7)   

Donna, Chutz and SJ have good advice here!

One thing you have to remember, I know it's very hard, but being worried about something you can't control is very overwhelming and makes you very anxious, try not to worry too much!!  I know it's SO hard because you don't want to see your daughter in pain.  I see what my parents go through with me, and I can see the hurt in their eyes!  Though, one thing you have to remember, is it's going to be a LOT harder for you to handle then them!  Your daughter will get used to it, to a point of it being a part of life!  I got asthma when I was 7, and boy, that was harder for my parents than me!!  LOL!  I got used to carrying the inhaler, and taking the daily meds, and hey, it's a part of my life, though a PITA sometimes, it keeps me from suffering!  And that will be the case with your daughter too, I'm sure it will bother you more than she!  Not that I'm trying to make light on the situation, but to help you understand that it's not worth making it harder on yourself, it's not good for you, and your daughter will sense and feel it too!  My parents worrying, makes me more upset, I don't want to see them hurt, but they don't want to see me hurt!  So, a lot of times, I try and hide it around my parents, but they see right through me, and my face, which is always wrinkled from pain, LOL!

Also, remember, just what Chutz and SJ were saying, it will be worse later in life, than now, it's great that they found this now, and not down the road, it could make it harder for the back to straighten!  If they use the device, it gradually straightens the back, if I'm educated correctly, it puts gently pressure, like braces on teeth, to straighten, so as she grows, they will gently pull the bones into correct positioning!  So, try and stay calm, I know, it's VERY hard, but you, and she will get through this!  Keep us posted on how things go!!

Good luck to you, your daughter, and all!!


Dragoness Warrior
Regular Member


Date Joined Jun 2008
Total Posts : 96
   Posted 7/16/2008 11:24 AM (GMT -7)   
PS, I'm sorry to hear you are having problems as well :( Let us know, we can try and help, you can vent, rant, rave, complain, worry, whatever you need, we are here! I wish you and your daughter the best! As well as all of you!

d_davis777
Regular Member


Date Joined Oct 2006
Total Posts : 101
   Posted 7/18/2008 9:56 AM (GMT -7)   
Thank you all so much for your advice. I do know worrying is doing no good for me as well as looking at things on the web doesnt help! It stressfull but i have just stated to myself that what ever god has instore for us we will deal with. I am very into my faith and i just have to put this into gods hands like i do with myself! I will continue to pray for my daughter as well as i hope others will too. Thank you all again so much for your kind thoughts! I do know kids are going to go through a lot in life and i can only just be here to guide them. I have to say the part that is bothering me is that my middle son and her are close and love to wrestle around and play fight, well i have been not allowing them to horse around out of fear that she will get hurt worse! Ok thanks again and i hope everyone is well!!!!!!

Asthma,Chiari Malformation,Arachnoid cyst on temporal lobe,Hypertension
Gerd, Severe nerve pain, Severe DDD, Osteoartheritis, Herniated disks,bilateral papiledema
Constent sinus infection, Bladder/Bowel problems, Depression,allergies and cervical cancer surviver,had a av shunt placed in my head,hyatel hernia,a.v. shunt placed,bilateral papiledema and scoliosis
 
 
God Bless You All!!
Donna


Dragoness Warrior
Regular Member


Date Joined Jun 2008
Total Posts : 96
   Posted 7/18/2008 12:41 PM (GMT -7)   
We'll have you and your daughter in our prayers!
 
I wish you and your daughter the best of luck!  Please keep up informed!!
 
Best wishes!!

d_davis777
Regular Member


Date Joined Oct 2006
Total Posts : 101
   Posted 7/19/2008 7:05 PM (GMT -7)   
Thank you all so much and i sure will keep you all informed we will find out more on my daughter on the 15th seems so far away!!! Thanks again

Asthma,Chiari Malformation,Arachnoid cyst on temporal lobe,Hypertension
Gerd, Severe nerve pain, Severe DDD, Osteoartheritis, Herniated disks,bilateral papiledema
Constent sinus infection, Bladder/Bowel problems, Depression,allergies and cervical cancer surviver,had a av shunt placed in my head,hyatel hernia,a.v. shunt placed,bilateral papiledema and scoliosis
 
 
God Bless You All!!
Donna


Freya
Regular Member


Date Joined Apr 2008
Total Posts : 164
   Posted 7/20/2008 12:34 AM (GMT -7)   
Donna, I'm so sorry about the pain your daughter is experiencing and having to help her in a way that could be painful. I cant imagine what you must be feeling right now not being able to take the pain away for her.
Kids adapt so much easier than we do. To things we cant even imagine they'll be able to.
I dont have children but remember some times when I was young and had to go through some hard times and things I didnt understand, I dont so much remember the pain but remember having my family there for me. I'm sure as long as she has her mom and family that will make all the difference in anything she has to go through.

I'm glad you have a strong faith, it can help you through anything.
Hang in there.

Freya
  In suffering, we are given the key to a door which most rarely 
      get to open.  Behind it lies the ultimate gift which is only visible
                             in our darkest hour.
                                True strength.


d_davis777
Regular Member


Date Joined Oct 2006
Total Posts : 101
   Posted 7/21/2008 11:17 AM (GMT -7)   
I do believe that as well. Even tho she is in pain she is so strong. I almost feel bad sometimes because i know how much i hurt and to know my daughter feels the same as me hurts even more. The hardest thing is my child has been saying for a while now (and i know i shouldnt be dwelling on this but.....)my daughter has complained of pain in her back and even walked hunched over and the words that came out of my mouth were Tyna stop pretending to be mommy!!!! That kills me to even think of that, or as well she has chronic bowel problems so when she would complain of her back hurting i would say oh you need to go try to move your bowels! So it bothers me that i didnt look deeper into why she was complaining or the one time i did i was told it could be her constipation and left it at that!  I know she doesnt blame me for anything and i know at this point she isnt even mad that she has pain or the fact that she may have surgery and she will need to were different braces. It doesnt bother her at all. She will make comments to her sibilings about please dont do that it hurts my hip or it hurts my back but she is such a trooper! I thank god everyday for the little things and thank him even hard for the bigger ones. Im blessed to have such a well mannered easy going child or children at that fact.  I think her step dad, my oldest and i worry more for her then she does lol! Sorry so long just venting thanks for everyones eyes and ears!
Asthma,Chiari Malformation,Arachnoid cyst on temporal lobe,Hypertension
Gerd, Severe nerve pain, Severe DDD, Osteoartheritis, Herniated disks,bilateral papiledema
Constent sinus infection, Bladder/Bowel problems, Depression,allergies and cervical cancer surviver,had a av shunt placed in my head,hyatel hernia,a.v. shunt placed,bilateral papiledema and scoliosis
 
 
God Bless You All!!
Donna

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