Lyrica for nerve pain

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Red_34
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   Posted 7/21/2008 7:56 AM (GMT -6)   
In my recent reply to Ry, I thought I would create a new post and ask my question.  I am only having partial relief from the epidural I got last Tuesday.  The doc mentioned starting me on Lyrica for my nerve pain.  Has anyone ever been on this and if so, how quickly did you adjust to it if at all? Any info you can provide about this med would be appreciated.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections~bulging and herniated discs C5,C6&C7~2nd epidural injection 8/14
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ryand
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   Posted 7/21/2008 8:12 AM (GMT -6)   
Hi, Sherry! I am sorry to hear the Epidural wasn't the answer for you. It didn't work for me either, but I was hopeful that after you had a little initial relief it might get better for you. I did try Lyrica, but without any success at all. They started me with a lower dose (I don't remember how much - sorry) and then when it didn't work they kept bumping it up and up and up until it became clear it just wasn't going to work for me. I didn't really have any side-effects that I noticed from this one though, so that was good. When they tried neurontin, it didn't do anything for the pain, but it made me unable to remember my own name or complete a simple sentence! UGH! I couldn't get off that stuff fast enough.

I've heard some people have really good success with Lyrica, so hopefully it will help you. But if it doesn't, ask your doctor about Zonegran. That is what they've got me on now for the nerve pain, and it is the first one they've tried that actually helps! I'm going to ask the doctor if I can increase it again at my next appointment since the burning has come back with this latest flare, but before that, it had really seemed to settle it down a bit! And here is the best part... Zonegran is NOT a brand new drug that costs loads of $$$. It has a generic (zonisamide) so it's super inexpensive. Also some other news that some people may like is that it does not have weight gain as a side-effect. Quite the opposite, actually, although I've not noticed a difference one way or the other. I actually haven't noticed any side effects at all with this stuff - just a decrease in the nerve pain. My only wish is that it worked on all the other pain too! tongue

I am glad to hear the swelling and redness have gone down for you, though. That had me a bit worried for you. I will still hope and pray the the epidural will increase in effectiveness if that is possible and I hope you get some relief soon.

Ry

Scarred_for_life
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Date Joined Jul 2008
Total Posts : 1559
   Posted 7/21/2008 8:20 AM (GMT -6)   
Lyrica......worked for awhile, but after so many years of being on it started to not do what it was suppose to and I was taken off of it 4 years ago.
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


Red_34
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Date Joined Apr 2004
Total Posts : 22023
   Posted 7/21/2008 9:28 AM (GMT -6)   
Thanks for the replies! Actually I'm not worried about the cost of any of my meds. I have great insurance with a $5 copay for generic and $11 for brand. Good thing too because I added up my meds one time and it came close to $1,000 a month!

I don't see my neurologist until August but I am thinking of calling him up and asking him to start me on Lyrica. These sharp shooting pains in my neck are driving me insane! So I guess basically this is one of those meds that may or may not work and like many other meds can lose it's effectiveness over time huh? I have been on Neurontin and Skelaxin; both of which hardly helped at all. Skelaxin was the better of the two though because it took the edge of it but it didn't get rid of the pain. I'm hoping that Lyrica can do better then those 2.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections~bulging and herniated discs C5,C6&C7~2nd epidural injection 8/14
To help Healingwell - click here: DONATE
 
 
 
 

 
 


straydog
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Date Joined Feb 2003
Total Posts : 11301
   Posted 7/21/2008 2:24 PM (GMT -6)   
Lyrica is is also being used for diabetics with neuropathy. I ws on it for quie a while with good results for neuropathy in my feet & hands. But like most stuff taken orally, it stopped for me. I just have this crazy system that does not like meds very well.I did not suffer any side effects either. Good luck, Susie


Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2154
   Posted 7/30/2008 10:47 PM (GMT -6)   
Lyrica is a really good med. It's been the only "preventative" medication I've been able to tolerate long-term. I started at 50mg, but didn't get any relief. 100 gave me some relief, but 150 was the best for me. From what I hear, that's still a low dose. I know plenty of people who take 450/day so no knowing what will work for you, but no matter what you have to step up to higher doses. I never got used to the sleepiness, so I mostly took it at night (when I needed help sleeping anyways). Also, as a positive for me, I gained about 15 pounds. I was super sick before I started it, so that was good. After being on it for 3 years, I got a new pain problem and got real sick again and lost the weight & didn't put it back on. I do know some people at my neurologist's who put on like 150-300 lbs. from Lyrica. It makes you really hungry. If you already have a problem and don't feel much like eating that is a huge bonus, otherwise "buyer beware".

I'm not sure what you're being treated for, but I know when I only got partial relief from epidurals, my pain specialist tried RF (radio frequency nerve ablation). They burn little lesions on your nerves to keep them from transmitting pain. It's much happier because there's no drugs involved (just a little bit of local for the procedure for them to put the needle-like thing in that makes the lesions). Before they actually burn anything, they do injections under flouroscope.

I've had a lot more success with the injections (including epidurals) when they are done under a flouroscope because it removes most of the guesswork & the doctor can mark the exact place you got relief (or didn't get relief) and use that as a reference in the future. Since you've got good insurance, it might be worth asking about. It generally has to be pre-approved, same as surgery, but I think it's usually been worth the wait.

straydog
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Date Joined Feb 2003
Total Posts : 11301
   Posted 8/13/2008 6:48 PM (GMT -6)   
Red 34, I too have herniations at C5-6 and C6-7. I am hard headed and refused surgery. One thing that really helps me alot is I take a hand towel and wet it, wring it out and put it in the microwave a few seconds. Be sure not to burn yourself, but this makes the best moist heat around, which is much better than dry heat. Make a roll out of your towel and put it around your neck, its awesome. I also have hubby rub Tiger balm on my neck and shoulders when doing moist heat. Learned this from my massage therapist.Might consider Zanaflex as a muscle relaxer, really helps me, Skelaxin did nothing, SSusie


TDoern
Regular Member


Date Joined Jul 2006
Total Posts : 495
   Posted 8/13/2008 11:39 PM (GMT -6)   
I just wanted to add in about the muscle relaxer - I was started by my new pain management doc on baclofen - I'm on the smallest dose -10mg and it has done wonders for me. I was on soma previously and all that did was give a small amount of fast relief,the baclofen has made it where I'm not dealing with the spasms even 1/10th as often as I was.
"When we come to the edge of the light we know, and are about to step off into the darkness of the unknown, of one thing we can be sure; either God will provide something solid to stand on... or we will be taught to fly.'"

Dx: Degenerative Disc Disease, Polycystic Ovarian Syndrome, IBS-d, Ruptured & Fused L4-L5-S1, Bulging/Ruptured L3-L4, Sciatica, Neuropathy, Costochondritis, Reflux, Gastric Bypass Surgery 12/6/07
Rx: Kadian 50mg - every 12 hours, Percocet 5/325 - up to 4 daily, Baclofen 10mg - 3 daily, Amitriptylene 200mg - at bedtime, Prevacid Solutabs - 1 daily, various vitamins.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 22023
   Posted 8/14/2008 6:04 AM (GMT -6)   
Susie, thanks for the tip about the warm moist towel. Ah that sounds like heaven! :)

Well the update on this post is that my insurance denied my prescription for Lyrica. They stated that it hasn't been sufficiently studied in neuropathys for them to consider it safe and therefore they won't cover it. Eh? Ok whatever - I have a stupid HMO. Anyway, the doc put me on Skelaxin and Neurontin together. It did make me feel a lot better but I found that I just can't take them together because I was a zombie. So now I am taking Neurontin 3x's a day and 1 Skelaxin in the evening before bed. This has made me feel a load better - not so zombified. I am going in for my 2nd epidural today.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14, Neurontin and Skelaxin
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~Cloe~
Regular Member


Date Joined Jul 2008
Total Posts : 125
   Posted 8/14/2008 8:59 AM (GMT -6)   
I began taking Lyrica 25mg 3x day. I was bumped up to 50mg 3x day.
I started having strange dreams as well as mania. I woke up one night on the floor trying to get into this white wall, my deceased father was motioning me to come in but the wall turned black and my father disappeared. I do not know if these strange dreams were from the Lyrica/mania? I also had to keep one eye shut as I had double vision. This was the main problem for me.
I too never felt full after eating, I was always hungry and my hands and feet swelled up. My doctor wanted me to ween off lyrica but I just stopped cold turkey without any problems. Looking back maybe I was on it for 3months max.
Hope all is well!
Cloe

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 11301
   Posted 8/14/2008 1:05 PM (GMT -6)   
Hi Red, so glad to hear you are finally getting some relief with your meds. I sure hope the Eppies help, its a crap shoot with them, sometimes they help and sometimes they don't. Oh man, you are so right about having an HMO. We had one about 20yrs ago and never again. Hugs, Susie


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 22023
   Posted 8/15/2008 7:41 AM (GMT -6)   
Yeah, I don't understand Blue Care Networks reasoning on some things. Like for instance, a few years ago I was on Ambien. The Ambien worked great in the beginning but I was becoming tolerant to it and I was still waking up in the middle of the night so my doc wanted me to try Ambien CR. My insurance denied it. I didn't persue the matter because shortly after I tried a few samples the doc gave me of Ambien CR, my gma who lived with had to be rushed to the ER in the middle of the night. Of course there was NO way I could drive so my hubby had to drive us. We were there all night and I don't remember a thing. Which is NOT good considering that I am her DPOA! So now I take Tylonel Simply Sleep and I am able to wake up in the middle of the night now with no amnesia affect. But I have had my insurance deny more meds then they cover. It's like pulling teeth sometimes. Other then the prescription denials though, I have never had a problem with them with referrals to specialists and/or covering my many tests.

I had my second epi yesterday and other then the injection site being a bit tender, I actually feel much better today. Though I got almost NO sleep last night because steroids make me a jittery mess. But at least some of the residual pain is subsiding already. I could tell that the last epi was starting to wear off because I was having the neck pain again. So I am hoping that by the time I get my 3rd injection, it will take care of it for a long time.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Chartreux
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Date Joined Aug 2006
Total Posts : 8162
   Posted 8/15/2008 8:29 AM (GMT -6)   
Good Luck and well wishes for those injections Sherry!
Sure hope they work for you! yeah
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Waterbaby
Regular Member


Date Joined Aug 2008
Total Posts : 96
   Posted 9/2/2008 3:48 PM (GMT -6)   
Lyrica is helping me immensely with the deep burning pain in my low back and shoulder blades. I take 150mg. twice a day. (total 300mg per day) It took about 3 to 4 weeks to really kick in and reach it's maximum effect. I do wake up with a headache every morning since I started taking it, but it goes away with a half an hour. I was started on a lower dosage and then worked up to 300mg daily.
bulging discs in neck & thoracic region, low back pain, arthritis in lumbar region, diabetes, high blood pressure, depression, anxiety,
meds: enjuvia, pristiq, actos, amaryl, lyrica, hyzaar, vicodin
 
 
"Two paths diverged in a yellow wood, and I, I took the one less traveled by...And that has made all the difference."  Robert Frost


Pamela Neckpain
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Date Joined May 2008
Total Posts : 1821
   Posted 9/2/2008 9:19 PM (GMT -6)   
Red-34: I was just trying to think of that name Lyrica. Came on to the Forum and
that was the first thing my eyes fell on LYRICA. Maybe it's a sign. I took it
for a couple of weeks 6 months ago. It didn't work, so I gave it up. I've taken
Neurontin for years. I don't know that it does ANYTHING.
ryand: Zonegran. Huh? I'll ask my doctor. For some reason he decided to not
prescribe Lyrica.
Frances: OMG. I do not need weight gain. Thanks for the tip! My pain doctor never
suggests anything like Radio Frequency Nerve Ablation. I don't think he knows
ANYTHING but pain pump, pain pump, pain pum. I hear nothing good about those.
straydog: I'm gonna do the hot towel & tiger baum thing tonight. I have to be careful
of Ben Gay and stuff like that because over the years, I've burned my back deeply
with it. Don't worry, guys. I used it excessively. I should have had stock in it.
Pamela Neckpain
Continued

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 9/2/2008 9:40 PM (GMT -6)   
My pain doctor never tries anything new. I suffer ALL the time. I'm sure there are other modalities.
Red_34 maybe I didn't go on Lyrica because insurance didn't pay for it. In the beginning I was given
a boat load of samples from my psychiatrist. I go to the psychiatrist because no other doctors will give
me Xanax since I take Methadone. I also started with the psychiatrist because of late-diagnosed ADD.
(That is chronic pain of a different stripe. It's awful. No one even knew what was wrong with me.) I
understand ADD now and it's a good thing because I couldn't take the medication required to cure it.

I'm not sure I have Neuropathy. I'm going to have to find out. I sure do have something.

When I first came down with pain about seven years ago, I scanned for doctors to find out just why the
pain was so bad. Because of the location of my neck pain, they didn't want to do surgery unless it was
absolutely necessary (incontinence or not being able to walk) I'm learning a lot on the board and I think
I'll try to get some good medical help.
Pamela Neckpain
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome,.Prolapsed Bowel and Bladder, Attention Deficity Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety,

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