Ok need info and fast.....ok maybe not so fast but you know what I mean he he

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Scarred_for_life
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Date Joined Jul 2008
Total Posts : 1559
   Posted 7/22/2008 8:28 PM (GMT -7)   
Ok guys and gals,

Looks like hubby has had enough is ready to move to KS...need some info from anyone that knows a good pain specialist in Wichita KS. Will know definite tomorrow as to whether hubby is going to accept the position and all that. We are going to wait until after they do the Mylogram to get this done but I do need the info on a pain specialist before I even get this going.

So if anyone can help I would appreciate it :-)


Hoping each of you have a pain free or semi-pain free night


Hugssss

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/22/2008 8:41 PM (GMT -7)   
Scarred,
Of course, I can't offer any specific suggestions. Never been to Kanasa. But Wichita ought to have some major medical centers - preferably teaching hospitals. Maybe someone else will have specific names. But that's where I'd start if no one knows a doc.

One thought - I wonder if waiting to get the myelogram in Kansas might be a better idea. I don't really know if it would be. Wondering if you might do any damage while moving. Also sometimes docs want to do their own testing. I dont' know.

Big help I am....NOT!

PaLady

karmacrunch
New Member


Date Joined Jul 2008
Total Posts : 18
   Posted 7/22/2008 9:30 PM (GMT -7)   
Like PA I cannot offer specifics with regard to pain management specialists in Kansas.  However, I'm relatively sure a google search will get you started.  If you're looking for a more narrow list Scarred, I have the address and phone number of Dr. Michael Whitworth, supposedly one of the very best PM guys in the country.  I'd bet he might have a few names in his rolodex.  Let me know if you want the information.  He's in southeastern Indiana, and he's very personable and usually helpful.  Also, State of Kansas medical societies should offer some sort of specialties listing.  All those action and advocacy groups usually have links to PM docs in specific states....American Society for Action on Pain, American Pain Society, and one guy had a great list but I'm not sure he's still active...Skip Baker's "Panic" page used to contain hundreds of PM doctors contact information.
 
You'll locate several from which to choose, and that's a good thing, right? Like PA indicated, teaching hospitals are usually great resources for specialty docs!  I'll be wishing you the best and please let me know if I can help in any way!
 
I'm hurtin' and exhausted, so it's off to the black void for a few hours.  Until later....
 
Best Wishes & Godspeed!
 
karma
 
P.S.  Good Hump Day Morning!!!

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 7/23/2008 3:00 AM (GMT -7)   
Thanks all appreciate your input. I will look up a few today and call to see what their waiting list is as well as what they can do as far as keeping me on the pain meds that I am already on.

Hubby told me last night that not one of the service guys (the guys that work on tractors are staying, each has several irons in the fire so to speak and are ready to leave). 43k a year vs 60k a year makes a big difference when it comes to paying off the bills and such and it will not be like we are far from WY so that I can still see my family. I will be however closer to my youngest son by 100 miles, so that will be nice as well.

we have already looked at several homes and I cannot believe the prices that are there. I can buy a 4 bedroom two bath Victorian or colonial for around 100k and I believe that this home that we are in now will sell pretty fast. When the sun comes up around 8 or 9 I will call my Work Comp gal to see where we stand with the medical and stuff like that so that I know what hoops I have to jump through to get payments to the docs.

The one thing that I would like to see happen, is finding a new doc that is personable and that I feel comfortable around. Which means that I will spend several days on the phone finding the info that I need to make an informed decision for this. Hubby asked me if it was going to be hard for me to move since I have been in WY all my life and I told him where he goes I go! Not a regret on will I have for this move and I am just wanting him happy with his job.

There are plenty of deer in KS as well as birds, fishing and other things to keep me busy throughout the weekends. Hubby (with the exception of harvest season) will have all weekends off which I love this idea and Wichita is only 2 hours from where we will be living. So.....if everything goes right with today.....we will be moving before the end of the year.
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


karmacrunch
New Member


Date Joined Jul 2008
Total Posts : 18
   Posted 7/23/2008 6:08 AM (GMT -7)   
Good Morning Fellow Pain People!!
 
My hump day inculudes a trip to the hospital for an MRI of my miserable brain.  You'd think that after at least 4 of these things, the absence of any visible brain tissue would have been apparent by now.... confused !!  But I'll take the bus trip (it's finally below 90F! and a comfortable, gorgeous day) and perhaps learn more about how much the ongoing hypoxia is affecting stuff, also if any futher bleeding has occurred, and Lord knows what else my neuro looks for...I think he's compliling data for some personal research and I'm just another handy, though clinically interesting, lump of clay!  Worst case, I suppose, would involve a clot which has embolized to my head.   No radioactive contrast this time!  I've ingested so much of that sh&# that our local nuclear power plant uses me to calibrate their instruments!
 
Good luck with your search, Scarred!  And all that packing yet to come... eyes    I'm going to include the contact info for that PM doc I mentioned.  I think a 'cold call' will be welcomed and they really will help if they can!  Given his status among PM providers, I'd think he might have made contacts with other docs in Kansas at some conference or another.  So in case you need it:
 
Dr. Michael Whitworth, MD, PhD
4010 West Goeller Blvd., STFC
Advanced Pain Management
Columbus, Indina 47201-8892  PHONE:  1-812-324-8300
 
I'm running late (agan!) so I'll wish everyone a peaceful and relatively pain free day!!
 
Warm Regards,
 
karma

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 7/23/2008 7:02 AM (GMT -7)   
Thanks hun,

I shall see what they have to say...but I have a feeling that hubby will want someone closer as Pratt KS is 12 hours from Columbus IN. The one thing that I did find out is that in order to see a Pain Management Specialist in Wichita is the following;

1. Find my a family Doctor
2. Make an appt to see that person
3. go through an appt with family doctor.
4. If the family doc does not feel comfortable prescribing the medications that I am currently on she/he will refer me to a Pain Specialist.
5. Make appt with Pain Specialist
6 Go to the appt.

7......................Hope like hell that they will actually believe me and/or take me on as a patient and keep me on the medications that I am currently on.

Can anyone say "Jump through hoops once again???? Oh well, will deal with it cause this is what hubby wants to do and I cannot exactly say no to him for I feel like this is an opportunity that will bring us closer to being out of debt for good and he deserves as much. Besides.....I am by his side until death takes us and I have to support him. Tooo.....I am sooooo sick of him coming home in such bad moods because someone has chewed him out for something he has no control over (The Service Manager does not do his job and is just along for the ride...he's decided that he won't go that extra mile to drum up business and most of the guys are now either getting lower paychecks for his giving up or they are totally upset because he just won't do anything to help his Mechanics.)
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 7/23/2008 8:23 AM (GMT -7)   
Hi Scared : Do all i can--- the University of Penn. Has a nationwide and worldwide referral program. I called and emailed for You. At least Your moving closer and it will be a shorter four wheel drive here to N.J. See Ya soon ????? Tom
Tom Lasko


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 7/23/2008 8:31 AM (GMT -7)   
Tom;

Thanks so much. I look forward to your posts. BTW the four-wheeler is running great! Since my pain is down today I took a little zoom on it and boy I am ready to have some fun!
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13466
   Posted 7/23/2008 5:26 PM (GMT -7)   
Scared, I did not realize you were off work due to a W/C claim. I handled W/C claims for yrs at a law firm I worked at. I do hope you realize that the ins companies do what is called "activity checks". Which means they hire a guy to video you in hopes of catching you doing something you shouldn't because of a medical condition. Riding on a 4 wheeler hun, would tickle them to death to get a video of that. The would send a copy of that video to your drs and say it appears this person is not having the problems he/she is compaining of. Claim down the tubes. You will never see the person doing the video, trust me on this one. The can and do end paying for your medical care, if weekly benefits are paid, they are suspended. It tough for sure. Hugs, Susie


Scarred_for_life
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Date Joined Jul 2008
Total Posts : 1559
   Posted 7/23/2008 6:31 PM (GMT -7)   
I was joking Stray LOL. I haven't gotten to ride the four-wheeler as of yet even though I have thought of riding it down to the post office to get the mail. But I wish I could ride it and I wish that I was not in this much pain.

Yeah I know all about the WC people and what they do and I do not worry that they will catch me doing something that I haven't done. WC only pays for my medical bills and scripts. I do not get any monthly check from them as that was done years ago with a one lump sum payment in 2002.
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 7/23/2008 6:33 PM (GMT -7)   
Scarred And Susie: Susie is on target with this one, insurance company investigators went so far as to hang a camera from a telephone line across from my home. Plus i was video-ed walking my dogs thru the woods my attorney got the tape and the insurance asssssssssssss watched me stumble all over the place, fall onto a stump and cry ! ! the tape came back to haunt them in Court. They also questioned all the pharmacies in my area and all my neighbors. To the best of my knowledge they were not well recieved by my neighbors. Ive been here over 20 years know everyone and live in al laid back farm town. Strangers especially insurance assssssssssssssssss are not welcome. Scarred You got nothin to worry about with Your history but why give em anything to delay Your claim ??? Doubt if they would follow Ya all the way to Jersey where here You can raise hell riding thru the Pinelands which ( pinelands) are my back-yard. Your Scarred, in pain, cranky, old, nasty, friend in N.J. tom
Tom Lasko


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 7/23/2008 7:03 PM (GMT -7)   
I was kiddin!!!!!!! I did NOT ride the four-wheeler...geeeez Why does everyone think that just because I have a four-wheeler that I actually ride it? Come on guys and gals I was joking around.
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 7/23/2008 7:05 PM (GMT -7)   
Hi my scarred friend: Even scarr-er ( spelling) moving to Wichita Kansas, i do not get much but here goes: M. Landers Pain management phone 316-733-9393,
also there is ABAY Neuroscience Center phone 316-609-2600. I was emailed and told they have a large practice and should have a PM on staff ??
there has to be more PM's in that area ? Your lazy, good for nothin, pain friend in N.J.
Tom Lasko


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/23/2008 7:10 PM (GMT -7)   
Scarred,
I would just be concerned about making my physical condition worse. There are things I'd love to do, but know that the bouncing around, etc. could bring on even more irreversible damage and pain.

Just a thought.

PaLady

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 7/23/2008 7:11 PM (GMT -7)   
Ok thanks Tom. I have already been told that I have to go through a Family Practice before I can get a referral for a Pain Specialst so I will keep those in mind.
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 7/23/2008 7:17 PM (GMT -7)   
True PA and I am very careful with my back its all I think about, but seeing a four-wheeler in the yard rusting away while I sit in my house and scream because the pain is so bad does not help.

Hell I think I will sell it, I have no use for such cool toys having such a bad back Its just going to waste
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/23/2008 7:25 PM (GMT -7)   
I know, scarred. Just one more thing on the long list of what we have to give up. But maybe if you sold it you could buy yourself some kind of treat that you could use?

There are so many cool things I'd love - all the new high tech toys - heck, I don't even own a cell phone. Can't afford another bill. And still use a dial up connection.

What goodie could you use?? Get that creative mind going! devil

PaLady

tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 7/23/2008 7:45 PM (GMT -7)   
Dearest Scarred: I am not given up on four wheelin with Ya-- I say the heck with pain maybe we could knock our nerves back into where they belong and be free of pain forever. Then we could start our own knock the heck out of Your nervous system and make millions and put the pain management docs out of business ??? Your insane, forgetful, sleepy, scarred for life, pain friend- from, N.J. Tom
Tom Lasko


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 7/24/2008 7:10 AM (GMT -7)   
PA; sorry about my outburst and as well as you too Tom and Stray. Its just very frustrating when you are so used to being the outdoorsy type of person and always on the go (ie. hunting, fishing, camping, hiking, four-wheeling, snowmobiling, anything to do with being outside in the mtns.) to being cooped up in the house 24/7 staring out the windows praying for some relief from the shooting pains that course down my legs and back. Its just irritating ya know?

PA; I could always use another laptop, or pay a bill off so that it would be one more thing hubby did not have to worry about. But if I really had my wish....a high tech laptop with a tarabyte of ram and HD tough enough to handle the worst drop and the worst spill! (I do not think there is such an animal but hey I can dream)

Tom; thanks for the thoughts hun. I do so wish that there was some magic pill....some treatment no matter how painful to make each of our pain go away forever. I have been listening to all of your stories and I can feel your pain so much. Fybro.....cancer......IBS....so many that I cannot name without going into tears feeling for each of you out there that are dealing with all of this horrible pain. I have to tell you all that my pain seems to pale in comparison to what each of you are going through IMHO.

It is difficult to think about a move or a new home when things with my back are not changing or getting any better and sometimes I wonder why this has happened to me at such a young age. I was 36 when I started all of the surgeries and tests yet still it seems like a lifetime has passed without any relief. I have nightmares of my doc taking me off the meds and telling me to deal with the pain which only adds to my frustration. Luckily I have never been once asked for a UA or a blood sample to see if I am taking my meds the way I am suppose to and I think that is because I have always been very good about making sure that I have enough to last until the next refill. Never taken more then I have to or more then the script calls for. Which is probably a good thing since I have not given PS or Workers Compensation reason to doubt me.

Still have not heard from PS office as to when this Mylogram is going to be scheduled and I have called twice to see if they have scheduled it with not a phone call returned. I'm not trying to hurry them because I want to know if there is anything in there that is causing my pain. I just want to get this painful procedure over with so that I can concentrate on whatever it is that needs to be handled for that time. I have company coming (Sis and Mom) in two weeks and I really need to start cleaning my house.

Anyway, thanks for all your support, I know I sound like I am whining again, but darn it when does the pain end????
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


karmacrunch
New Member


Date Joined Jul 2008
Total Posts : 18
   Posted 7/24/2008 2:56 PM (GMT -7)   
 Good Day fellow fighters in the pain war...
 
I just finished a long post to Scarred, Tom, PA, straydog...I actually fell asleep at the keyboard and when I woke it had vanished...The sleep deprivation is definitely making trouble.  Micro sleep episodes.  Seems to be the only time I get serious rest is when I'm exhausted.  Otherwise, 3 maybe 4 hours a night...
 
Scarred, so much on your plate right now! Hope your doc has resolved the myelo issue.  I know I'd sure prefer to have my own docs doing the procedure.  Good luck with your high wire crossing...just remember there's a good, strong net below!
 
Tom and Pa...I identified with your anger and frustration over the limitatons and restrictions imposed by our miserable bodies.  I've ridden and driven a variety of vehicles, but never a four-wheeler.  Lots of peope around here have them.  I'd sure like to give it a go!  Likely be my first and only ride, but at leat I'd be living again...!
 
So, straydog, you former "spy"... :-) ...I was wondering, does social security conduct themselves similarly with respect to 'surveilance"?  I'd doubt they have the budget, but who knows these days.  I might experience an involuntary muscle contraction involving a certain finger on my hand should I catch some agency taking video.
 
Too darn tired to recreate the previous post...sorry...my big fat head hit something on the keyboard and....gone...like me...time for some badly needed sleep.  Rather stressful here today too.  Spent two hours with a nurse supervisor who was determining what type and the frequency of services her home health care agency would be providing.  I've allowed myself to be 'herded' into this by my well meaning daughter.  I'll try to make the best of it, but it feels like taking another step down the ladder...
 
Adios for now, friends...
 
karma

Post Edited (karmacrunch) : 7/24/2008 4:01:08 PM (GMT-6)


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 7/24/2008 3:18 PM (GMT -7)   
awww poor Karma! I feel for ya babe really I do. I actually had a decent nights sleep for the first time in ageeessssss and I was tickled to get that much sleep. Yeah got alot going on at this point in time, but I figure its got to get better right? Limitations and restrictions can be very frustrating when your dealing with multiple problems in your life alike to all that are on this board.
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


painKILLER
Regular Member


Date Joined Aug 2007
Total Posts : 69
   Posted 7/24/2008 4:10 PM (GMT -7)   
HI Scarred: I've been through what you're about to go through, so I'm kinda interested now. Some advice: First, has your current pain doctor given you a referral to a new doctor? If not, thats okay too. While you haven't moved just yet, I would pick one of these doctors out and forward on your records to them from your current doctor. If everything is ship shape, and your condition and meds are documented, I can't think of a reason why you would have your care interrupted. Also, If you have not found a new doc by the time that you move, you should explain the situation to your current doctor, and ask for an extra month or two supply of medications. If he's really nice, he may even just mail them to you. Most caring physicians understand that people do have to relocated in life sometimes, and, as such, it would be irresponsible to make you go cold turkey just because you're moving to another state. Oh, and be careful of pain doctors that claim to be "Interventionalist." Make sure that the pain doc you transfer to offers Comprehensive care.

Let us know how it goes.
PainKiller

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 7/25/2008 7:20 AM (GMT -7)   
Thank you so much for your post PainKiller. I am so worried about this move and all that I have thousands of things going through my head at once. Yes I am going to ask my current doc to see if he cannot give me a referral for a new pain doc. The meds I am hoping that he will give me a month or two extra to keep me going until I get to the new doc or see if he can still supply me with my pain meds until I can get things figured out. My condition is well documented and I don't see where this is going to be a huge problem, but hubby is worried about it so I am going to sit down with my pain specialist and tell him what is going on and see what he can do for me.

Thank you for the head-up on the interventionist docs...I will be sure to make sure that the new doc is up to speed and that he/she is what I need
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


bubsykitty
Regular Member


Date Joined Jul 2008
Total Posts : 23
   Posted 7/25/2008 11:49 AM (GMT -7)   
Wow ... this talk about 4-wheelers has me reminiscing about when I got myself an awesome 4-wheeler!!! (We sold it a couple years ago cause it was parked in the garage collecting dust....) My hubby and I had a 750, we had a 250 for my son and a smaller one (125 ?? maybe?) for my daughter.
Most of my neighbors all have them too, so we used to go out riding ALL the time. It was such a blast!!!! Man, I sure do miss being able to hop on and go cruising around having fun!!!!!

One thing I don't miss is worrying about accidents that could happen and the safety of my kids!! We upgraded my son to a bigger one for Christmas one year .... he had it for less than a week before his first accident - flipped to the side and broke his left collar bone!!! (And he is a leftie so he was in a sling and had a hard time trying to write with his arm in the sling!!!) Seems like just yesterday that I was freaking out driving to the ER ... I think I was crying more than HE was!!!

So now I just get to sit on my porch and watch all the neighbors zooming around on theirs ....
sniffle, sniffle, sniffles ....

bubsykitty
Regular Member


Date Joined Jul 2008
Total Posts : 23
   Posted 7/25/2008 12:00 PM (GMT -7)   
And most importantly .... I wanted to wish you luck with the moving scarred!!
Be sure to take it easy and don't push yourself too much!! I know there's a million things that need to be done to facilitate a move, but go easy on yourself!! It sounds like you have plenty of people to help, so that's a good thing for you.

:-)
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