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quizzical
New Member


Date Joined Jul 2008
Total Posts : 2
   Posted 7/24/2008 9:26 AM (GMT -7)   
Not sure if this is the correct forum for this but here goes.

My wife has been diagnosed with spinal stenosis. Both a neurologist and neurosurgeon have recommended surgery but we have heard that back surgery in this area is not necessarily a permanent fix. Anyone had surgery for spinal stenosis and what was your experience with it?

Also if anyone can recommend other sites for information on the success rate and details of this surgery, it would be appreciated. Thanks.

daisy65014
New Member


Date Joined Jul 2008
Total Posts : 6
   Posted 7/24/2008 10:26 AM (GMT -7)   
I don't know about this illness....But i do know that back surgery is a big risk with not a big success rate. Read my history then you will understand why I say that. Sry I couldn't help u more...also sry to hear that about your wife!!!
I'm a 28 year old with chronic pain syndrome after one failed back surgery of shaving of the pelvic bone around my nerve stem. I was a CNA for 7 years and did customer service in retail before my back gave out. Started with burning and hurting sensation down my right leg. I was unable to walk on it for months with PT, one epidural which didn't help at all. Then went for surgery, which worked for 4 weeks and now I'm in a state of pain all the time. My pain in in my lower back still unable to use my right leg and I have constant knee pain. Unable to stand for more then 5 minutes. Bed bound for now getting out maybe once a month to go to doctor visits. Nero wanted me to have a 3 level fusion after first surgery made L3, L4, L5 and S1 herniated more. Refused to go through the pain with that. Currently going for disability which that is a story in it self. LOL

Surgeries
Left elbow recon w/ 2 pins and 4 screws still in. 1998
Gall bladder taken out. 2005
Back surgery 2006

Other Illness
Asthma
Kidney Stones
H. Pylori

Medication I have taken
Wellbutrin XL
Lyrica
Vicodin
Dorvocet

Medication I'm currently on
Percocet 10/325mg q 6 hours
Ultram 50mg q 6 hours
Valium 5mg 2 times daily
Trazodone 100mg half or full pill at bed time


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 7/24/2008 10:57 AM (GMT -7)   
I too do not know about this illness but have had 3 fusion surgeries that failed. I would go into this with your eyes wide open.
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


~Cloe~
Regular Member


Date Joined Jul 2008
Total Posts : 125
   Posted 7/24/2008 11:19 AM (GMT -7)   
Hi, Sorry to hear about your suffering and such a young age.
My DDD started at level one. I too went through PT that didn't help.
I have had maybe 3 or 4 epidural shots at the level one stage.
I was told be my neural surgeon just a month ago, he said that do to new research that recommends not going in higher then level two. I think you may be smart not taking surgery on, but to be honest If my surgeon was willing to operate at Level 5, I would do it in a heart beat. I have never been through major surgery before.
Why did you stop your lyrica? I as well take Trazodone 100mg at bed time(I call it my tylenol pm) Good luck and sorry to hear your a medicated and still bedridden. Can you enlighten me on the shaving surgery?
Cloe

Post Edited (~Cloe~) : 7/24/2008 8:47:49 PM (GMT-6)


tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 7/24/2008 6:02 PM (GMT -7)   
Hi Daisy : Welcome: spend some time and read about all the "failed" surgeries. I would try everything under the sun before allowing anyone regardless of reputation to tinker with my spine again. Best wishes and good luck Tom
Tom Lasko


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/24/2008 6:55 PM (GMT -7)   
Hi, Quizzical,
Welcome to the HW forum. There is a lot to learn here, especially if you search the threads for things like surgery and stenosis. Stenosis is a narrowing of the spinal canal through which the nerves pass. Many of us might have a little stenosis, but I would say a lot depends on more specifics of your wife's condition. Is this something that's been getting worse over years, is it located in one area or throughout the spine, your wife's age, etc.

I would certainly suggest she try any possible conservative treatments to see if that helps her symptoms, and if she can manage them without surgery. However, she may have something going on and the doctors want to take the pressure off the nerves ASAP. Remember - surgeons tend to want to operate because that's what they do. I'd definitely get more than one opinion.

I just had a double fusion (L4-S1) which failed to decrease the symptoms in my legs and feet, even though I'd been given an 80-90% chance that it would. Lots of failed back surgeries here, but I've known people with successful surgeries, too. And one thing I learned the hard way - the longer the nerve is compressed, the less likely it is to heal. Nerves can take up to 2 years to heal, if they do, and then at that point you have to manage whatever pain you have left. I've found once you start having back problems, I don't think anything totally fixes them. Especially because our spines normally degenerate as we age. So there are a lot of variables.

I'd suggest going to medscape.com and you can access some research at no cost; you can also access some of the medline.com journals - which are the same things the doctors read. So that may give you more detailed info. and success rates if you search for your wife's condition.

Hope this helps a little. Your wife is also welcome to post; both of you will find lots of support here.

PaLady

quizzical
New Member


Date Joined Jul 2008
Total Posts : 2
   Posted 7/25/2008 6:21 AM (GMT -7)   
Thanks to all. The information is helpful. We will continue to look at options and talk with the doctors. We'll monitor this site for any other information too.
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