Question for the ladies only, please.

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ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 7/25/2008 12:51 PM (GMT -7)   
Hi, friends. I have a strange question for any of you who have been through a hysterectomy. I had one earlier this summer (robot assisted lap) and had everything except one ovary removed. This was the culmination of a VERY long history of many many yucky and painful issues which I won't get into here. It has been kind of traumatic for me in a weird way - I was relieved to finally have it done as it will hopefully fix a multitude of issues I've been dealing with, and I am also hoping it might somehow help with my back issues since PCOS and Endo were among the issues (although my docs all say this wasn't the root of my back problems so it probably won't help). But on the flip side, it has been VERY hard to deal with the loss related to this. I am young and single and do not have even a significant other at the time. As PaLady and I have discussed before - that is one dream that seems to be slipping away and has been a struggle in and of itself, but now I have compounded the thought that if I do ever manage to find someone we will have this limitation as well... Just a lot to grapple with and it's been harder than I thought it would be.

Okay, well I didn't mean to pour out all THAT drama! Sorry. sad Here is my real question....

I am over a month out and according to my OB-GYN everything is healing fine. My problem is that I am having a strange pain in my abdomen. It is on the side where the remaining ovary is. I should say that I really wanted the doc to take BOTH ovaries since they have been a big part of my problems, but he was insistent that I keep one so as to avoid early onset menopause. Now I am kicking myself for giving in. Anyways, I saw him yesterday and he is convinced that my abdominal pain is completely unrelated to my surgery and is "referred pain" from the back flare that I had a couple weeks ago. Thing is, my docs increased my meds and I did extra PT and I've gotten the back flare back under control (well - as much as it ever is controlled anyways). The pain in my abdomen is not unbearable - certainly not as bad as the back pain, but it is ever present and enough to make me adjust the way I sit, stand, and walk many days. Of course between my back and my belly now I am just a mess! I am sitting here now with a heating pad on my back and an ice bag on my belly as that seems to be the only thing that helps.

I'm wondering if any of you have had this surgery and how long it was before your bellies stopped hurting? Did your back pain or other pain problems seem to cause pain in the belly for you?

I know this is kind of off topic for this forum, so I apologize for that. I'm just at a loss here and I don't know who to ask. I appreciate any input you have.
Ry

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 7/25/2008 5:34 PM (GMT -7)   
I did not have that problem when I had my Hyst....so I cannot tell you if it is related Ry. But when I had my Hyst they took everything but the ovaries as well and doc told me it was because he did not want to send me into early Menopausal symptoms before my 40s. It took quite a while to heal after my Hyst because of the fact that I also had my cervix removed from cancer so I was having alot of lower pain then that of normal. But doc said it was all good and that I was healing well.

I did not have the robot assisted lap, doc went in through the old scar on my belly so I have what they call a bikini scar on my stomach and it was pretty painful for many months afterwards.

Sorry I couldn't help you more.

Your friend,

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/25/2008 5:57 PM (GMT -7)   
Ry,
Sorry I can't help here, as I never had a hysterectomy. Came real close though - cancelled it a few days before it was to happen and boy was my GYN ticked! But I'm glad I did as menopause finally arrived and solved lots of those problems.

Have you tried the site hystersisters? (I think that's the name)

As far as the loss of dreams, well, that we can all understand. sad

PaLady

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 7/25/2008 6:44 PM (GMT -7)   
It takes a few months or longer for things to settle down after a hyst. My surgeon told me I might have rougher periods for the few cycles after my abdominal surgery (not a hyst) and she never went anywhere near my ovaries or uterus. She said that the trauma of surgery upsets your hormonal balance.

Your pain may be your ovary adjusting to the trauma. Did your surgeon remove any endo on your other organs? If any endo was left behind, you would still have pain. You can have endo pain after a hyst even if both ovaries are removed. Your back may be in a new flare from the surgery. Watch your posture, many people "slump" after abdominal surgery especially if you have ab pain, you may not realize you are doing it.

Don't forget that you had MAJOR surgery. You may have had very small incisions on the outside but your insides had major surgery, they removed some of your organs. It takes at least 6 months to completely heal inside. Just because they allow you to return to your regular activities after about 6 weeks, it does not mean that you are healed. If they cut off your arm, would you expect to be completely healed by now?

I had some nerve damage from my surgery that caused abdominal pain and it took about a year to go away.

If your pain continues or worsens, get a second opinion

~Cloe~
Regular Member


Date Joined Jul 2008
Total Posts : 125
   Posted 7/25/2008 7:32 PM (GMT -7)   
Hi ry,
I totally agree with Dager about getting a second opinion. If it was me I would demand another ultrasound tomorrow, you may have cysts or scar tissue that was caused by surgery. I am assuming that you are on pain meds and this will mask the true pain. In my opinion, if it were a layman w/o pain meds they very well would go to ER.
As I said I would get another ultrasound. I have never personally gone through this but have had past employment history with several women who have. One lady at the age of 30yrs had to be rushed to ER after several weeks of hystro and they did the testing and reopened her back up. It was treated as an emergency surgery. She was not on pain pills. One would think if a ovary was infested with scare tissue this would stop appropriate delivery of hormones, If it was me I would get it removed it after testing they find something. Only my opinion and I am so sorry for your additional pain. Please don't sit on this, as we have a tendency to do. Keep us posted, pls!
Cloe

Post Edited (~Cloe~) : 7/25/2008 8:48:37 PM (GMT-6)


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 7/26/2008 2:00 PM (GMT -7)   
Hi, ladies. Thanks for the advice. I did have the total hyst., so my cervix is gone too, but the pain is not coming from there. It is really more where the ovary would be. I hadn't thought about the possibility that the pain meds I take for my back could be masking the severity of this pain. That was a good point. When I visited the GYN this week, he did some sliver nitrate cauterization of the cuff which he said would get things back on track. I am sitting here today counting minutes and seconds between my pain med doses, though, between the shooting pains in my back and in my belly. I feel like a voodoo doll! LOL! devil

I think I'm going to give the cauterization a week to heal up, and if I'm still having this issue I'm going to call the GYN back and get another appointment with him and insist that he just go back in and get the other ovary out. I should have just forced that in the first place I think. I knew it then, but you know how you think "well the doctor knows best..." Even after all these years, it is still so hard to stand up to the docs and advocate for myself. It's twice as bad with this doctor because the issues are so personal and somewhat embarrassing to speak about....

Hopefully it will just go away on it's own (yep - that's me with my head in the sand! tongue)

Ry

grannymac
Regular Member


Date Joined Dec 2007
Total Posts : 35
   Posted 7/27/2008 12:27 PM (GMT -7)   
Ryand,

I, too, had a hysto for mucho pain issues, but I was already past child bearing age. I now wished I'd had a complete one (about 7 years later, I was diagnosed with breast cancer, which eats Estrogen for breakfast, at least my variety does. As a result, I went into menopause early - first via chemo, then radiation, and finally, had my ovaries out - not due to the cancer, but due to HUGE cyst on the right. Since I was already in 'menopause' they took out both ovaries (and my appendix too for good measure! <G> Seriously, there were some pathology that showed it was going to have problems very soon down the line).

I had a rather stormy post-op course - vomiting frequently - we're not sure if it was due to the 'manipulation' of my abdominal conents; the Epidural I was given for anesthetic and subsequent PCA pain control post-op or what it was...luckily, I could keep down Ginger Ale, so got something! Even with that and pain post-op, controlled by Toradol, the ceasing of the pain that first drove me to having it was so much better that it overrode any and all post-op problems! I'd had painful periods for years, and as I got older, it got worse, until I was begging and borrowing narcotic meds from friends (I know, this is a no no. Don't do this at home!). I wasn't living in Michigan at the time, so didn't know about the 'canadian aspirin' (222's with codeine). The pain was excruciating - on several occasions, it was mistaken for (or almost) appendicitis and/or other abdominal area problems. For six years, lack of insurance prevented me from having the procedure done (however extreme the pain is, pain is NOT a rationale to do the surgery uninsured). Finally, I landed a job with insurance and got it done. (we'd lost medicaid when hubby got a job driving a truck - and even if he couldn't send me his huge paycheck - all of $200 take home/week - we were taken off ADC (at that time) and between eviction from the place we lived in when he got the job (we shared rent with gas money - we won and lost). A move up to a city up north only netted me temporary work...then he was killed falling asleep behind the wheel. After perusing the benefits, rent prices and so on, we moved back to our original area, and I got a job - with benefits - and immediately scheduled the surgery! What relief! I'll never, never regret having the surgery - the pain each month was indescribable. The first month after surgery - no period - no pain was 'heaven!'

Granny

Metallichic
Regular Member


Date Joined Oct 2007
Total Posts : 76
   Posted 7/27/2008 4:26 PM (GMT -7)   
I was able to keep my cervix and both ovaries (wish I had them out now with the new evidence of the link between anti-TNF drugs and cervical cancer), and my GYN insisted when I asked prior to the surgery that I would not go into menopause.  Well guess what, I did!  I have the same pain you describe, and after a blood test giving confirmation, I am now on Premarin.  Have him run a hormone test  I'm sorry you're going through this, and I hope you get an answer soon!
Shannon
Asthma (diagnosed at 12)
Fibromyalgia (diagnosed 9/01)
Crohn's Disease/Colitis (diagnosed 12/02)
Diverticulitis (diagnosed 6/07)
Chronic pelvic pain/endometriosis, leading to hysterectomy (9/07)
Torn rotator cuff/labrum (repair 11/20/07)
Bladder sling (8/06), cholystectomy (2/06), tubal ligation (2/06), failed ablation (3/07)
Poisitve blood test for wheat allergy, (11/07); Positive capsule endocopy showing Celiac disease (6/30/08).
Also allergic to egg white protien.
Taking Asacol, Prednisone, Humira, NuLev, HCTZ, Lisinopril, Cymbalta, Prevacid, Zantac, Ambien, Lomotil, Soma, Plaquinil, Frova, Questran powder/Carafate suspension, Vicodin ES, and LOTS OF VITAMINS AND SUPPLEMENTS!


ekkorose
Regular Member


Date Joined Jul 2008
Total Posts : 329
   Posted 7/27/2008 5:59 PM (GMT -7)   
I normally don't post on this forum but look at it from time to time because my best friend is a chronic pain sufferer.

Anyways, I had a da vinci hyster with cervix removed and it took about 3-4 months before all the weird pains went away. I will say to get a u/s if at all possible because within a month after surgery I had a very large cyst develope on my remaining ovary that put me in the hospital for 3 days.

Take care,
Sarrah


In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz 


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 7/27/2008 7:12 PM (GMT -7)   
Definately insist on getting an ultrasound. If you have a cyst, then you'll know why you have pain and won't have to suffer for months before they believe you. However, if it's not your ovary, removing it won't help and will introduce other problems.

You could have something else wrong, maybe something got screwed up during the surgery. We've all heard stories about sponges and things left behind. A woman I know had surgery and knew shortly afterward that something was wrong. Her doctor kept blowing her off, dismissing her concerns. It turned out he had screwed up during the surgery. It almost killed her and left her with lifelong problems. Another doctor knew immediatly that something was wrong and basically saved her life. I'm just mentioning this to show why you should always consider a second opinion especially when your doctor won't listen.

ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 7/27/2008 8:54 PM (GMT -7)   
Wow. Thanks, ladies. For all of your suggestions and ideas. I really hadn't thought about all the possibilities, and I appreciate the input. It gives me a better idea about what questions to ask. I did have some nasty bad cysts on my other ovary (the one they took out) and in the uterus and also on my cervix, but the doctor said the ovary they left looked "normal" at the time of the surgery so I didn't even consider that it may have grown a cyst later. I will definitely ask the doctor to do an ultrasound if this pain continues. If I was really brave, I would probably try to tough it out without by pain meds for a day or two to see if the pain in my abdomen got worse w/o them. But as it is even with the pain meds my back hurts pretty badly, so I know that if I stopped them my back would be too much to handle.

btw, PaLady... I did check out that hystersister site. Thanks for the heads up on that one. Great resource!

Hopefully this will just be one of the weird pains like ekko talked about that will just go away and not something more serious like a cyst, but if it persists this week I'll get it checked out.

Thanks again, everyone!
Ry

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/27/2008 9:04 PM (GMT -7)   
Glad I could be of a little help, Ry. I remember having a cycst on an ovary once, and the GYN telling me they come and go all the time. My fibroids, however, were another story. That's why I nearly had the surgery.

An u/s does sound like a good idea. At least that's a painless procedure!

PaLady

ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 7/27/2008 9:23 PM (GMT -7)   
Yes, I had fibroids too. That's why I was really hopeful that the hysterectomy would alleviate some of my back pain. They said sometimes fibroids grow outside of the uterus region, and my doc had some patients who'd had fibroids growing on their spine before, so we thought maybe that was part of my back issue. No luck with that, though. The fibroids they found in me were all contained to the abdominal cavity, which I should be thankful for I guess - LOL! You're right about the ultrasound. Painless - but I hope they won't want to do the pelvic u/s! I've had way too many of those! redface

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13470
   Posted 7/27/2008 11:59 PM (GMT -7)   
Hello Ry,
 
Yep, insist on that ultrasound, never hurts sometimes to be xtra careful. I have had 2 lap surgeries, 1st one was to tie my tubes & the 2nd was for removing my gallbladder. Each time, I had this same pain you talk about. To me the pain was very annoying. I do know on the laps they blow you up so they get a better view of things and gas afterwards was a killer. The pain went away after  couple of months. My OB-Gyn refused to remove my ovaries when I had to have a hysterectomy and went into the spill about menopause and the need to keep them. It did not matter to him that I had cysts on both and had the fibroid problem too.
 
Let me tell you, I suffered terribly for one year with the menopause crap. He refused to put me on any kind of HRT. The problem was, I had already started the menopause long before the actual hysterectomy. I saw my PCP about a yr later and he was so mad at this guy. My PCP said alot of times the ovaries go into shock and never function again, The way he explained it to it sure made alot of sense. He immediately started me on the shots and oh, I felt so much better.
 
One other thing, any time I have had surgery, and I have had alot, For some reason afterwards I always get real bluesy for awhile. I realy think its the anesthesia they use. But like you, say you are young and you will no be having children. This could very well account for how you are feeling. Good Luck. Susie                                                                                                                                                                                                                                                                                                           
 

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