Were you all waiting to post for lil ole me????

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Scarred_for_life
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Date Joined Jul 2008
Total Posts : 1559
   Posted 8/1/2008 5:30 PM (GMT -7)   
Hey guys!!! Back from Mylo....went better then I thought it would and am recooping fine lying in bed and feeling quite "achy" but fine. Hurts to move so I am gonna lay here and be a pain in the hubby's side for the next 24 hours. The only thing I hated about the Mylo was the fact that it felt like someone was tightening the nerves in my legs, groin and feet, but I am glad its over with and I am home with a bandage "Owie" on my back.

They went into L2-3 where there is no fusion and the Radiologist was quite versed in doing the procedure and did a real good job at making me feel at ease with the procedure. I am glad that each one of you were thinking about me and I was thinking about all of you as I lay there watching the monitor showing pictures of my poor back. Wow!!! What a mess it looks like in there!!! So much hardware and screws that I forgot what it looked like!!

Anyway I am glad to be home and I am truly pleased with the fact that you all gave me such support that I will never forget. I will know in two weeks how the test came out and we will go from there.

hoping you have a lessened pain night. Your achy, scarred up, sore friend

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/1/2008 5:37 PM (GMT -7)   
Hi, Scarred!

That's great news! And I'm glad to see you're taking it easy. It is interesting to think that our backs no longer look like those models the PT shows us! Oh, well, neither do my "outsides'! LOL

Have a good night! If you're bored go build a sea creature on the beach!

PaLady

Chartreux
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Date Joined Aug 2006
Total Posts : 9622
   Posted 8/1/2008 6:15 PM (GMT -7)   
Oh Wow so glad you made it thru that procedure, rest up and will be saying a prayer or two for you!
Sure hope you can get some rest with all that's going on.
Soft Hugz
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CPnewbie
Regular Member


Date Joined Jul 2008
Total Posts : 38
   Posted 8/1/2008 6:20 PM (GMT -7)   

Scarred ! So good to hear that it went well ! I was just checking in to see if anyone had heard from you !!!

Going out with fam for dinner now but so glad to know you are doing well !!!!

CP


CPnewbie
 
 


tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 8/1/2008 9:53 PM (GMT -7)   
Helloooooooo Scarry Was there any doubt that everything would go soothly ? Pleasant dreams for the Rabbit You chase tonight just may let You catch him.
We will rest and start to pray and cross fingers for Your Doc's appointment in two weeks.
Gotta go still working on my list of things to do so I can come up to Wyoming to help You all move. Darn goat got out today while I was greasing my wheelchair when I tried to grab the goat- I fell l out of the wheelchair into the Duck pond, darn Ducks crapped all over me and the chair. Forgot to mention my list of things to do floated away into the pig pond so I decided while going to fetch my list I might as well feed them pigs ---Well somehow my pet Goose got into the pig pen and all hell broke loose- here a pig there a pig- ya know whats I mean ?? anyway got real tired of pig chasin and got downright painfull so I went to fetch my pain pills-- Guess who/what found my pills ? Damm Goat. Your friend in pain worried about You and scarred of what life holds for us but as long as we have each other and my pigs, goose and ............. was gonna say Goat but i shot hm- serves him right meesing with my pills. Almost forgot where my list ? ? ? Damm pigs................to be continued
Tom Lasko


Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2280
   Posted 8/1/2008 10:15 PM (GMT -7)   
tom inpain said...
Guess who/what found my pills ? Damm Goat. Your friend in pain worried about You and scared of what life holds for us but as long as we have each other and my pigs, goose and ............. was gonna say Goat but i shot him- serves him right messing with my pills. Almost forgot where my list ? ? ? Damm pigs................to be continued


If the goat ate the pills & you ate the goat, who's gonna eat you?
the pigs, maybe?
better be on the look-out! no sleep tonight! http://www.healingwell.com/community/posticons/icon11.gif
no worries. Scarred & me -- and maybe that monster eating pirate (does he hunt pigs?)-- can keep on the look-out for you.


Scarred, Seriously though, I really hope & pray you find some peaceful sleep tonight and wake to a better day tomorrow. :)
Love & Prayers, Frances

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/1/2008 10:43 PM (GMT -7)   
tongue tongue tongue

By the way, Tom, are you bringing your barnyard collection to the Beach Party? I'll need a whole separate beach for that crew - and fences!

PaLady---------> Still building monster-eating Pirate! skull

Red_34
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   Posted 8/2/2008 4:31 AM (GMT -7)   
I'm glad things went good for you. Welcome back :)
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Lindaloo
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Date Joined Sep 2006
Total Posts : 1713
   Posted 8/2/2008 4:41 AM (GMT -7)   
Glad all went well for you Scarred. Keep hanging in there and you'll be good as new in a couple of days. New? Did I just say that? Well, you know what I mean. I really am glad you are finished with that ugly test. I have had two and they are no picnic I know. Sounds like yours wasn't too bad though. That is good, I'm glad!!

Gentlest of hugs,

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/2/2008 5:39 AM (GMT -7)   
Good Morning all my fellow Painsters!

Bad night with the back and legs (the legs being the worse of the two!) and wishing that the searing.....stabbing....shooting pain that goes down my legs would just QUIT Complaining at me! Hoping they find something in the results that explains the dang pain I am having. I was talking to hubby last night and I told him you know I don't mind the back pain. Kinda have to accept that when you have had as many surgeries as I have and my Neurosurgeon told me this. But for goodness sakes the surgeries were suppose to take care of the leg pain and make it to where I wouldn't have to bother with that anymore.

I am just so frustrated with the shooting leg pain that I have been living with for the last 6 years and want it gone! When a doctor tells you that you won't have anymore leg pain you have to expect that he is telling you the truth, but man......after 6 years this is getting to be old stuff. This is the one issue I want cleared up. The back pain isn't too bad for what I went through and I expected some kind of pain from that, but pleassse do I have to be in so much shooting...tingling.....searing suffering in my legs?

Tom: Dang Pigs!! I'll come help you round them up so that you can find your list. Can't believe the stupid goat ate your pills, maybe we could tie the goat up on the beach with a huge heavy chain and that way he won't get your meds. LOL gosh your a card Tom! Everything you say cracks me up! What a hoot!! Anyway, I had my doubts that it would go so smoothly, but this radiologist was soo gentle and so good that I felt quite comfortable with her doing the procedure. Wish all our docs were like that, don't you??

Linda: LOL I know what ya mean hun. As good as it gets anyway huh? The radiologist and I were talking about Mylo's verses Disco's and I think I'd rather go through another Mylo then one more of those Disco's! Talk about painful...the last one they had to actually put me out cause I was crying so hard that the needle was moving inside me. Last I remember was waking up as I came out of the CT machine and it was over thank goodness. The doc told me that she is the same way with them, does not want them to happen to her! I don't think there is one at St. Vincent's hospital that did not wish that I wasn't in so much pain. Radiologist said that the CP'ers are growing by leaps and bounds around the U.S. and it has to make me wonder if it isn't the surgeries that are causing people to be in so much pain? Or whether its the fact that so many are just discovering that they have issues with their backs, necks, heads, knees and other things that is causing this?

CP; I am glad that you were wondering where I was and it seemed weird to come home and find that not one post had been posted since I left. Thought maybe you all missed me but your all probably just doing your thing and trying to get through the day. Hope you slept well last night cause I sure didn't :-( The nerves were telling me that I shouldn't have done the Mylo and were complaining quite loud. But this morning its a little better except for the leg pain which was heightened by the Mylo and are quite upset with me.

For the rest of you that posted: Thanks for all your prayers and blessings. I am truly blessed to have found you all and hope that someday we all can be free of this horrible pain that we all suffer. Wonder and dream of this quite often.....running through the grass in a field of wildflowers not feeling any pain or anything......being able to hunt once more with hubby.......going fishing and sitting on the shores of a huge lake....and enjoying life that once was wracked with pain but now is free from the pain pills, anxiety pills, sleeping pills and muscle relaxers that have become a huge part of my life. Wouldn't that be great????

Anyway, sorry for the long post this morning, I was up at 4:00am with shooting pain down my legs and not being able to rest. So I made me a pot of coffee and reclining in my lounger thinking of days when I was younger and how I could do most anything I wished without the pain.

Until my next post.............your pain filled, leg hurting.....post Mylogram......trying to relax friend,

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


kara487
Veteran Member


Date Joined Mar 2008
Total Posts : 637
   Posted 8/2/2008 6:07 AM (GMT -7)   
Scarred, Im glad your myelo went ok. You are in my prayers.

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/2/2008 6:42 AM (GMT -7)   
Thanks much Kara I hope you are having a good day.
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 8/2/2008 7:20 AM (GMT -7)   
Scarred! I am so glad to hear you are back home and doing well. I know the pain after a procedure is usually just nasty, so I've been praying that you will be able to rest comfortably. I was glad to see that you had posted and that the procedure went smoothly. I hope soon we'll be hearing that your doctor has gotten great information from the results and has been able to improve your treatment plan. :-)

Ry

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/2/2008 8:01 AM (GMT -7)   
Two weeks ry and I will hear from doc. I have an appt with his PA on the 14th so then we will know what we are doing. I do know that this is a possible surgical intervention, that is if there is something causing my nerves to be pinched. I hate feeling that the hope of this is slim after so many years but I have to have faith and hope that they will find something right?

Anyway....I hope that you are having a semi-pain free day or at least somewhat so. Your scarred up, searing leg pain, totally messed up friend.

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/2/2008 10:39 AM (GMT -7)   
Scarred,
So sorry to hear of your overnight pain, and I know exactly what you mean about the back vs. leg/lower extremity paiin. Neurosurgeon had told me I had an 80-90% chance of relieving leg/buttock and foot symptoms with double fusion, but would have more back pain. Now I've got all of it - no relief from surgery plus added back pain. So your comment about wondering if there's more CP because of surgeries (and maybe other procedures?) may not be off base.

I have to wonder, though, after all your surgeries, and you ever list "permanent nerve damage" in your signature, would you have another? If the nerve damage is permanent (and it can be for many of us) is surgery really going to do any good? I hate to say that because my surgeon wanted to do another surgery to remove soft tissue that he didn't get during the the minimally invasive procedure and i said no, because I only rarely hear of multiple surgeries helping - and usuallly even then it's for a limited time. You're a big girl, and you've certainly had enough experience with surgeries to decide for yourself, but I hope you'll really think hard and ask a lot of questions before you have another.

From one failed surgery "victim" to another....

PaLady

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/2/2008 11:03 AM (GMT -7)   
PA;

If the nerve damage that I believe is causing my pain is permanent then no. I will not put myself through another surgery to try and relief pain that is hopeless to begin with. I have been told that many soft tissue and scar tissues can be taken out but I have also been told that it really isn't worth the risk because the scar tissue will return in a year or so and your back where you started from in the first place.

The nerve damage that I speak of in my signature is what I believe is going on and not what I have been told is going on. If that makes any sense. I was told by my Neurosurgeon that he thinks that the nerves are being compressed by the scar tissue and that nothing can be done to relieve that pain. I was given better odds then you as my doc told me that only 3% of fusions do not help. When I took this risk I figured hey 3% is pretty good odds but then when it failed after the second fusion I knew that the odds of it failing were increased by doing another surgery.

My PCP doc has told me that if there is nothing going on in there that he is going to push hard for the pain pump and will re-evaluate the diagnosis of DDD to permanent nerve damage. In which case there is a good possibility that W/C will actually go for this. Invasive procedures are pretty hard to decide upon and I for one probably would not have gone through this whole thing if I knew then what I know now LOL (but then again I most likely would have).

Something that really bothers me is that if I have DDD then why is it that the nerves in my legs are in worse pain then that of my back? And why is it that I would rather deal with that pain then to have this horrid leg pain?

I agree that invasive surgeries are to not be taken lightly and I do not think that I will allow anyone to open me up again to fix the back ever, unless it is a guarantee that it will totally take away the pain and I would most likely have to take maybe a tylenol now and then to relieve the minor pain accompanied with such pain. I think we all wish there was a miracle cure for this problem but there isn't and each one of us have to look upon this as a permanent problem that we have to learn to live with.

From one failed surgery "Victim" to another.....
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/2/2008 11:15 AM (GMT -7)   
Scarred,
DDD is something everyone has as we age. It's a matter of degree, and the specifics of what that means for a particular spine. When nerves are being compressed it's probably not only disk degeneration, possibly bulging and herniated disks. Nerves at each level of the spine services different areas of the body, and the nerves in the lumbar spine are what give feeling (sensory nerves) and function (motor nerves) to our lower extremities. So if these nerves get damaged or compressed they can produce sensation and/or muslce damage/weakenss in the legs and feet. The location of the pain in the legs are what begins to tell the docs what level(s) of the spine are being impacted.

If you do an MRI on say a 50 or 60 year old you'll find degenerative disk disease (DDD) and possibly bulging or herniated disks. BUT many of these people will have no symptoms and be just fine, even for the rest of their lives. Docs often see the structural damage because it's the only thing they can see (although myelograms and disco's give more detail) and assume that's what's causing the symptoms, but it could be another area altogether. So DDD of itself is probaby not a diagnosis that's going to get very far with W.C. and other insurances because nearly everyone has it as they age. The issue is whether it's causing problems. Also, if something has DDD at a young age, that usually means something else is wrong. It's all very complicated. Wish it wasn't!

Oh, and add to all that there is something called "referred pain" which means that the cause can be in one place, but the nerve "refers" the pain to a different location.

PaLady

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/2/2008 11:27 AM (GMT -7)   
Ok......I will have to look that up PA "Referred pain" that is I had not heard of that before. When I talk to doc about my leg pain it is not just in one spot like most leg pain. Mine goes from leg to leg and is not just in one spot it sometimes hits the front....sometimes side...sometimes back. But it is always present and always very painful. I think that is the reason why doc ordered the Mylo to figure out why I am having leg pain.

DDD I agree is ever present as we grow older, but when W/C says I cannot be a candidate for the Pain Pump because I have DJD (Degenerative Joint disease) it makes me wonder if I will ever be allowed to get some rest from the pain at any time. L3-L2 is bulging but I do not have any symptoms of its presence and the docs don't wanna mess with it, of course neither do I LOL. I think you can understand why not hehehe.

BTW; all my leg pain today is localized in the left leg down the back of the leg and it is driving me into the loony bin!!
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 8/2/2008 11:40 AM (GMT -7)   
Oh, gosh. I SO hate hearing the phrase "referred pain." I know it is a genuine issue, and I probably have it, but it has been one of the catch phrases my PM doc has latched onto to (IMHO) avoid having to actually go to the effort of getting to the root of my pain. She doesn't like me to take any medications because they are "for end of life cancer pain" and every time she looks at my scans and tests and doesn't see an answer jumping off the page she says "well it must just be referred pain." As if that solves everything! I'm like "Okay, so it's referred pain. From where? And how will you fix it? Or at least how will you treat it?" ARGH! eyes

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/2/2008 11:51 AM (GMT -7)   
Ry,
I don't blame you for pulling your hair out for that one! I remember your doc who thinks these meds are only for "end of life cancer pain" and to me that's very inaccurate. Pain that's referred is still referred from somewhere! I mean what scarred is describing - the pain goes all over at times - SOME of the pain is probably referred, but the basic pain down her leg is probably traceable to one or more of the spine levels.

I think it's probably just as true that while many people can have abnormal MRI's and such but have no symptoms, others can have normal looking MRi's but still have pain because the pain can have so many causes. You're right that your doc should be treating it even if she can't find the precise source. Geesh!

Scarred - I'm wondering if part of the problem is that you have multiple diagnoses, but the primary one (the one listed first ) maybe DDD or DJD and W.C. doesn't recognize that one as justifying the pain pump. I'd talk with your doc about that, if what you're trying to do is get the pump and not surgery. Are there other diagnostic categories (and there's usually a ton of them for our backs and pain) that could be used that W.C. would recognize as making you a candidate for the pump.

PaLady

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/2/2008 12:22 PM (GMT -7)   
Ahhhh that's that pain where they don't know why you are having pain but gee they know you are in pain LOL. Yeah I hate that too, my neuro decided to pin that on me from the get go and I was confused telling him "Then how can it be fixed?" and he said "It can't. Even though there is no cause for the pain you are still having it."

Wanted to let you guys know that where they injected the dye was above the fusion at L3-L2 which is non-symptomatic so that they could get a clear picture of my entire nerve system from the top down. The last Mylo only started from L-3- L4 and did not include the L3_L2 vert.

Yes PA I am going to talk to them on my next visit about that diagnosis and see if it really is something that they can change so that it won't be an issue when it comes to the pump. From what I have seen on the boards many are using the Pump and it seems to be helping bunches. What I find weird is that the last Psychiatric pain doc that I went to said that I was indeed a candidate for the pump or stim but work comp says that he did not say that. But why did my doc say that he said that???
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/2/2008 12:38 PM (GMT -7)   
Scarred,
Request your records and read them - including the ones from the psych. Then you will know what was said.

PaLady

ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 8/2/2008 1:16 PM (GMT -7)   
Yes, you are right about the MRIs, PaLady. I sometimes wonder why they still even use them as it seems they really don't have a very high correlation to one's pain. Go figure. I think I told the story in here somewhere that my PT told me about a surgeon who ordered radiology to bring the images up to the OR b/c he was convinced he had the wrong patient. The images were so different from what was really in there. It makes you wonder.

I am curious - what does a Mylogram actually show? I've never had one of those even mentioned by any of the myriad docs I've seen, and I thought I'd had every test and procedure in the book (short of actual surgery). Not that I'm looking for another painful procedure, mind you...

Scarred - I agree with PaLady about getting the records. They would have to record their recommendation in your file.

Ry

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/2/2008 1:22 PM (GMT -7)   
PA I have the records from the Psych and its exactly as my doc says it is...he says that if I do Biofeedback.....pain therapy (which by the way W/C will only pay for a total of 6 sessions) and go through occupational testing before and after the test run (ie. bending, lifting, sitting, standing etc.) then he does not have a problem with me having the pain pump or stim inserted on a more permanent basis.

Ry; the Mylo shows the nerves and roots and discs so that they can see if anything is being pinched or compressed. I am going to get my records so that I can see exactly what it says as to my conditions and such.

By the way just heard from hubby that my Lexipro and Tamazapem are in but it seems that they did not get the Lunestia so should be a fun weekend arrrrrg. I hate it when I don't get my meds on time
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.

Post Edited (Scarred_for_life) : 8/2/2008 2:25:25 PM (GMT-6)


tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 8/2/2008 2:01 PM (GMT -7)   
PAlady said...
Scarred,
So sorry to hear of your overnight pain, and I know exactly what you mean about the back vs. leg/lower extremity paiin. Neurosurgeon had told me I had an 80-90% chance of relieving leg/buttock and foot symptoms with double fusion, but would have more back pain. Now I've got all of it - no relief from surgery plus added back pain. So your comment about wondering if there's more CP because of surgeries (and maybe other procedures?) may not be off base.

I have to wonder, though, after all your surgeries, and you ever list "permanent nerve damage" in your signature, would you have another? If the nerve damage is permanent (and it can be for many of us) is surgery really going to do any good? I hate to say that because my surgeon wanted to do another surgery to remove soft tissue that he didn't get during the the minimally invasive procedure and i said no, because I only rarely hear of multiple surgeries helping - and usuallly even then it's for a limited time. You're a big girl, and you've certainly had enough experience with surgeries to decide for yourself, but I hope you'll really think hard and ask a lot of questions before you have another.

From one failed surgery "victim" to another....

PaLady
To: My Lady in Pa: Great advice surgery to correct failed surgery usually in my experience leads to even more pain.
Scarry: Whatever advice You get from Your next appointment Please give yourself and Your great Hubby a lot of time before letting them cut you again. Words of wisdom bought to You by Your friendly friend. Tom in pain
Tom Lasko

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