Wondering about Disability

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Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/2/2008 6:32 AM (GMT -7)   
Hey all;

I have a question about anyone who is on disability if you had too many problems with getting them to pay. I have been going through the denials for the last 4 years and am at the last stage of the appeal process. Went to a hearing where a judge advocate was the one who would make the decision on my case and he thought that because I can be on my laptop for 4-6 hours a day that I could get a job. But here is the thing....I am always laying down when I am on the laptop and I do not think that anyone will hire me for a job when my requirements are going to be a comfortable bed!

My attorney thinks that it too has to do with my age since I am only 44 years old and I believe this to be true. Was wondering if anyone else has had any problems with disability?
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 8/2/2008 7:36 AM (GMT -7)   
Good Mornin Scarry: Sorry to hear ya had a bad night ! ! Who told them about lap top usage ? Gotta tell the truth in these things for i went thru the same stuff. When they asked what I do all day I told em I chase my pigs then gotta rope the geese into
my bedroom so i can sleep. Then i told them I also sit around and plot about feeding the pigs people who think I am capable of working somehow they approved my claim. I tried telling them about my Rabbit dreams but they for some reason dismissed me
Still looking for the pig that ate me list when I find out which one ate it ---he or she is supper-- would be nice to have some of that there Wyoming potatoe ( spelling) salad with pig ! Okay post ya later starting my new list then gotta go on poopie patrol. luv ya your bestest, painfilled, lying, cranky, miserable, screw loose, pig chasin friend from New Jersey, Scarry Tom
Tom Lasko


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/2/2008 7:57 AM (GMT -7)   
Good morning Tom;

Yeah I hear you on that one! Stupid people think that just because I spend most of my time on the laptop that I am not disabled! I mean what am I suppose to do with my time?? Plus on top of that he mentioned three or four times in his report that I walk my dogs which I never said I do that...what I said was that when I am in tremendous pain I walk up and down the yard and the dogs follow me. How do you get that from that???

Hey I finally caught that dang rabbit last night and he bit my finger!!! So I chopped his head off and made Hosenfeffer out of him!!! LOLOL Hey how about a little roasted pig for supper? hehehehe! Sorry just a little cranky here, I cannot seem to get the pain under control today and its bugging the hell out of me!

Anyway.....my best wishes to ya. Your cranky, bitter, mylogrammed, poked and prodded in pain friend

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 8/2/2008 8:03 AM (GMT -7)   
Hi my Scarry Friend: So sorry Your having a really hard time wish I had a magic spell to cure all of us. However after reading Your post I never be able to sleep again ! I also been havin rabbit dreams but i am the damm rabbit ! Can You go back to sleep and dream somthin else ?? ( please ) i need my head ---i think, Your pain friend Tom
Tom Lasko


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/2/2008 8:20 AM (GMT -7)   
LOLOLOL sure how about this....had another dream cause I woke up after I caught the rabbit. Here it is; I was in this huge building with lots of hallways and doors. It looked kind of like a school but there were no students. Anyway I heard this skittering behind me and when I turned there was Remington my Male yellow Labrador Retriever standing behind me. "Rem what ya doing?" I said as he came up for me to pet his head. And he just stood there looking at me with his pouty little face as though he wanted something. "You ok buddy?" I said and stroked his head.....and in the next second my Lab who gives you looks as to tell you what he wants spoke to me and this is what he said;

"Mom....I don't know what you are doing in this big building but do ya think we could go outside? I know of a huge field that has gobs of Pheasants and I wanna hunt them. I know where your gun is wanna go?"

I nodded and the dog followed me out of the building. We had just gotten to the front doors and were just about to go outside and I heard footsteps behind me. When I turned there was my husband coming up behind me with his shotgun and Jazz (chocolate princess lab) and Shadow (black I gotta please everyone Lab) running to catch up with him. Jazzmine skittered across the polished floors and Hubby had a smile on his face.

Now....this is where it gets very weird! I looked at hubby and said "Ready?" He looked at me and smiled...."You can't go hunting today hun." he said. I gave him a puzzled look and asked why and he said "Cause your going away. You have to go to Tanithion to finish your story about the medieval race that you put there."

I actually looked at him with a **** look on my face and said "Now darling, you know that Tanithion is a fantasy world. There is no such place." and he said "Oh yes there is remember you made it! I was told by the King of Tameitha that you are needed to finish the tale."

"Oh" I said and looked at him like he was nuts but all of a sudden a like swirling white light appeared before us and hubby smiled and said its time to go. Then he disappeared along with my three dogs. When I looked around I was in this wonderful world with wildflowers of many colors and beautiful castles with tall pillars and statues. Then I heard a voice behind me that was low and growly saying "about time you arrived My Lady. Are you ready to complete this tale?" I turned and there before me stood Cothera my red dragon in my story to his right stood the King of Tameitha and the other four Kingdoms of my story and they bowed low and smiled at me. I was just about to climb onto the dragons back when I suddenly woke up in tremendous pain.

Now here is why I think I dreamed this; I have failed to complete my story about this world and have not worked on it in many weeks and I think subconsciously my brain is telling me its time to go back to my world and complete my story. What do you think?
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 8/2/2008 9:17 AM (GMT -7)   
  Hi Scarry : Another dream ?? damm back to my dream book !! Tom

Tom Lasko


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/2/2008 9:57 AM (GMT -7)   
Yeppers which means that I am back to free flowing mode with the book and am writing up a storm as I lay here and try (try being the key word here) to forget the pain that surges down my left leg. Arrrrrg will it ever let up???? darn nerves are about to drive me insane!!!! Oh well, Fairies, giants, Pixies, witches, along with Kings and Queens and medieval knights are in my head today so I will keep going with the book and hope that the pain subsides for awhile.

Until my next post.....your scarred up, in pain, tormented, medieval thinking friend......

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


deb in indiana
Regular Member


Date Joined Aug 2005
Total Posts : 387
   Posted 8/2/2008 2:10 PM (GMT -7)   
Are you from Indiana? I went in front of the Judge All he asked me if i was i in a car wreck in 1993 and how much money did i get ? I just re applied cause i new he was going to rule against me and the bad part my son was my advacate and out 20 causes he has won them all but mine and he said iam worse off then most that have got it .I just started over and appealed the judges decision and i had to go to two more ssd doctors and the last doctor said you we get it on the first try and i said i have been fighting this for 4 years and he couldn't believe it But if i get it most of my ssd will go to co pays on meds i take 33 pills a day or suppose to which is 17 different meds a day but as of March i have been on Indiana hip insurance it's new and you pay monthly payments by your income but i will loose that when i get on ssd so you can't win .Hope you have better luck then most Deb

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/2/2008 2:31 PM (GMT -7)   
Nope I'm in WY and their real weird about this stuff. So I am going through my supposed last appeal or so they are saying ack! I hate trying to get money out of people that think that you can work. Stupid people...the judge seems to think that hypothetically I can work if I can sit for 4 hours which I cannot sit for four hours. It's impossible to sit for 4 hours what are they thinking!
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 8/2/2008 2:33 PM (GMT -7)   
Hi Scarry: Got to tell ya I have a really good friend who like us is full of pain and wrote a Childrens book about caring for her grandchild all by Herself. Book made her a couple of bucks.
title: Stunbling but not Falling by Donna Zieminski
To stumble and not fall,
Stand up straight
And try hard, not crawl.
To smile
When You feel like crying
to wake up
When inside you're dying.
to face an empty day
Within my empty world,
And find the strength
to say
" I did it"

I stumbled through today

can You guess who wrote this one pain filled day ??

Keep writing ya never know you could wind up on Opra ( spelling) on her favorite book list ! ! Then onto Hollywood for the movie ! Cool ???
Your pissed off, cranky, nasty, evil, pain friend from N.J. tom
Tom Lasko


kara487
Veteran Member


Date Joined Mar 2008
Total Posts : 637
   Posted 8/2/2008 2:36 PM (GMT -7)   
I am on my second try for disability.

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2283
   Posted 8/2/2008 2:48 PM (GMT -7)   
Scarred-
I feel for you with the disability issues. I had the same problem last summer. Now I'm just trying for short-term disability through my employer & even that is a nightmare. They keep losing my paperwork; then they claim they never got it in the first place, even though I have proof they did; then they turn the whole thing upside down on me & say that if I have so much energy to fight their decision to deny then I ought to have enough strength to go into work. I told them I wasn't really sure how much my boss would appreciate seeing me in a hospital gown with an IV & PCA pump hooked up to my arm, but if they could convince him to take me like that then I was willing to give it a try. :)
They decided to review my appeal after that.

If you seriously are looking for a job where you can lay down & work on your laptop, try Virtual Assistant work. I know some people who do that & make decent money, plus they can do everything from their bed. There are some scam VA jobs out there, so be careful not to apply for any of them that ask you to pay an upfront fee, but there are plenty of others that offer free training & pay decent wages. They do expect diligent work & punctuality, so if you can't work consistently even from your bed, then maybe you need to have your advocate bring that up with the judge as a way of explaining why work from home wouldn't be an option. Also, some companies (mine has started experimenting with this) allow their employees to work from home. One thing for that is that you probably need to be able to at least throw on a dress shirt since they have virtual meetings.

Hope something works out for you -- whether it's a new job or a judge who better understands the debilitating nature of chronic pain.

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/2/2008 3:21 PM (GMT -7)   
I am hoping that this last appeal will do the trick. My attorney says that in this last stage he has a high rate of success 90% so we will try this and see what happens. I of course have no faith in the system and think that the whole system is messed up. I do not understand how anyone can tell someone that they can work when I can't even focus on things for longer then 5 minutes....or sit for more then 5 minutes without it hurting so bad that I wanna cry.

IMHO the whole system is totally screwed and needs serious attention. I wish someone would take a better look at what we go through on a daily basis and help us to get the help that we need for our problems. The ins is horrible...you have to fight to get anything done and butt heads with each and every care taker, doc and pharmacy to get done what you need.

Anyway down off of my soapbox hehehe.
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 8/2/2008 7:30 PM (GMT -7)   
Francis : the Virtual Job You wrote about do they accept employees who take narcotics ?? Please advise
Tom Lasko


Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2283
   Posted 8/2/2008 7:58 PM (GMT -7)   
Based on a couple people I know, yes, as long as they're legally prescribed & there's no history of drug abuse. They do screen -- same as just about any job these days.

I have had pre-employment drug screens -- including for teaching jobs, back when I was able to do that -- and have never had an issue not qualifying for a job based on prescribed narcotics. You just have to disclose that to the testing company prior to the test. The testing company said I needed to disclose any scheduled meds I'd been on for the previous 6 months & provide prescriber information for those meds. My PM examined reflexes & stuff to clear me for driving, so even jobs that required a small amount of driving (driving is painful, so I've never actually tried to apply for one that requires a lot of driving) have never been an issue for me.

If you're otherwise eligible for employment (and if you have a job offer contingent upon drug screen, you're considered to be eligible) and you are medically cleared for the job, then it is considered *illegal discrimination against a person with a disability* for them to exclude you solely based upon legal use of prescriptions. Now, if the meds make you so sleepy you can't actually work, that is a separate issue; but if they just don't like the idea that you're taking meds, that's discriminatory.

Honesty is the key. I've seen people who've tried to go off their meds a week or so before the screen & trace amounts showed up. Since they hadn't disclosed their prescribed meds ahead of time, they were disqualified from the job. One girl I know was even reported to the police -- she was eventually cleared, but now has that on her record until she can save up enough money to get it expunged. The screening companies don't voluntarily offer up the consequences of testing positive but they're supposed to tell you if you ask; if you want to be sure, ask before giving a sample.

ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 8/2/2008 8:13 PM (GMT -7)   
You know, I've been thinking about this with my job recently. Thank God I am still able to work a little. Unfortunately that means I can do pretty much NOTHING else. No fun for me - time out with friends or things to enjoy in the evening are not an option. But still, I know the fact I can have a job is a blessing. But I digress... What I've been thinking about is the whole Medical Privacy Laws thing that's blown up recently. And how does that balance with the required disclosure of exactly what prescription medications my doctor believes I should take?

I've been kind of struggling with this because the last time I was in the hospital and off work I had to get cleared through the company's Risk Management department before I was allowed to return to work. During that meeting, at which I presented a form signed by my doctor which gave me his blessing to return to work with no restrictions except lifting heavy things, I was asked point blank "are you taking any medications?" I was a little shocked by the question and so caught off guard that I just answered honestly "yes." They then asked "do any of the medications you take make it dangerous for you to drive?" Again, I was taken aback by the question. I said "No, I can drive. If I could not, my doctor would have noted that as a restriction on the form you had him sign. He is the one who prescribed the medication after all." Thankfully, that satisfied them and they didn't ask any more questions, but I was left feeling really unsettled and somewhat violated by the whole thing.

I apologize for the rabbit trail, Scarred. I'm just curious what you all think about this.
Ry

tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 8/2/2008 8:36 PM (GMT -7)   
Ry : your 100% right in Your feeling's. It must be almost impossible to work and function at home and I for one am very proud of You. Luck was with You that your employers did not ask for your medication list for if they read up on them i guess you would be unemployed like the rest of us. Usually,
I comment on everything and Your problem hits me right in my heart as you are in such a tight situation and i am at a loss for words to write.
Are You able to take your meds as directed or do You wait till you get home as many others I know do. Now with the threat of this new Urine test around here my friends are worried about holding onto their jobs and their medications. A lot of my friends hide there pain problems from their employer.
Ry i am truly sorry I ( right now) can not give you the answer I think You were looking for. I know the rest of our Great group will help You
with advise. Your friend in life and pain, tom
Tom Lasko


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/2/2008 8:45 PM (GMT -7)   
Ry, Scarred and everyone,
These issues are on my mind every day. Not only is SSDI a mess (they openly admit it and are supposedly trying to hire more administrative judges to deal with the backload) but I also think the fact lawyers get a % of the back award has something to do with why this all lingers. After all, they write the rules and know the system best. The longer disability lingers, the bigger the award they get. Can't help thinking the two are connected.

And as far as privacy - I used to be a very private person especially about health and financial issues. Anymore I feel like I might as well be standing out in the middle of the street letting my medical and financial records blow out into the wind. There are so many systems that we have to produce this info. for, and it goes into so many computers which we know can't all be secure (the state of PA accidently sold computers with SS#'s and other info on them a few years ago!), and it seems like we have so little control over it. I guess I'm starting to think maybe I just need to learn to shrug my shoulders about it all because if you want to apply for these programs, get/hold a job, whatever....a lot of this info. can either be demanded or is sort of maneuvered out of you (like with Ry) even though it might not be legal. It's all overwhelming to me, but when you're trying to figure out how you're going to pay for your next prescription or put a tank of gas in the car or (what do I mean "or" - should be AND) pay the 33% increase that was just announced from my local natural gas supplier, it seems those other things get put on a back burner. It's not right, and I don't like it, but don't have the energy to figh it.

PaLady

ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 8/2/2008 10:15 PM (GMT -7)   
Wow, Tom. Thank you. I cried when I read your post. I appreciate the encouragement and support. It is really difficult to keep up the job and some days it's all I can do to make it home and drag myself through the door and cry myself to sleep. I think "this can't be my life!" But I am determined to hang on to it as long as I possibly can because I know that all of you would love to be able to have your jobs still. It's probably stupid, but I tell myself I'm working for all those CP patients who can't. Just wish I made enough money to send you all some! Well, for that matter, it'd be nice to make enough to make ends meet here! LOL!! I was pretty relieved that the Risk Management peeps didn't ask me WHAT I was taking, because you're right - they wouldn't have let me stay. I am lucky in some respects that I have a high tolerance for the meds I take and don't usually have the side effects, so I am able to take them on schedule even during the day. But I do make VERY sure that I am completely alone when I take a dose, and though I carry a copy of my prescription in my purse, I keep the meds I'm going to take during the day in a small Tylenol bottle so if someone did see me with it they'd think I was taking Tylenol.

PaLady - I had never thought about the lawyers' percentage of the SSDI back pay. It certainly makes you wonder. Sad, though. Seeing what you all struggle through to get the benefits you deserve is pretty scary. I know it might not be long before I'm right there with you.

Ry

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/3/2008 10:45 AM (GMT -7)   
Yeah all of what you all are saying is true. SSDI is saying basically that I can function in a few jobs around the country, if (and the IF is a huge leap into a world that I am not able to function in) I can sit for 4 hours. Unfortunately the pain meds leave me feeling quite "drugged up" so to speak. I've wondered about getting an online position with one of the local docs or lawyers but this too costs money to do and I do not have the luxury of being able to do this.

The funny thing is, my sister-in-laws are going through this as well. The one that I have spoken about is a nurse in ICU at Dodge City Hospital and has a stimulator implanted in her back. This has allowed her to function in her job and I think she actually has noticed a change in her condition. The other one just had surgery to correct her problems and the doc that did this had a "God Complex" and told her that he did a perfect job and that all of her pain was in her head that it could not be because of her back that was causing her pain.

I wish that there was some quick fix to make all of our problems go away. I just read an article last night about a pharmaceutical company that has now been given FDA approval to present new drugs for patients suffering from migraines so who knows...maybe someday things will be better for all of us sufferers of CP no matter where the pain lies.
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/3/2008 11:08 AM (GMT -7)   
Scarred,
Yes, I think (sadly or not - I'm not sure) that the main hope for some of us (like me) is probably going to lie with some new type of medication that is developed that doesn't have as many side effects. And I do think there's some work on these - things that work on the brain in a different way to block pain sensations. But if they ever are successful and make it to market they will probably cost lots of $$. I feel like I'll be stuck in a nursing home somewhere on the cheapest meds available and that's a scary thought.

You know the work issue is a different thing when you already have a job and especially if you've got a supportive employer, and then you get some surgery or other treatment, and try to ease back in. It's another ballgame altogether when you've got to apply for a new job in a job market where employer's can pick and choose from a large crop of healthy people! And most of the work at home scams are just that, and even anything that's not a scam is probably going to require some out of pocket expenses like a new computer, or specialized programs, or something. It's not as easy as it sounds. I get so tired of people suggesting that to me! It's certainly not worth risking whatever benefits you may be getting or might be eligible for in the future to gain only a small amount (or even lose money) after paying for business expenses.

Oh, well....I am glad to hear you're taking it easy. It at least sounds like the decision to sell the house is made and sometimes I think we should all move every few years to keep the clutter from piling up. I've been in my home over 25 years (and it shows!) and I dread having to go through things. So watch the Titanic yet one more time or write another chapter of your novel!

PaLady

ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 8/3/2008 11:20 AM (GMT -7)   
Hey, PaLady, maybe we should plan on having a HealingWell Nursing Home! When "the time" comes, we could reveal our real selves to each other and be roomies at the big house (okay, so maybe that's not what we should call a nursing home, but...). I'm on the fast track to join you there, so we can plan on being buddies right to the end there since neither of us have one of those husband thingies to take with us. What do you say? yeah

Ry

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/3/2008 11:33 AM (GMT -7)   
Ry,
It's a deal! Only this needs to be the "real deal" and not a virtual one!! yeah

PaLady

ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 8/3/2008 11:44 AM (GMT -7)   
Absolutely, PaLady. Nothing virtual about it! yeah yeah

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/3/2008 1:11 PM (GMT -7)   
I'm there too gals!!!! I will join you both in that Nursing Home ready to share my tales of "Woe" and be ready with the tissues when everyone cries!
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.

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