Ok another problem but maybe its a helpful one!

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d_davis777
Regular Member


Date Joined Oct 2006
Total Posts : 101
   Posted 8/5/2008 9:34 AM (GMT -7)   
sad   Yesterday i found out that i have lyme disease. My nero had told me she thought i had MS well me knowing the feild i told her lyme and ms have the same symtoms and asked her to test me witht hat first. Well she did and it came bac i did have that. Im glad that i have that rather then MS but all in all im kinda depressed! This is the second time i have had this Dx and am wondering whats next. Back in 1990 was the first time and i had it so bad that they were talking about a kidney transplant and found that my brother was a match, well they found this pill that was told it should work and it did. So now my question is has anyone had this problem? As well has anyone had it more then once? Im wondering if this is a lot of my problems with pain all over and tired all the time? Sorry to bother you all with yet another problem but this is my family and i dont know were else to turn! I do know i mad a post to Tom about seeking professional help and think that maybe i should as well seeing how i am so upset and confused! My mind is racing and i dont know what is to happen next! Thank you all so much!
Asthma,Chiari Malformation,Arachnoid cyst on temporal lobe,Hypertension, sleep apnea
Gerd, Severe nerve pain, Severe DDD, Osteoartheritis, Herniated disks,bilateral papiledema
Constent sinus infection, IBS, Depression,allergies and cervical cancer surviver,had a vp shunt placed in my head,hyatel hernia,,bilateral papiledema and scoliosis, neorophathy in neck, pinched nerve in back,DM,RLS,epilepsy,chronic headaches, and fibromyalgia
 
 
God Bless You All!!
Donna


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/5/2008 9:42 AM (GMT -7)   
Dear Donna,
I'm so sorry to hear of the diagnosis - and for the second time. I don't know anything about the treatments and I thought it was a good sign that even back in the 90's there was medication to help you. It has to have improved since then. But from the little I know of lyme disease your pain and fatigure certainly could be related.

I would also encourage you to find a good therapist to talk with and help you sort out your feelings. Try to find someone who works with pain and/or physical illnesses along with traditional things like depression and anxiety - which probably most of us on this site have at least from time to time, if not on a regular basis. And we're here for support, as always. I don't know if there's a lyme disease section on HW - you could scan the list of conditions above. If not, in addition to us maybe searching for some credible lyme disease info. would also be good. We all have to be educated consumers, but you already know some things.

Please keep us informed!

Hugs,
PaLady
p.s. I just looked and there is a lyme disease section in HW. So you could use the quick jump menu above and post both here and there. The more support and info. the better!

d_davis777
Regular Member


Date Joined Oct 2006
Total Posts : 101
   Posted 8/5/2008 9:47 AM (GMT -7)   
Thanks so much yeah i did find that it was a site here and did post! I do agree i need a therapist at this time. You kinda get to many things as the more DX we get and im overloaded! Thanks again!
PAlady said...
Dear Donna,
I'm so sorry to hear of the diagnosis - and for the second time. I don't know anything about the treatments and I thought it was a good sign that even back in the 90's there was medication to help you. It has to have improved since then. But from the little I know of lyme disease your pain and fatigure certainly could be related.

I would also encourage you to find a good therapist to talk with and help you sort out your feelings. Try to find someone who works with pain and/or physical illnesses along with traditional things like depression and anxiety - which probably most of us on this site have at least from time to time, if not on a regular basis. And we're here for support, as always. I don't know if there's a lyme disease section on HW - you could scan the list of conditions above. If not, in addition to us maybe searching for some credible lyme disease info. would also be good. We all have to be educated consumers, but you already know some things.

Please keep us informed!

Hugs,
PaLady
p.s. I just looked and there is a lyme disease section in HW. So you could use the quick jump menu above and post both here and there. The more support and info. the better!

Asthma,Chiari Malformation,Arachnoid cyst on temporal lobe,Hypertension, sleep apnea
Gerd, Severe nerve pain, Severe DDD, Osteoartheritis, Herniated disks,bilateral papiledema
Constent sinus infection, IBS, Depression,allergies and cervical cancer surviver,had a vp shunt placed in my head,hyatel hernia,,bilateral papiledema and scoliosis, neorophathy in neck, pinched nerve in back,DM,RLS,epilepsy,chronic headaches, and fibromyalgia
 
 
God Bless You All!!
Donna


tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 8/5/2008 9:26 PM (GMT -7)   
Hi Donna: I live in a rural area and I too have gotten Lymes on top of everything else but I responded well to the antibotics ( spelling ?) then I got the vaccine and so far so good. Ticks are horrible this year !
Thanks for the tip on seeking professional help --been done the therapist road before never met one that did not depress me. I would be the best I could be given all my problems go into the therapists office and get depressed ! I ' tried nine different therapist MD's, PhD's, MSa's - T hen there is their answer to everything which is anti-depressents which made me a walking -talking Zombie. While some pills work well for other's anti pills do not set well with me. When the Lymes hit me I good not get out of bed ! really I could not get out of bed I was taken to the hospital with all my doctors thinking my brain swelling increased and I had some type of stroke. A thousand test's later ______________ Here Iam. Anything i can do Please feel free to ask !
Your tick bitten, flea infested, nutty, pain-filled friend Tommy
Tom Lasko


CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 8/6/2008 1:14 AM (GMT -7)   

Hey Tom,

Ever thing about getting rid of the "petting zoo"?  Probably have a lot less exposure to nasty things that bite, i.e. ticks, fleas...  Not that your geese and goat are nasty, although I bet they do "bite" on occassion.  I don't get how you can take care of all those animals.  I'm lucky if I can clean up after my cats.  Sorry about the Lymes.

Leigh Ann tongue


Basic info:
  • On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ, stomach problems 
  • Divorced, 43, spawn-free 
  • Surgeries: Gastric Bypass, Gallbladder Removed (followed by a week in the hospital for a Blood Clot), Impacted Kidney Stone Removed, Broken Ankle, Major Dental work(ten molars pulled, multiple cavities, root canals) 
  • Current Meds: Prozac, Klonopin, Atenelol, Stadol Nasal Spray, Lortab/Percocet, Trazadone, Buspar, Protonix, Tramadol, Visteryl, Carafate Suspension, Co-Q10, B2(Riboflavin), Remifemin(Black Cohosh)
  • PROHIBITED FROM ALL NSAIDS
  • Current Problem: Mysterious Internal GI Bleeding, possible ulcer in location of Gastric Bypass
 
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett
 
 


tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 8/6/2008 6:10 AM (GMT -7)   
CRANKY 1 said...
Hey Tom,

Ever thing about getting rid of the "petting zoo"? Probably have a lot less exposure to nasty things that bite, i.e. ticks, fleas... Not that your geese and goat are nasty, although I bet they do "bite" on occassion. I don't get how you can take care of all those animals. I'm lucky if I can clean up after my cats. Sorry about the Lymes.

Leigh Ann [img]/community/emoticons/tongue.gif[/img]
Hey Cranky 1 : Love Your name ! Cranky 1: Fruit Loops came into my life prior to my accident, geese just showed up one day and never left. Our funny farm is a great source of entertainment for me. Also have a deer, female who my son' found in a leg trap as a fawn,-they bought her home and the Vet wanted to put her to sleep since she could not survive in the wild and no zoo would take her so here She is. Due to the leg loss and lack of proper feeding as a fawn ,She never grew to full size. She's really old now and hangs out with Fruit Loops. Ticks are not on the animals as we have tick preventative on all of them. Out home is heavily wooded and the ticks jump out of the bushes and trees to attack us. Everyday we check for ticks on us this is a really bad year every one is complaining. Once ( God forbid ) Fruit Loops leaves us our Goat days are over and if the geese decided to leave they would not be replaced but would be missed. Guess I would be longly and I always wanted another ass ( donkey ) so .......?
take care, Tom
Tom Lasko


d_davis777
Regular Member


Date Joined Oct 2006
Total Posts : 101
   Posted 8/6/2008 7:29 AM (GMT -7)   
Thank you all for replying to me! So i spoke with my mom (i guess there is a first for everything) and she said i had lyme 20 years ago and that i was treated for 30 days! Well now my problem is my pain is getting 10 times worse and my doctor said she doesnt think this is urgent that i need to start on anything!!!! eyes   How is this not urgent is beyond me! My pcp said that seeing how i have had it before that it may be the old showing and not a new case. Well when my nero took this test she knew i had it before and said she had to do a special kinda test. THe best thing of it all with the pcp is she hasnt even looked at my test results yet LOL!!!!!! mad   I didnt know my pcp was physic. Anyways sorry for venting im angry and hurt and the pain is going to my head i think! Thanks for listening!
Asthma,Chiari Malformation,Arachnoid cyst on temporal lobe,Hypertension, sleep apnea
Gerd, Severe nerve pain, Severe DDD, Osteoartheritis, Herniated disks,bilateral papiledema
Constent sinus infection, IBS, Depression,allergies and cervical cancer surviver,had a vp shunt placed in my head,hyatel hernia,,bilateral papiledema and scoliosis, neorophathy in neck, pinched nerve in back,DM,RLS,epilepsy,chronic headaches, and fibromyalgia
 
 
God Bless You All!!
Donna


d_davis777
Regular Member


Date Joined Oct 2006
Total Posts : 101
   Posted 8/6/2008 1:29 PM (GMT -7)   
Well she called me back and is starting me on antibiotics whewww :-)   She i guess wanted to test me lol. Thanks all!
Asthma,Chiari Malformation,Arachnoid cyst on temporal lobe,Hypertension, sleep apnea
Gerd, Severe nerve pain, Severe DDD, Osteoartheritis, Herniated disks,bilateral papiledema
Constent sinus infection, IBS, Depression,allergies and cervical cancer surviver,had a vp shunt placed in my head,hyatel hernia,,bilateral papiledema and scoliosis, neorophathy in neck, pinched nerve in back,DM,RLS,epilepsy,chronic headaches, and fibromyalgia
 
 
God Bless You All!!
Donna


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/6/2008 2:32 PM (GMT -7)   
Good news, Donna! I'm glad your doc acted. I know a lot of docs may not know enough about lyme disease and they let it go too long.

Let us know how it goes.

PaLady

tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 8/6/2008 8:32 PM (GMT -7)   
Hi Donna: What great news ! What great news ! now that the Good is covered let's take care of the bad that "may" happpen ! Meds for Lyme are powerful, they caused me to have severe heartburn and later mouth sores. but both the heartburn and mouth sores were easily handled but yet other meds. Bright side is soon You will be feeling better. If i were You I would get the vaccine next year ! Thanks for the good news. Tom
Tom Lasko


CRANKY 1
Veteran Member


Date Joined Aug 2005
Total Posts : 616
   Posted 8/6/2008 9:01 PM (GMT -7)   

This blasted post had me dreaming about ticks all night.  I actually pulled a tick off a neighbor's dog's ear the other day, so now I'm thinking about then all the time.  Worst part...the nightmares gave me a migraine, so I woke up in misery.  Maybe it was a sympathy migraine for those of you dealing with Lyme's disease.   At least I could get a pain shot and feel a little bit better.

The brain certainly does weird things...

Leigh Ann


Basic info:
  • On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ, stomach problems 
  • Divorced, 43, spawn-free 
  • Surgeries: Gastric Bypass, Gallbladder Removed (followed by a week in the hospital for a Blood Clot), Impacted Kidney Stone Removed, Broken Ankle, Major Dental work(ten molars pulled, multiple cavities, root canals) 
  • Current Meds: Prozac, Klonopin, Atenelol, Stadol Nasal Spray, Lortab/Percocet, Trazadone, Buspar, Protonix, Tramadol, Visteryl, Carafate Suspension, Co-Q10, B2(Riboflavin), Remifemin(Black Cohosh)
  • PROHIBITED FROM ALL NSAIDS
  • Current Problem: Mysterious Internal GI Bleeding, possible ulcer in location of Gastric Bypass
 
"The weather is here, I wish you were beautiful."
                                             - Jimmy Buffett
 
 


tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 8/6/2008 9:26 PM (GMT -7)   
Hi Leigh Ann: I love talking about Dreams ! Got me a dream book, Looked up ticks ? interesting subject in my dream book ! real interesting Ticks and Migraines not so good for You.
By the way " spawn-free ?? never quite heard it put this way ! Your a interesting person ! keep on posting .........please !
Anyway last time I was sleeping after pulling a bunch of those darn tickie tacks off me. I felt something crawling up my leg >>>>> Wasn't a tickie tack just a giant spider !!!! May You have dreams of living the perfect life ! and may Your dreams come true ! Yours in pain and life.... Tommy
Tom Lasko


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 8/6/2008 9:29 PM (GMT -7)   
Lyme is very serious. Educate yourself. Thirty days is not adequate to treat Lyme unless it is caught very early, I was treated for over three YEARS. Lyme can cause depression, sleep apnea, fibromyalgia-like symptoms, headaches, IBS, nerve pain, arthritis, chronic sinus infections, plus many, many other symptoms. You may have still been sick from your first infection.

Many people also get other diseases when they get Lyme. These diseases are hard to test for and hard to treat. You have a tough journey ahead of you, and I have to say it again - Educate yourself!

The people in the Lyme forum are pretty helpful. Don't let it all scare you.

Tom - the Lyme vaccine was taken off the market because it caused bad side effects such as arthritis, expecially in people already infected when they got the vaccine.

d_davis777
Regular Member


Date Joined Oct 2006
Total Posts : 101
   Posted 8/7/2008 6:35 AM (GMT -7)   
Dagger thank you so much! I have been studing on it a lot. I also have to let everyone know that someone picked up my med for me and its doxcyline and the kicker of it all is it a 14 day supply sad   In which by reading i know is not anough!!!! So now i am back to square one with the worries! I dont know if the pcp knows what she is doing!
Dagger said...
Lyme is very serious. Educate yourself. Thirty days is not adequate to treat Lyme unless it is caught very early, I was treated for over three YEARS. Lyme can cause depression, sleep apnea, fibromyalgia-like symptoms, headaches, IBS, nerve pain, arthritis, chronic sinus infections, plus many, many other symptoms. You may have still been sick from your first infection.

Many people also get other diseases when they get Lyme. These diseases are hard to test for and hard to treat. You have a tough journey ahead of you, and I have to say it again - Educate yourself!

The people in the Lyme forum are pretty helpful. Don't let it all scare you.

Tom - the Lyme vaccine was taken off the market because it caused bad side effects such as arthritis, expecially in people already infected when they got the vaccine.

Asthma,Chiari Malformation,Arachnoid cyst on temporal lobe,Hypertension, sleep apnea
Gerd, Severe nerve pain, Severe DDD, Osteoartheritis, Herniated disks,bilateral papiledema
Constent sinus infection, IBS, Depression,allergies and cervical cancer surviver,had a vp shunt placed in my head,hyatel hernia,,bilateral papiledema and scoliosis, neorophathy in neck, pinched nerve in back,DM,RLS,epilepsy,chronic headaches, and fibromyalgia
 
 
God Bless You All!!
Donna


d_davis777
Regular Member


Date Joined Oct 2006
Total Posts : 101
   Posted 8/7/2008 6:37 AM (GMT -7)   
Thank you all so very much for you kinda words and thoughts i will let ya all know how i make out. However i do believe this is going to be a lot harder then i thought!
Asthma,Chiari Malformation,Arachnoid cyst on temporal lobe,Hypertension, sleep apnea
Gerd, Severe nerve pain, Severe DDD, Osteoartheritis, Herniated disks,bilateral papiledema
Constent sinus infection, IBS, Depression,allergies and cervical cancer surviver,had a vp shunt placed in my head,hyatel hernia,,bilateral papiledema and scoliosis, neorophathy in neck, pinched nerve in back,DM,RLS,epilepsy,chronic headaches, and fibromyalgia
 
 
God Bless You All!!
Donna


tom inpain
Regular Member


Date Joined Jul 2008
Total Posts : 239
   Posted 8/7/2008 7:41 AM (GMT -7)   
Dagger said...
Lyme is very serious. Educate yourself. Thirty days is not adequate to treat Lyme unless it is caught very early, I was treated for over three YEARS. Lyme can cause depression, sleep apnea, fibromyalgia-like symptoms, headaches, IBS, nerve pain, arthritis, chronic sinus infections, plus many, many other symptoms. You may have still been sick from your first infection.

Many people also get other diseases when they get Lyme. These diseases are hard to test for and hard to treat. You have a tough journey ahead of you, and I have to say it again - Educate yourself!

The people in the Lyme forum are pretty helpful. Don't let it all scare you.

Tom - the Lyme vaccine was taken off the market because it caused bad side effects such as arthritis, expecially in people already infected when they got the vaccine.
Dagger:  When did it go off the market? Got my last vaccine last spring ! thanks for the information so i can prepare for next season. best regards, tom

Tom Lasko

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