The Good....The Bad....and the Ugly!

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Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/14/2008 6:00 PM (GMT -7)   
Well, went to see my doctor today and I got good news......bad news.....and ugly news! I hate all three but at least we have an idea of what we need to do.

Good news: Apparently there is a problem with my Mylo that doc actually discovered. The nerves close to the Sacral sac and my spinal canal that is narrowing which is causing pressure on my sciatica nerve which obviously is causing the searing pain in my legs. So this is the good news!

Bad News: The medications that are normally used to relieve pain for a person in my amount of pain is never going to work with my condition. Which means they are only putting me into a pain fog for nothing.

Ugly News: No amount of Medications in the world are going to help me with the pain and I am what they call "Screwed" as the PM doc said.

Solution?: Yes ladies and gents....there is a solution! Place me on the list for a Stimulator and hope to god I get it!

Worse then worse problem: Oh yeah there is one of these too! mad I get to jump through two thousand hoops to convince WC to allow the Stimulator to be put in!

And last but not leastly.....check this out.......I now have a new problem to deal with....................WC is never going to approve the Stimulator and I will end up taking them to court to get the stimulator placed because the medications will not work on the area that my pain is located.

Tell me my friends.....does this make any sense??????
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 8/14/2008 6:15 PM (GMT -7)   
Scarred:

Take a breath, dear! I remember from our conversation earlier that the WC folks had denied the Stimulator earlier, but we were thinking that maybe with this Mylo that the doc could "contest" that and get it reconsidered, right? Have they already said no again? If not, don't count it out yet. nono You never know what your doc might be able to get them to do! smilewinkgrin

It surprises me to hear them say that NO medications will help, though. If it is nerve pain, I wonder why they don't want to try some of the meds like Lyrica and Neurontin, etc. I know those would never take away your pain completely, but it seems like they could find one that would a least help a little bit. There are really quite a few in that family that they could try.

I'm going to keep my hopes up for you and keep on praying that the WC folks will get their heads screwed on straight and get you the help you need. :-)

Ry

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/14/2008 6:49 PM (GMT -7)   
I know Ry, but this is the first time in 4 years that one doctor has actually said that there was something in the Mylo that would explain my Sciatica pain. Its frustrating that this has been there since 2004 and not one doc has actually told me it exists.

WC refuses because they are determined that my DJD is the result of my pain and that the Stimulator does not work at all for anything! Doc has written me three scripts today. One for Celebrex, since I am allergic to steroids. Another for the inflammation; Tolmetin to be exact and a cream that I rub on the area when the area is hurting.

Whether these will help is still yet to be seen, but doc seemed to think that I would get some relief from this new script and it will be a temporary fix until we can get WC to okay the Stimulator.

Doc said that where the nerves are affected is too far into the back to allow the pain meds to actually work on them and as such we are going to try to ease the inflammation a bit to see if we can properly treat it.

Two......now here comes the exact reason for my irritation. 4 doctors have agreed that a Stimulator would be the best thing for my pain but not one have actually been proactive with this idea and actually went to WC and contested their disagreement. So hubby and I have decided to push my PM doctor into being more proactive towards what they feel to be the best option for my pain control. If not then hubby and I have decided that we will find a doctor that will push WC into it.

Scarred.

P.S. I agree that you are right Ry and I wish that I did not feel as though they have pushed me into this.
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 8/14/2008 7:00 PM (GMT -7)   
Oh my gosh! You mean he's telling you now that this narrowing was always there? And they just misdiagnosed it before? Oh goodness! Okay, so then I understand your frustration a little more honey! I was thinking that this was a new development or progression of the original injury. I'm sorry - I didn't mean to minimize anything. Either way it is still a painful thing to deal with, that's for sure.

I think you are absolutely right to push your docs about the WC issue. There is just no excuse for them not to go to bat for you here. At the very least to get you the trial! It's not like they have to put it in if it doesn't help. Can they do epidurals or anything in the mean time?

I will be praying that your new meds will penetrate well and help a little.

(((Scarred)))

Ry

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/14/2008 7:09 PM (GMT -7)   
No all three doctors that I have seen at that PM clinic have known this problem was there. Both hubby and I have resolved to seek out the best answer for this situation. Epidurals have no effect on me and are useless to attempt.

Hoping the new meds at least bring down my pain a bit until I can find a solution to this problem. Thanks Ry and I did not think that you were minimizing anything hun. I just didn't tell you the whole thing which was my fault as I should have explained it more clearly.


hugsssssssss

Scarred

After further review it is not Tolmetin that they are putting me on. The new meds are Celebrex, Topamax and a cream compound that I can put on my back where it the pain is beginning. The cream is a special combination of a steriod and a pain reliever. So we shall see what these do for me and doc is hoping that it will at least lower my pain a bit.

Topamax is used mainly for migraine headaches but they have found that it also helps with migraines as well and seizures. It is also found to help with chronic pain which I am willing to try. Since I am allergic to steroids doc decided that Celebrex would do just as good of a job as the steroids so I will be taking that as well.
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.

Post Edited (Scarred_for_life) : 8/14/2008 9:25:30 PM (GMT-6)


Tat2you
New Member


Date Joined Aug 2008
Total Posts : 5
   Posted 8/16/2008 7:21 PM (GMT -7)   

Ahh, scarred for life, Don't get me started about WC or I will fill many pages....I hope you get what you need to make things more bearable. I am currently battling WC at the moment as my upper back is compensating so much for my lower back, this is what my physio tells me, I am now having problems up top such as aching pain due to muscle tightness. My neck is so tight it is pinching the Ulna nerve, which runs into my left arm. As a result, my left hand has gone to sleep from ringfinger down to bottom of hand and lower wrist. WC wont come to the party on that one as they state i only injured my lower back at work so this is all they will cover, even though my physio has told them it is all related to the initial problem..... skull

catch....


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/17/2008 5:32 AM (GMT -7)   
WC has been real good at paying the bills so far and I hope they continue to keep it up. I heard from a Psychologist the last time I went to do a exam for the stimulator that they are actually considering placing restrictions on back surgeries as well. If they get their way anyone desiring back surgery will have to go through a psychology exam before continuing through the surgery.

Myself I think that this is a bunch of hoohy and wish that they would stop all this "Let's see if you are competent enough to stand any complicated procedures" and think about the actual patient instead of the bottom line of money. It's crazy to have to make a person go through these stupid hoops to get pain relief.

My sister-in-law was struck by lightening and it fused her entire back except for one place. So they went in and fused it and she was in constant pain. So they went in and put a stimulator in (of course that was before the Psychologists got their fingers into the mix) and she is able to work where as without the stimulator would have been in a wheelchair by now.

Anyway that's my opinion.

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/17/2008 11:39 AM (GMT -7)   
Scarred,
Here's my thought: The neurosurgeons ought to have to go through the psych. exam. And I'm not kidding. To rule out whether they have a god complex or objectively believe surgery will improve the quality of life for the patient.

I chuckled (although in commiseration, not laughing AT you by any means!) at your comments re: the pain scale. I know docs can't be experts at everything, and i know they get overhwelmed, but I just ask they RECORD our comments accurately, rather than as your doc likely did in the example you gave (other thread - sorry!) the "number" your rated your neck. And didn't make note of the rest of the body. I've seen enough of my medical records to know that in the overhwhelming majority of cases all the pain doesn't get recorded accurately as we report it. It should be noted, even if the docs say they can't find a "reason" for it, they should note our "complaints" accurately. Don't get me started on the computerized medical records!

hugs,
PaLady

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 8/17/2008 7:23 PM (GMT -7)   
OMG PA I agree!!!!!!!!! The one that did my husband's other sister's back told her that her back was PERFECT since HE did the surgery. Even though she was and is still having pain!!!! Can you believe that??????????

I also agree that your other comment is totally correct. It's funny how they get their high horses going on one thing and don't stop until they have totally picked a person apart he he he. I hate looking at the size of just my back file and dread trying to explain to another doc repeating everything that is in there ugggggg!!!

Yeah I'm the same way....don't get me started on medical records hehehehe!

hugs,

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.

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