I know I haven't been around for awhile but that was because I was actually living my life pain-free for the first time in oh so many years. Yet here I am. Back again and back in pain. Something happened to my wonderful life giving pain pump and it stopped working last thurs. I made it through the pain til my appt I already had schedualed with my PC Dr. I called and told them what was going on and lucky for me I always make sure I have back-up meds to handle any thing that arises before I can get to the dr.
I went today and after checking my pump she said it was working so the problem had to be somewhere else between it and my spine. She was very helpful and is schedualing a dye test to see where all the dilaudid is going. She raised all my medications to handle my pain issues and something for the withdrawal symptoms I will and have been going through. I love my pump and I am so scared. When I came back here and actually saw 2 threads for pain pumps I was thrilled. Next I was really bummed. It is impossible to read as I'm sure everyone else knows. Someone mentioned a site devoted to pain pumps and I would really like to know what that is. If anyone knows of it would they please write it here for all to see? It would be deeply appreciated by my-self and I'm sure a lot of other people.
It's been awhile since I've said hi to all of you good people but it was strange when I was feeling no pain I was a little scared to "jinx" it, I know it sounds juvenile but I look forward to catching up with you all again. I'd also like to thank Pamela kneckpain for restarting this thread I hope others will contribute, thanks. I'm not feeling my best at the moment but I will read and catch up with what's going on asap. I pray all of you have been well or are on your way there and me too.
Pamela the pump doesn't hurt in your abdomen it does make it hard to find clothes that fit. It doesn't hurt to have it filled either although it looks and sounds like it would. It took quite awhile to get my pain pump to the point where I could wake up and not have my first thoughts be of pain meds. When it did begin to work correctly it was amazing! My pain was gone. I forgot to take pain meds! I always had left over meds at the end of the day. And more important I went out and visited my daughter at her house. I went to my sisters house. I didn't pay for it later. There was no later. It was heavenly.
So goodnight to all and you Pamela thank you again.
Post Edited (Toritoo) : 8/27/2008 8:49:25 PM (GMT-6)
Just curious as to why you think Oprah is the answer? Granted, she has more money than she knows what to do with, and she does have access to very important people. What do you think she can do regarding pain-pumps or chronic pain?
The last time I went to my pain management clinic, I inquired about the possibility of getting a pain pump for my chronic back pain. The doctor actually "poo-poo'd" the idea of using a pump, making is sound that they were minimally effective and quite problematic. I read between the lines and realized that, once again, the doctors are steering away from any treatment that includes narcotic pain medication.
One day, I'd really like to sock one of these doctors in the head.
Toritoo, I do hope they figure out very quickly if the osteomylitis is back and can get you on a treatment regime. Thats really a terrible, terrible thing to have on top of everything else. What caused yours initially if you don't mind me asking? I do hope you can keep the WD at the minimum.
So glad to hear that your pump is fine and no problems going on with it. I am with you on the pain pump, its given me a great of my life back, considering where I was at before getting it. I will tell you something, when I first relized it had a handle on my pain, I was actually afraid to tell anyone because I was afraid I would jinx myself. I know where you are coming from there.,lol. But it is nice to have freedom again and be able to go visit like one of your kids, be able to leave the house other than for a drs appt. I rarely take BT meds and find when the pain hits its 99% plain ole muscle spasms going on, so I take my muscle relaxer and get relief that way. I find my Dilaudid does very little for the pain.
My pump is one of the lots thats been recalled for gear problems. However, my pump is operating fine, not every pump is defective either. My dr & I agree that it would really be of no big benefit to have my pump removed and a new one put in, since there is nothing wrong with mine. At each refill I have the exact amt of meds left in my pump that I should have. This is measured and noted in my chart. If a person was to have either too much or too little medicine left in the pump, then you know the pump is not working properly.
There is a new lady on here that is doing the trial right now for the pump. It will be interesting to see how it went for her. I remember it being wonderful, no awful pain.
Someone on here commented about the ambassadors for Medtronic pumps. That program is Medtronic patients that have had success in getting their lives back after having the pump implanted. It is a voluntary thing no one is pressured into becoming an ambassador. In fact on Medtronics site, it has an area where it asks if a patient would like to be an ambassador. For many years Jerry Lewis was one because of his success with the pump. But, there again, the pump is not for everyone.
I sure hope we see a post from you soon saying you are feeling better again Toritoo. Take care. Hugs, Susie
Post Edited (Toritoo) : 9/12/2008 12:29:50 PM (GMT-6)
Hey Pamela, Susie and Palady
I guess I should just say hey all. It's nice to be back among you all but I hate the reason. It's just sad. Pamela about the connectors, they Xrayed them and I am having blood work the first of next week. So thanks for the looking out for me. I hope everyone else is doing better, although better than what I don't know.
So good night to all and hope for a pain free or less day to you to.
I did'nt realize so many people had the pain punps in. I know there was alot of chat about them and so forth but I guess i dont Check in enough, because It seems like everyone has went out and has had the procedures.
I just want to say I wish the best of luck for all of you who have them, and the people who are trying to get thiers adjusted. I commend all of you who have had the courage to do so,I so deeply hope you can actually live a pain free life...........
I Hope Everyone Has A Pain Free Life!!!!!!!!!!!!!