I am back and need help!!!!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

OnSuboxoneTherapy
Regular Member


Date Joined Aug 2008
Total Posts : 21
   Posted 8/28/2008 12:45 PM (GMT -7)   
Hi everyone. I am the woman who went off my pain meds and went on suboxone for what I thought was pain relief. Of course this doesn't touch my pain. My doctor said he would help me find a pain specialist. Well, all of the pain doctors that we both have found only deal with injections and things of this sort. I can't find any locally or even within a 50 mile radius that deals primarily with medication only. Has anyone else ran into this problem? I go back to work in 3 weeks and am dying of pain here. I am taking way way too may NSAID. I am about to really lose my mind. I just  sit and cry and cry. The only temp relief I get is sitting in a cool bathtub. I am like a prune now. I am done living like this. I am ready to beg on the streets for pain pills. I really mean this. SOS to healing well!
 
 
 
L

TDoern
Regular Member


Date Joined Jul 2006
Total Posts : 495
   Posted 8/28/2008 3:07 PM (GMT -7)   
I really wish I had more information to give you. I have found that in the past few years many "pain management" places are backing away from giving out pain medication. Most of them are doing it out of fear, and problems, that come with dispensing narcotic medications. The pain clinic that I visit lets it be known that they are very strict with the rules about giving out narcotic scripts, and are very careful about who they give them too. My pain clinic has to pay quite a bit extra just to dispense the narcotic medications. Everything from the clinical extra time to make sure all the t's are crossed and i's dotted. Then they have to pay a higher premium on their insurance as well, due to the narcotic scripts. They also get watched under a microscope.

The thing is, I got lucky, after three or four pain doctors here I finally found one that worked for me. I hit a group that only did the "holistic" type of therapy, and told me I was too young to be on narcotics. They suggested more physical therapy - after having done years of it with nothing gained but debt, and more shots. I've gone to a doctor that would prescribe valium (I think it was) and that's it for pain, and only did shots - after four rounds of twenty plus trigger point injections each I told him it wasn't working, and he "agreed" he couldn't help me. (He would have also continued to take my money for the injections if I hadn't said it was enough). Then a few other random problem doc's and finally a place that works.

I really don't know what to tell you, other than to not give up. I may take more than 50 miles to get a good pain doctor. It's a hour and a half drive for me at 75mph to get to my pain doctor. I'm lucky that hubby works that way and I set my appointments so that he can drive me home afterwards - as I barely manage to get there in one piece from sitting and driving that long. You may have to look farther out to find a doctor, and you may need to ask around. Call your insurance, call your primary doctor, and call any and everyone you find on a google search dealing with pain in your area.

I know how tempting getting pain medication illegally might be, with the pain. Just remember it is not worth it - the consequences should you get the medication just don't even out. If someone finds out you got them from somewhere other than a legit doctor it will get you labeled as a drug seeker. It can land you in jail, and really hurt your family. Also if gotten illegally I would hate to think of what you might be getting in what you thought was pain medication. When you do find a pain management place - if they drug test you, you'll find yourself without a pain management place very quickly. Everything from getting a job, to getting help for other medical problems can be jeapordized by finding pain medication yourself. It just wouldn't be worth it.

As far as taking too many NSAID's I hope you are on at least something to protect your stomach. It can lead to ulcers, cancer and all sorts of funny problems if you take too much, or take it for too long. Also - if the NSAID's are helping at all injections are not a bad idea. If the Nsaid's help it means there is an inflammation issue somewhere contributing to your pain. If it's an inflammation issue it means that physical therapy, injections, stretching, and getting the inflammation out will help alleviate the pain, which means if you find a doctor that can figure out why the nsaids are helping, you may find yourself not needing the pain medication.

I wish you the best of luck,
Tammy
"When we come to the edge of the light we know, and are about to step off into the darkness of the unknown, of one thing we can be sure; either God will provide something solid to stand on... or we will be taught to fly.'"

Dx: Degenerative Disc Disease, Polycystic Ovarian Syndrome, IBS-d, Ruptured & Fused L4-L5-S1, Bulging/Ruptured L3-L4, Sciatica, Neuropathy, Costochondritis, Reflux, Gastric Bypass Surgery 12/6/07
Rx: Kadian 50mg - every 12 hours, Percocet 5/325 - up to 4 daily, Baclofen 10mg - 3 daily, Amitriptylene 200mg - at bedtime, Prevacid Solutabs - 1 daily, various vitamins.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/28/2008 3:20 PM (GMT -7)   
Dear L,
I know I responded to you in a previous thread, but I can't recall exactly why you switched to the suboxone. At any rate, I have to second everything Tammy has said in her response above. Especially about any kind of street or illegal drugs. You could end up dead, but for sure you will end up never being able to get pain meds from a legitimate doctor any time in the future. And that doctor would be within his/her rights then.

Many of us have to drive long distances to find pain management. Mine is nearly 3 hours away, and I keep looking for someone locally but doubt I'll find anybody. So you aren't alone. Read a lot of our posts, and you'll see many of us share that same struggle and challenge.

Would you current PCP prescribe something else for you unti you found another pain management doc (which may mean driving a distance)? Some PCP's will continue to prescribe narcotics, but it depends. Sometimes if you find a pain management doc that's a long drive, and that doc gets a regimen established with you, your local PCP may be willing to take over prescribing if you visit the pm doc a few times a year. So don't give up.

PaLady

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2283
   Posted 8/28/2008 7:01 PM (GMT -7)   
L,

I initially ran into the same problem, even though I live in a major city with dozens of teaching hospitals. After some research and a lot of luck, I found out the docs just started getting smarter about how they were marketing their practice.

My PCP & I started calling all the people self-identified as anesthesiologists & asked if they also did pain management. Turns out more than 50% of them do! While I wasn't specifically looking for someone who would *only* prescribe narcs, I was looking for someone who was comfortable prescribing them as part of a comprehensive treatment plan. Personally, I prefer docs who will consider other options, but I didn't want the ones my insurance company labeled as "pain management" who turned out not to be doctors at all, but rather physiologists who mainly treated with PT plus a pair osteopaths who were willing to do trigger point injections and NSAID's but that's it.

Maybe you could try changing your search parameters. Yes, a decent number of them will be anesthesiologists who just put people under for surgery, but if you're like me you'll also find a whole pool of docs who are not afraid of writing narcs for chronic pain patients.

Good luck!
frances

ladyred
Regular Member


Date Joined Jul 2008
Total Posts : 191
   Posted 8/28/2008 7:52 PM (GMT -7)   

I know that I am new to CP but I had a long convo with a friend I used to be neighbors with in Philly.  She is a head nurse at one of Philly premere hospitals.  She also used to work on the rehab ward.  One of the things she was telling me is that to consider a nuero surgoen.  I dont know if you have been down that route or not. 

She said to me that in here field that she seem to be the best a pain management and have so much for options as in lue of different options.  I myself if I dont get anywhere with my pain management doc will be going that route soon.

I do agree with the pain management seem to be more about trigger point injections and steriod injections that pain management.  I just got shot down by mypain man. doc for some sort of pain man. intil or if the injections work.  I was told that there really wasnt much that he could give me and to wait and see how the injections work and in the mean time I am in pain that is hardly managable at best.  And I didnt take well with the trigger point injections in my lower back but I must say they did help a bit with my neck, altho very temp. 

I can totaly understand your desperation for relief.. I get there as well, sometimes the pain is just that bad...but hold on you dont want to do anything that will make things worse for you in the long run and as many have given you some good advice and I really hope you find some relief soon. I am so sorry you are suffering so badly.

Praying for you

Lara

 


Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2283
   Posted 8/28/2008 8:45 PM (GMT -7)   
Hi L,

One other thing, I saw you said sitting in a cool bathtub helps. If you can afford it, maybe you could try keeping your A/C at a much cooler temp. I've started keeping mine at between 58-62F and it seems to really help. I've had to apply for energy assistance to help with my electric bills, but it does help some.

I used to stand in the shower for as long as I could (usually maybe 5-10 min. tops b/c I'd get so tired) and then fill up the tub, then get out & put cool, wet towels all over my body & when I'd go out I had 2 ice packs as big as me for my back & my chest to help keep the pain under control. Turning the A/C way down has made thing much more manageable. I wish I had some wonderful miracle cure to offer you, but I hope at least maybe this can help a little so you can take a break from living in the tub. My doc told me that was really bad for me & could cause permanent nerve damage and tissue damage to my skin to be in the water for 1-2 hours at a time.

I don't know about neurosurgeons. My last PM sent me to one telling me he could do something for me other than just surgery. The guy looked at me cross-eyed & asked whether I was crazy or just illiterate, then slowly enunciated that he was a neuro-SURGEON. What a jerk! The PM tried to send me to some more of them, but I started to call first b/c they charge a boat load of money to see you. All of them told me they only do surgery & why on earth would I think otherwise. Maybe Lara is onto something, I just would say to call first before you go wasting all kinds of money on someone who will only talk about surgery for you. Another option is to try a neurologist. My neurologist writes his CP patients for a boatload of narcotic painkillers. He hates all other options & talks all the time about all the probs from getting injections, pain pumps, SCS, etc. He had me on so many meds I hardly knew who I was (sometimes I would be at home & didn't even know where I was). I personally didn't like that approach, but maybe that's what you need right now. I know I definitely did not feel *any* pain at all when I was seeing him -- went from a "9" to a "0" in just a few days. He does not consider himself a pain specialist at all, in fact he mostly treats MS patients & migraine patients & some people with rare neurological diseases, but he says that if you don't have addictive tendencies then you should be able to take as much pain killers as you want b/c they're some of the safest drugs on the market as far as long-term side effects (just have to make sure you don't OD & shut down your lungs). Plus, he doesn't get the monthly visits from the DEA/FDA b/c he doesn't write narcs for most of his patients (they don't need it, they have other probs besides pain). As a result, even writing a relatively high dose for the few patients he has who need do it doesn't draw attention b/c the total amount prescribed in his practice is still really low.

Anyways, take care & just keep making those phone calls. It's all a numbers game -- if you call enough people, you're bound to find someone who can help. Hopefully you live near a good-sized city. I know from other people on this forum that it's much harder to find good care close to home when you live in a rural area, but either way there are good docs out there so just keep at it!

Hope you find some rest tonight!
frances

ladyred
Regular Member


Date Joined Jul 2008
Total Posts : 191
   Posted 8/28/2008 8:55 PM (GMT -7)   
France thanks for the heads up with the neurosurgoens, this advice was coming from a head nurse so maybe she gets better treatment than the out of network people do.

I also keep my air very low as I find that the cold works better for me as well..except when my neck is bothering then I get some serious chills..I was at er with my son today he broke his ankel 3 months ago and reinjuried it again tonight...I was being for ice pack while I was there...Ice has become my best friend sence accident somtimes I get more relief from ice than pain pills...

lara

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/28/2008 9:25 PM (GMT -7)   
Lara,
I would agree with Frances in that surgeons generally just focus on that - surgical options. They may manage the pain for awhile before and after surgery (like my surgeon is still doing although he'll stop soon). They usually only do short acting pain meds. because if you need more extended release ones (like I probably do but don't want to admit it!) they usually will refer you to pain management docs. Neurologists are probably the most logical choices, next to pm docs, if you can find one who will prescribe. All our local docs hear are afraid because our District Attorney has really been after docs in our area. That's a bit off topic, but I would have to agree with Frances.

Shoulda just said that and shut up! LOL

PaLady

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 8/30/2008 9:57 PM (GMT -7)   
L-
If you are "dying of pain" you will certainly get the the Opiod medication you need. I do not work - cannot work.
My MRI's, X Rays, and Blood tests tell the story.
I too would "die of pain" if I didn't get the Methadone that's prescribed for me.
Pamela Neckpain
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 6:10 PM (GMT -7)
There are a total of 2,735,596 posts in 301,318 threads.
View Active Threads


Who's Online
This forum has 151422 registered members. Please welcome our newest member, Gabor88.
269 Guest(s), 10 Registered Member(s) are currently online.  Details
Nana 2, Bololidat, Rikky1, Tirzah, Girlie, Dyna1, blksteeda, exqualls, aloha234, Noni9


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer