Thanks for the welcome, everybody. I really appreciate it. I think the hardest thing has been this "waiting" period. There are just so many unknowns. I'm not usually like this; I usually just take things as they come. I am also trying to have realistic expectations; in all honesty, I'd be happy with a 50% pain reduction and to reduce the side effects from the oral meds (mostly GI stuff).
I'll probably post again pre-trial (while stressing about going in on Tuesday); but I definitely will let you all know how the trial goes. I think the more shared information that we have - the better.
But, I want to thank you for the welcome into your family --Tina
Thanks for the welcome Fibro IS one of my "official diagnosis", along with the other stuff (carpal tunnel, migraines and on the list goes). I have about every FM symptom there is - all the tender points (and more, I think!), the sleep issues, etc. I absolutely know how debilitating FM can be and I know it is very real. I guess the reason I've gotten away from "saying" it is concerning me getting this drug pump. My lovely insurance wouldn't cover me getting the pump with a FM diagnosis. They said nobody gets a drug pump for FM. (Don't get me started...).
So, my doctors had to be creative and come up with other ways of wording my conditions - myofascial pain syndrome (which is basically like FM...so I don't know what the difference is!); thoracic/low back pain; complex regional pain syndrome and so forth. All of this so that the insurance would cover it. For some reason, people hear "fibromyalgia" and (unless you actually have it) - they think "aching muscles, big deal". It is very frustrating; for awhile, I wanted to change the world and their perception of FM and Chronic Pain. But I just don't have the energy to do it.... Maybe one day.
I don't know why there is such a basis about people with FM. While I don't think narcotics should be the only solution, they help with many FM patients. I hate to hear stories of people that have doctors that won't even give them an RX of Vicoden, Norco, etc. VERY frustrating.
So....that's a very LONG answer to YES, I do have fibro, in addition to other things Again, thanks for the welcome and the invite over to the FM forum. --Tina