Pain Pump TRIAL

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Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 9/6/2008 5:00 PM (GMT -7)   
To those of you with a pain pump - I'm just wondering about the trial.  I know they hook you up to an external pump, but do they still run a cathetar up your spine (similar to having an epidural)?  Or do they just inject medication in that intrathecal space.  Just wondering if I'll be hooked up to something constantly or what. 
 
Any other info on what the trial involves, would be greatly appreciated.  Thank you.  --Tina

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 9/7/2008 4:15 AM (GMT -7)   
Tina,
This pain pump thing is kind of a mystery still. There have been a couple of people
on the forum who rave about the pump. Others have not been happy with theirs.

I worry about the pain pump for myself because my doctor speaks of the pain pump
ALL the time. Every time I go in the office he's there speaking with another patient
about THE pain pump. But here on the forum where there are REAL people I just
don't hear enough.

My doctor gave me a phamplet put out by Medtronic that includes phone numbers
of happy customers. These people are called Ambassadors. PUT OUT BY MEDTRONIC!
Do they think we're not quite bright?

I have heard our doctors put a wonderful substance into the trial pump. The doctor said
it would be a great time for me to go out and take a walk in the park. (I haven't
taken a "walk" in the park for six years. ) When it comes time for the real thing,
the doctors use another substance that does not help with the pain that much.

I'm confused, conflicted, and scared. I want to feel good but I simply haven't
heard that much. The votes are not in as far as I'm concerned.

Pamela Neckapin wishes you well. confused confused

Post Edited (Pamela Neckpain) : 9/7/2008 5:18:20 AM (GMT-6)


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 9/7/2008 4:22 AM (GMT -7)   
Is it pamplet?
pamphlet?
phamplet?

I should NOT be here at 4:30 AM. Some writer called this "The Hour Of The Wolf"

Phamelat Neckpain rolleyes

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 9/7/2008 6:20 AM (GMT -7)   

Pamela - You are funny :-)   Believe me, I've been up and down all night, too.  This is a nightly thing for me, too....it's frustrating....

Re: "pamphlet" - I am so neurotic about those type of things that I even spell checked it through Word.  I "think" it is pamphlet...but don't hold me to it tongue

I feel exactly the way you do as well.  I've heard a variety of stories here on the web.  Of course, Medtronics has all the success stories...but I wouldn't expect them to put out anything different.... Frustrating.  I guess my main concern is the transition from oral meds to the pump.  We lived in Colorado for two years (husband's job); I had a great doc there, but he said he had a lot of patients that were unable to get off the oral drugs EVEN with the pump.  I mean, I expect to have meds for breakthrough pain, but I don't want to go through all of this and it not replace my long-lasting meds completely.  Does that make sense? 

I also worry about going through "withdrawal" while titrating to find the right dosage (after the pump is implanted).  But I'm still going through with the trial on Tuesday....  If it goes well, the pump could be implanted as soon as the week after.  I'll post updates as I can. 

If anyone has had the trial - I would still be curious to know what goes on during the trial, and how it works.

But thank you for your kind words and thoughts turn --Tina


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 9/7/2008 5:57 PM (GMT -7)   
OMG ... You're having the trial on Tues! You will probably feel better than
you have in years and years. Oh, Happy happy day. Let me know.
Go forward with confidence. True, it may not be quite as good after the
trial but it will be better.
The fear of titrating off Methadone is scary to me. Methadone is supposed
to be the most difficult Opiod to get off of. After going off Oxycontin too
fast because I moved and changed doctors, I do know the difficulty
of withdrawl. I do!
I'll see you on Tues. here in the forum while I'm doing my "Hour of the
Wolf"
I did not go off Oxycontin too fast because I'm an addict. This was
a doctor mistake and I didn't howl loud enough. Also he was dam mean.
Pamela Neckpain
smurf

Post Edited (Pamela Neckpain) : 9/7/2008 7:01:30 PM (GMT-6)


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 9/7/2008 6:26 PM (GMT -7)   
Pam, I PRAY that I do get relief during the trial.  The hard part will be IF I get great relief - and then have to go home and wait until the pump can be implanted.  Can you tell that I'm stressed???  It's this "waiting period" that is killing me.  Thinking about all of the "what if's?" is driving me crazy. 
 
Re: Methadone, yes - I've heard that some people have problems getting off of it.  I used it for about a four month period (I want to say I was on about 60mg.??); it was NOT working and I changed to another opiod with no problems.  Hopefully, it will be the same for you when that day comes. 
 
I'm trying to go forward with a positive attitude but it's hard.  I will just be glad when Tuesday gets here. smhair
--Tina

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 9/8/2008 2:01 AM (GMT -7)   
We'll be here waiting.
I KNOW it will work.
You do not need to worry.
Pamela smurf

ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 9/9/2008 4:25 AM (GMT -7)   
Today's the day! turn

Tina:

I just wanted to let you know I'll be praying for you today as you head to the hospital and have your trial procedure. If it's anything like what I've heard, this trial period will be one of the most pain free (or at least much less!) that you have had in a long time. I wish you much relief and great success. I hope this is the ticket for you and the today is the beginning of your return to life as you knew it before pain took over.

Ry

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 9/9/2008 10:23 AM (GMT -7)   
Thank you for the nice posts, you guys.  I can't tell you how much it has helped.  The last 24 hours or so has been filled with extreme anxiety.  My blood pressure was 160/110 at the doctor's office; I have hypertension anyway - but not that high.  So, he gave me a couple of Ativan to use until I'm admitted to the hospital (today at 2pm).  I think the waiting and all the "what if's?" are enough to drive anyone crazy.
 
I'll be posting as soon as I get home (probably Friday morning).  Until then, I wish you all a low pain week.  Take good care--Tina

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 9/9/2008 9:22 PM (GMT -7)   
Thank you for responding, Tina. That blood pressure is high and I'm glad they're taking care of it.
I've sure been thinking of you cuz my pain doctor appointment is tomorrow.
Kick back with those Ativan.
Talk to you later,
Pamela Neckpain
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