MIA - flareville again...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 9/21/2008 3:59 PM (GMT -7)   
Hi all, just wanted to say hello... I haven't read back through the posts yet, so I apologize I don't know what's up with you all, but know I'm thinking of you all.

PaLady....I hope you are okay! I've missed you tons! I'm so sorry I haven't gotten that other party post up - this flare just knocked me for a loop.

I've had a cruddy cruddy week again - back in a flare and just down for the count. I'm right back where I always am with this - no help from the docs who say they know their stuff. PM doesn't want me taking any meds strong enough to really help, neurosurgeon still hasn't called me back, PCP is trying to help but we're still tied up with the other docs so can't just depend on him yet... ***sigh***

smhair

Oh, I just want to scream. Or cry. Or both. I just can't get how this is okay. It's like an invisible monster and it hides when the bigwig docs are looking!

Anyhow... Just wanted to let you all know I wasn't blowing you off. I've been praying for you all and I'll try to catch back up on the posts again to see how you are all doing. Scarred, have you moved? Lara, how are the shots going? PaLady, my friend, how are you dear? Really?

I've missed you all - I'll try to come up with a party thread soon. Thanks for being here.
Ry sad

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/21/2008 6:43 PM (GMT -7)   
RY!! smhair smhair smhair smhair

I've been so worried! (ok, kinda mother hennish, I know rolleyes )

I'm so glad to know you're alright, although not glad to hear you're struggling. I'm just glad you posted.

I've not been posting a lot myself - pretty much similar reasons. And oh, those critters....what stories I could tell. Exterminator just carted away a possum tonight (trapped outside) - but the trap was set to try to catch a skunk! Still, I know I'm not completely "alone" in the house and I don't mean that in a good way! shakehead

Don't worry about the party thread. It'll happen when it happens. Seems like we've both got to be in better shape first!

Take care, friend, yeah

PaLady

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 9/22/2008 9:38 PM (GMT -7)   
RY!! I'm so sorry you've been miserable, my friend! Have you considered trying to get a consultation with someone totally outside of the medical team who works with you but can't seem to decide if you need to be miserable or have quality to your life? Maybe call a teaching university/hospital closest to you and ask. Be up front always when it comes to pain and meds but someone needs to get off their cabooses and do something. It's unconscionable for them to treat you this way. THEY wouldn't tolerate it.

Good luck and keep in touch,
Chutz
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 9/22/2008 9:52 PM (GMT -7)   
Ryand,

I have missed you too and am so sorry you are not feeling well.. I will keep prayers for you and hope you are soon back with us posting once more.

Take care and feel better . God bless.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


kara487
Veteran Member


Date Joined Mar 2008
Total Posts : 637
   Posted 9/23/2008 2:27 AM (GMT -7)   
Ryand, Im sorry to hear about your flare. But, Im glad you are back I have missed you. I hope you have a lpd.

mala407
Regular Member


Date Joined Mar 2007
Total Posts : 103
   Posted 9/23/2008 8:06 AM (GMT -7)   
I'm so sorry to hear all that you've been dealing with Ry. Please hang in there and know you always have all of us and we're thinking about you

Hugs,
Mala
26 years old, living in Chicago, Chronic abdominal wall pain due to nerve entrapment. I have IBS-D and neuropathy. Gall bladder removed, 2 failed exploratory nerve surgery, pancreatitis, several hospitalizations for IBS flareups. Medications: Welchol, Align, Ambien, Oxycodone, Thiamine, Zyrtec-D


I am a dance teacher and choreographer who loves children and cats! I am to be married on June 27, 2009 to my wonderful fiance Jon!!


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 9/23/2008 2:14 PM (GMT -7)   
PaLady, Linda, Kara, Chutz, & Mala... Thank you SO much for your kind words and sweet thoughts. This has been a tough couple of weeks, and your support means the world to me! I called the neurosurgeon today and they left me a message later saying they "couldn't find" my records and would I call them and tell them what the names of my previous docs/hospitals were. Ummm.... Hello? That was all in the paperwork I filled out while I was at your office! And this is a big fancy teaching/research university! ARGH! If I don't get some answers from them by the end of the week I may have to cave and call my PCP and ask him to up my meds. I know he'd probably do it, but then I'll have to deal with the PM flipping out about it probably. At this point I don't really care! rolleyes I just need a little break!

PaLady, I am glad they caught the possum, but I hope they get rid of those other varmints soon too! Mine are still there too. They don't seem to take the bait on the traps. Eeeww...

I hope you are all having a good day and low pain!
Ry

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/23/2008 4:10 PM (GMT -7)   
Ry,
What a bummer about the lost paperwork. Most people don't realize how long it takes to complete all that, get it all together - especially when you (we) see so many doctors and have to do this task repeatedly. I guess very soon it'll all be on a disk we can take with us, but people will lose those, too!

I wouldn't hesitate to call your PCP for more meds at least temporarily. The more I deal with all this for myself and continue to read everyone else's challenges the angrier I get. mad

We are just trying to get a piece of our lives back, or hang onto what little is left. I am pessimistic the medical profession in general will ever "get" this. shakehead Oh, I'd better get off my soap box!

Just know we're all thinking of you, Ry. yeah And those critters - must be the same genetic mutants as mine, as mine won't touch the baited traps in the attic either!! smhair

Hugs to you,
PaLady

ladyred
Regular Member


Date Joined Jul 2008
Total Posts : 191
   Posted 9/23/2008 7:19 PM (GMT -7)   

Hello Ry, Im so sorry to hear you havent been doing so well lately...I think there are a few of us on here that have been in a flare up wonder if it has anything to do with the weather changing..

Got my 3rd shot monday last and didnt do so well with that one and been out of commison as well for almost 7 days grrrrr its so frustrating isnt it...even missed all week of work it was so bad,,,but oh well its another week right just have to think postive.

I hope you are feeling better Ry

Praying for you and wishing you pain free days

Lara


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/30/2008 8:10 PM (GMT -7)   
Ry,
I just wondered how you were doing. Been thinking of you, friend.

Here's a Wilson in your honor... smhair

PaLady

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 10/4/2008 5:46 PM (GMT -7)   
Ry,
Hope you're getting some rest for the weekend. If you're going to be online over the weekend or one evening, drop a quick response to this.

But it's also ok if you're not up for anything right now. I just can't imagine after working a full week....

Hugs,
PaLady smhair

Post Edited (PAlady) : 10/5/2008 4:58:03 PM (GMT-6)


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 10/5/2008 11:29 AM (GMT -7)   
Hi, PaLady. Thanks so much for thinking of me. It's been kind of rough again. I'm not sure I'm going to make it some days... Ugh!

Ry

Post Edited (ryand) : 10/5/2008 1:54:16 PM (GMT-6)


~Cloe~
Regular Member


Date Joined Jul 2008
Total Posts : 125
   Posted 10/5/2008 11:40 AM (GMT -7)   
Hi Ry,
I didn't know you were missing as I have been missing as well.
I am so sorry that your in such pain and not getting the help you need. I read all you replies and sounds to me like you are a great member on this board and that you were not only missed but worried about as well.
Take care
Cloe

ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 10/5/2008 12:53 PM (GMT -7)   
Cloe:

Thank you so much for your note. What kind words! I am sorry that you are also feeling poorly. It just stinks, doesn't it? I shall add you to my prayer list. I truly hope you will feel better soon and that we can come to know each other better in future posts. :-)

PaLady, I will look forward to hearing from you. I'll edit the other post right now! turn

Ry

Boxerlover
Regular Member


Date Joined Dec 2006
Total Posts : 274
   Posted 10/5/2008 7:01 PM (GMT -7)   

Ry, oh boy do I know that feeling.  I've said to my husband if a "normal' person felt this way they would be sure they were dying shocked ! I'm sorry you feel that way. I hate it. I have recently come out of a flare and it always amazes me how bad I felt.  It's like you don't really realize how bad it is(was) until you feel a little better and you're like wow, that was really bad.  Hopefully you will be coming out on the other side soon.  That's what I try to remember, that it has gotten better in the past, so it will again.

Take care

Melissa

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 06, 2016 5:17 AM (GMT -7)
There are a total of 2,733,417 posts in 301,117 threads.
View Active Threads


Who's Online
This forum has 151256 registered members. Please welcome our newest member, Monkeyjungle.
245 Guest(s), 4 Registered Member(s) are currently online.  Details
sheepguy, tickbite666, Andrina, fightUC


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer