Re: pump trial - I'm so tired right now but I will post about it later tonight or tomorrow. But, for me, trial was NOT what I expected or had read about from others. I say that not to disappoint but to just "disclose". Yes, I did get relief as they increased the dose. But there was pain involved from the actual insertion of the cathetar and from going down on my oral meds to the pump. SOOO... it was interesting but not what I expected. BUT, maybe I'm the odd ball? I don't know. But I will post in detail because I found it really hard to find people's experience with the trial. I've read maybe three or four people's descriptions and that was about it....(but I really appreciated the ones I read!)...
I'm rambling :) because I'm so tired...I'll post later. --Tina
The person that runs the pumpsters site is Harry and he is great. Just explain your situation and I doubt that you will have any problems being accepted. It is a wonderful resource for those seriously considering pumps and those with pumps. They just do not want a bunch of voyeurs that have nothing to add or are not seriously considering pumps or researching options.
I have had a pump for years and have never heard that they are only affective from your waist down. Stimulator implants are traditionally only affective from your waist down due to how they insert the leads. Pumps have a catheter that goes directly into your spinal column. This allows the medication to go directly to your brain, avoiding the problems of crossing the blood brain barrier. There is no medical reason why an intrathecal pump would be area specific. The reason people get pumps is that they need a tiny fraction the dose of their oral medicals, because of the blood brain barrier issues. I need only 1/100th of my oral meds. This eliminates many side effect issues related to high oral dosing. My pump does a fantastic job controlling muscle spasms in my upper back and shoulder area – as well as whole body pain. Good luck.
Post Edited (Stella Marie) : 10/18/2008 2:33:38 AM (GMT-6)
Hi - I can't find the yahoo group re: pain pumps... If anyone knows the exact group name, I'd appreciate it. I tried searching everything I could possibly think of but to no avail.
Thanks in advance -Tina