Cutting back on Lyrica and Pain increasing

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Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 10/6/2008 2:31 PM (GMT -7)   
Well I was taking Lyrica 5omg three times a day and I was falling asleep as soon as I got out of bed in the morning after sleeping soundly all night.  So I said, I have to cut back on this Lyrica!  So I took 50mg in the am and 50mg in the pm and I was still falling asleep.  So I cut back some more and of course, the pain came back.  I ordered 25mg capsules but they are not here yet.  I figure if I take 25mg in the am and 50mg in the pm maybe I will feel better and not sleep so much. 
 
I am feeling depressed because of the pain.  I take percocet 10/650 every 3 to 4 hours on top of the Lyrica and it just about holds me, but I certainly do have break through pain with cutting back on the Lyrica  It is such a good drug for me except for the sleepiness it gives me.  Anyone try neurontin for fibromyalgia and has it worked with less sleepiness as a side effect??  Give me any and all suggestions.  They are welcomed.
 
Have a lpd and receive gentle hugs from me.
 
Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 10/6/2008 2:51 PM (GMT -7)   
Dear Linda,
I don't have fibro, but do have lots of nerve pain, and neuropathy in both feet (from spinal nerve compression, not diabetes). I take percocet also (about the same dose except I'm still taking 2 - 5mg tabs), and neurontin - 400mg, 4X/day. I had to start the neurontin very slowly a couple of years ago - had to go to 100mg tablets, and finally worked myself up to the current dose. I do believe it makes me groggy, although I've adapted somewhat to it. I've actually tried lyrica but only in small doses and never had a doc who seemed to understand how to dose it properly, as it's fairly new. Still, you're on a low dose from all I know.

The only thing I would wonder is whether you could take the lyrica once/day. I don't know what the half life is. I have read 2x/day is not an uncommon schedule. Not sure how neurontin would work, but from what my cousin (a pharmacist) tells me they're similar, but the lyrica is supposed to have fewer side effects. Like you, if I cut back on the neurontin, or am even late on a dose, I know it - especially in my feet! How experienced is your doc in dealing with lyrica? I'd try to find a doc or pharmacist who has dealt with it frequently and see what kind of dosing they suggest. If you've never tried, neurontin, it might be worth it, but you may have to go up slow.

This is so challenging, isn't it?!! I wish I had more to offer.

PaLady
p.s. I'd also suggest going directly to the manufacturer's website for lyrica and read about dosing, etc. for yourself. I know it's full of technical stuff, but you may pick up some ideas.

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 10/6/2008 3:52 PM (GMT -7)   
Thanks PaLady,

As usual, some good advice there. I have taken neurontin years ago for pain but not fibro pain and it didn't work, but I don't even remember the dosage I took or anything really, about it.

I plan on trying some more dosing combinations with the 25's when they come in to give the Lyrica a good try. The half life is 6 hours, so taking the med two to three times a day is optimal. I had once taken Lyrica 25mg in the am and 100mg in the pm and it didn't do a thing for me. So I have to get the doseage right here, I am sure.

Right now I am hurting madly. I think it is threatening to rain , so that is probably the reason, but I sure wish I could make the pain go away.

Anyway, thanks for responding PaLady. I can always count on you for quality help.

God bless You.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 10/7/2008 4:28 PM (GMT -7)   
Hi, Linda:

I've not been posting much lately, but I did want to tell you about a med that has helped me with nerve pain. Like PaLady, I do not suffer from Fibro, but I do have some nasty nerve pain from compressed nerves in my back. I went through nearly every drug around, including Neurontin and Lyrica, when the docs were trying to find one that would work for me. I was never able to get relief from any of them at all, but I did get awful memory issues from the Neurontin. I was on a pretty high dose of that, though, from what it sounds like PaLady and others take.

Anyhow, my doc finally had me try a drug that's been around for a long time and has sort of been "forgotten" (according to her) in the world of nerve pain management because of the newer meds that have come out. It's called Zonegran (Zonisamide is the generic). I am on a relatively low once nightly dose, and most times it really helps the nerve pain. When I'm in a flare like this, the burning still comes back, but even now it isn't nearly as bad as it used to be during a flare, and I'm hoping they will start to let me increase that dose during a flare too.

If you can't work out the Lyrica, I would encourage you to give this one a try. Best thing is that since its older, its not very expensive! Hope you are feeling better soon.
Ry

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 10/7/2008 6:28 PM (GMT -7)   
Hey thanks Ry. That's a great suggestion!! I will keep it in mind.

Sweetie, I hope you feel better soon. Thanks for responding to my thread. I appreciate it.

Gentle Hugs,

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 10/7/2008 7:16 PM (GMT -7)   
I have taken Neurontin for five years. I don't know if it helps or not. I'm afraid
to cut down or anything.I ran out just once and after three days ... Owwwwww! It
could have been something else.
I think Lyrica is still too expensive for me. There is no Generic. Not sure about this.
I haven't read your entire post.... pain,
you know.
Just wanted to offer a little ...
Pamela Foghead shakehead
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