Asking for help

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New Member

Date Joined Oct 2008
Total Posts : 7
   Posted 10/6/2008 7:05 PM (GMT -6)   
Hello All,
I came across this site because I am looking for some help I guess. I have lived with pain from an injury I received in the military in 1994 with my back. I have suffered with constanct neck and back problems with severe pain and no one seems to know what is wrong with me. I have been on a number of meds in that time and there is none that I could take and work. I have been working on knee pain as well and they both have arthritis behind them and that alone I can't walk all that well. The left knee is down to the bone on bone and I need a knee replacement and I just think that at 35 would that be a good thing for me. I had a good job and very supportative owners and staff and after two years I had to leave because I could not do it any more the pain was just too much for me. I have been on the patch (Fentanyl) I was up to 75mcg and the patch would not stay on and the doc did not call me back so I was out and now I am off of the patch with no step down. I am in so much pain right now I am about to lose my mind and when I was on the med I could not think right I also was scared to drive because I always felt loopy so to speak. I have worked from age 16 and I don't know anything else so now I am a stay at home mom with two small girls 2 and 5 so you all know how hard it is to have (me) time. I pushed myself to the limit and I should not have but like someone said the world today don't let you take a break from the pain the bills still come. I have a husband that tries to understand but he has not lived with this like I have does he think that I make it up I hope not. I hope that no one will make up having severe pain because if you ever had it that would be something not to pretend about. I guess I wanted to know that there were other that could understand how I am feeling. What do I do for pain now I just sit here and cry because there is nothing else for me.

Pamela Neckpain
Veteran Member

Date Joined May 2008
Total Posts : 1821
   Posted 10/6/2008 8:22 PM (GMT -6)   
Off Fentanyl with no step down! Terrible. Almost without precedent. Bone-on-bone?
These are injuries you received from the Military! Where are the heads of the
Militry Men!
With your degree of pain, there is nothing else but the ER. Have someone
drive you, of course.
I'm sorry about your situation Tydickens. You gotta do something. Just sitting
there crying isn't moving you forward. Do you take Antidepressants?

Regular Member

Date Joined Dec 2006
Total Posts : 273
   Posted 10/6/2008 10:16 PM (GMT -6)   

Sorry to hear about your situation.  Have you ever gone to a pain management doctor?  If they decide to prescribe meds, there are many different meds and maybe something else will work for you if the patch had too many side effects.  People are all different and it usually takes some trial and error to find the right combinations and dosages of meds to get adequate pain control.

I have been in some kind of pain management for about 8 years and on the med combo I am currently on for 5 years. I've had one increase on both the long acting and short acting meds and have been stable for over 2 years. I am very grateful for my pain doc and think he is one of the best, he really cares about his patients.



New Member

Date Joined Oct 2008
Total Posts : 7
   Posted 10/7/2008 5:43 AM (GMT -6)   
Thanks for the words of kindness, I will see the MD today and see if the pain management staff can do something different for me.

Regular Member

Date Joined Aug 2007
Total Posts : 59
   Posted 10/7/2008 11:53 PM (GMT -6)   
Tydickens, you can make the patch stay on with 3M's Nexcare Tegaderm Transparent Dressing. I have been using the Tegaderm and it is very effective in making the patch stay on me. I am on 50 mcg. You can find the Tegaderm at your local Walgreen's. It will stay on even if you shower or swim. I suggest that you get back on the patch, don't go off the patch cold turkey!
Born with hip dysplasia in left hip, 2 surgeries to fix it when I was a very small toddler.

Also, 2 injured discs in lower back at L3-L4 and at L4-L5.

I also have Fibromyaglia as well.

Risperdal 2 mg
Wellbutrin XL 150 mg
Xanax 1 mg 4 times a a day as needed for panic attacks
Percocet 5/325 mg 1-2 pills as needed
Robaxin 500 mg 2 pills as needed
Ibuprofen 800 mg as needed
Fentanyl 25 mcg/hr
Dalmane 30 mg for sleep

Pamela Neckpain
Veteran Member

Date Joined May 2008
Total Posts : 1821
   Posted 10/8/2008 3:05 PM (GMT -6)   
about 4 years ago, you could contact the makers of Fentynl patches and they
would send you free tape made especially for the patch. The makers of Fentynl
were having a lot of trouble with their "recipe" for Fentynl. Some of it just
wasn't any good ~ maybe that's why they sent free tape? Maybe you could
find out.

New Member

Date Joined Oct 2008
Total Posts : 7
   Posted 10/8/2008 5:09 PM (GMT -6)   


I think that this site rocks!!! I am so glad that I came across and was able to speak about my problem. Thank you for all the good advice. I did come looking for help and that is what I received.


Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 10/9/2008 5:04 AM (GMT -6)   
Let us know how the pain mgmt appt goes - I REALLY hope they are able to help you....
Hang in there, I KNOW it's hard, especially with small kids eyes But let us know how it goes...  People here really do care and can relate so much. --Tina

Veteran Member

Date Joined Sep 2006
Total Posts : 1713
   Posted 10/9/2008 7:32 AM (GMT -6)   
I am so sorry you have had such a terrible time. I am glad you are going back to the doctor too. Let us know how that went please.

I will pray for you.

By the way, welcome to the site. I'm glad you found all of us and that now we have found you too.

God bless.

Moderator Chronic Pain
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.

Regular Member

Date Joined Aug 2008
Total Posts : 320
   Posted 10/9/2008 11:23 AM (GMT -6)   
I must say, your dr is less than! To just leave you like that with nothing is, well, barbaric! I am on fentanyl 50mcg. Usually they stick, but sometimes I will put it a bit to close to a joint or moving part, then they come right off. I use tape too. If it's strong enough there are no worries. Do keep us updated about the pain clinic. I've been with mine for about 2 yrs now. They are good.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
When I am weak, then am I strong

Regular Member

Date Joined Sep 2008
Total Posts : 489
   Posted 10/9/2008 2:40 PM (GMT -6)   
If I was you I would try the tegaderm it will keep just about eany thing on for atlest 3 days. If the 75 patch makes you loopy try the 50.I use the 50 and I never feel loopy it controls most of the pain enuff that I can funtion with what is left over.CALL your DR. and keep calling tell he calls back.If your knee is bone to bone I dont see that you have any other option then to have it replaced. Good luck
Lost half of my small intestine, Nerve damage to right leg,part of my right hip bone removed,hernia,infection in my back called discites,and depression

New Member

Date Joined Oct 2008
Total Posts : 7
   Posted 10/12/2008 4:53 PM (GMT -6)   
Hi All,
I am back with an update on how things are going for me, I went and the doc wanted to try the 75 mcg due to the fact that the 50mcg was not holding the pain and I had to use too much B/T meds for her. They did give me the cover to go over the patch so Sat. was the first day and I having a bad time with it I am very sick. I feel like taking it off but if I do then I will be back in the same spot as before. My body may just need to adjust again to the patch so I will try to wait it out and see how I feel. I just want to THANK each and everyone on this site for just the sheer concern for me and my problems we need just an ear to listen to us sometimes.

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