C spine compression- need your help!!

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king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 10/17/2008 2:53 PM (GMT -7)   
Hi all. I have been jumping around the boards for 4 months now due to darting/pulsating pains all over my body, vibrating sensations in my feet, and non stop muscle twitchs, also eye headaches.
 
Had EMG, blood work, MRI of brain lower and mid spine-clear.
 
HOWEVER, I got my c spine results. My dr said I basically have a crack in my disc that is pressing on the surface of my spinal cord. Could this be the cause of my issues?  I dont get to see a NS till Nov 14 for his opinion.
 
Report reads=-
 
Loss of normal cerv lordosis w degenerative disc disease pronounced  in c 45 w central protrusion annular fissure resulting in mild to moderate canal stenosis w contact and distortion of the ventral surface of the cerv cord. 
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing, fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
New as of Sept- basel cell skin cancer
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2280
   Posted 10/17/2008 3:15 PM (GMT -7)   
Certainly could be.

If it were me, I would talk to a neurologist (maybe that's who ordered the test, I couldn't tell from your post). NS will almost certainly suggest surgery. Remember that surgery almost never fixes everything & can result in lifelong complications. Hopefully you have already tried a bunch of more conservative treatments.

Still, I had decompression surgery & it made a big difference for my neuro symptoms & shooting pains. I do still get some shooting pains, but less than before. In addition, I had problems with slurred speech, vertigo, and seeing black spots (because there was not just pressure on my c-spine, but also on my brain). Without a doubt I would make the same decision to have the surgery, but scar tissue grew around the central nerve & now I have brutal headaches & neck pain around the area of the surgical site. It has been 6 years post-op now. I did get a Spinal Cord Stimulator finally to help with the pain, but that has it's own set of complications.

Not trying to dissuade you or anything, but the NS basically promised me that I would be 100% better & that as long as I avoided infection there were no other complications. I am glad to be able to look back & know that I had no other choice, that I had a degenerative condition which would have gotten worse if I had waited to have surgery, that the symptoms of my condition were irreversible and that I had 3 other opinions (2 neurologists & my PCP) that agreed with the NS that major surgery at age 25 was the best choice out of a bunch of bad options, including doing nothing, that I could make.

One question I would suggest you ask about is the "eye headaches". I'm not a medical professional of any kind, but since your prob is at Level 4/5, it would surprise me if that could affect the area around your eyes. Like I said, I don't know. I'm just suggesting you may want to ask about that. I'm assuming you've tried migraine medications. A lot of times migraines can cause pain around or behind the eyes.

Best of luck to you!
frances

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 10/17/2008 3:25 PM (GMT -7)   

Thanks so much for your response. So with your issue, were your body pains all over the place? I mean literally it was my ankle one day then the next my big toe on my other foot, then my pointer finger, spine. The pains dart around daily to different spots but usually my feet, ankle, fingers and spine. I would think and hope this would account for my feet buzzing on and off and the full body muscle twitches.

I did read somewhere this could cause headaches, but who knows.

I am just anxious to hear whether this could be the cause of all my issues. I have gone from thinking lyme, MS, ALS, etc.. etc.. with thousands of dollars on tests.

 


----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing, fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
New as of Sept- basel cell skin cancer
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 10/17/2008 5:27 PM (GMT -7)   
King1234,
I probably shouldn't post here because I know absolutely NOTHING about your condition.
Your Dx looks a little bit like mine but that means sooo nothing.
Two Neurosurgeons and one Orthopedic guy suggested surgery. My other doctors suggested against it.
Still I am telling you less than zero.
I hate to research so I do not look up my conditions. I like to stay on the Forum and leave the serious
issues to a doctor. Unfortunately, I can't find one I trust ... but I've gotten over it.
I'm just getting by. The Forurm is good medicine - a good distraction.
Pamela Neckpain rolleyes

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 10/17/2008 5:59 PM (GMT -7)   
You are smart to stay away from researching!
 
What are your symptoms? What exactly did the ortho find?
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing, fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
New as of Sept- basel cell skin cancer
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 10/17/2008 10:53 PM (GMT -7)   
The Orthopedic doctor said he saw a lot of stuff that needed repair.I wouldn't have
understood if he'd told me.
He had an excellent reputation & Maybe he was right. I was totally chicken out.
I have a "feeling" that surgery would harm me. I won't have it until I can't walk
or control myself. That could happen ... but it's going on 6 1/2 years and all I have
is lots of pain.
I've kinda gotten used to pain. Just lately I've been hit with Depression. I think
it's the time of year.
Take care.
Pamela
I live in California. Shortly after I met with the Orthopedic doctor he moved to
Florida! Maybe HE was the chicken out.
Pamela wink

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/17/2008 11:14 PM (GMT -7)   

King1234, I really think your C-spine compression could definitely be the cause of many of your problems.  In your case, a neurosurgeon probably would suggest surgery.  Surgeons in general are not as inclined to "cut" as they once were.  The usual reason for a C-spine surgery would be that it is affecting your upper and/or lower extremities.  Your C4-C5 involvement is a little high to be causing foot sensations, but perhaps because the spine itself appears to be encroached upon, it is possible.

I have DDD and DJD, particularly of the C-spine.  However, despite much pain over many years, the top neurosurgeon in my area advised against surgery.  I finally learned to manage my pain with a combination of Lortab and ibuprofen 800 mg, and by avoiding certain triggers.  My b.f., OTOH, had sudden onset left arm pain...to the extent that he couldn't use it at all...and did have a C-spine fusion.  Since healing, his neck has never bothered him again.  That is in contrast to his lumbar spine surgery.  He still has pain from that.  Overall, neck surgeries seem to be more successful than lumbar surgeries  His post-op period found him having more pain from the hip, where bone had been taken for the graft, than the neck.  For this surgery, they usually take an anterior (front of neck) approach rather than posterior, so there is less risk of spinal cord injury.

I would definitely suggest getting opinons from at least 2 neurosurgeons.


Hugs,
Connie
 
"But that was yesterday, and I was a different person then."
 
Alice in Wonderland, Lewis Carroll


Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2280
   Posted 10/19/2008 3:21 PM (GMT -7)   
Has anyone suggested you might have CRPS?
It kinda sounds like that, but that's not what I have so I really don't know. All I know is with that the location of the pain moves around the body a lot. Other people on the forum have that & could maybe give you more info.

For me, I did go a period of time pre-op without any meds. I had been on Topamax for migraines & that was actually causing the buzzing feeling in my hands & feet. The rest of my symptoms remained, but they were more localized -- neuro probs, mostly, plus shooting pains down my neck to my hands. I still have the shooting pains -- actually they're worse than before. My NS told me no promises but that sometimes there is a decrease in pain after decompression surgery. It just didn't work out that way for me.

Everybody's body is different, though. No telling what may be connected to what. Sometimes things that seem completely unrelated turn out to be connected somehow. For example, I went to vestibular therapy to treat my vertigo. After a few sessions of misery, the nausea got completely better, my vision improved & my feet and hips stopped hurting all the time. Sometimes we overcompensate for one problem & inadvertently end up causing other problems.

I'm sure you'll make the right decision no matter what.

take care & feel better soon,
frances
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