Please help me help my daughter

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mamaluvjax
New Member


Date Joined Oct 2008
Total Posts : 4
   Posted 10/24/2008 3:12 PM (GMT -7)   
My daughter is 10 years old, and recently started having leg pain. We went to the Doctor after it persisted to then be sent for a MRI. I am completely shocked and confused at the results. It turns out that she has Disc protrusion with thecal sac impingement from L-2 through S1. Also she has a stress fracture of the second sacral segment. I understand what all this is, but don't understand why a ten year old has this. She has had no injury, or falls, and I am at a complete loss for some understanding. Any help would be greatly appreciated.

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 10/24/2008 4:46 PM (GMT -7)   
I know that children can have disc problems but it is not common and usually associated with an injury during athletics or a fall. A sacral fracture in a child is usually the result of a fall on the hind end. However, sacral stress fractures can also occur. Those are most likely seen in runners but I would think any sport with lots of running might contribute [like soccer].

I can only imagine your shock at the diagnosis. What is the doctor recommending at this point? Are they sending her to a specialist [I hope so!]?
Here's hoping that an easy resolution can be found.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


mamaluvjax
New Member


Date Joined Oct 2008
Total Posts : 4
   Posted 10/24/2008 5:03 PM (GMT -7)   
They are sending her to a neurosurgeon next week. So hopefully some questions will be answered, but I have to travel two hours for the apt, and not sure what all they are going to say. Still just kinda confused about the whole thing, but thanks for the reply.

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 10/25/2008 12:52 AM (GMT -7)   
mamaluvjax,
Do you have one of those portable dvd players?
She might like that and I don't think they're very expensive.
I hope the Dr. keeps her calm and comfortable with meds.
I wish you well. Glad you're seeing a neurosurgeon.
One thing: Neurosurgeon's are not particularly friendly. Their bedside manner
is lacking. I believe that their brains are made for thinking about the serious
health matters that they deal with and simply can't think about people's "feelings"
Sometimes they have a nurse or social worker on board who can help you with
that. Take care.
Pamela Neckpain

mamaluvjax
New Member


Date Joined Oct 2008
Total Posts : 4
   Posted 10/25/2008 4:55 AM (GMT -7)   
Due to her sensory integration problems, she actually feels no pain. So that is a blessing and curse at the same time. I am familiar with Dr's that have poor bedside manners, and honestly don't care as long as they are good and can fix my child.

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 10/25/2008 9:42 AM (GMT -7)   
"Sensory Integration" I believe I've heard the word but do not have a
clue what it is or how it effects the life of one who has it.
You sound strong and ready to do what needs to be done. God Speed,
mamaluvjax.
Pamela Neckpain

BionicWoman
Regular Member


Date Joined Jul 2008
Total Posts : 243
   Posted 10/25/2008 12:00 PM (GMT -7)   
If she has sensory integration problems that interfere with her preception of pain, it's certainly possible she's been doing a series of smaller things over an extended period of time, before she reached her threshhold and began having a problem with the leg pain. 
 
It doesn't always take a big event to cause a problem.  All I did was pick up a cat to take him to the vet and it's cost me 5 surgeries, plus the vet bill.  redface
 

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 10/25/2008 1:06 PM (GMT -7)   
Dear Mamaluvjax,
I've not posted because I don't know anything about how many of our illnesses affect children. I am glad you are going to a specialist, though, and if it was my child that's what I'd do.

I can offer you support and reinforce your courage in facing all of this for both you and her.

I hope you find some answers soon.

PaLady

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/25/2008 1:46 PM (GMT -7)   
Hi Mamaluvjax:

I'm sorry to hear about your daughters injury. I'm not certain as to why she got the injury, but it's possible since she really doesn't feel pain that she may have injured herself.

I wanted to say to you though, my daughter when she was 7 yrs old had a brain tumor and they removed it. We're very thankful that is was negative for cancer. She had a pediatric neurosurgeon and he was really nice to her. The head neurosurgeon was even nice to her. I think they try to make children feel at ease.

I wish you and your daughter well and I hope the trip to see the doctors isn't to bad. If I can be of any additional help, please just ask.

Best Wishes,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


mamaluvjax
New Member


Date Joined Oct 2008
Total Posts : 4
   Posted 10/26/2008 9:06 AM (GMT -7)   
The response about the sensory integration is correct, she does not feel pain as she should. I thank you all for your posts, and encouragement, it is deeply appreciated.

mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 10/26/2008 9:55 PM (GMT -7)   
Make sure that you write every question that you have down and make sure you get a answer.Even if the answer is that thay dont know.I am always forgetting to ask at lest one question that I wanted to and remember on the way home.Alot of people think that thay cant ask the DR. about things thay want to know and that if thay need to know that the DR. will tell them but it just dosnt work that way.When its you child then its also your job to ask. Good luck and keep us posted.
Lost half of my small intestine, Nerve damage to right leg,part of my right hip bone removed,hernia,infection in my back called discites,and depression

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