Diagnosed with: POTS/dysautonomia; Fibromyalgia; Severe Hypertension; Hypothyroidism; Adrenal Gland Disorder; Chronic Pain - severe carpal tunnel syndrome, migraines, severe back problems, widespread muscle/joint pain....as well as depression/anxiety.
Current Meds: 480mg MS Contin, 90mg MSIR, Soma, Effexor and MANY other meds (heart, thyroid, etc)
Past Meds: EVERYTHING. Fentanyl patches, Actiq (which caused $$$ in dental work), Fentora, Oxycontin, Oxycodone, Kadian, Avinza, Dilaudid and on the list goes.
Waiting On: Intrathecal Drug Pump Implantation (Dilaudid/Baclofen combo)
I too tried joing Pumpsters and never heard back from them,lol. I told Pamela I guess they have all the members they want.
I do not know how you manage taking care of 6 kids even with help and getting by. That is a hard job for a healthy person,lol. I can have my 3 yr old grandson for an entire day and be totally exhausted when he goes home. But, I do admit to being his playmate the entire time he is here. We are always doing something and being still is not one of them,lol. He is still when he sleeps. Don't get me wrong, I cherish every minute with that little guy, he is what keeps me going and he is my reason to get up every day. When I have him, I am so focused on him I totaly wipe everything else out in my mind. I think thats why he & I have such a good time together. The minute he walks in this house its "play with me Granny", and I do. I feel quite certain those guys of yours is what keep you going too. They need their Mom no matter what kind of shape she is in.
I can assure you that I would be unable to do much of anything except lay in the bed if it weren't for the pump. I did for 18 months. I spent more time in bed than out. Thats no good either because I have always been a very, very active person. My daughter always said I was hyperactive and there was medication for people like me,lol.
Probably some of the hardest things to deal with when you are first hit with CP is learning not let it beat you, don't dwell on it, get counseling if necessary which I did, learn to work with what you have to work with, realize your life isn't over with, advocate for proper care and learn to work with your limitations. I do not view myself as being disabled, rather I am limited in some areas. I really think if people don't a grip on it early the mental side of it can be worse than the physical side.
I guess I missed the part about your cardiologist supporting the pump thing. I am currently trying two new BP meds because of the BP being out of control. I think I had been on my other meds too long and they stopped working and pain as you know will cause it to go up. This past year its really been way too high and the cardio dr has been on my case. I finally told my PCP that I wanted her to manage my BP problems because after this last round of yearly cardio testing I am not happy with him at all. In fact, when I need all my test done next year it will be with a new cardiologist. He put me on medication that when I looked it up on the net it stated if you take these two medications do not take this medication. He was vey much aware I was on these meds and gave me a months worth of samples to try. My poor PCP was horrified. She has had back surgery and she really has some rough days and she knows how pain can have an effect on the BP. Needless to say, my confidence in him went right down the tubes.lol.
I hope you can get yourself feeling better. We have the holidays right around the corner and you are need to feel better to handle them. I think I have a love/hate relationship with the holidays. It gets so tiring and hectic at times. I need to get off here and take the boys out. Hugs, Susie
Hey Miss Susie - Just read your post re: your health issues/experiences; you've had a time of it, too. Wow. My mom has ulcerative colitis and your experiences made me understand things she goes through better, too. You've been a really big source of encouragement for me. Thank you.
Maybe we'll have to start our own "Pain Pump" group at some point When I first start looking into the pump (late 2006), it was difficult to find info on the web. I could find all sorts of medical literature; lots of studies and such; but not real people's experiences. Anyway, if you do get through the Yahoo group - let me know :)
Going to try to get to bed early for me (it's only midnight). I've had BAD insomnia for weeks and weeks now. I wake up feeling like a truck hit me and I literally hit delirium by noon. Makes for a really long day.