Skin and muscle pain

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falcon4311
New Member


Date Joined Sep 2008
Total Posts : 13
   Posted 10/26/2008 6:49 PM (GMT -7)   
Hi,
 I am new to this forum and am seeking out some help. My problem started about 8 years ago with a tingling sensation in my right calf. It slowly progressed to the rest of my body and intensified to the point where it feels like the worst sunburn I have ever had. To compound my problem I get very intense shooting pains in my muscles that are short (it's not all of the time like the pain I feel on my skin) but very painful shots, it may happen 3 or 4 times or as many as 10 to 15 times. Both of these pains migrate all over my body sometimes making it too painful to even wear clothing.
 I have had c scans, mri's every blood test known to mankind and nothing shows up as being abnormal. I do go asymptomatic from time to time and it lasts maybe 3 days which lead to yet another frustrating situation. I was booked to go in for a test with a Neurologist where they hooked me up to this machine that monitors the electrical pulses given off by your nervous system. Of course 2 days before the test I had absolutely no symptoms and it lasted for 6 days. Those 6 days were wonderful in light of the fact that I was pain free but of course the tests showed no abnormal behavior much to my disappointment.
 I am taking Gabapentin (the generic form of Neurontin) and it does help to a degree. The Neurologist asked me to try going for a few days without it and my skin goes all prickly so I know it's doing something. It also worsens when I am tired.
 What I am hoping is that maybe someone else has experienced similar symptoms that may have had tests done and discovered what was ailing them. Maybe there is a condition that the specialists have missed however I doubt it given the number of tests that I have had done. If anyone can help I would be forever indebted to them.
Don

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 10/26/2008 7:31 PM (GMT -7)   
I had a sensation of sizzling in my upper back. The minute I opened my eyes
in the morning this sensation would start. It went on for three years and ended
after I had an EMG. (Needles were stuck into my skin and then the doctor turns
on the electricity and measures sensations ... or whatever.) I can't explain. It
sounds a little like a torture device but it isn't all that bad. It's a common test.

What did it do? It stopped the tingling, sizzling sensation! I can only guess that
he hit a nerve and killed it? Maybe someone can shed light on the EMG. This
post sounds slightly unreal. (I also had terrible burning that would require three
showers in the night. The culprit there was my overuse of Ben Gay and Tiger
Baum.

My diagnosis after this particular test was Carpel Tunel Syndrome. (This doesn't
bother me)

Pamela

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 10/27/2008 6:39 AM (GMT -7)   

Don, I hope someone here can help you.  By the way, welcome to the board (but sorry we all have to be here).  My carpal tunnel syndrome presented itself in a very similar way - tingling sensation and extreme burning, to the point of tears.  I get the same feeling (including the sunburn feeling) in the thoracic region of my back.  This has gone on for about five years off/on.  about last year, I started getting it in my feet, too (tarsal tunnel syndrome? I think that's what my doc said).  I've been on/off the neurontin, topamax, etc.  The thing that works best for me, now, is doing short bursts of steroids.  When I first feel it coming on, I do about five days of prednisone (about 40mg/day).  Usually, it really helps.

Anyway, I'm sorry that your symptoms went away right as you were to have testing done.  Never fails, does it? eyes But keep searching for an answer...and hopefully someone here can help you out.

--Tina


 

 

Diagnosed with: POTS/dysautonomia; Fibromyalgia; Severe Hypertension; Hypothyroidism; Adrenal Gland Disorder; Chronic Pain - severe carpal tunnel syndrome, migraines, severe back problems, widespread muscle/joint pain....as well as depression/anxiety.

 

Current Meds: 480mg MS Contin, 90mg MSIR, Soma, Effexor and MANY other meds (heart, thyroid, etc)

Past Meds: EVERYTHING.  Fentanyl patches, Actiq (which caused $$$ in dental work), Fentora, Oxycontin, Oxycodone, Kadian, Avinza, Dilaudid and on the list goes.

 

Waiting On: Intrathecal Drug Pump Implantation (Dilaudid/Baclofen combo)

 


falcon4311
New Member


Date Joined Sep 2008
Total Posts : 13
   Posted 10/27/2008 7:11 AM (GMT -7)   
Thanks Pamela and Tina, it really sucks to have something that no one can fix or even know what it is thats ailing me. It's frustrating when you go for a test like I did and have the condition go asymptomatic which in turn gives normal readings because there is no unusual nerve activity. Of course you can't just call up the Neurologist and say it's acting up can I come in for that test again. I liken it to taking your car to the mechanic and the noise that has been going on for weeks suddenly stops as soon as you get to the garage.
As much as I enjoyed my 6 days without pain I would have gladly given it up in order to get a diagnosis.
Don

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 10/28/2008 1:23 AM (GMT -7)   
Tina!
I still have those sensations that you speak of. They did get a lot better.
Maybe, just maybe, part of my problem was/is Carpel Tunel Syndrome.
I always thought that Carpel Tunel was a mild ache -no big thing. The
common cold of diseases with long names. From what you have to say,
Carpel Tunel is a big deal. I am enlightened. pn
PS. Tina, didn't prescribed Dilaudid help you?

Don,
I am SO sorry that happened to you. The problem may have to be
approached from another angle. (I dunno what) You probably could manage
another MRI, IF you would pay for it. I doubt that your insurance would
be willing to pay.
I got a BAD MRI one time. It was a clunky old closed machine. I was terrified
in it because I had been used to modern technology. This particular MRI was at
a fancy-pants clinic down in Oprah's California home. I thought I'd get the best -- No
way. (The Dr. did not prescribe anti-anxiety meds) After that test, I couldn't get
another one for a year.
I've come to the conclusion that I will never have another MRI unless I'm half-way considering
surgery. pn

falcon4311
New Member


Date Joined Sep 2008
Total Posts : 13
   Posted 10/28/2008 5:17 AM (GMT -7)   
Thanks Pamela,
The MRI's that I have had done were on the latest machines they have, the images were very good with revealed that I have 2 bulging disks as well as a degenerative disk in my lower back which I already knew about but none of the doctors feel that this would be the cause of my pain.

mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 10/29/2008 6:53 PM (GMT -7)   
 Could it be nerve damage? I have nerve damage in my right thigh. It kind of tingles,hurts,itches all at the same time.I have never felt anything like it befor its real strange. confused
Lost half of my small intestine.Ilieostomy for 5 months then reverst,Nerve damage to right leg,part of my right hip bone removed,Cronic pain,hernia,infection in my back called discites,and depression.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


falcon4311
New Member


Date Joined Sep 2008
Total Posts : 13
   Posted 10/29/2008 7:03 PM (GMT -7)   
It is some form of nerve damage but they don't seem to be able to figure out what or where it is coming from. Its like the Neurologist told me, people come to them for answers and they don't always have them. He said what they currently know about the nervous system is really just scratching the surface and it may be years before they know what is ailing me. Just what I wanted to hear.

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 10/29/2008 7:21 PM (GMT -7)   
Hey I have a lot of nerve damage AND fibromyalgia..... and sometimes it can be difficult to tell the two apart. I was originally on Gabapentin as well, and I had zero relief from it. My PS dr bumped me up to Lyrica 100 mg xs a day (which takes a while to work up to- thats really strong) and cymbalta 60 mg 2xs a day. I just started the cymbalta about 2 months ago and can tell a huge difference with the fibro. It took my drs months to diagnose the fibro. My RA level was high as well which threw the scent. :) But pretty much after I began the Lyrica (I mean the 2nd dosage) the burning/tingles up the leg/feet/arms was just a small tingle. Kind of like a tens unit. Most drs carry Lyrica as samples, ask for those first cuz its expensive. I am on about 10 meds but when I don't take my Lyrica I can tell. I lie up all night wanting to cut my off from the creepy crawly tingly burning feelings! Hopefully this is a start. Someone on here actually thought I had fibro & I said something to my drs could that be it???? I know it takes a long time usually to get the right meds & dosages.... & by then your tolerance is built up. I will say the Lyrica made me exhausted- at first- maybe a week or two, but I am fine & have been on it about 2 years. Its great stuff. Hope this helps you some! If this dosen't work- I tried this & had no luck- an old wives tale is to put a bar of soap at the end of your bed to help with it. I think it may help people with rls, but nerve damage may not have any luck. I know my mother & grandmother both suffer from rls symptoms & they both said it helped! Good Luck! You will love everyone here, a lot of people here have been there & have great advice. Good luck with your appt!!!
Obstacles: Herniated L-3, L-4, L-5; Herniated Discs in neck; Nerve damage in leg & arm; Fibromyalga; Allergies; Asthma; Diverticulitis; Acid Reflux.
Surgeries: Missing Gallbladder; several outpatient surgeries for cortisone injections & nerve block.
RX's: Oxycontin 20 MG 2x's daily; Oxycodone 15 MG 3x's daily; Soma 3x's daily; Lyrica 75 MG 3x's daily (all for pain & Fibro.) Phenergan 25 MG (as needed for Nausea/Vomiting) Amitriptyline 25 MG 1x at bedtime; Zoloft 100 MG 1x at morning (for pain & depression) Zyrtec 10 MG 1x at morning (allergies) Aciphex (as needed for Acid Reflux) Rozeram (as needed for sleep) Florastor & Flagyl (temporary for diverticulitis).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 10/29/2008 7:27 PM (GMT -7)   
ps. i also have 2 bulging discs, a ruptered disc, broken disc, sciatica? (can't spell) and nerve damage......
Obstacles: Herniated L-3, L-4, L-5; Herniated Discs in neck; Nerve damage in leg & arm; Fibromyalga; Allergies; Asthma; Diverticulitis; Acid Reflux.
Surgeries: Missing Gallbladder; several outpatient surgeries for cortisone injections & nerve block.
RX's: Oxycontin 20 MG 2x's daily; Oxycodone 15 MG 3x's daily; Soma 3x's daily; Lyrica 75 MG 3x's daily (all for pain & Fibro.) Phenergan 25 MG (as needed for Nausea/Vomiting) Amitriptyline 25 MG 1x at bedtime; Zoloft 100 MG 1x at morning (for pain & depression) Zyrtec 10 MG 1x at morning (allergies) Aciphex (as needed for Acid Reflux) Rozeram (as needed for sleep) Florastor & Flagyl (temporary for diverticulitis).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


falcon4311
New Member


Date Joined Sep 2008
Total Posts : 13
   Posted 10/29/2008 7:36 PM (GMT -7)   
Thanks very much for the advise kttn251977, I am supposed to go to my GP next week and I will ask him about the meds and see if there is a difference in how my skin and muscles feel. Trust me, I know all about wanting to cut off legs and arms, I also get it on my chest and stomach.

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 10/29/2008 7:47 PM (GMT -7)   
Hmmmm maybe its fibro? I don't feel it in my chest or tummy usually. But sometimes in my fingers & arms. I have read cases where some people have had it so bad they can't even use a sheet to sleep in or wear clothes. I couldn't imagine how that would be. But I know what its like to not sleep for 3 or 4 days straight. People think I am crazy when I admit my sleeping issues. (with the exception of my drs!) I know there have been serious moments of madness when I don't get at least 2 hours sleep. If your muscles are bothering you- are you on a muscle relaxer? They make the difference between a pain scale of 6 or 10. Just be honest with them, they can't help you if they don't know! Feel better soon! If you have any questions feel free to ask. I am sure I have had it, been cut on, pricked, poked & prodded. :) wait.... why am I smiling about that? "(
RX's: Oxycontin 60 MG 2x's daily; Oxycodone 30 MG 4x's daily; Soma 3x's daily; Lyrica 100 MG 3x's daily (all for pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x at bedtime; Cymbalta 60mg 2x's daily (for pain & fibro); Restoril 15mg at bedtime; Zanaflex 4mg 3x's daily; Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


falcon4311
New Member


Date Joined Sep 2008
Total Posts : 13
   Posted 10/29/2008 7:54 PM (GMT -7)   
Thanks again for the words of encouragement kttn251977, I don't tell family members anything about my medical issues anymore because it seems as though they are tired of hearing about it. Frankly I am tired of living with it.

mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 10/29/2008 10:56 PM (GMT -7)   
I agree with you even when the people in are lives love us thay do get tired of hearing all about it but thay have no idea how hard it is to be the one that lives with it.My 27 year old was complanning about his hand today and I know it hurts because it is a swollen up but he wont go to the DR. because he says he dosnt want to get addited to pain meds. I know that for me its not even thinkable to live with out my pain patch because the pain is so bad that I cant do anything but curl up in bed when I forget to cange it on time.Even with the patch I still have alot of pain so I dont have much of a life anymore with out it I would have none.
Lost half of my small intestine.Ilieostomy for 5 months then reverst,Nerve damage to right leg,part of my right hip bone removed,Cronic pain,hernia,infection in my back called discites,and depression.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


falcon4311
New Member


Date Joined Sep 2008
Total Posts : 13
   Posted 10/30/2008 4:43 AM (GMT -7)   
I can totally relate to your situation, if I wasn't talking Gabapentin I know it would be worse but I am going to try kttn251977's suggestion and ask my Doc about Lyrica.

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 10/30/2008 2:54 PM (GMT -7)   
Its very hard to make someone understand how there is just this amount of crippling pain you deal with. My mother is paranoid I am going to get addicted to my oxycontin. (there is always something in the news about it or a pain clinic death) But I like to watch people who can be so hypocritical when its that time of the month- or even a headache! Then in the mean time you are going on this, coming off that..... my pharmacy never knew what to keep on order for me for awhile. That gets maddening too cause your body is freaking out. My fincee one day strained his back, he was like "how do you deal with this every day".... lol. I think everyone has a moment. I went through a lot of why me's... no fair... so young... blah blah. Then I feel so selfish when I see a kid on tv with something like cancer. Amazing how some kids can teach adults lessons, and may not even meet them! You will find something to help curb the pain. It will never go away (thats what my drs have said) and other than injections, I am not willing to undergo major surgery until there is a better science to it. My dr was honest said it might make it worse. No thanks! You will find things that help. I do physical therapy in my pool; I love my tens unit- it dosen't cut the pain, but i think it helps the muscle spasms; keeping a high fiber diet & of course meds. The people on here are wonderful to talk to as well. You probably read my post trying to find Gramps, he was fantastic. He has really been through it with the drs. And always had advice & what to say to your drs. There are actually several very nice people. Like I said, sometimes just talking about it helps. Even better is someone can relate! Hope you are having a great night!
RX's: Oxycontin 60 MG 2x's daily; Oxycodone 30 MG 4x's daily; Soma 3x's daily; Lyrica 100 MG 3x's daily (all for pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x at bedtime; Cymbalta 60mg 2x's daily (for pain & fibro); Restoril 15mg at bedtime; Zanaflex 4mg 3x's daily; Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 10/30/2008 3:45 PM (GMT -7)   
I absolutely can relate to reading through all of these posts......nerve issues, fibro, family tired of hearing about it, ME being tired of being sick.... the list goes on.  I, too, went through the "why me's?"....I got sick right as I turned 30 and was pregnant with my last baby...(five years ago).  My three younger kids don't even remember having a "healthy" mom. 
 
But life's taught me a lot in the last few years so I TRY to focus on the blessings; but I'm human and have my share of rough days...
 
Pamela, Yep...I've never known pain as bad as what my hands (and back) have caused.  After six children (all via c-section) it takes a lot to break me...and I've been delirious with the burning/nerve mis-firings in my hands.  After seeing two doctors, they both said I had so much damage to my hands that surgery would only minimally help.  I do the burst of prednisone now, right when I feel the burning coming on...maybe once every couple of months.  But I always have numbness, tingling, hands fall asleep, etc.
 
Re: Dilaudid - IV Dilaudid is about the only thing that gets my pain level down.  My tolerance to all of the oral meds is absurd.  Actually, out of anything, the muscle relaxer works the best for me...  So, I'm a bad one to ask about oral meds.  BUT, I know oral dilaudid has helped many people.  I'm just praying I can work up the nerve to try the pump situation again...
 
Kttn251977 - I could relate to a lot of what you said -- especially about the sleep issues; and the thoughts about dealing with chronic pain... I'm sorry we all have to deal with this; but it DOES help to hear from those that understand. 
 
--Tina

 

 

Diagnosed with: POTS/dysautonomia; Fibromyalgia; Severe Hypertension; Hypothyroidism; Adrenal Gland Disorder; Chronic Pain - severe carpal tunnel syndrome, migraines, severe back problems, widespread muscle/joint pain....as well as depression/anxiety.

 

Current Meds: 480mg MS Contin, 90mg MSIR, Soma, Effexor and MANY other meds (heart, thyroid, etc)

Past Meds: EVERYTHING.  Fentanyl patches, Actiq (which caused $$$ in dental work), Fentora, Oxycontin, Oxycodone, Kadian, Avinza, Dilaudid and on the list goes.

 

Waiting On: Intrathecal Drug Pump Implantation (Dilaudid/Baclofen combo)

 


falcon4311
New Member


Date Joined Sep 2008
Total Posts : 13
   Posted 10/30/2008 7:35 PM (GMT -7)   
Tina and Kttn251977, I can already see that there are some very nice people in this forum after reading your posts.
It's funny, when I see a person with a physical deformity what ever it may be I always say to myself I wish I had the power to fix that persons condition. There is a young man that works at the Dairy Queen in my city and he has some form of a spinal deformity. He looks to be about 20 and he is literally hunched over with a large hump on his back and yet he acts just like any normal person would and I don't think he really cares if people look at him in a curious way. I consider it extremely rude but as they say it takes all kinds to make the world go around. I often wonder how his life would change if I was able to snap my fingers and make his condition disappear. I find myself thinking about people like him when I am down in the mouth about what I am going through and that old saying always comes to mind. No matter how bad things get there is always someone that has it worse than me. It doesn't help with my pain but it sure makes me think that I am a lot luckier than many others out there.
I guess we all have to count our blessings. I have 2 beautiful daughters that are the most wonderful kids a dad could wish for. I hate myself sometimes when I am short with them when my pain is at it's worst, I try to control myself but there are times when I get angry for no good reason. It makes me feel guilty after the fact and I have explained to them that its not that I am mad at them, it's just the pain I go through can sometimes put me in a mood where I say or do things I normally wouldn't. They understand but it still doesn't help with my guilt. Thats one thing I would really like to get a handle on.

moondancer
Regular Member


Date Joined Oct 2008
Total Posts : 68
   Posted 10/30/2008 7:44 PM (GMT -7)   

Kttn, Tina,

 I read your posts and saw myself in some of your words.the "why me's" and I know family is tired of me being "sick and tired". BUT thanks to finding this Forum, I see I am not alone and I see I can relate to all of you and you can relate to my pain as well. I will try to see that there is always someone worse off than me. I kept asking myself "How much pain is God going to give me?" and why I couldn't find relief (pain meds)without feeling guilty, or I felt like a hypochondriac. (sp) I felt uncomfortable yesterday asking the Rheumatoligist for pain meds, but believe it or not HE understood, and said "No one should be in this much pain" and prescribed the vicadin. My qaulity of life is such, that it is better using the pain meds to control pain, than to be so miserable I want to kill myself. So if people don't understand, that don't have our pain, so be it, I would not wish this pain on even my worst enemy.

I want to know how, or which doc I approach about the pump? and who prescribes the anxiety meds? the Rheumy? I can not take Oxycontin (I get dillusional), and have such a high tolerence to most pain meds as well. Dilaidid worked great for me in the hospital. but who will  prescribe that out of the hospital as well?

I too have a lot of nerve damage and have such a burning sensation on top of my feet.  my hands and arms fall asleep alot too. I really never even mentioned it to the Dr. as I already had so many other complaints, aches and pains.I was embarrassed to "gripe" about something else. God I am glad to know I am not alone with my pain. I can't tell you how good it is to be able to speak to people who UNDERSTAND!

Thanks for all the support you give everyone here!

Patty


_____________________________________________
 Degernative Joint disease, Depression from pain, Hypertension, Ulcers_____________________________
 Prozac 80 mgs, Synthroid, Ultram, Metroprolol, Lipitor, Norvasc, Vicadin, Benadryl (for sleep)__Vitamin D&K
 Bilaterla hip replacements, Bilateral knee replacements, Titanium Spine Fusion (L4-5)(4 spine surgeries)Angiogram, Oblation for SVT(supra ventricular tachycardia) Biopsy of left Optic Nerve, left shoulder surgery
 The hardest lesson in life to learn...Is which Bridge to cross and which one to burn.
 


moondancer
Regular Member


Date Joined Oct 2008
Total Posts : 68
   Posted 10/30/2008 7:49 PM (GMT -7)   
Don, I know how you feel when you are so grumpy because of the pain. I too am snappy and mean when in a lot of pain and nervous when I take the Vicadin. I try to do the same as you and picture someone worse than me and count my blessings, but when we hurt so bad, sometimes that hard to do. Good Luck to you and heres wishing everyone one pain FREE day.
_____________________________________________
 Degernative Joint disease, Depression from pain, Hypertension, Ulcers_____________________________
 Prozac 80 mgs, Synthroid, Ultram, Metroprolol, Lipitor, Norvasc, Vicadin, Benadryl (for sleep)__Vitamin D&K
 Bilaterla hip replacements, Bilateral knee replacements, Titanium Spine Fusion (L4-5)(4 spine surgeries)Angiogram, Oblation for SVT(supra ventricular tachycardia) Biopsy of left Optic Nerve, left shoulder surgery
 The hardest lesson in life to learn...Is which Bridge to cross and which one to burn.
 


falcon4311
New Member


Date Joined Sep 2008
Total Posts : 13
   Posted 10/30/2008 7:53 PM (GMT -7)   
Trust me Patty, I have had all of the same thoughts as you. I can fully understand why people end their lives because they can't take the pain anymore. I would never consider it myself because of the emotional pain it would put my daughters through.

Don

falcon4311
New Member


Date Joined Sep 2008
Total Posts : 13
   Posted 10/30/2008 7:56 PM (GMT -7)   
Thanks very much Moondancer.

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 10/31/2008 4:40 PM (GMT -7)   
moondancer- be careful on vicodin. my dr told me it can hurt your stomache, its meant to be a short term pain med. as far as the pain pumps go, from what i understand they have a tet version for a week or two, if it works they will install it for you. I don't know about a neurologist, i don't have one. i see a pain specialist, i know they can do them. but several people on here have one, maybe make a post? i know that i have had zero luck with morphine & patches. as far as diluadid (sp) goes, i LOVE that stuff. but here is how my dr put it to me...... i have a terribly high tolerance to pain meds. i have had the legal maximum dosage of dilaudid (and phenrgan- my fave cocktail) & walked like it was nothing. it work though for a few hours. i LOVE it. i love the whoosh of pain leave my toes. who dosen't? well, anyhow, he explained that he would give prescribe the pill form if i wanted, but to remember i would not have a lot of options if i wanted something strong for pain when i am REALLY hurting. have you tried oxy or ms contin? they work pretty well for me. i have been off & on a lot. it takes awhile to get the right mix, my drs even said sometimes it takes a few years. i am the same way, my muscle relaxers sometimes help more... an empty stomache.... full glass of water.... i know what you mean. i do a lot of research online too so i can ask about stuff. there is a lollipop with morphine thats supposed to be pretty good. my aunt had cancer & had one that swiches in your mouth right away. just tell your dr that its not working. i mean i will never be pain free, but there is no need that i shouldn't be able to have some relief!
falcon- hang in there. have you considered talking to a shrink? my pain dr advised to talk to one because chronic pain is linked to depression. i live in a big city that actually has shrinks who specialize in that field. i went a few times, but it really helped. i went through a lot of this sucks, im so young, poor me, i am in pain, not fair... plus a few more. watching my tummy/face/feet/hands swell. losing a lot of hair. i know what you mean. but ask one of your drs for something for depression/anxiety. they even help with the pain, i am not kidding it will make a huge difference. i went down about 2 notches on the pain scale with cymbalta. and you need to talk to someone. and tell your loved ones how much it hurts you when they say those kinds of things. let them know you already feel bad physically & mentally.... we are all behind you here. we will always listen. believe me, you will feel a lot better once you talk to someone. (((hugs))) i hope this helps you some. ((double hugs))
RX's: Oxycontin 60 MG 2x's daily; Oxycodone 30 MG 4x's daily; Soma 3x's daily; Lyrica 100 MG 3x's daily (all for pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x at bedtime; Cymbalta 60mg 2x's daily (for pain & fibro); Restoril 15mg at bedtime; Zanaflex 4mg 3x's daily; Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 10/31/2008 4:44 PM (GMT -7)   
oh and Happy Halloween everybody!
RX's: Oxycontin 60 MG 2x's daily; Oxycodone 30 MG 4x's daily; Soma 3x's daily; Lyrica 100 MG 3x's daily (all for pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x at bedtime; Cymbalta 60mg 2x's daily (for pain & fibro); Restoril 15mg at bedtime; Zanaflex 4mg 3x's daily; Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 10/31/2008 5:22 PM (GMT -7)   
Which bridge to cross? Which bridge to Burn? and .... and .... Which bridge to jump off of? (With a parachute
of course)

I am missing my grandaughter's Halloween party cuz my back hurts and thus the little word play on Moondancers quote.

pn

Conan O'brians 3-year-old son was looking at the costume book with his dad. The little kid picked out the costume
of the UPS guy. Dad said "Don't you want to be something scary?" The boy didn't respond to this. The costume
came and the boy did a dress rehersal. Conan saw him coming down the hall. The little boy was making
clawing motions with his hands and growling real deep and loud.

turn turn turn turn turn turn turn turn turn turn turn turn turn turn turn turn

I'll have my party right here with y'all.

Post Edited (Pamela Neckpain) : 10/31/2008 6:29:07 PM (GMT-6)

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