Don, I hope someone here can help you. By the way, welcome to the board (but sorry we all have to be here). My carpal tunnel syndrome presented itself in a very similar way - tingling sensation and extreme burning, to the point of tears. I get the same feeling (including the sunburn feeling) in the thoracic region of my back. This has gone on for about five years off/on. about last year, I started getting it in my feet, too (tarsal tunnel syndrome? I think that's what my doc said). I've been on/off the neurontin, topamax, etc. The thing that works best for me, now, is doing short bursts of steroids. When I first feel it coming on, I do about five days of prednisone (about 40mg/day). Usually, it really helps.
Anyway, I'm sorry that your symptoms went away right as you were to have testing done. Never fails, does it? But keep searching for an answer...and hopefully someone here can help you out.
Diagnosed with: POTS/dysautonomia; Fibromyalgia; Severe Hypertension; Hypothyroidism; Adrenal Gland Disorder; Chronic Pain - severe carpal tunnel syndrome, migraines, severe back problems, widespread muscle/joint pain....as well as depression/anxiety.
Current Meds: 480mg MS Contin, 90mg MSIR, Soma, Effexor and MANY other meds (heart, thyroid, etc)
Past Meds: EVERYTHING. Fentanyl patches, Actiq (which caused $$$ in dental work), Fentora, Oxycontin, Oxycodone, Kadian, Avinza, Dilaudid and on the list goes.
Waiting On: Intrathecal Drug Pump Implantation (Dilaudid/Baclofen combo)
I read your posts and saw myself in some of your words.the "why me's" and I know family is tired of me being "sick and tired". BUT thanks to finding this Forum, I see I am not alone and I see I can relate to all of you and you can relate to my pain as well. I will try to see that there is always someone worse off than me. I kept asking myself "How much pain is God going to give me?" and why I couldn't find relief (pain meds)without feeling guilty, or I felt like a hypochondriac. (sp) I felt uncomfortable yesterday asking the Rheumatoligist for pain meds, but believe it or not HE understood, and said "No one should be in this much pain" and prescribed the vicadin. My qaulity of life is such, that it is better using the pain meds to control pain, than to be so miserable I want to kill myself. So if people don't understand, that don't have our pain, so be it, I would not wish this pain on even my worst enemy.
I want to know how, or which doc I approach about the pump? and who prescribes the anxiety meds? the Rheumy? I can not take Oxycontin (I get dillusional), and have such a high tolerence to most pain meds as well. Dilaidid worked great for me in the hospital. but who will prescribe that out of the hospital as well?
I too have a lot of nerve damage and have such a burning sensation on top of my feet. my hands and arms fall asleep alot too. I really never even mentioned it to the Dr. as I already had so many other complaints, aches and pains.I was embarrassed to "gripe" about something else. God I am glad to know I am not alone with my pain. I can't tell you how good it is to be able to speak to people who UNDERSTAND!
Thanks for all the support you give everyone here!
Post Edited (Pamela Neckpain) : 10/31/2008 6:29:07 PM (GMT-6)