Post Edited (moondancer) : 10/28/2008 5:00:37 PM (GMT-6)
Linda, Thank You so much for giving me courage. I have been on and off pain meds most of my life. (I refused to become addicted) That's why I was asking about the pump. I will be so glad to have someone to "vent" to, as my family is probably very tired of my complaining of the pain. Yet they have been very supportive. Again God Bless and Thanks for Caring for so Many people! I will tell you what the Rheumy says tomarrow.
Hi, Patty. I normally post on the Hepatitis Forum, but I also have chronic pain issues. Well, gal, you have me beat, as far as joint replacements. I've had both hips replaced and the left one revised twice. After the first revision, I awoke to find myself frog-legged in a spica (body) cast, for 3 weeks, and locked steel hip and leg braces after that. Grueling!! For the 2nd revision, I went to an orthopedic surgeon at Mayo who was very, very good. My left hip feels almost like my own hip. My rt. hip is another matter. That one is going to need a revision also, as it is not positioned correctly. Lately, it has been causing me pain and feeling like it's going to dislocate. I am putting off revision as long as possible, though, but will also have it done at Mayo, hopefully by the same orthopod.
I found that a combination of Lortab and ibuprofen 800 works best for me. However, since I have cirrhosis, I try not to take the ibuprofen too often. This colder weather sure isn't helping my joints any!
I have a friend who got the implant for very bad pain from a messed up back where she'd had numerous surgeries. It helped her a lot. Discuss this option with your orthopedic surgeon, as well as your rheumatologist.
Good luck with the shoulder replacement! I know they have come a long way since they first became available. My nurse friend with bad hand arthritis tells me that there are now even knuckle replacements!!
Thanks so much for the information and now I don't feel so alone. I can't imagine being in a frog brace and so completely immobile. I am so sorry about your revisions as that was the most horrible ordeal I ever encountered. I had a cement spacer put in while the infection healed & strong IV antibiotics. I was so sick while in the hospital for those 4 months. revisions are not easy and I can see why you would want to wait until the last possible moment to have it. However with that being said, I wish I had found a Dr who could have diagnosed my problem earlier than two yrs. as the infection made me have diarreah (sp) for 2 yrs and I simply could not function physically or emotionally with that pain ever again. Finally went to Hospital For Special Surgery in NY & found a wonderful Doctor. Now my left hip feels like it is supposed to (except for the arthritis). I do take Vicadin as needed and can not take ibruprofin any longer due to the NSAIDS causing so much damage to my stomach. I just have so much arthritis pain in every joint and every lumbar disc in my back. So I guess it is time for long term pain med treatment.
Miss Connie, Please take care of yourself and Thank you again for the comforting words. I am on my way to see the Rheumy for the first time this morning.I will post after.
Hugs back to you,
PAlady, Thank you again for caring and making me feel like I am not alone or crazy for wanting to talk to someone else going through the same pain as all of you are.
You All are a God Send, I wish I had known about this Forum years ago,
Patty, let us know what the rheumatologist had to say.
NY Hospital for Special Surgery is EXCELLENT. I know a lot of people on the Osteonecrosis board I go to have had joint replacements there with great results.
Yes, the immobilization was gruesome, especially the cast, as it was digging into my back and pressing on the staples. I complained every single day that I was in that thing. It was really barbaric. I was in the hospital after that revision for a week short of 2 mos. I had to learn to walk again.
I'm so sorry for all you have had to endure, and hope that you will get some relief soon...somehow, some way.
Patty, I'm glad to hear that the Vicodin is helping you some. I went to Pain Management Clinic for nearly a year. They gave me trigger point injections in my neck and upper back, which did nothing except give me headaches. Their final try was inter-facet injections in my neck, under light anesthesia. That left me pain free for a week, which was wonderful. However, they didn't think that was long enough, and discharged me with orders for Darvocet and 800 mg ibuprofen daily. They sent a letter in this regard to my primary care doc, which helped me in my monthly battles with her to get pain meds with some refills. When the Darvocet stopped working effectively, I was switched to Lortab.
I have pain right now, and I have already taken my nighttime meds. So I will have to go to bed, as I can no longer sit and type or be vertical, due to the pain. I'm sure you know the feeling.