Has anyone had multiple Joint replacements?

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moondancer
Regular Member


Date Joined Oct 2008
Total Posts : 68
   Posted 10/28/2008 3:54 PM (GMT -7)   
Hi I am new here and am taking PAlady's advice and introducing myself.
My name is Patty and I have suffered from Degenerative Joint Disease for many years and have had both hips and both knees replaced. I have had 4 back surgeries at L4-5. I am having shoulder surgery in 2 weeks for one shoulder, with the other shoulder following shortly. And also my Jaw is popping and they say TMJ. I had a stroke in my left optic nerve due to high blood pressure, and have lost most of the sight in that eye. after having the left hip replaced in 2005 I suffered such severe pain that I contemplated suicide and spent two years going to different Drs. Not until I moved to NY and found a specialist that noticed the hip had come loose, and had also been infected for the past 2 years, did I find relief. The Dr had to do a revision, and a long story short, I spent 4 months on antibiotic IV's in the hospital, I had a complete blood transfusion due to the infection. I have only see Ortho Drs and tomarrow I see a Rheumatoligist for the first time. I am hoping they can give me pain medicine on a continuous basis for the pain. Does anyone have any suggestions for the pain? I seem to be severely depressed lately as the pain has gotten so bad in my joints. I cry daily. It hurts too much to even get out of the bed most days. I am also in the process of trying to get Lap Band surgery to lose weight and hope it gives me some relief. I can not walk without a cane or stand for more than 5 minutes.
 
Has anyone had all their joints replaced like this, and also Has anyone ever had a morphine(or some other medicine) drip implanted for pain? I want to ask the Dr about this.
I wish Happiness for everyone and at least one pain free day!
Thank You
Patty


Severe Degernative joint disease, Depression from pain, Hypertension, ulcers. Prozac 80 mgs, Ultram, metroprolol, lipitor,
norvasc
Bilaterla hip replacements, bilateral knee replacements, titanium spine fusion (L4-5)(4 spine surgeries)
 

Post Edited (moondancer) : 10/28/2008 5:00:37 PM (GMT-6)


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 10/28/2008 5:18 PM (GMT -7)   
Welcome Patty, to the Chronic Pain Forum of Healing Well. We are glad you introduced yourself, but so sorry to hear of your painful history. Hopefully, you can get some relief real soon when you go to the rheumatologist. Be careful of going to heavy drugs right away such as a pump. Strong is not always the best, although I realize you want to have adequate pain relief. Start slowly and work up cautiously ok??

I have not had joint replacement surgery myself, but I wanted to respond to your post to indeed welcome you and to say that I care for what you are going through. Please continue to post and let us get to know you. We will be here to support you hon.

God's blessings and have a low pain day.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


moondancer
Regular Member


Date Joined Oct 2008
Total Posts : 68
   Posted 10/28/2008 5:39 PM (GMT -7)   

Linda, Thank You so much for giving me courage. I have been on and off pain meds most of my life. (I refused to become addicted) That's why I was asking about the pump. I will be so glad to have someone to "vent" to, as my family is probably very tired of my complaining of the pain. Yet they have been very supportive. Again God Bless and Thanks for Caring for so Many people! I will tell you what the Rheumy says tomarrow.

Patty


Severe Degernative Joint disease, Depression from pain, Hypertension, ulcers.
 
Prozac 80 mgs, Ultram, Metroprolol, Lipitor, Norvasc, Vicadin, Benadryl (for sleep)
 
Bilaterla hip replacements, Bilateral knee replacements, titanium spine fusion (L4-5)(4 spine surgeries)Angiogram, Oblation for SVT(supra ventricular tachycardia) Biopsy of left Optic Nerve
 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/28/2008 5:54 PM (GMT -7)   

Hi, Patty.  I normally post on the Hepatitis Forum, but I also have chronic pain issues.  Well, gal, you have me beat, as far as joint replacements.  I've had both hips replaced and the left one revised twice.  After the first revision, I awoke to find myself frog-legged in a spica (body) cast, for 3 weeks, and locked steel hip and leg braces after that.  Grueling!!  For the 2nd revision, I went to an orthopedic surgeon at Mayo who was very, very good.  My left hip feels almost like my own hip.  My rt. hip is another matter.  That one is going to need a revision also, as it is not positioned correctly.  Lately, it has been causing me pain and feeling like it's going to dislocate.  I am putting off revision as long as possible, though, but will also have it done at Mayo, hopefully by the same orthopod.

I found that a combination of Lortab and ibuprofen 800 works best for me.  However, since I have cirrhosis, I try not to take the ibuprofen too often.  This colder weather sure isn't helping my joints any!

I have a friend who got the implant for very bad pain from a messed up back where she'd had numerous surgeries.  It helped her a lot.  Discuss this option with your orthopedic surgeon, as well as your rheumatologist.

Good luck with the shoulder replacement!  I know they have come a long way since they first became available.  My nurse friend with bad hand arthritis tells me that there are now even knuckle replacements!!


Hugs,
Connie
 
"But that was yesterday, and I was a different person then."
 
Alice in Wonderland, Lewis Carroll


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 10/28/2008 7:47 PM (GMT -7)   
Patty,
I'm so glad you found some support - and someone who's been through some similar procedures.

Keep posting with us!

PaLady

moondancer
Regular Member


Date Joined Oct 2008
Total Posts : 68
   Posted 10/29/2008 5:14 AM (GMT -7)   

Connie,

Thanks so much for the information and now I don't feel so alone. I can't imagine being in a frog brace and so completely immobile. I am so sorry about your revisions as that was the most horrible ordeal I ever encountered. I had a cement spacer put in while the infection healed & strong IV antibiotics. I was so sick while in the hospital for those 4 months. revisions are not easy and I can see why you would want to wait until the last possible moment to have it. However with that being said, I wish I had found a Dr who could have diagnosed my problem earlier than two yrs. as the infection made me have diarreah (sp) for 2 yrs and I simply could not function physically or emotionally with that pain ever again. Finally went to Hospital For Special Surgery in NY & found a wonderful Doctor. Now my left hip feels like it is supposed to (except for the arthritis). I do take Vicadin as needed and can not take ibruprofin any longer due to the NSAIDS causing so much damage to my stomach. I just have so much arthritis pain in every joint and every lumbar disc in my back. So I guess it is time for long term pain med treatment.

Miss Connie, Please take care of yourself and Thank you again for the comforting words. I am on my way to see the Rheumy for the first time this morning.I will post after.

GOD BLESS

Hugs back to you,

Patty 


Severe Degernative Joint disease, Depression from pain, Hypertension, ulcers.
 
Prozac 80 mgs, Ultram, Metroprolol, Lipitor, Norvasc, Vicadin, Benadryl (for sleep)
 
Bilaterla hip replacements, Bilateral knee replacements, titanium spine fusion (L4-5)(4 spine surgeries)Angiogram, Oblation for SVT(supra ventricular tachycardia) Biopsy of left Optic Nerve
 


moondancer
Regular Member


Date Joined Oct 2008
Total Posts : 68
   Posted 10/29/2008 5:16 AM (GMT -7)   

PAlady, Thank you again for caring and making me feel like I am not alone or crazy for wanting to talk to someone else going through the same pain as all of you are.

You All are a God Send, I wish I had known about this Forum years ago,

THANKS

Patty


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/29/2008 2:39 PM (GMT -7)   

Patty, let us know what the rheumatologist had to say.

NY Hospital for Special Surgery is EXCELLENT.  I know a lot of people on the Osteonecrosis board I go to have had joint replacements there with great results. 

Yes, the immobilization was gruesome, especially the cast, as it was digging into my back and pressing on the staples.  I complained every single day that I was in that thing.  mad   It was really barbaric.  I was in the hospital after that revision for a week short of 2 mos.  I had to learn to walk again.

I'm so sorry for all you have had to endure, and hope that you will get some relief soon...somehow, some way.


Hugs,
Connie
 
"But that was yesterday, and I was a different person then."
 
Alice in Wonderland, Lewis Carroll


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 10/29/2008 5:24 PM (GMT -7)   
Moondancer,

I am so sorry about all your pain. I can't even imagine going through one, let alone, multiple joint replacements. But I wanted to welcome you to the forum & let you know that we are all here for you. And you really are in great hands at HSS. I've had 3 shoulder surgeries there and I absolutely loved my surgeon and his staff. HSS is excellent. If I ever need more orthopedic surgery I'd go back there in a second, even despite it being a several hour trip away!

Do you see a pain doctor? If you live in NY, I believe that HSS has a pain management program associated with it. Have you ever tried any alternative treatments? They don't work for everyone, but it might be worth looking into. Acupuncture helps me quite a bit. I don't think I'd be able to get through each week without it.

Hope things went well with the Rheumatologist.

Skeye

moondancer
Regular Member


Date Joined Oct 2008
Total Posts : 68
   Posted 10/30/2008 1:24 PM (GMT -7)   
Good Day All,
Thanks for caring! I did see the Rheumy yesterday and as I expected there is not much that can be done for Osteo/ Degernative Joint Disease except Pain management and also said there was NO reason any of us should suffer. He gave me 6 months of Vicadin, did a bone density test and is sending me to pain management, which I am openly looking foward to any help they can offer. I DO feel better after taking the pain meds and today I got out of bed WITHOUT crying.
HSS was the best and My Doctor was so wonderful, but now I have different Medicare supplemental insurance and unfortunetaly HSS does not accept it.
I am having shoulder surgery on the 13 th of this month, and the other shoulder shortly after. Then LAP BAND to lose this weight off my joints
I am not beyond trying acupuncture either. I am to the point I will try what works just for relief.
I hope you are having a better day today!

All of you have a Pain FREE day and good luck.
Love and Hugs to all of You
Patty
Severe Degernative Joint disease, Depression from pain, Hypertension, ulcers.
 
Prozac 80 mgs, Ultram, Metroprolol, Lipitor, Norvasc, Vicadin, Benadryl (for sleep)
 
Bilaterla hip replacements, Bilateral knee replacements, titanium spine fusion (L4-5)(4 spine surgeries)Angiogram, Oblation for SVT(supra ventricular tachycardia) Biopsy of left Optic Nerve
 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/31/2008 9:10 PM (GMT -7)   

Patty, I'm glad to hear that the Vicodin is helping you some.  I went to Pain Management Clinic for nearly a year.  They gave me trigger point injections in my neck and upper back, which did nothing except give me headaches.  Their final try was inter-facet injections in my neck, under light anesthesia.  That left me pain free for a week, which was wonderful.  However, they didn't think that was long enough, and discharged me with orders for Darvocet and 800 mg ibuprofen daily.  They sent a letter in this regard to my primary care doc, which helped me in my monthly battles with her to get pain meds with some refills.  When the Darvocet stopped working effectively, I was switched to Lortab.

I have pain right now, and I have already taken my nighttime meds.  So I will have to go to bed, as I can no longer sit and type or be vertical, due to the pain.  I'm sure you know the feeling.  sad


Hugs,
Connie
 
"But that was yesterday, and I was a different person then."
 
Alice in Wonderland, Lewis Carroll

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