Post Edited (Pamela Neckpain) : 10/30/2008 7:30:10 PM (GMT-6)
OMG. You really have had more than your fair share of idiots for drs haven't you. Well, sad but true, I have lost 2 inches in heigth due to the osteoporosis. I was walking around like the little ladies in China town looking at my belly button too, but my pain mgt dr put me in a back brace to help correct this posture. But, my walking bent over is due to my facet joint problems for sure. I must admit, it is bulkey but oh does it ever feel good on the back.
Ms. Pam I know one of your drs gave you Zanaflex as a muscle relaxer I believe. Gal, have you tried any of those out yet? I do wish you would and see if they don't cut your pain level down a little. I know what works for one may not on another but, its worth the try. You may be missing out on something good. I just know what muscles spasms can do to a person pain wise. It ain't fun. Chronic pain makes us tense up so bad.
I saw my pain dr Wed for a pump refill and he increased my concentration level of Dilaudid to 25mg. I was getting 15mg. He said this should help me out a little more. I was actually having a good day when I saw him and we talked about my bad habits. Mainly, me overdoing things then getting myself laid up in bed for a couple of days. He told me that this is the hardest thing for a pain patient to learn is how to pace themselves. Its like I told him, when a person is use to going 500 miles an hour all day long and then all of a sudden they are slower than a snail, it just knocks your socks off, at least it did mine. You would think after 4 yrs of being treated by him something would sink in with me. lol
I got some good news not related to CP though. A new drug called Cimzia has been approved by the FDA for crohns disease and I get to try it. My insurance ok'd it, actually, it comes from my script card. The annual cost for this is almost $85,000 a year. My co-pay for it will be $35 a month and if I tolerate it ok, I can do mail order for 3 months $70. The medicine will be mailed to my gastro dr its an injectible and can be given either a physician or home health nurse. I am doing Remicade infusions right now every 4 weeks and they bill my ins a little over $11,000 for it so this will be cheaper. I am starting to have some nasty side effects from the Remicade so we are going to try this. I am trying not to get my hopes up too much because we have been fighting that battle for 6 yrs now. I will have to go back to Remicade if the Cimzia does not work for me.
Today I spent 4 hrs at the dentist in his chair. Had one root canal done and part ways on another tooth. I had 2 teeth that broke off, one big one and a small one. The small one is a problem child, it was a pretty hot tooth today-so he had to stop it was hurting too bad for him to continue. I am on antibiotics for the next 14 days. I will go back in 3 weeks and finish the root canal and get my permanent crowns put on. All I can say is this, when they told me how much it would cost, plus having a deep plane cleaning done, I nearly passed out on the spot. We no longer have dental ins and man if this isn't expensive, I don't know what is. I am really gonna have a sore mouth, its already hurting and I just took my 2nd dose of Dilaudid. Thats what my pain dr told me to take for the pain. It helps but wears off in 4 hours.
Pam, I do hope you will take a day when you are not going out, and try your msucle relaxer out for a few days to see if it will help you. Hugs, Susie
Post Edited (Pamela Neckpain) : 10/31/2008 7:07:02 PM (GMT-6)