Tail Bone Problems

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Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 10/30/2008 1:55 AM (GMT -7)   
I broke my tail bone while giving birth 35 years ago. I was in so much pain
I was given Vicodin. I wasn't nursing. I wouldn't have been ABLE to nurse because
I couldn't sit down.
Anyway, the tail bone has been giving me problems lately. All I could do was
take tiny little painful steps sideways. This lasted for a couple of hours after
awakening.The next morning it came back but not so bad.
I have Osteoarthritis at all levels so surgery is not for me. Scoliosis makes
it worse.
What in the world can a doctor do to help with a broken tailbone?
Dam! : )

kara487
Veteran Member


Date Joined Mar 2008
Total Posts : 637
   Posted 10/30/2008 2:14 AM (GMT -7)   
Pam,I had a fractured tailbone and my dr suggested injections or surgery remove my tailbone if my pain did not get any better . I also had to sit on a cushion shaped as a donut that helped my pain alot. I still have ocassional pain in my tailbone from my fractured tailbone but it got better. I hope this helps.
Lortab,ambien,elavil,reglan and neurontin.
 
spinal conditions: Scolosis,herniated discs,spinal blockage,Spinal stenosis,bursitis and arthritis


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 10/30/2008 7:45 AM (GMT -7)   
Kara
OMG. thank you for responding. I thought my days of walking were over totally.
Things are still not good for me, but they're a whole lot better. What kind of
injections did your doctor plan on using?

Do you do anything special for your Scoliosis? I don't but suspect I should be
swimming. However, the last time I went swimming I really injured myself.

Sometimes it seems like every single live-long day something happens or hurts
that makes me think I'm a goner.

Pamela Worrywartski
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


kara487
Veteran Member


Date Joined Mar 2008
Total Posts : 637
   Posted 10/30/2008 8:25 AM (GMT -7)   
Pam,my dr. suggested cortisone injections. No I dont do anything special for my scolosis. Hope this helps. I hope you have a lpd.
Lortab,ambien,elavil,reglan and neurontin.
 
spinal conditions: Scolosis,herniated discs,spinal blockage,Spinal stenosis,bursitis and arthritis


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13478
   Posted 10/30/2008 6:01 PM (GMT -7)   
Pam, I too have scoliosis, however, my pain dr & PCP have not indicated me doing doing anything for it. What is basically is. is curvature of the spine.

Really the only ones I know of are the kids that are born with it severely and continue to get worse until they are old enough for back surgery to have the Harrington rods put in. Most of the kids are so severely deformed in the lumbar spine and in such pain, that they welcome the surgery because it usually helps them tremendously. And, its totally amazing how these young kids bounce back from a surgery like that.

I know most peeps buy the little round donut to sit on when they have tailbone pain going on. Hugs, Susie


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 10/30/2008 6:27 PM (GMT -7)   
One big-deal head neurosurgeon at a fancy pants teaching hospital
scared me really bad.(I would like to say where ... but I'd better not)
He said if I didn't have surgery I'd be walking around like the old ladies in
China town looking at my belly button. That was a ridiculous thing for him to
say because my spine curves to the side. Actually it curves like an S.
I'm far from old.
Anyway, he said some other really off the wall things and recommended Homeopathic
medicine, Accupuncture, and Yoga until it was time for my surgery. There was more ...
He was so nuts. Without the correct Opiod meds, I cannot get by at all. I'd snap if
I attempted Yoga. Accupuncture makes my back feel like raw hamburger.
So I corresponded with the hospital personell, told them my experiences and do you
know what? I didn't have to pay for my visit. I'm not sure what hqppened to him,
but i do know he doesn't work in that hospital anymore.
I think that was a first for that particular hospital. The people in charge really
apologized.
It's good to be really careful when you write to medical people about problems.
If you say the wrong thing, they can think you're a trouble maker. But there
are times when a letter of complaint is just the right thing to do, Susie Q.
Pamela smilewinkgrin

Post Edited (Pamela Neckpain) : 10/30/2008 7:30:10 PM (GMT-6)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13478
   Posted 10/30/2008 9:53 PM (GMT -7)   

OMG. You really have had more than your fair share of idiots for drs haven't you. Well, sad but true, I have lost 2 inches in heigth due to the osteoporosis. I was walking around like the little ladies in China town looking at my belly button too, but my pain mgt dr put me in a back brace to help correct this posture. But, my walking bent over is due to my facet joint problems for sure. I must admit, it is bulkey but oh does it ever feel good on the back.

Ms. Pam I know one of your drs gave you Zanaflex as a muscle relaxer I believe. Gal, have you tried any of those out yet? I do wish you would and see if they don't cut your pain level down a little. I know what works for one may not on another but, its worth the try. You may be missing out on something good. I just know what muscles spasms can do to a person pain wise. It ain't fun. Chronic pain makes us tense up so bad.

I saw my pain dr Wed for a pump refill and he increased my concentration level of Dilaudid to 25mg. I was getting 15mg. He said this should help me out a little more. I was actually having a good day when I saw him and we talked about my bad habits. Mainly, me overdoing things then getting myself laid up in bed for a couple of days. He told me that this is the hardest thing for a pain patient to learn is how to pace themselves. Its like I told him, when a person is use to going 500 miles an hour all day long and then all of a sudden they are slower than a snail, it just knocks your socks off, at least it did mine. You would think after 4 yrs of being treated by him something would sink in with me. lol

I got some good news not related to CP though. A new drug called Cimzia has been approved by the FDA for crohns disease and I get to try it. My insurance ok'd it, actually, it comes from my script card. The annual cost for this is almost $85,000 a year. My co-pay for it will be $35 a month and if I tolerate it ok, I can do mail order for 3 months $70. The medicine will be mailed to my gastro dr its an injectible and can be given either a physician or home health nurse. I am doing Remicade infusions right now every 4 weeks and they bill my ins a little over $11,000 for it so this will be cheaper. I am starting to have some nasty side effects from the Remicade so we are going to try this. I am trying not to get my hopes up too much because we have been fighting that battle for 6 yrs now. I will have to go back to Remicade if the Cimzia does not work for me.

Today I spent 4 hrs at the dentist in his chair. Had one root canal done and part ways on another tooth. I had 2 teeth that broke off, one big one and a small one. The small one is a problem child, it was a pretty hot tooth today-so he had to stop it was hurting too bad for him to continue. I am on antibiotics for the next 14 days. I will go back in 3 weeks and finish the root canal  and get my permanent crowns put on. All I can say is this, when they told me how much it would cost, plus having a deep plane cleaning done, I nearly passed out on the spot. We no longer have dental ins and man if this isn't expensive, I don't know what is. I am really gonna have a sore mouth, its already hurting and I just took my 2nd dose of Dilaudid. Thats what my pain dr told me to take for the pain. It helps but wears off in 4 hours.

Pam, I do hope you will take a day when you are not going out, and try your msucle relaxer out for a few days to see if it will help you. Hugs, Susie



Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2284
   Posted 10/31/2008 9:04 AM (GMT -7)   
Pam,
I don't have a broken tailbone. Probably the only way that could actually be fixed is with surgery.

As far as the scoliosis, I do have that (I also have several arthritic joints in my spine). I am still quite young, but I have lost a fraction of an inch already & am concerned I will end up like my great g-ma who was all hunched over. Her spinal curve went side to side like mine & yours and it did cause her to lose height (4-5 inches by the time she was in her mid-80's) & to get hunched over. The NS was probably wrong about a lot of things, but that one sounds right.

As far as the yoga goes, I can definitely relate to the brutal pain it causes. It can be a major set-back if it's not done carefully & it sounds like that NS couldn't be bothered to give you any sort of instructions. My PM finally sent me to an aquatherapist & I did the exercises in a specially heated therapy pool. The pool is warm like bath water so you don't feel the pain like if you were to do it on land. It is best to start it under the supervision of a therapist at first.
Now I'm up to being able to do some of the seated or lying down positions on my bed. The floor is still brutally painful, but I am getting some benefit from the exercises in bed. The do help a lot with posture & also decrease the pain in my back. You have to have them majorly modified (that's where the aqua therapist comes in) & progress super slowly, but they really do work. I take some of my narc pain meds about 10 min. before the end of the workout. That way I can feel if the pain is getting too much in the pool or on my bed, but I'm not in horrible pain when I stand up on dry land.
I'm really glad I found a way to do yoga & pilates because even though it cost me a lot of pain in the beginning it is making my life less unpleasant & painful now. My goal is to be able to get strong enough that I can stand intermittently for 3 hours of the day so I can return to my beloved teaching career. My PM says if I go slow & steady with the treatment plan (which includes a lot of alternative medicine -- PT, massage, C-S therapy, acupuncture, myofascial release, and probably some others) that we can get me to that point within 5 years.

I know it's not fun & not fair. They should be able to just give us a magic pill that can make everything heal up to perfection. I would be first in line for that pill. Unfortunately, that's not reality. Making even small gains in our health, posture, etc. can be very difficult. They are hard fought battles, trying to balance pushing to the limit without overdoing it & causing another set-back. But the alternative is even worse -- lying in bed without the comforts we long for in life - peace, mobility, freedom, hope, accomplishments. The doctors are not always our greatest supporters. Sometimes it seems like they're not even on our side -- sometimes they aren't.

You have a lot to offer this world - especially your gift with words. Some of your writings are really quite impressive. You do clearly need to find a better doctor who is willing to explain things to you, answer your questions, and really become involved in coordinating & overseeing your treatment, but once you find that I would encourage you to give things a try. If something doesn't work for you or is too painful, find out if there isn't some way to modify it so you can do it. What do you really have to lose? Once we've lost jobs & homes & friends & family & everything else, we have the freedom to really try things because the cost is much less. What's the worst that could happen -- you might over-do & be in pain for an extra week or two or maybe a few more, right? Isn't that risk worth it for a chance to be able to get around more & be in less pain?

As far as the pain, they do need to limit the number of steroid injections, especially since your joints are in such bad shape. Nonetheless, maybe with the right PM that would be an option. There are facet injections & epidurals & trigger point injections & others. My PM leaves it up to his patients to decide how much risk they're willing to take. He will often do several facet injections at all different levels in one visit. That way we can knock the pain down low enough for me to either take my annual break from the narc meds (to mitigate dependence) or to increase the amount of physical activity I do for a week or two. The increased activity allows me to build strength in my core muscles and as a result have a little less pain in my daily life once the injection meds wear off. I do have to cut back some once the injection meds wear off, but usually I still come out a little stronger than where I was before the injections. You just have to take the gains little by little & keep working at it.

Anyways, that's my take on it. Hope you have a great day & aren't in too much pain. :-)

GB,
frances

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 10/31/2008 10:07 AM (GMT -7)   
Straydog Susie Q
I am running off now for breakfast ~ but have more to say later.
Susie, have you had Nitrous Oxide at your dentist. It makes dentistry almost fun.
I will try my Xanaflex more often. I don't know what to do with them.

Yes, Frances ... I DO need better pain management or at least some. As I've
mentioned, my doctor comes in singing Opera or Rock 'N Roll. Since I'm not
too excited about the pain pump I don't think I'm worth his words.
It's brutally hard to find a good pain doctor.I'm new
in town. One could be perceived as a "doctor
hopper" (I don't think that's the correct name...

Pamela
DOCTOR HOPPER????? uh uh. smilewinkgrin

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2284
   Posted 10/31/2008 12:59 PM (GMT -7)   
Pam,
I definitely feel for you. I just called my neurologist's office to schedule an appointment. First the RN tells me that it sounds very serious & I should get in to see the doctor today. Then she calls back after talking to the doctor & tells me he says I need to go back to my PM. I told her my PM said this has never happened to him (putting an air bubble in someone's spine while giving an epidural) & that my PM said he's really sorry but he just doesn't have a clue what to do & that I needed to see a neurologist.

I can't fault my PM too much. At least he was honest with me & didn't try to pretend nothing happened. He took responsibility for his mistake, & that's more than I can say for most these days. But the neurologist is absolutely ridiculous. He says if my PM can't figure it out on my own that I should just go to the ER. What a stupid comment! What's the ER going to do? I'll tell you: they'll call for a neuro consult. I'll get some random neurologist who has none of my records & knows none of my history & if I'm lucky he'll give it the old college try and try to figure out what's wrong with me, if I'm not so lucky he'll just declare me stable and tell me to schedule an office visit with a neurologist. Some doctors!!!!! arrrrrgggggghhhhhh!

I am going to try to see a different neuro. I need to get a referral from my PCP (he only accepts referred patients, even if they're in a PPO) and get copies of all my records so it will be a few weeks, but I'm hoping at least that this neuro will not be a lazy idiot. We'll see.... smilewinkgrin

I say let them label you with whatever petty labels they want to. I'm sick of these doctors trying to strong-arm patients into accepting substandard care. As long as you're not getting additional pain meds or injections in the same month from two different doctors, there shouldn't be a problem. I'd quit that worthless clinic. My neuro has been trying to use the same stupid argument on me. I told him I just want a copy of all my records. I'll take my chances about whether the new neuro will ever call him to talk. It seems these days that doctors almost never talk to each other. They can't be bothered to coordinate any care. I put the probability that the two of them ever talk to each other as quite slim. For once that would work out to my benefit.

anyways, best of luck with whatever you decide. :)

frances

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 10/31/2008 2:52 PM (GMT -7)   
Frances,
That last paragraph - well said!!! I grow angrier by the day about all the frustrations and uphill climbs we have with our medical care. People who have different types of chronic conditions do not get this "baloney". Getting treatment, finding docs, getting correctly diagnosed (yes, I know it's complicated), getting our meds, being treated like criminals - or on the edge of becoming one.

Sorry, I'm on a rant. I don't want to hijack anyone's thread. Maybe it's that bag of m&m's I just ate in preparation for the kiddies coming to the door! smhair

PaLady

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 10/31/2008 6:03 PM (GMT -7)   
I have been a valiant fighter. Clinics, Neurologists, Neurosurgeons, Orthopedic surgeons,
A Rheumatologist, several interns, A GP, A Psychiatirist. Part of the reason
for this is I've been moving down hill frequently in the past six and 1/2 years.
I would have preferred to move uphill. I have gone from the sea, to hick town, and am
now in a city.
The doctors used to get all excited about my physical problems. They had dollar
signs in their beady eyes. Anyway, on looking again they (for the most part)
realize a surgery would NOT be for my best.
I realize that there's nothing I can do ... or will do. It would be good for me
to go to PT, water therapy, try and try and try. I'm worn out from the trying.
I guess I've given up ...
No, in my case, I'll call it occasional acceptance.

Frances, How's that for the name of our pain book: "Occasional Acceptance" You could
truly write a real live book. Have you?
Pamela smilewinkgrin

Post Edited (Pamela Neckpain) : 10/31/2008 7:07:02 PM (GMT-6)

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