Intractible Chronic Pain : - (

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Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 11/4/2008 2:48 AM (GMT -7)   
There are some pain patients who go to work every day. They raise children.
They drive. They cook, clean, paint, go to parties, cook dinners. It's a miserable
life for them and they are ALWAYS in pain.

But, the thing is - they are ABLE to do these things. I can't.

"The biggest problem an intractible pain patient faces for survival is that a bona fite IP
patent is a rarity among chronic pain patients. Chronic pain, by standard medical
definition, is a pain that is present over 90 days, and which can be continuous or
intermittent. Millions of people have chronic pain. Common arthritis, carpel tunnel,
bunions, and headaches all qualify. However true Intractible Pain, as defined here
is constant, severe, disabling pain , which causes changes in pulse rate, blood pressure
and adrenal hormone production. This form of pain is relatively rare. Control of IP
requires the daily use of prescription medication. I estimate that one IP case
occurs about every thousand chronic pain patients." Tennant - Intractible Pain
Patient's Handbook for Survival. 2007 (No charge)

It's not understood by many doctors, insurance plans, hospitals, ER's, or family
members. It is sad. It needs to be changed!

I know I'm undermedicated, but there's not much I can do about it. My doctor
is quite liberal for how things are in California.

I wonder ... How many of us have Intractible Chronic Pain.

Pamela raises both her hands but hurts her shoulder in the process. : - )

I want a decent day tomorrow. I want this pain to subside. I wish the same for
all of ewes too.

Post Edited (Pamela Neckpain) : 11/4/2008 2:51:03 AM (GMT-7)


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 11/4/2008 9:06 AM (GMT -7)   
obviously who ever wrote that book hasn't walked a day in any of our shoes.
RX's: Oxycontin 60 MG 2x's daily; Oxycodone 30 MG 4x's daily; Soma 3x's daily; Lyrica 100 MG 3x's daily (all for pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x at bedtime; Cymbalta 60mg 2x's daily (for pain & fibro); Restoril 15mg at bedtime; Zanaflex 4mg 3x's daily; Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 11/4/2008 11:33 AM (GMT -7)   
kttn ...
I mistyped. The author says:

There are two kinds of pain:

1) Chronic Pain: The patient deals with it most of the time - not ALL of the time.

2) Intractible Chronic Pain: The patient deals with it ALL of the time.

It's good for our doctors to understand which kind of pain we have.

He's on our side!

Pamela :-)

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2279
   Posted 11/4/2008 12:22 PM (GMT -7)   
Pamela,

First, please know that you always have my support. You contribute a lot to this forum & I'm glad you're here.
I'm sure your post was well intentioned, but it reads a bit divisive. Everyone here struggles with so many difficulties in this world -- uneducated doctors, unsupportive family members & difficulties in the workplace, just to name a few. We are lucky to have HW as a haven from those things & an oasis of support for tough times.

Some of us are fortunate enough to be able to struggle into work. We have supportive bosses & flexible workplaces & perhaps a bit of luck & creativity on our side. Few here have come by those things easily. We have had surgery, stimulator implants or pain pumps and all the complications that can accompany each of those. We are on medications that knock us out or make us sick or prevent us from sleeping, or, or, or...

I don't say that to make out like the people who are trapped in their homes are not doing enough. Many of them have gone through the same surgeries or implants or pain pumps, medications, alternative treatments and psychological warfare as the rest, just with less success. Everyone here has to make difficult decisions about treatment plans & how to best go about living their lives & I know you do to, but I would challenge you to think first about all the harsh, hurtful or judgmental words you have heard from those not in your situation and weigh your words carefully.

That said, I offer you all the love & support I have. I'm sure it must be nearly impossible to face each day not having the freedom to take care of yourself. If there is ever anything I can say or do to support you on your journey, I'm here - just let me know how to help. :)

have a blessed day .
(((hugs)))

frances

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 11/4/2008 5:36 PM (GMT -7)   
Frances & Kttn, (and anyone else I may have offended with my words)

I have had Intractible Chronic Pain for 6 1/2 years. The LAST thing I intended
was to hurt any feelings or cause division. Honest.

Frances thank you for your loving words and offer to help me. I'm coping
along best I can as are all the people who come to the Forum. I think we
all kind of help each other along.

Pamela Neckpain

popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 11/4/2008 11:07 PM (GMT -7)   
Hi Pamela,
So SORRY about all that awful pain- I really feel for you! I have been looking out for you on pumpsters but have not seen you?? Perhaps you changed your mind. Anyway, here are two other sites you might like to look at www.living well.com and www.baclofen.info. I just want you to get some pain relief - my pump has been so wonderful for me. I have gone from incessant, continually increasing beyond 10/10, mind numbing pain to ......peace! I wondered if you have thought about having the pump trial and see if you get relief from that. It is usually a good indicator. All the best. popsie :-)

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 11/5/2008 4:39 AM (GMT -7)   
Pamela, I know you did not mean to hurt my feelings & I assure you I never gave it a moments thought. I have talked to you too much lately to know you did not mean it purposely. Don't sweat it. :) Seriously..... ((hugs))
RX's: Oxycontin 60 MG 2x's daily; Oxycodone 30 MG 4x's daily; Soma 3x's daily; Lyrica 100 MG 3x's daily (all for pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x at bedtime; Cymbalta 60mg 2x's daily (for pain & fibro); Restoril 15mg at bedtime; Zanaflex 4mg 3x's daily; Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil

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