I agree w/ Pamela; it is a rough start to get on Methadone, especially if you are transitioning from another opiod. It metabolizes in your body differently, so most docs like to start at a "low" dose. The doctor I was going to at the time did not make the right calculations for me (I switched from morphine to methadone); it wasn't until I was dying a week later w/ withdrawal and severe pain, that it was determined I was started at the equivalent of 1/8 of my morphine dose.
Anyway, I've been on it two different times over the last five years. It did not work well for me; in fact, out of all the meds I've been on, I'd rank it at the bottom. But this is just my experience. I know it works for others.
Diagnosed with: POTS/dysautonomia; Fibromyalgia; Severe Hypertension; Hypothyroidism; Adrenal Gland Disorder; Chronic Pain - severe carpal tunnel syndrome, migraines, severe back problems, widespread muscle/joint pain....as well as depression/anxiety.
Current Meds: 480mg MS Contin, 90mg MSIR, Soma, Effexor and MANY other meds (heart, thyroid, etc)
Past Meds: EVERYTHING. Fentanyl patches, Actiq (which caused $$$ in dental work), Fentora, Oxycontin, Oxycodone, Kadian, Avinza, Dilaudid and on the list goes.
Waiting On: Intrathecal Drug Pump Implantation (Dilaudid/Baclofen combo)
Thank You Shannon,pamela and tina for the eperiences.I have Complex Pegional Pain Syndrom(CRPS), its a nerve disease that is at this point uncurable. All this condition does is cause excrusiating throbbing,burning and stabbing pain 24 hours a day.The only time I dont has such bad pain is when I take my pain med, Or when I am sleeping, and even then I take ambien CR to sleep aprox 4 hours, BUT I'll take it. It is in my right foot, and I have tried every med possible along with aprox 15 surgeries along the way. I have used the whole percocett line,fentenall patches,oxycontin,amitriptilyne,morphine I cant remember them all but i Know when I visit my PM she is a little overwhelmed on what to do to help me next. Its been 4 years.
Sorry to go on, but some of you did not know who I was or what I had.
But anyway the methodone really does'nt sound that good by the experiences I have read?? It sounds like they have to give you less meds to verify its working accordingly, and then week by week bring up the dose. I am so not into that right now, but my PM said it's the only thing I have never tried, so I feel I owe it to myself to try it, but I hate going into it with low expections.
Post Edited (Pamela Neckpain) : 11/7/2008 3:08:52 AM (GMT-7)
I think Pamela gave you best case scenario on Methadone. I know of several people personally on it and they have done very well. But, none of them had your problem. A few are on it for back pain, one is one it for severe migraines and some of the others various CP syndromes.
None of these people are on BT meds and the drs will not give BT meds with Methadone. Methadone builds up in your system over time and stays there. That is one reason drs start people off on a low dose and titrate the dose slowly. Methadone is one of the most dangerous drugs to accidently overdose on. Drs are generally pretty picky about what patients they will try Methadone on for that reason. It must be taken exactly as prescribed because of how it is metabolized by the body. The people that have accidently overdosed on it are the ones that did not take it as prescribed. They decided to take another pill or two too soon because they thought the first pill wasn't working. These folks get sleepy and lay down and go to sleep and do not wake up again. They actually suffocate in their sleep. Not trying to scare you by no means just wanted to let you know how Methadone works. Its also a drug to be taken for long term use not short term. Methadone is a hard one to get off of too, it can be done but its along process since it builds up and stays in the system.
I too had tried every opioid coming down the pike. I either had a full blown allergic reaction or the side effects were intolerable. I ended with a Medtronic pain pump in June 05 and life is fairly decent for me. It was the best decision I could have ever made. I am functioning pretty good and thats the goal of a CP patient. I am not pain free but I can manage what I have now. No CP patient will ever be pain free unless they are a zombie per my pain dr. I have four drugs in my pump with Dilaudid being the main drug. I also have oral Dilaudid to take for BT pain. My pain dr says Dilaudud is the strongest of all and it has fewer side effects.
I sure hope you get some relief soon. Susie
Thanks Pamala and suzie I really appreciate your help and support. Man, at this point I have had soooo many surgeries and am scared to death of them now. I used to not loose a blink of sleep, but after so many failed, and all the remaining scars and parts of your body that will never feel the same again I have kinda lost some of my nerve. My biggest recent past sugery was a spinal cord stimulator that they had12 wires in my back. 8 went upward and 4 went downward with the power pack under your skin pant level. You could recharge it by holding a recharger right over the skin were the power unit is. It just charges right thru the skin. Needless to say, it was the absolute worst thing i ever did. The electric wire were zapping me everywhere but in my foot.My ASS had a hell of a workout, because thats were most of the wires crossed!. So I got that removed ASAP which was 6 months! I still have an empty pocket in my side of my back with chronic spasms to go along withit. I dont know how long that will take to heal on the inside, man that was a lame piece of meat procedure.
Anyway the methadone sounds a bit unerving......
I dont want to take 2-3 weeks before I find out what dose I can be on. I am very consious about withdrawals and in this case(the first one) worired about the initial dose being too strong. You said that there is no BT when taking methadone? what about a smaller version of it, or quick release tabs.
Sometimes I dont like the feeling of not being in control of my meds, like having to wait it out even the current dose is not working to well in the body at that time.
Suzie, you have mentioned about your pain pump.If you dont mind,how and why did you get one.(im sure the why is becuause you have tried every opiod know to man!) I often think about that, can you walk and get around to the food shopping and drive etc.....
Did you have any problems with the pump in the beggining with the procedure or first medication input??
Sorry about all the personal questions, Its somthing I have been thinking about and usually you cant get honesst answers from the doctor or rep for the pump.
Well at least football is on tommorow(i mean today!) I live in Boston so its all Patriots,Red Sox and celtics around here. Its nice to sometimes forget your pain for just a little bit becuase your entertained by somthing else.
Thanks again Pam and suzie and Tina
Hope Everyone Has A Pain Free Day!!!!!
Thanks for the reply BL , I live in Boston MA, and was going to the Beth Isreal Decones Medical Center. They have a pain management ward there that is very popular in this area. That is mostly where i have had alot of my surgeries. One of the last things I did there before moving on was having ketemine infusions. They last around 5 hours, because the med needs to go into the body slower than other infusions. I had 3 of them, the second one I told them to speed up the infusion to 3 hours instead of 5 and man was I completely out of it. Then after it was completed I felt so sick for a day when I got home. After that I went back to the 5 hours again.
I thought that they where somewhat helpful, thats why I had 3 of them, but after the third one I told them I did'nt want to do any more because I felt as though they really were not as helpful as I had hoped for. Not to mention I really was drained from them, I mean It's like having a 5 hour surgery every time you do it and we all know how we feel after some of those extended surgeries!!
So BL are there people being cured in those ketemine comas in LA?????? I am at the point that I will try ANYTHING within reason or should I say that has had success in the past. I just started looking into those hyperbarik chambrs(spelling i dont know!!!!) of just pure oxygen. I guess you can have like sleepovers or apptmts or somthing like that, but like I said, just looking into it for now,Im sure it would be one of those insurance hassles.
I was taking morphing for about two years or so and right after my SCS was put in the pain was excrusiating so I ended up being like 5-6 days early on my monthly prescription, so I called for another script and the doctor denied it. And I was taking alot of morphine along with the usuall musscle relaxers so within 1 day I started to withdraw and by the second day I was literally climbing the walls and flipping out like no other time in my or anyone elses life I had seen. My wife had to hide me from the kinds to go to school and right after, we went strait to the ER. I lay on the floor there for about three hours then some guy picks me up and drags me to the info center. They end up putting me in a bed in back and called my PMD docror again (who buy the way, he just put the darn SCS in me!!!) He just denies the script again! (if i abused scripts from him before i could understand but this guy just turned anal on me)So to end this horror, They give me a shot of dillaudid and called up for a detox center. I literally wait there for more than nine hours more, inbetwen they gave me another mercy shot of dillaudid and kept telling me that there not equipt to handle people like me...............
The taxi finally came dropped me off at happy houe and I just about died there for 6 days, because not only was i withdrawing of morphine, I still had lyrica,cymbalta and musscle spasm meds. I ate 1 piece of toast with some peanut butter on it and a smal drink the entire time I was there. It was by far the most satonistic death hell experience I have ever had to go thru.
Then as soon as i walk in the door I have to explain where daddys been for the last week.Sorry for going off on this mess,I think I have wrote about this once before, but I would not wish it upon anyone I know!!!!
Hows the weather in LA? do any MX riding out there?
Hope Everyone Has A pain Free Day
I personally know many people that get methadone from a pain doc here in Nashville..and everyone of them get Lortab 10 or Oxycontin 80 for BT pain....As a matter of fact I was getting Lortab 10 myself for BT. Of course I don't know how good of a doc this one is..I have heard that he is only in it for the money (he doesn't take insurance). Now, the doc I was seeing wasn't like that at all and he die give me BT meds as well as methadone..
hemi-lamenectomy L-4 1998
spinal fusion with own bone L-3 to S-1 2005
Degenerative disc disease
several epidural injections
high blood pressure
arthritis in both knees
Post Lamenectomy Syndrome
Yes the ketemine infusions where the new hot thing at the Beth Isreal Boston. Might still be, I was only the second person they ever tried it on. Like I said they take like almost 5 hours for completion, and keep you for another half hour or so to make sure your not too woozy when you leave. They will ask you if you felt any better the day or two after the infusions and then book you for another.(usually it takes a couple of times to see if it actually works for you or not).After the next one you should kind of have an idea if you think that these work for you or not. I opted for a third infusion, just to make sure(i really couldnt tell yet) After the third I could tell that I was not getting better to the percentages that they were looking for. So I stopped.
I did see some people that did like it(so they said) and had recieved some good decent relief.
Thats when I had just about used up everything that the BI had to offer. One thing before I go, was lidocain infusions. I had one with no effects so that was that. I use lidocain patches every day at home anyway.
At this point in time Just started methadone with some dillaudid for breakthru.I have been only taking it for 3 days so far and will be having the mg's increased on friday. They started me out on 5mg 3x daily.At this point of crps the dillaudid definatly was not working enough. it was time for another change. Hopfully this will be the one to actually take away some miserable pain,just enough so I can actually partisipate in thanksgiving!!!
I remember you saying you took methadone. What dose are you on, now that it's been a while. (sorry if it is too personal)
Also do they approve medical marijuana in LA?
Just a few thoughts!!!!!
Hope Your Having A Pain Free Day!!!
Its great to here someone that has a good resolvment from ungodly amounts of injuries. Sounds like you can have a little taste of freedom when shopping and doing the things that you have wanted to do for a long time.Sounded like a tough road to get there, but It's kind of nice to hear somone talk about some good things instead of hardship all the time.
This methadone I'm starting seems to have no bad effects on me so far and looking forwaed to raising the mg's because I get the feeling a little more and I might be in the right ballpark myself(hopefully!)