Hysterectomy at 25
4 laproscopic surgeries since 24
Cervical stenosis in C3 & C4
Meds - percocet 3x day : nexium : xanax :
Supplements : calcium : magenesium :potassium : milk thistle : fish oil : B complex : vit E
In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz
Shaw31, I'm sorry for the things you are going through and the things you are feeling. I really hate to hear someone feeling as you do regarding your medical care. I really think you need to learn to rethink your entire relationship between you and any doctor... When you go to a doctor for medical care, you are hiring them for their expertise in their field (pain management, in this instance). However, YOU are still in control of you; you are simply paying them to provide you a service. By forming this relationship, this does not give them permission to A) treat you w/ anything less than respect; B) have a "God" complex, as if they are the all-might authority and are doing you a "favor" by giving you medical care; C) treat you as though you are dishonest, are an addict or so forth.
I think because it is so hard to find a good pain doctor, the way our society views this whole issue w/ using narcotics, how hard it is for some to get pain medicine - we think we are "lucky" when we find a doctor to provide us w/ pain meds. Most of us tend to not want to rock the boat; and I think many of us put up w/ things we would NEVER otherwise put up with - just because of the before-mentioned issues.
I know this because I was like this the first couple of years of my illness and pain issues. I look back at the comments that I put up with and I would NEVER, EVER put up w/ those things now. Did I say NEVER? When we moved to Colorado, the first pain doctor I met with was horrible. I can't even remember all the things she said. I do remember that she introduced me to her assistant and told me that I would get to know her very well because she is an excellent pill counter. Meaning I had to bring my meds in each visit and they would count what I had remaining to see if I was on target w/ my meds. Now, I have no problem with some things because I know some things with a pain doc aren't personal; it's just them needing to protect themselves because there are people that abuse the system. For instance, I have no problem signing a contract saying I won't go to other doctors, that I understand my meds are my responsibility and so forth. But I still demand to be treated w/ respect by my doctors and not automatically be declared "guilty" before given a chance to show that I'm an honest patient.
You have EVERY right to go and interview 20 doctors, if that's what it takes. In fact, I would encourage it. Ask all the questions you want to know. How often do you need to come in? How do they handle refills? What if you have extra pain after hours? At the same time, discuss the issues you've had w/ your current doctor. That you have jumped through every hoop asked of you, that you've never done anything to compromise trust with your doc, but that you are still made to feel uncomfortable. That he has no bed side manner and that you would like that in a doctor. You have every right to expect this from a member of your medical team.
You could set up these consults while still under your current doctor's care. That would probably be the best thing to do. Once you find a good doctor - switch over. Don't worry about what's in your medical records. Actually, if you are worried, request a copy of them and read through them. You can always address what's in them w/ your new doctor. But a doctor can't just make things up about you in your records. If you disagree with something your doctor has written, I'd write a letter to be included in your records, disputing whatever it is that you disagree with.
Sorry if this comes across "preachy" - I don't mean it that way at all. I'm just extremely passionate about this subject, because of my own experiences and what I see others go through. I think we all have every right to a good pain management doctor, and I hate to see someone settle for anything less than that. We shouldn't leave our doctors feeling bad or mistrusted. We have enough things to worry about than that, right?
I wish you the very best of luck and really, really encourage you to make some appts w/ some new docs. Take care, Tina
Diagnosed with: POTS/dysautonomia; Fibromyalgia; Severe Hypertension; Hypothyroidism; Adrenal Gland Disorder; Chronic Pain - severe carpal tunnel syndrome, migraines, severe back problems, widespread muscle/joint pain....as well as depression/anxiety.
Current Meds: 480mg MS Contin, 90mg MSIR, Soma, Effexor and MANY other meds (heart, thyroid, etc)
Past Meds: EVERYTHING. Fentanyl patches, Actiq (which caused $$$ in dental work), Fentora, Oxycontin, Oxycodone, Kadian, Avinza, Dilaudid and on the list goes.
Waiting On: Intrathecal Drug Pump Implantation (Dilaudid/Baclofen combo)
Shaw again you have had more replies giving you excellent advice. I wrote a post to Pamela and ask that when you get a moment check it out. I told her about Googling chronic pain and there are many forums listed and some these forums have listings of CP drs all across the country. Thats much better than making a cold call I think. Most of these sites you have to register but its no big deal and you don't get hit with spam. I am very tired tonite and not thinking well enough to give you some names.
Since your dr wants to do lots of procedures, it sounds like you have become his cash cow so to speak, or your ins company has. As a rule most ins companies welcome 2nd & 3rd opinions especially in this area if they see someone running up excessive medical charges on a patient.
I know how well you liked your prior pain doc but when its time to look for someone else you may do well as to put him as far from your mind as possible because I think you may compare him too much to a new dr. With that scenario you will never be happy with someone else. I have been treating with a gastro for 6 yrs and I feel the very same way about him as you do your old dr. But, honey, I saw 4 gi's before finding him. You see its our right to be treated with respect as a patient. We also have the right to pick and choose our own drs. I am not real sure why you are so reluctant to get care elsewhere especially if you are that unhappy. I would also be alarmed to find a waiting area not full of patients waiting to see the dr, that would send a red flag up for me, I would be out of there fast.
I am the one that told you he sounded like a control freak. No dr will ever make me feel the way yours does because I simply will not allow it. There are too many other drs out there willing to take my money. As it is I live in the Dallas/Fort Worth area and I chose to see all of my specialist 30 miles from here because they are the best there is in my book. I have had my fill of arrogant, incompetent so called drs in the big city. I was sent to a rheumy because of my PCP said I either had Lupus of Connective Tissue Disease. Well, I am on lots of meds not all related to pain at all. He said he felt like I did in deed have Lupus based on all the labs that had been done and redone on me over a 6 mo period of time. He said he thought it was in remission and he really did not want to give me more drugs to add to my mix. I very firmly advised him I was not there for medication, I was there for a consult only. I was terribly offended by this guy. I never went back and told my PCP why and she was upset too and sent me elsewhere. So, you see its up to you totally to make any changes.
Someone suggested seeking out new care right when you get your refills which is an excellent idea. And if you were running maybe close to being out perhaps your PCP could cover you long enough until you see a new dr.
I will tell you its not fun looking for a new doctor no matter what their specialty is. But, you are the one in control of that and only you can change this. Never settle for second best of anything in life. Susie