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skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 11/7/2008 6:47 PM (GMT -7)   
I saw my PM today and he is starting me on oxycontin. I know a lot of you are on it or have been on it in the past, and I was wondering if anyone has any advice. I don't know much about it other than that it supposedly works for 12hrs, but I don't know how much it releases & when it releases. He only talked about it briefly as he was somewhat rushed, having squeezed me in last minute between several procedures. I did do some research on the internet when I got home, but I'd really like to hear some of your experiences.

I am praying that it will help. I was up the ENTIRE night last night in horrible pain, so hopefully with the oxycontin I'll finally get some relief and some sleep!

Hope everyone had a wonderful Friday!

Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/7/2008 7:41 PM (GMT -7)   
Skeye,
I'm not on oxycontin - but may be one of these days, so I'll be following these responses myself. I do hope it gives you some relief.

PaLady

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 11/8/2008 11:01 PM (GMT -7)   
Skeye,
I was on Oxycontin for two years. It does work well, but understand that you may have to work your way up to a dose that is going to bring you decent pain relief. The trick is that we will never be completely pain free, but the goal is to bring it to a level that allows us to function in our lives as best we can without having sky high pain levels. As long as you remember that, you should do pretty well with it.
It is supposed to last 12 hours and for many it does. For some, it does not. Just remember you are an individual, so give it time and see how it goes for you.
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 11/9/2008 9:01 AM (GMT -7)   
Skeye (& PaLady smilewinkgrin):

You may have seen from some of my posts that every time I have a bad flare (one that lands me in the ER or inpatient) either the hospitalist or my PCP puts me back on Oxycontin (until my devil PM gets wind of it and gives me her "that's a medicine that is only for people with end-of-life-cancer-pain" speech and tells me that I need to get back off it pronto). rolleyes Yep. Frustrating. But I digress. You asked how it worked, not how much I like my PM, right? LOL! turn

So... Here's the skinny... First, I want to tell you that you should probably not go by my experience as a rule. I tend to be an "outlier" in the research. I have an extremely high tolerance to medications of all sort (it takes two, sometimes three rounds of antibiotics EVERY time I get a sinus infection - no matter how early we catch it; it usually takes at least two doses of anesthetic to numb me up at the dentist or skin doc; they usually need more drugs than average to keep me asleep during surgery; the list goes on) So, I think probably my reaction to oxy is not entirely typical, OK?

In my experience, oxy did not work as well as Percocet (I know - weird, right?). Also, it did not eliminate the need for percocet for break-through pain. HOWEVER, when I left the hospital and the hospitalist/my PCP had me on a regimen that included BOTH oxy and percocet on regular timed doses throughout the day, those were the only days in the past seven years when I have felt like there was a chance I could begin to live my life again. The pain was not gone, not in the least, but the combo of these two meds (for me, it took fairly high doses) was the only thing that has ever pushed that pain monster into the background of my existence. It was there, but it wasn't everything. Does that make sense?

I'm not sure if that was helpful. Sorry. I'll share this too, and maybe it will help... A previous PM had convinced me to try Kadian (extended release morphine) when percocet alone wasn't helping. (OK, he had reduced the percocet from the hospital's prescribed amount to only 3 5mg pills per day - a drastically lower dose, so HELLO?? no wonder it wasn't working eyes. But that's another story! turn) Anyhow, the Kadian was absolutely USELESS for me. I never got a single moment's relief from it. He continued to step up the dose until I could not take it b/c it made me SO sleepy and SO constipated. UGH! But even then, there was NIL pain relief. Not even a tiny bit. Even as sleepy as I was with that much morphine, I couldn't SLEEP because I was hurting so much. I just laid in bed crying b/c I was in so much pain and so tired. Oxy, on the other hand, did not make me feel that way at all! I did start using Miralax (only 1/2 a dose every other day) to keep the big C at bay, but the oxycontin and percocet combo never made me feel sleepy or dazed or out of it. I never felt that drugged up feeling or anything but a little relief from the pain, which for me was a miracle.

Wow! I kind of wrote a book here. Sorry. LOL! PaLady will laugh with me, b/c I've been really out of touch lately. Been hurting a lot and so wiped from trying to work. I guess this thread and a couple others lately really hit home with me, huh? blush I hope you find some relief, Skeye. I think oxy is a miracle med. If your doctor will work with you on the dose I think it can really help. Like Sandi said, though, sometimes it doesn't make it the 12 hours for some people - that's why I still needed the break-through med. Before you switch I would really talk over the plan with your doctor. Ask about break-through meds and what his plan is for adjusting doses if it doesn't seem to be covering the pain. All my best to you. And you to PaLady!

Ry

Post Edited (ryand) : 11/9/2008 12:03:03 PM (GMT-7)


ELderLy
Regular Member


Date Joined Aug 2008
Total Posts : 34
   Posted 11/9/2008 11:01 AM (GMT -7)   
Hello , oxycontin 10mg is what i started on aug 28th/08. I continued with b/t meds of 10/325 oxycodone/watsons, four a day. That all worked great for the first week, then i began to get flare ups, pain in my buttox and calf of left leg came on with a vengence. The following week more pain, then i had some meds stolen and i got really bad. Then i got my refill and back to normal after a few  days, but now, with the weather changing here in Indiana im back trying to stick Mr. Pain in a hole, a deep deep hole. Im taking my recommened dose and its not touching it. Everyone is different. I suppose when i see my PM doc Dec 6, i will get the natural progression of increaseing Oxycontin mg,s. This med works very well for me, im just undermedicated and dont plan on asking for more until my appointment, im old, i can tuff it out, just not as comfortable as i  would like to be. People step back if you tell them your on this Devil drug, but they aint the ones in pain, and when your in chronic pain, you want relief at all cost. Listening to the people on this forum has helped me greatly, wealth of information, ask away smilewinkgrin

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 11/9/2008 11:27 AM (GMT -7)   
Thanks so much for all your input everyone! I really appreciate it! I'm really glad to hear that it is helping people. I was scared to take it, but I'm more scared of what would happen if I continued to not get any relief, because I was on a downhill spiral. At least now, I feel much more hopeful that things are finally going to start getting better.

I've been taking 10mg of oxy every 12hrs since Friday night. I'm not sure what to think so far. Fortunately it doesn't make me as sleepy as I expected, although I do still feel a little woozy. But it hasn't seemed to help all the much either. If it helps, relief seems to come in waves. I know it will take at least a couple of days for it to build up in my system before I really know how it will affect me. I know that this won't take all my pain away, but like Sandi said, the goal is to get me back to a functional level, as I really have not been functioning at all.

I see my PM again in a week and a half and we'll go from there. I haven't talked to him at all about breakthrough meds. Maybe that is something I should do when I see him next, especially since I should have a better idea then about how long the oxy will last for me. I believe that he is planning on seeing me every other week for a while, until we can get my pain & my life under control.

Ry -- I wanted to thank you especially for your input. Your "book" was very helpful. I can't believe you are so resistant to medication! That must make everything so much harder. I'm the opposite, I'm usually quite sensitive, which is annoying its own way, as I tend to be susceptible to side-effects, especially the sedative quality of some meds. That is definitely strange that the oxy didn't work as well as the percocet, considering that they contain the same medication. I'm sorry that you have been having such a hard time lately, and I hope that things start to look up for you real soon! :-)

Thanks again for the feedback & support everyone! I'm so glad to have found all the wonderful people on the forum.

Wishing everyone a pain free day,
Skeye

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 11/9/2008 12:07 PM (GMT -7)   
Hi Skeye,
I'm fairly resistant to pain medication also. Oxycontin just didn't do it for me.
The doctor raised it high - didn't work.
The one thing I hated about Oxycontin was the paranoia from other health
professionals. They seemed to think that Oxy was the Devil. I had a
terrible argument with a dentist over it. :-).
One old neurosurgeon in Santa Barbara, California (Oprah's town) told me
that Oxycontin was only for the movie stars! Arghhh.
Oxycontin is expensive. If you have financial problems or your insurance
doesn't go along with it you could have problems down the line when they
do a review. (I did but my doctor at that time fought really hard for me)
I tried a high dose morphine after that and it didn't work. I finally settled
on Methadone. It works fairly well.
Good luck,
Pamela Neckpain
We are all different, of course.
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 11/10/2008 8:07 AM (GMT -7)   
I was on the Oxy as well and it was short lived. Too much needed to give me relief. I too have one of those wacky systems that does not tolerate meds well at all. I have a very high pain toleranceand let me tell you, its a true hindrance w/chronic pain. By the time the pain gets really bad it took a boatload to get the pain level back down. My pain dr says this is the a problems with people that do have a high pain tolerance. I went from oxy to having an intrathecal pain pump inplanted, life is better. You might make notes of how you are doing on the oxy daily and show it your dr to give a better pic of how you are doing with it. Good luck, Susie


crps
Regular Member


Date Joined Oct 2006
Total Posts : 174
   Posted 11/10/2008 2:07 PM (GMT -7)   

Hello Skeye,

I have been taking dillaudid 4mg for about 2 years now. Usually around 8 per day. I tried every med under the sun and so many are not cracked up to be the savor I have heard before I started them. As for the 10mg dose is very low(for me and it seems for almost everyone seems to have high tolerances on H.W) from having CP for so long. The low dose did'nt do much for me, so like most, my CP doctor increased until I had better relief. I was at 60mg 2x daily with BT. The only problem for me was as the dose increased the more I felt sick from it. Dizzy and felt like throwing up. I always thought that maybe the dose was too high or I just did'nt agree with the med when it was at the point of working. Unfortunately opana was the same and now the last long lasting med my pain doc can think of is methadone, but from the replied posts I have recieved I dont think it sounds to good.

Hopefully you can get some relief and remember the lowest effective dose is definatly the best answer. Also if you are at the begining stages of opioids, remember they all are just a little different so hopefully you will find one that helps you along your way.

                                        Kind Regards

                                                  mike

 


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 11/10/2008 5:17 PM (GMT -7)   
I've tried most all of them. Methadone works the best for me.
Pamela

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 11/10/2008 7:23 PM (GMT -7)   
Thanks for your input Mike, Susie, & Pamela,

I am in the beginning stages of taking long lasting opioids, so I do expect it to take some time to find the right medication & the right dosage. My goal is to get down to a 2-4 on the pain scale, whereas I have been at a constant 8-9. I have a fairly high pain tolerance, but I am also very sensitive to the negative effects of medication, so we'll see what happens. So far the 10 mg haven't been helping much, but its only been a few days. I will definitely be bringing my pain journal with me to show the PM when I see him next week.

Skeye

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 11/11/2008 2:52 AM (GMT -7)   
Oh, I should do a pain journal. Anything WRITTEN carries so much weight
with the doctor. It's almost like you (the patient) didn't write it. My pain doctor
kinda poured over the quick sketch I make of my back and where the
pain resides.
It was terrible "art". I made it for myself not for "publication"
Imagine my surprise when I go to my internist and I glance at the papers
in her folder and voila! There lies the sketch of MY back. I suppose it's a copy.
My problem: When I feel ok, I NEVER think of documenting it.
When I feel bad, all I can do is scurry to my bed and lay face down to rest my
back.
Next think I know my sketch will be in the Daily Gazette.
It could be that he's a VISUAL learner. It's good if you can figure out the way
your own doctor learns. Kinda tricky though.
Pamela idea idea

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 11/11/2008 5:28 AM (GMT -7)   
Pamela,

I never thought about documenting it either until I had my first nerve block done this summer. I've been doing it religiously every day since. No one ever told me what I was supposed to do, so I don't write much. I basically only jot down my pain level at multiple points throughout the day, that way I can get a nice overview of what my day looked like (I use the graph in the "target chronic pain notebook" found on painfoundation.org). I don't write down much more unless there is something out of the ordinary. If you start a pain journal, maybe put it somewhere where you will see it at multiple points throughout the day, that way every few hours you can jot something down. I myself keep mine next to my computer, so I see it all the time.

I find that it also helps to keep a personal journal that is specific to writing about your pain & your feelings. I've only been doing that for a few weeks, but it has helped tremendously when I have been in horrible pain & felt like I didn't have anyone to talk to etc. I also right down my fears or anger about medications, doctors, etc. Like HW, it is a good way to vent! Good luck.

Skeye

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 11/11/2008 6:18 AM (GMT -7)   
I took the oxycontin at high doses with percocet for breakthrough pain and it didnt work at all. I finally just went back to straight percocet every four hours and that pretty much does the trick. I also tried morphine and kadian. None of those worked for me. Kadian made me sick as a dog too with muscle twitches and cramps in my arms and legs. It was a reaction to kadian and my other meds, I am sure.

Anyway good luck and I hope it works for you.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 11/12/2008 5:09 PM (GMT -7)   
skeye- i am on oxycontin & i think it is a credit the ability of pharmecuticals. i am on 60mg 2xs a day. it does take awhile to work up that dosage it is on the higher side, i am also on oxycodone for a BT med. its a short term med, but the same as oxycontin. i have been on & off a lot of meds & this is the first thats shown some results. its hard to abuse, though some people do. the people who really abuse it gives it a bad rep. i was scared to go on it at first as i had some friends about 8 years ago OD from abusing it. as long as you take at the times you are supposed to you will be fine. what is your BT med? and it does cause severe constipation so get some senokot (otc med) to help & take some metamucil (i can't spell). feel free to ask any questions you need, i will be more than happy to answer your questions on this.... (i have done a lot of research).
RX's: Oxycontin 60 MG 2x's daily; Oxycodone 30 MG 4x's daily; Soma 3x's daily; Lyrica 100 MG 3x's daily (all for pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x at bedtime; Cymbalta 60mg 2x's daily (for pain & fibro); Restoril 15mg at bedtime; Zanaflex 4mg 3x's daily; Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 11/12/2008 8:19 PM (GMT -7)   
Hi kttn,

Thanks for the information & advice! It's nice to have such experienced & knowledgeable people like you around. I don't have a BT med at the moment. That is something that I have to talk to my PM about when I see him in a week. The oxycontin is helping, but only minimally, and it only seems to last 7 or 8 hrs instead of the full 12. I am only on 10mg 2x a day, so we are going to have to do some adjusting. I was both scared to take it & have never taken long acting opioids before, so we started out slow. Thanks for the info about the senokot & metamucil. My PM warned me that it would be constipating -- I have noticed that my gut has slowed down, although not to the level of constipation yet, but I haven't even been on oxy for a week yet. He told me to take metamucil or another otc med (which he said was better, but I can't remember the name of, I think it started with a c) every time I take the oxy. I've been taking the metamucil. Do you take both the senokot & the metamucil or one or the other?

Skeye

ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 11/12/2008 8:40 PM (GMT -7)   
Hey, skeye. Don't mean to butt in here, but I wanted to put in another quick plug for Miralax. I think I mentioned it before, but I didn't tell you how great it is! It's expensive OTC, but your doc can write a script for you and then you get generic for much much less $. It is the best ever in my opinion - and I've tried every single one there is! This one is SO gentle, but definitely works. It is a powder that you mix into anything you drink - water, soda, coffee, juice...anything. It dissolves completely! No sign of it, no funny taste, no gritty texture, nothing.

Even at my highest doses of oxy + percocet, I only needed to take 1/2 dose every other day of the Miralax, so it lasts a long time too.

I would also definitely ask about the BT med. Especially since you said it is only helping minimally. It sounds as though you need to increase the dose too. I've also heard of some docs prescribing oxy 3x/day instead of 2x/day, which might work for you if they get to a good dose since you said it lasts about 8 hours. I hope they get it to work for you soon!

Ry

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 11/12/2008 9:18 PM (GMT -7)   
Ry,

You're not butting in at all! I really appreciate all the advice, etc! I'll keep miralax in mind - glad to hear it works so well. Thanks for the well wishes. I'm definitely going to be going to my PM armed with a list of questions!

Skeye

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 11/12/2008 11:06 PM (GMT -7)   
i started at 10mg as well. you should have a BT med. that might make a big difference. you should take your BT med regularly because if you wait for the pain to kick in it won't work as well. (i actually read the lit with the meds) and the other one is probably Colace. i have tried both. i might try the stuff ryand mentioned. i struggle a lot with the constipation. to the point of where i loose a lot of blood. they did prescribe me some cortisone suppositories (sp wrong) i have had a colonoscopy recently so no one freak out about the blood. lord i can barely talk to my family about this. my meds must be kicking in, lol. norco is another good BT med, have you been on it? as for the oxy once it is in your blood stream you will notice it. the next step up is i believe 15mg, its been so long. i know we jumped to 30. then 60. its a good drug. don't be scared. just take it as prescribed. i was scared to take it too. i turned the drs down on it several times. then i did some research & some peeps on here told me to go for it. so we did. my pain dr told me it takes a while to get the right combo- so keep trying until its right. i think my next visit i am going to go to the next level. i have fibromyalgia as well as all my back issues & somedays i just ache all over. but like i said i know we are getting on the right track. don't be afraid to tell your dr how you really feel. they don't know your pain unless you tell them. its important to have a good dr & one you can trust. i also take phenergan & metoclopram for the nausea. some people get nausea on it, i am one of the lucky winners. some people even say it helps with sleep. (not me i have a high tolerance) so i hope this helps. let me know how your next visit goes!!!!!
RX's: Oxycontin 60 MG 2x's daily; Oxycodone 30 MG 4x's daily; Soma 3x's daily; Lyrica 100 MG 3x's daily (all for pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x at bedtime; Cymbalta 60mg 2x's daily (for pain & fibro); Restoril 15mg at bedtime; Zanaflex 4mg 3x's daily; Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil

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