Thanks for the infor. My daughter is 16 now and has been dealing with this since she was 7. She was 14 1/2 when sugery came around. She was on Sandostatin shots once a month for about 2 years before surgery. They stop them afterwards. She is not diabetic yet, we luck out on that. But she is check every so often. They figure by the time she is in her mid 20's if not sooner she will be. They just put her back on Creon 10 which is a enzyme medicine. It is all suppose to trick the pancrease so it dosen't produce anymore but it dosen't work all the time. She has the top GI and Cardinal Glennon, and they bring in the top GI for SLU. I live close to ST. Louis. They say my daughter is unique. Her is call idopatic. No known cause for it to be happening.
I just feel so sorry for her, she wants to be a normal teenager, but it is hard for her because most of the time she don't feel ok. When she eats anymore it hurts. I guess I need to check with the GI docs to see if she needs to be put back on the shots.
Food wise, we try but she wants to eat what she wants to eat. So I know that is part of the problem for now.
Before her surgery she had lost alot of weight. After she got doing better afterwards she have started to put weight on. Now the docs want her to excersie at least 30 minutes a day to help with weight, but also becoming diabetic sooner.
Does your dad live on pain meds. That seem to be the only thing, to help with the pain.
I am sorry PAlady your dad is going through this. But it is nice to find someone else that knows what I going through. I feel helpless most of the time.