Diagnosed with: POTS/dysautonomia; Fibromyalgia; Severe Hypertension; Hypothyroidism; Adrenal Gland Disorder; Chronic Pain - severe carpal tunnel syndrome, migraines, severe back problems, widespread muscle/joint pain....as well as depression/anxiety.
Current Meds: 480mg MS Contin, 90mg MSIR, Soma, Effexor and MANY other meds (heart, thyroid, etc)
Past Meds: EVERYTHING. Fentanyl patches, Actiq (which caused $$$ in dental work), Fentora, Oxycontin, Oxycodone, Kadian, Avinza, Dilaudid and on the list goes.
Waiting On: Intrathecal Drug Pump Implantation (Dilaudid/Baclofen combo)
I tried to get on yahoo groups/pumpsters. I haven't heard anything back. But if it involves a "background check" - that's ridiculous. I don't have anything to hide, but that's too much. I just appreciate people on this board that have the pump and are willing to help others that are thinking about it, etc. If I get the pump, I'd want to help others that are considering it.
I can't remember what it feels like to be pain-free. I don't even have that as a goal anymore; I just want to have pain reduction. To go through a day without thinking about my situation more than a time or two... Is this an unreasonable expectations I don't think so....
More later. --Tina
momto6boys, listen I am also interested in the "pump" I have seen a Rheumy one time, and he prescribed 6 months of vicadin, and referred me to a pain management Dr. I am still trying to get an appointement with her. My question to you is, how do I go about asking for the pain pump? I feel ashamed to ask her, like she might think I am just wanting to get "high". I would give anything not to have pain, just like everyone else here feels too. Thanks for any input on the pump.
I wish I could give you a good explanation on the doseage thing, the only thing I can tell you is the amt you were receiving via the trial was much less than your daily orals. This was one of the things my dr explained to me was being able to have a tolerable amt of pain but have it mamaged by a much lower dose. There is alot of difference between oral meds and pump meds. We do receive higher amt of meds due to the concentration level in the pump. It works by delivering the drug directly to the source of the pain, well crap you know that, but by being delivered that route you do use less meds overall on a daily basis. You wwere receiving a very small amt od I think Morphone and was able to reduce your orals by 50% which still had you on less morphine overall.
I have seen the syringe that comes from the pharmacy that has my new meds in it and its a large syringe that you see in drs offices. It not filled all the way to the top either. Let me get my recent pump reading out. This is the meds & amts that are in a new syringe; Dilaudid 25mg/ml for a total of 300mg, Clonidine 150mcg/ml total 3000 mcg, Sufentanyl 26 mcg/ml total 500mg, & Bupivacaine 15mg/ml total 300mg. Now check this out my dose an hour 0.167 mg per hour and per day 4.000 mg thats for a 24 hr period. This considered a low dose. My pump is a 90 day pump too. I am on less meds than what I took orally. The meds are actually stronger in the pump, therefore less is needed.
Yes, I was quite floored my the Pumpsters when I was told they were checking me out. Never heard of such in my life,lol. If I can help you Tina please let me know. Hugs Susie
Moondancer (Patty) - Re: the pain pump, do you have a scheduled appointment w/ a PM doctor? That's where you want to start; with that being said, not all PM docs do the pain pump implantation. But they should at least know about the pump...but some are biased one way or the other.
Have you been on other pain meds than Vicodin? Any long-lasting stuff? I don't see any listed under your med list; you definitely have lots of pain issues though that I think (just my opinion) could really benefit from a long-lasting medication. These kind of meds would include morphine sulfate (MS Contin, Avinza, Kadian); oxycontin; duragesic patches (Fentanyl); methadone; etc.
From my research and personal experiences, the pain pump is recommended to those that have exhausted all other avenues (meds as well other therapies - injections, nerve blocks, surgeries, physical therapy, etc). I've been on every pain med there is, have a scary-high tolerance to meds (meaning, most docs look at my dosages of pain meds, and can't believe I'm breathing), etc. So, the pain pump is coming at the end of a LONG five year road of trying every possible option.
Let me know what you've been on and such. I really think it's great that you are going to see a PM doctor; have you ever seen one before? I'm hoping that you get a compassionate doctor that knows their stuff. It makes such a difference. Talk to him/her about everything....that you are tired of living in such pain each day, that you want a better quality of life, etc. Please do NOT feel ashamed to tell your doctor how you feel or even ask for treatments that you've heard of. You are hiring a doctor to be your advocate and to help you. Please know that you have every right to ask, actually demand, better pain control for yourself.
Feel free to ask anything else, Patty. I wish you the very best of luck - especially w/ getting a good PM doc. --Tina
Post Edited By Moderator (Chutz) : 2/23/2010 10:41:50 PM (GMT-7)
Post Edited By Moderator (Chutz) : 2/23/2010 10:40:01 PM (GMT-7)
Post Edited By Moderator (Momto8kids) : 9/18/2012 2:10:45 PM (GMT-6)