chronic pain issues with mostly neck, back, and hips

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b4u
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/14/2008 10:39 AM (GMT -7)   
Hi, I found your site by chance yesterday and was feeling kinda blue [img]/community/emoticons/sad.gif[/img] so decided to write. I cannot sit for long so will try to keep it brief. I have chronic pain issues with mostly neck, back, and hips and have done every treatment known to mankind, surgery, shots. I had been seeing a PM in the Houston area and the meds I was on worked well for me, they gave me some kind of life although not much sleep. I was affected by the H Ike and when I returned home I got a letter stating I was discharged and had 15 days to find a new Dr. I have no idea why. I had been with the same Dr for 6 years and the joke was on me that it was ending and I could possibly find someone who would not think I was a middle aged woman with a few aches and pains and a addiction to pain meds. I must add that with this Dr I also tried the pain pump only to have my body reject it, But the time that it worked it was great! I went to my prim Care Dr and he referred me to another PM who I saw last month. He would not prescribe the same meds I was on but feels I would do the best with a pain pump, even though I told him I had tried that before and had rejection. I have had 2 neck fusions my back is in sad shape, and I hurt so badly most of the time I feel as though I have lost the strength to speak up for myself and let him schedule a trial on Monday. I wish my sad story ended there... but it is the beginning. I Have a beautiful little girl who was diagnosed with Autism 4 yrs ago. I just feel like I'm sure many of you do...I pray for the strength. Anyway Thankyou for listening, hope I didnt ramble and hope to meet some new friends. I didnt mention it but my injuries are from a car wreck years ago

b4u
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/14/2008 11:50 AM (GMT -7)   
I just reread my post and I appologize for rambling...Just Hurting,and feeling sad

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 11/14/2008 12:28 PM (GMT -7)   
I do not think you rambled - not at all.
You are going through a true trauma.
This seems like an issue that should be taken up by social services
or someone who deals with this type of thing.
I don't know who ~ I'm hoping someone will come along with advice.
Being in pain makes it so hard to look for a doctor - interview a doctor.
It might be fairly easy for you to do ~ but it could be cause for alarm
and very difficult to do. It's a matter of luck
I too am "hurting and feeling sad"
I think it's ok for us to feel that way.
I wonder if your old doctor has had trouble with his license?
Pamela confused
Maybe .... just maybe the pain pump will work for you this time? Doctors
have different skill levels.

Post Edited (Pamela Neckpain) : 11/14/2008 12:38:53 PM (GMT-7)


b4u
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/14/2008 1:04 PM (GMT -7)   
Pamela Thankyou so much for replying. I have been on Oxycontin and Actiq for a couple of years and got by... My daughter can be such a joy but, her behaviors are tough and when you hurt well you understand. I do not know what happened with the Dr I had, I know I took it personal and could not believe he would let me withdrawl from the medicine I was on. I had the pain pump put in a couple of years ago and it worked well for a couple of months and then just stopped and I gained so much weight and stopped going to the bathroom, I am so scared it will happen again but kind of feel this new PM Dr is saying I put most of my patients in CP on the pump so its that or see ya. It would be easier if it was just me alone but I have people who depend on me. I am tired from lack of sleep and explaining and wishing there were Caring Drs out there. I always feel like I am begging Drs to listen There are some people who need medicine to get by each day, its just so discouraging. I will have a better day tomorrow. Take Care and if anyone has advice please write.....

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 11/14/2008 1:30 PM (GMT -7)   
I'm in the Houston, TX area too. Maybe I can help, just let me know.
I see Dr. Fushansky at the Mainland Pain Consultants in Dickinson,TX,
So far he's been okay to me...
and of course you didn't rant, even if you did so....
My daughter has a heart condition Aortic Stenosis.
Get as much info on Autism, that you can find and I 've know people that have
worked and worked with their kids and have had good results, but you gotta
get her started soon.
Nice to meet you and Hurricane Ike affected us too, we need a new roof, had the fence repaired
and put back up, need sheetrock and have carpet damaged and still waiting on insurance.
Lots of soft hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


b4u
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/14/2008 1:59 PM (GMT -7)   
Thanks for writing Chartreux...We need a new roof, our fence is down on 1 side, and our pipe is broke so No washer, dishwasher,or kitchen sink. I do dishes in the bathtub. I started getting help for my daughter very early She is 8 now, and one day she will understand How Hard I have fought for her. I am bringing her to Austin in Dec. to a new Dr. We will Beat this I think thats why I get frustrated with pain if its not telling a Dr my back hurts so bad My leg hurts and my foot is numb it keeps me up at night. I would just like a Doc with just a little Compassion. The Dr I had for 6 yrs had a great attitude and his belief was it may take time but when we find the combination of medicine that works for YOU stick to it. I tried Kadian,Oxycontin, Hydracodone ,Soma, Dilauded, lots of others. I just think this new Dr wants the money from Pain pumps and I am just a Number to him he does not even look at me when I talk or let me finish a sentence but he writes that prescription that I need to function....to walk Thankyou all I Feel so like I am with a group of friends.........

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 11/14/2008 3:18 PM (GMT -7)   
Hey, just hang on in there...It was hard for me too, raising a child with a
heart condition, she had open heart surgery at 12 days old and her heart was
stopped for 20 minutes, talk about a scare, then the doctors told us she'd
be behind in school and well, now years later, she is 6th in her class of 1,113 students, she's a
national merit semi-finalist, plays the flute, just won a first place in a concerto competition,
and I believe in the power of music, as what helped her through most of this...
So if mine can over come the Doctors odds, then so can yours, too and
I'll be rooting for you both. My daughter is a Senior in HS this year and has over
come more than most children, she my angel, our miracle. Just like the one your
raising too and yes we've had our fair share of bad doctor's.
So hang on tight the road might have some bumps, but we'll get you throught those too.
Try the Doc 's I recommended at the Mainland Pain Consultants. Also, Dr. Silverblatt on HWY 3
in Clearlake is a good pain pyschologist should you need one, might help...
Lot's of Soft Hugz...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


moondancer
Regular Member


Date Joined Oct 2008
Total Posts : 68
   Posted 11/14/2008 3:42 PM (GMT -7)   

b4u, I am so sad for all of those affected by H Ike.. I know how stressed you must be and the pain sometimes is overwhelming. I hope you keep looking until you find a dr to HEAR you. I will write more later, I am typing with one finger as I had shoulder surgery yesterday.

just wanted to tell you I am fairly new to this forum as well and EVERYONE has been  so kind & supportive. And we all have our bad days and our REALLY bad days. I will pray for you
Patty


 
 Degernative Joint disease, Depression,severe Hypertension, Ulcers, Nerve damage,OA, stroke & blindness in left eye
  Prozac 80 mgs, Synthroid, Ultram, Metroprolol, Lipitor, Norvasc, Vicadin, Benadryl (for sleep)__Vitamin D&K
  Bilaterla hip replacements, Bilateral knee replacements, Titanium Spine Fusion (L4-5)(4 spine surgeries)Oblation for SVT(supra ventricular tachycardia) Biopsy of left Optic Nerve, left shoulder surgery, revision of left hip
The hardest lesson in life to learn...Is which Bridge to cross and which ones to Burn.
 


b4u
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/14/2008 4:15 PM (GMT -7)   
Thankyou Moondancer, for your prayers and for taking the time to write to me. I guess I am a bit overwhelmed right now. I was so thankful to have a home left after the Hurricane, I got the letter from my PM Dr of my release the day after I got home, and it has been so hard. Between my health and my daughters behaviors my friends have trickled away...I feel extremely sad and want to scream Please just GIVE ME A BREAK can you see I am struggling. The part that bothers me is I finally was on medication that made living a bit easier and our town had Manditory Evacuation on a Thursday and my Monthly Appt was on Friday so I called to see if I could come early so I could have my medicine during the evacuation anyway I believe thats why I was Discharged. That Is Sad ,I will just trust in God and hope he leads me to a better Dr. Thankyou ,Beth

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/14/2008 4:26 PM (GMT -7)   
Beth,
I'm so sorry for all you're going through! Reading this last post...well, dealing with pain is enough, but dealing with a Hurricane and the evacuation and not having your pain doc understand why you might want your meds a bit early??? If you can verify that's the reason you were discharged, I would write a complaint to your state licensing board about this doc.

I also wondered if the Red Cross or other social service organizations may be able to help you find another doctor, and can verify the hurricane's effect on your pain management coverage.

I wish I could offer more. I'm glad you joined us.

PaLady

b4u
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/14/2008 5:21 PM (GMT -7)   
My Primary Care Dr. was great I went to him....Hysterical and he told me he knew I was a good patient and ,I was taking it personally, and it was his loss. He referred me to another Pain Dr and he is big on the pain pump. They are great for some people, I had a bad experience with it. I told this new Pain Dr. about it and he is insistant that I give it another try. I am scheduled to go in the Hospital Monday for another trial.I cannot help but feel trapped like I have no say. I am struggling because when I had trouble with the pump 2 yrs ago I put on 75lbs of water, could not go to the bathroom, and after tests, and more tests the pump was turned off, on a Friday Sat. am I was in an ambulance on my way to ER because of the withdrawls. I was not prepared for that. Three months later it was removed, and now my Primary Dr told the PM Dr it would be fine to try the pump again. I guess I feel like this Dr is not going to continue writing meds but he is more than happy to put a pump in. I take 3 80mg Oxycontin a day, Norco for BT my brain hurts I am thinking too much, Monday is coming quick and I dont know what to do???

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 11/14/2008 5:50 PM (GMT -7)   
Hi Beth, welcome to your new friends. we are all very nice & knowledgable here & ALWAYS here to vent to & listen. Most of us have been through similar experiences. I am very sorry about the loss of your PM dr. I would be devastated if that happened to me- did you not call & find out what the issue was? I woud have gone out with a BANG if it were me! lol. Sounds like you have a good PCP, though. I think a lot of both my drs, they are great. Sorry I live in FL though. Well, it sounds like you are not big on going under the pump again. You are your only advocate. If you don't say something no one will. I would assume that Houston has a lot of pain management drs. I know it is hard to find someone you feel you can trust & who listens. about 5years ago I was living in GA, had one of those drs who said that and I quote I was "too young to feel this kind of pain in my back" and i was just "seeking". I was stunned & hurt. And the highest med that had ever given me was robaxin. lol. When I moved to FL all I could think is... here we go again. So I found a PCP & gave him the lodown on my back. He said he really couldn't prescribe anything strong enough & referred me to my Pain mgmt Dr, who I loved right off the bat. He was with me for an hour. Going over all my pressure points, several tests, MRI (which no dr had done before) & even told me it migt take a few years to find the right med combo, not to give up. When the tests came back with all these issues I just cried. All the memories of being treated so badly just came over me & I cried like a baby. So the moral of the story is don't give up.... there are good drs out there. Maybe you can call around & describe your condition & see if they can treat it properly. Thats what a girl told me she did at my drs office. (but she had just moved from Ohio) Thats probably what I would do. And see if they prescribed the meds I am on. Just say, I am taking xxxx & wanted to know if I transfered therre if this is a medication your dr is able to prescribe. I am finding some drs don't prescribe & I don't want to have withdrawls. AND speaking of, your dr should have at the VERY LEAST tried to ween you off oxycontin. Thats just cruel. I have had withdrawls once when I was sick (vomiting, couldn't keep my pills down) & I wanted to die. It was soooo painful & being sick ontop made it worse. I feel for you. Well, thats my advice. I hope it helps & let us know what happens! -Shannon
RX's: Oxycontin 60 MG 2x's daily; Oxycodone 30 MG 4x's daily; Soma 3x's daily; Lyrica 100 MG 3x's daily (all for pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x at bedtime; Cymbalta 60mg 2x's daily (for pain & fibro); Restoril 15mg at bedtime; Zanaflex 4mg 3x's daily; Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 11/14/2008 5:52 PM (GMT -7)   
Beth,
PaLady suggested that your write to the State Licensing Board and explain what
happened when you got your notice ... tell it all.
I think Red Cross would be a great resource. They are all about helping people
in circumstances like yours. Social Services might not know how to act. Always
get names.

I wonder: Could you just send this FORUM thread to the State Licensing Board?
That way you wouldn't have to worry about "composing" a business letter. I don't
know, (I'd like feedback on THAT idea. You'd highlight in yellow pen. Maybe
there are copyright laws or something)

And what to do about Monday? Sometimes people who are stressed have
gastrointestinal troubles -- like throwing up, ETC. (They will not ask you to PROVE
these maladies) The problem here, is if you don't go for the pain pump insertion,
the doctor might not prescribe anything.

FYI, I've kinda been thinking about this dilemma ALL the live-long day. I'm so
very angry with your doctors. There is some law that states that you DO NOT have
to have a procedure that you don't want.

Beth, do you want to do a first draft of a letter to Social Services. You'd have
a lot of readers who might have ideas for you. (A writers dream come true)

I don't know very much about Autism. I believe an autistic child would be difficult.
Is there anyone who can step in and really help you?

Pamela wrings her hands ... confused

b4u
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/14/2008 6:22 PM (GMT -7)   
Thanks you guys, Good lord I am crying like a baby... I just found this by chance and I have felt more loved from you all in this one day, so Thankyou. Autism..... is so very difficult. 1 in 150 children and it happened to my little girl. I am 48 and every day is such a struggle, I am sure you can relate. When my Pain Dr released me I really wanted to curl up and die. I brought my daughter to a lot of appts. I just had 2 neck fusions, back surgery last year..discograms,cat scans, MRIs,trigger point, shots,shots and more shots the pain pump in then out, he saw me walk with a cane and then a walker, and to release me after a hurricane evacuation You bet I am hurt. I was on medication that I took properly, Oxycontin is time released. My husband called and then we wrote a letter, but they would give no reason, 6 years I went to him and loved him for helping me have some quality of life I just never dreamed, do you know? I'm sorry I am at a loss for words I have never wrote or talked about this, my family lives away and we are pretty much on are own. I dont think most people understand cronic pain..They ask you how you are??? and Do they really care? so you reply ........Oh everything is Great!!!!!! Could not be BETTER

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 11/14/2008 7:11 PM (GMT -7)   
I'm with you Pamela, it makes me mad too. Just cause I have been to a condesending dr before. I understen givand they are just human-- but to not even give you a reason? Thats insane! Did you get any other prescriptions (even the hospital) without telling them? I know I HAVE to tell my pain dr whenever I get any pain med, I signed an agreement stating that I agreed to let them know of any pain medcations, if not it would be grounds for firing me as a patient. So I tell them every time I have had as much as a tylenol 3. lol. (j/k I hate that stuff!) But, there has been times I have been in the ER with pain, or my PCP gave me an rx for something. I am just to the point that they give me all my rx's & if I need something for like the flu- then I will go to my PCP. It really erks me they have done you that way, just even more so because I am on oxycontin & I know how the withdrawls feel. They are maddening! I had them once I had diverticulitis & couldn't keep any pills down. Once they got some meds in me via IV I felt better but I won't forget how much I was in pain. They should have at least given you some methadone to ween you off the oxycontin.
RX's: Oxycontin 60 MG 2x's daily; Oxycodone 30 MG 4x's daily; Soma 3x's daily; Lyrica 100 MG 3x's daily (all for pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x at bedtime; Cymbalta 60mg 2x's daily (for pain & fibro); Restoril 15mg at bedtime; Zanaflex 4mg 3x's daily; Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 11/14/2008 7:18 PM (GMT -7)   
Beth,

I'm so sorry that you are going through all this pain & on top of that have the added challenge of raising an autistic child, but you could not have found a better place to vent your frustrations and receive support. Pain is a horrible thing, but it is what unties us all here at HW. I completely agree with you that most people do not understand chronic pain. It is unfortunate that people generally care more about themselves than others, but the difference is that everyone here does understand. In addition to our pain we all suffer from problems with non-understandings family, friends, and medical professionals.

That being said, I cannot believe that your doctor just let you go like that, with no notice & after having been a loyal & compliant patient for six years. Of all the inconsiderate things to do..! You really should look into this like the others suggested. Since you seem to be on good terms with your PCP and this doc is obviously unwilling to speak to you or you husband, perhaps he could give them a call & ask? Is there another PM that you could switch to other than the one you are seeing now. You sound pretty terrified to have the pump implanted again (and with good reason), and if all this guy is going to do is push the pump on you, maybe you should cancel the trial & tell him that you are just not ready yet (explain to him that you are scared) & ask for a couple of weeks to think about it. You could then try to find a new PM, get a second opinion, etc. There is no sense in sticking with this guy if he isn't really willing to work with you. And you certainly shouldn't do something that you are uncomfortable with. You are the one that is going to have to live with the repercussions, not the doctor.

Good luck & welcome to HW.

Skeye

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 11/14/2008 7:45 PM (GMT -7)   
Awe Beth,
Lots of soft hugz, and so sorry that PM Doc just dropped you without any reason.
You seem so unsure about this pump procedure, maybe you should call and cancel it
and try getting into see another PM Doctor, Just trying to help out.
Dr. Silverblatt is just off hwy 3 in Webster, TX and he's a Pain Management Pyschologist
and so very very good and he knows a lot of very very good pain management doctors
here in Houston and I'm sure he could get you into someone who's good for you.
Just a suggestion and trying to be helpful.
Put your hand in mine and squeeze as hard as you need to, and lean on my shoulder
and cry till you need to too.
Anyways, lots and lots of soft hugz heading your ways, I have no family here in Houston either
so maybe we could adopt each other.
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2279
   Posted 11/14/2008 7:49 PM (GMT -7)   
Beth,
You can always call to postpone the surgery. If you do that, I would strongly suggest taking Chartreux's suggestion & contacting the pain psychologist the same day for an appointment ASAP. S/he can help you sort through your fears & concerns as well as help advocate for you if you're not ready for another implant yet. The psych can also help prepare you for a more successful experience if you decide eventually to go through with the implant. Also, your PCP might not be aware of how traumatizing it is for you to have to face what you perceive (& perhaps rightly so) to be the same situation. Maybe your husband could better explain to her how the thought of surgery is affecting you & see what she thinks.

If you decide to go through with the implant on Monday, maybe you could make sure to set up a "Plan B" with your doc before he starts the procedure. Go through what happened the last time & ask him how it should be handled if it somehow happens again (though I agree that your case sounded really severe, so maybe it was some kind of surgical error or pump malfunction). I don't get why your previous doc waited so long to address your symptoms. I remember once when I was on baclofen I couldn't urinate for 3 days. My PCP asked me why I waited 3 days see her. She said that is considered a medical emergency b/c, among other things, you can die from the toxins that build up in your body. I definitely think waiting until you put on 75 lbs of water weight sounds like too long & if that starts to happen again you should probably get a second opinion right away about whether it's really safe to wait. For what it's worth, here's the questions I would ask pre-op:
1. What medications will the pump give me? How much?
2. How are those different from what I had before?
3. What will the PM be doing to monitor my response? (I'd demand a follow-up appointment the same week just to discuss your progress. At a minimum, he ought to agree to call/email you.)
4. What will be done if I have a severe reaction to the pump or pump medications? Who will handle that situation (PM, his partners, PCP, ER doc, etc.) & how can they be contacted if a situation arises outside of normal office hours?
5. What can he do to prevent/manage withdrawal symptoms if the pump medications need to be discontinued?
6. What other options are available if the pump trial is not successful? Will he continue to manage my care?

Call his office first thing Monday morning to let them know you need to talk to your PM before the procedure, or if they're not open before you leave for surgery, let the hospital know when you check in that you need to talk to your doctor before the surgery & that you REFUSE to have the procedure unless he can spend a couple minutes addressing some concerns you have (usually that gets their attention).

I know it's crazy scary to think about trusting someone with your health. I honestly don't know that I would handle it as well as you are. You've been quite brave up to this point -- handling all sorts of unimaginable situations with incredible strength -- & your daughter is quite fortunate to have such a tireless advocate in her corner. Just focus on getting better for her & take all the help you can get from your husband, your doctor or anyone else. Remember that you know more now than you did before & can make sure things are handled better & quicker than they were before.
And know that a lot of people here will be thinking of you & praying for you this weekend & Monday, and if you have any questions or worries there are people here almost 24/7 whenever you need to talk.

Take care & best wishes for your decision!

peace,
frances

PS -- There are several support groups for parents of autistic children in the Houston area. Maybe you can find some people there who are more understanding plus they might know of some resources to help you with your daughter while you take some time to take care of yourself. I have enormous respect for parents of autistic children. They are some of the wisest, most patient, selfless & passionate advocates for their children I have ever met. I used to work a part-time job working on language development with Autistic & PDD children -- they have truly beautiful souls & I hope with all my heart that one day we will find a way to "unlock" their language b/c I'm sure we all would learn a lot from what they have to say. Keep hanging in there & know that you never need walk alone through your struggles. wink

b4u
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/14/2008 8:18 PM (GMT -7)   
Hi,
 
I am Beth's husband. She is my soulmate and very, very loved. I am a Christian and believe it is God's will that everyone be healthy and happy in his kingdom. Unfortunately, most PM DR's do not share my beliefs and assume all of their patients are ADDICTS. The irony is that they are the ones that create the addiction and then cut patients off because of various reasons that make sense to them, only to leave these wonderful people feeling abandoned and hurt both emotionally and physically. Sometimes I would like to put their testicles in a vise and say "Oh! Does that hurt? Here, have a Tylenol, you'll feel better in the morning." (Sorry, this does not sound very Christian of me.) If they could really, REALLY feel your pain, I think they would take a very different, very, COMPASSIONATE approach to pain management and the world would be better for it. Thank you all for sharing and listening to Beth, as she has no one but me and GOD to talk to.
 
"But he was pierced for our transgressions, he was crushed for our iniquities; the punishment that brought us peace was upon him, and BY HIS WOUNDS WE ARE HEALED. (Isaiah 53:5 NIV)
 
May God comfort you all in your journey to be pain free!
 
Love,
 
Bryan

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/14/2008 11:13 PM (GMT -7)   
Bryan,
What a wonderful support must be for Beth! It's awesome that you came to read the posts here, and then posted yourself. So many family and friends, even well-meaning ones, just don't understand or want to take the time. It's obvious you do. What a wonderful love you both must have for eachother.

If you read a lot of posts here you will see that one of the most difficult challenges we chronic pain patients's (CPP's) face is the stigma about taking medications on which we become physically dependent. Dependence is different from addiction, though, and that's an important distinction most people - even doctors - don't want to understand. Addiction involves more than just physical dependence. There's information on some older threads here if you want to search which will help you see the difference, but you're not the problem here - the doctors are.

I think Frances and Char have given some excellent advice. Beth, you're so understandably reluctant to have another pump inserted I really think you should postpone it until you feel more comfortable with it - IF you do. You have a right to make these decisions with your doctor, not just have them dicatated, although a lot of docs sure try to dictate. Char's idea about seeing the pain psychologist sounds good for all the reasons she gave. It sounds like a reasonable direction. But I'm not here to tell you what to do.

Trust yourself. We'll be here for support for both of you.

PaLady

moondancer
Regular Member


Date Joined Oct 2008
Total Posts : 68
   Posted 11/15/2008 2:13 AM (GMT -7)   

Oh Brian,

 What a lucky person Beth is to have such a supportive person in her life. I know how overwhelming the pain is and I can't imagine just being shut off without ANY explanation, that is inhumane. BUT you hit the nail on the head about the DRS creating the dependence on pain relief, then call us ADDICTS. I know my family love and support me 100 percent, yet they are 2,500 miles away and my husband does loves me too, but he does not know how to handle these things. I went to have surgery on my shoulder on Thursday and I had to take the bus, because he did not want to get up & go to a hospital. I WAS SO HURT. But everyone here is so kind and helpful and SOOOOO understanding. I thank GOD I found this Forum right before I had surgery myself. Last year I almost died and spent 4 months in hospital. "ALONE" and "Scared". God helped me through that one, so I know He was carrying me the whole time.

Beth, Please pray and think long and hard about this decision you have to make on Monday, and like everyone has suggested, DO NOT be afraid to postpone this procedure and find someone you are more comfortable with. even though I am new here, WE (our new famliy here) understand, and care. and there is always someone around it seems 24/7.  I am up because I could not sleep worrying about you and had to get up to post and then pray a prayer for you and everyone who is in this turmoil. I can't imagine being in so much pain and then having a child that is in need of so much extra attention.  So much on your plate, my friend. you have a very loving and supportive husband. and for that you can thank God. Please try to be strong and I will try to do the same. some days it is very hard to do.

we love you

Patty

 


 
 Degernative Joint disease, Depression,severe Hypertension, Ulcers, Nerve damage,OA, stroke & blindness in left eye
  Prozac 80 mgs, Synthroid, Ultram, Metroprolol, Lipitor, Norvasc, Vicadin, Benadryl (for sleep)__Vitamin D&K
  Bilaterla hip replacements, Bilateral knee replacements, Titanium Spine Fusion (L4-5)(4 spine surgeries)Oblation for SVT(supra ventricular tachycardia) Biopsy of left Optic Nerve, left shoulder surgery, revision of left hip
The hardest lesson in life to learn...Is which Bridge to cross and which ones to Burn.
 


b4u
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/15/2008 3:57 AM (GMT -7)   
Good Morning , to all my new Friends,
I sat at this Computer yesterday and felt the Love from all of you, and again Thankyou I know you are all in pain as well but took the time to COMFORT me. I went to lay down last night because I was hurting and my husband wanted to know why I was crying and I told him to Please take the time to read... and to my Surprise I saw he posted a note as well...What a Wonderful Man... He is the Best.His post hit the nail...do you know???????? OH it was Great!!!!! You gave me Wonderful Suggestions all of you and now I know why I was Lead to this Site. I know I rambled a bit Yesterday so want to slow down and say it slowly, I was just so EXCITED Yesterday I have not had such Great Company in a LONG time... This is so WONDERFUL Beth

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 11/17/2008 3:16 AM (GMT -7)   

Hello Beth, good morning and welcome to Healing Well. I have read all the posts on this thread and see the others have offered some great options to you. Thats the beauty of this place. Being a part of HW no, you will never be alone with CP again.

I am mortified reading how your pain mgt dr abandoned your medical care and I not really sure if he can do that legally, particularly due to the circumstances of Ike. I am hoping you cancel the trial for the pump. No dr should force patient into something and thats exactly what this guy is doing. With that attitude that tells you all of your care will be his way or no way, thats not what you need in a pain dr. You need someone that listens, he doesn't, you need someone willing to give options, he doesn't. Run, run just as fast and hard as you can away from this dr. This is not the dr you need.

Char gave you good info on her drs and thats the best way to find a new dr is someone being treated by one. Please get your dr to make a referall ASAP. If you were getting along and were able to manage your pain on the prior meds by all means thats what you need. You don't need someone trying to sell you a bill of goods that you don't need or want.

I have a pump and have had it since 2005 and its great for me. However, the pumps are not for everyone. It no different than medications, not all meds are for everyone.

Bless you and your husband for having this child. Your work is cut out for you as you well know. She needs her Mom & Dad. But, we need to get Mom back on her feet. Please consider Char's drs.

Take care and let us know how things are progressing. Soft hugs coming your way. Susie

 


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