advice on supplements and medication

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paulinethan
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/21/2008 3:13 PM (GMT -7)   
hello everyone, i need advice from you all. i suffered from back pain, herniated disc, degenerate disc desease, and a month ago dr. diagnosed me fibromyalgia. been suffering for 2 years now, had good and bad days. but lately since it's been bad, wake up with stiff back everymorning and numbness on both legs everyday.  i'd like to know what supplements that really works or helps in the long run, so far i take fish oil, msn, vit e & c. a-z. & calcium citrate. and for pain i take motrin 800, soma, ambien and norco. none of these work anymore, i tried smoking pot not too long ago, and had great laugh and slept good. but can't really afford that stuff. has anyone tried epidural do they work, or you have to continue getting them?  I'm trying very hard to do all the right thing, working out, eating healthy and takin care of my self.  i have two kids and work full time, so when i come home, after dinner, hmwork and cleaning up i just want to past out.  i guess no excuse to find a 10 minutes for my self, to meditate and stretch.
thank you so much any input please.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/21/2008 6:05 PM (GMT -7)   
Hi, Paulinethan,
Welcome to the HW forum for chronic pain. Just as a heads up, there is also a section for those diagnosed with fibro (which is also chronic pain, so you can post to both forums) and you may find additional help and support there.

We're not doctors, and can be here to support you and share experiences. Many of us have tried epidurals and there's a fairly recent thread on that topic you can read, and I'd also suggest doing a search on the forum for old threads as there's a lot of info. on our experiences with epidurals and other procedures. They work for some people, but weren't helpful for me for my back at least. It's great that you're trying to take care of yourself, but you might want to be careful about working out and even stretching until you've had some guidance from a doctor or physical therapist.

Have you seen a neurologist? The numbness in your legs really should be assessed as soon as possible, as nerves can get worse over time. Working and with two children you must be doing a lot of physical things, but some of them could be making things worse. I don't know what specialists you've seen, tests and treatments you've had, but it's important to see some specialists and probably he/she will order an MRI and maybe some nerve conduction tests. Physical therapy can also help; even if it doesn't cure, it can help manage things.

Hope some of this helps. Others will probably come along and add more, but read the other threads here.

One tip - you might want to read the rules of the forum. We can only discuss legal medications, etc.

PaLady

paulinethan
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/21/2008 10:31 PM (GMT -7)   
thanks palady, i really appreciate you input. i have mri schedule this monday, i'll be to see what's really going on with my back. the feeling on my legs it's progessing more each day, and i can't sit for too long, i have to sit on a exercise ball at all times. my work starting to get to me although i work in the office , and able to stand whle i do my task but my legs really starts to bother me, constantly have to shake it off. the more i move around i feel relief. i wanted to mention i had breast implants 5 years ago, and it seems every since i got them i started all this problem, do you think any of this could cause from it, maybe i 'm just paranoid. but if that the case i want them out. i guess stress would triger all the symptoms too. thanks again, have a great weekend.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/21/2008 11:05 PM (GMT -7)   
I don't know if the breast implant could be related. Anything is possible, especially where surgery is concerned. But while stress can increase your symptoms I don't think stress alone is causing the numbness in your legs. I'm glad you're going to have an MRI, and hopefully meet soon with a specialist. I'd suggest making a list of all your symptoms, what makes them worse/better, and questions you might have for when you go for your follow up appointment.

I have numbness in both feet, and sciatic nerve pain down my right leg, and unfortunatley the fusion didn't help. But there are lots of possible causes of this; you just don't want to ignor the problem, which you're not doing. Keep in touch and let us know what your doctor says after your MRI.

PaLady

tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 11/22/2008 4:29 PM (GMT -7)   
Hi Paulinethan: I was in much the same situation as you are now, about twelve years ago. I was diagnosed with anemia due to endometriosis, and fibroids, which caused me to bleed very heavily so my iron was depleted. I was also hypothyroid, beginning perimenopause, and was dx. with Fibromyalgia. I also had two boys, then 10 and 11, who needed me there for them, as they were both diagnosed ADD and ADHD. I had two jobs, was a single mom. I never slept well. It was not a good situation. I managed by getting a really good babysitter, a disabled man who had raised several children (sucessfully). My medication for the pain, I managed with Tylenol #1 and 75 mgs. of amyltriptilene at bedtime. I told my boys I needed 1/2 hour when I first get home from work, to rest and reboot for evening of homework support, together time, and housework. That all went very well for me. Then I was hit by a truck in a crosswalk and everything changed. I needed stronger meds for soft tissue injuries, mainly Tylenol #3, a muscle relaxer and more amyltriptilene. I also am BiPolar so I was on an anti-depressant, a mood stabilizer, and although it was never formally diagnosed, I think I had/have PTSD. Now I also need a sedative at night for sleep, and occasionally one during the day as I can no longer work so I care for my Dad who has alzheimers and that can get pretty rocky at times. I am on 24/7/360 days a year. I get about three days of respite from brother when he visits (rarely). I had been taken off of the anti-depressant, by my Pdoc (shrink) for a couple of years, then I got severely depressed and was put back on it, recently. I am beginning to feel a bit better. I find it has lessened my pain by about 40%. However, being exhausted is my normal state of  being and pain is my 60% companion. Most particularly in the mornings. I am stiff, have trouble getting my body to move, and often have numbness in hands, arms, and legs. I hope something here helps you.

paulinethan
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/24/2008 10:09 AM (GMT -7)   
hello, i finally got a massage this weekend, it was awesome i didnt want to leave the place. also met with diet specialists, he mentioned that cause of my problems is poor digestive, he adviced to have a good cleanse and starting taking herbs instead of pain pills. i don;t know who to believe, i'm going for mri tonight. and see specialist on the 9th. thanks again you guys are awesome.

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2284
   Posted 11/24/2008 11:32 AM (GMT -7)   
Pauline,
Please check with your doctor before doing any kind of cleanse. I would think that would generally be good advice, but is especially important for people on pain meds. Your doc may not support your decision to do the cleanse & natural supplements, but s/he should at least be able to advise you on how to do it as safely as possible.

Beyond that, I would caution you to do your research on this diet specialist. Are they a licensed dietitian or nutritionist? Where did they study (at a college/university, through a short certificate program over the internet, through studying with a lay mentor, etc.)? Who oversees their work?

I say this not to discourage you from pursuing non-pharmacological treatments for your pain, but rather to caution you that there are a lot of people out there with little or no training who claim that all medical problems boil down to probs with digestion. Unfortunately, the FDA does not even try to substantiate such claims so the decision-making is left up to the patient-consumer. I have seen friends on both sides of the spectrum -- ones who really were significantly healthier after changing their diet & adding a couple supplements and others who got very sick, including one who had to be hospitalized b/c the combination of what she was taking was toxic.

Hopefully, you've found someone who can help you achieve the former. A co-worker of mine swears by her nutritionist. The nutritionist worked with her & her neurologist (who was treating her for FM). It took a few years, but now she has returned to work & even has enough energy to cook dinner and coordinate chores & homework for her kids each evening. One thing I know she did was get her blood tested by her PCP before she started the supplements. She took the report to the nutritionist so that way they could better decide which supplements she needed vs. which ones she already had enough of.

Anyways, hope that helps a little & good luck with finding something that works for you!

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/24/2008 11:45 AM (GMT -7)   
I would just second Frances' cautions, and I say this as a believer in wholistic approaches, or really more what I'd call INTEGRATIVE approaches. That means taking the best of all worlds, and using the least invasive treatments that work, but this is often tricky. And needs to be done with doctors and nutritionists, etc. working together. I am suspecdt if someone tells you to stop all your meds who doesn't have the traing to fully assess the consequences of that. Good nurtition is something most all of us could use, but your nutritionist should first work with your pm and other doctors.

PaLady

Richport08
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 11/24/2008 3:53 PM (GMT -7)   
Greetings Paulinethan, and everyone on this forum! I am new, to this forum, and do hope that everyone is doing well. A couple of years ago, I tore the meniscus, of my left knee, when I torqued it, while exercising. I went to an orthopedic doctor, who confirmed the meniscus injury. He told me, that, since the meniscus was torn, now there is bone on bone friction, which would eventually cause arthritis. He suggested surgery. Honestly, I was afraid of surgery, since I personally know, a couple of friends, who had surgery, and are still living with pain. In some cases, severe pain. I went through the usual ice, the first 48 hours, then heat, alternated with ice, at times. I did use anti inflammatory medications, precribed, by the orthopedic doctor but, the meds iritated my stomach, so, after trying a couple of different medications, for the pain, I had to stop taking them. After searching, daily, every chance I had, for a natural alternative, I found a supplement that has 11 natural anti inflammatory ingredients, all working together, to reduce pain. I looked further into it, and made up my mind into ordering it, when I found out, shipping was free and, it is guaranteed. I have not looked back, since I ordered it, off their website. The pain is gone and currently, I have my mother, who suffers from arthritis, my aunt back in the (bursitis/shoulder)eastcoast(bursitis/shoulder), among others who use it, and report no pain. 
Take care everyone and do hope that my experience, with a natural supplement, provides you, with the results I have had. Below, is the website, that I initially found, and where, to this day, order from. Good luck!     http://jointpainreliefsynflex.com
 

Post Edited (Richport08) : 11/24/2008 3:56:54 PM (GMT-7)


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 11/24/2008 6:44 PM (GMT -7)   
Pauline,

Like the others have said, please be careful before starting any natural medications. I am a believer of holistic medicine, and use it myself, but it is important that you work with professionals such as a homeopath (the best ones are M.D.'s as well), naturopathic doctor (N.D.), or experienced & certified herbalist. There are lots of products out there that claim to be beneficial, but are really bogus, not to mention the potential of causing serious side-effects with your current meds. It is crucial that you work with someone who knows what they are doing and is familiar with your situation. Your doctor may be able to give you advice as well, although most traditional M.D.'s are pretty limited in their knowledge of natural approaches other than supplements. Good luck!

Skeye

Richport08
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 11/24/2008 6:59 PM (GMT -7)   
Greetings everyone! You do have to be careful, with bogus stuff, going around, that is true. Good advice. I agree. Below, I will post, the ingredients, of the supplement, that I have used, and have kept my left knee, pain free and, no arthritis.
 
    Take care, everyone!
1250 mg Glucosamine HCL and Glucosamine Sulfate
25 mg Shark Cartilage (20% Chondroitin Sulfate)
8 mg Boswellin
3 mg Yucca Powder
5 mg Manganese (Ascorbate)
1 mg Bromelain
18 mg Vitamin C
5 mg Omega 3 Fatty Acid
1.67 mg Omega 6 Fatty Acid
80 IU Vitamin A
2 IU Vitamin E

paulinethan
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/25/2008 2:59 PM (GMT -7)   
thanks again, you guys are very helpful. i will mention all this to dr. next appt. thanks and everyone have a happy thanksgiving...
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