A Different Kind Of Sunday

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uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 11/23/2008 2:53 PM (GMT -7)   
 
 
Hello To All My New CP Friends,
Until today (Sunday) all of my Sundays were horrible!  I would rarely slither out of bed, maybe to go to the bathroom or to get a drink, I would never take a shower or wash my hair...I couldn't or wouldn't do any of the things that I knew would make me feel better just because I was usually out of my pain meds or I was so low that I had to conserve them.  To me Sundays were a day for hiding from the world. 
 
But this Sunday is very very different.  This past week I finally went to a new PM and I really like her.  I liked the one I had before but she left for another office.  So...here I am, another Sunday under my belt, and I have accomplished so much today.  I actually took a shower, cleaned (not a lot, but more then usual), and even made a meatloaf for dinner tonight.
 
I spent a great deal of my week going through old posts about Chronic Pain and it helped me so much.
 
I never realized that there were so many people suffering, without cause, from chronic pain.  And I never knew that so many of us went without the help we needed for various reasons..Now I want to help other people like me, like all of us.
 
Any suggestions? 
And thanks to all of you for being here for me when I really needed you.  My family has no idea what I go through.  My mom thinks I'm just trying to get "drugs" and my son (15) tells me to get over it....These are just 2 of the reasons you are helpful to me...
 
Me...
 

 
 
spinal stenosis,degenerative disc disease,bilateral neuropothy.
lamenectomy L3,L4..spinal fusion L4-S1
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/23/2008 4:34 PM (GMT -7)   
Dear Me,
First, that's great news about your new PM! And second, telling your story here is helpful to me and others. It gives us hope that there can be better medical care out there, and it's worth looking!

Thanks so much for sharing!

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 11/23/2008 9:23 PM (GMT -7)   
Hi Me,
 
WOW, you did have a different Sunday and I am very proud to hear what you did today. You really did accomplish alot in many ways besides what you posted. Oh, its so easy to want to just hide from the world ya know. But we know realistically, we cannot do that,lol.
 
Its great to hear you have found another pain mgt dr and one that you like and can get along with. Those are two very important needs when needing help for CP. I am very fortunate as well, I could not ask for a better dr than the one I have. He stresses the need for his patients to be able to get up and be mobil, laying in a bed will get us no where and thats not what he wants for a patient. He does procedures but he does not go overboard with those and he believes in proper pain meds to help his patients.
 
Unless a person has truly experienced chronic pain, they have no clue what it is about. Thats why you have the attitudes from the two there at the house. We were raised in a society that pain is related to an incident, like if I cut my hand with a knife and it hurts and I am bleeding they understand that. But our pain is not visible for another person to see, so they cannot begin the phathom the idea of chronic pain. We have been told we are lazy, stupid, trying to get attention, its all in our heads, to being drug seekers.In reality we are none of those things. Before chronic pain got ahold of us we were really highly motivated and action packed people. We never dreamed in our wildest moments that on some days we would be moving as slow as a snail.
 
Keep your chin and your attitude and morale. Its already done wonders for you by getting you out of bed on a Sunday. Just remember you cannot give in, you are the one in control her. Hugs, Susie


AggieClare
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 11/23/2008 10:50 PM (GMT -7)   
To You, and all chronic pain sufferers. My name is Aggie Clare and I suffer from fibromyalgia, osteoarthritis, and other "mysterious" forms of pain regarding my legs and back. I have searched all over for doctors and other medically allied personnel to help me. I have taken more medicine than I want to admit for pain, and I have tried every other option such as dieting, exercise, health/holistic items, etc. I have been getting injections in my back for about a year....every four months....and this helps (some).
I am getting weary of being the way I am. My body rejects many forms of medication I need, such as cholesterol medicine, because it raises my pain to excruciating! My CNS is out of wack, and I am very sensitive to light, sound, smell, and just life in general.
Is there anyone else out there who feels this way? No complete diagnosis, just guesses. I am 62 years old and have been fighting this for 20 years. It has worn me out.
 

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 11/24/2008 7:09 AM (GMT -7)   
 
 
I am so sorry to hear how much pain and misunderstanding you have to go through...And welcome to HealingWell.  I think you will find that there are so many of us out there that have been through or are going through the same thing.. It took a lot of years before I was diagnosed with DDD and Spinal Stenosis, along with many others.  But you have to be your own advocate.
 
Don't give up!!  There is a Dr. out there for you, you just have to tell him.  You will get a lot of great info. and just a general outpouring of love here. I know I did.  Good luck and keep writing to us.
 
Me

 
 
spinal stenosis,degenerative disc disease,bilateral neuropothy.
lamenectomy L3,L4..spinal fusion L4-S1
 


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 11/24/2008 7:17 AM (GMT -7)   
 
 
PaLady,
First of all, any advice I get from someone in Pa. is good advice to me.  My family is from Pa. and it makes me feel at home to hear from you.
 
And you are right, reading other peoples stories makes it easier to get through the day.  I know that I am not alone and that others care about me...even if they don't know me.
 
I am 41 and wish that the past 15 years had been better.  I wish a lot of things of course, but at least now those dreams are coming true.  I have a great PM that listens to me, and now I have new friends here that I can count on as well.
 
Thanks to all.  And maybe one day I'll have thousands of posts to my credit and will help others like you have helped me.
 
Me

 
 
spinal stenosis,degenerative disc disease,bilateral neuropothy.
lamenectomy L3,L4..spinal fusion L4-S1
 


AggieClare
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 11/26/2008 9:21 PM (GMT -7)   
Thanks, Me....
I went to see a rheumatologist once here in this new city I moved to about two years ago. He was a blunt guy and when I told him I was in terrible pain and that I took a lot of medications and would like help to get myself off some of them and get a correct diagnosis, he stood up, looked seriously at me and said, "Sorry I can't treat you." He then walked out of the door.
This is our sorry state of physician health care today. I resorted to see a pain management specialist, but he only injects my "hot spots" and has no answers for the overall body aches.
I was diagnosed with fibro, but I fear there is something else going on and I am just tired of searching for someone to acknowledge me and get me on track. This is a small town and the nearest big city is Memphis, TN which is about two hours from me. I am really just venting here.....so I hope all of you understand.
Aggie

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 11/27/2008 1:05 AM (GMT -7)   
 
 
Aggie Clare,
 
This should be the "Venting is Manditory" group...We all do it, we all expect it, and we all listen....So Vent Away!!!!
 
Me.

 
 
spinal stenosis,degenerative disc disease,bilateral neuropothy.
lamenectomy L3,L4..spinal fusion L4-S1
 


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 11/28/2008 10:13 PM (GMT -7)   
Me, I am so glad that you have found a good pain doctor. That is too rare and occurrence but you did it.

Aggie, I have fibromyalgia. Come and visit the fibro message boards and you will find more people with your experiences. The folks in here understand what you are going through also. And, so do the folks on the arthritis boards.

Hay, maybe we should all get together and have a party!

Donnaeil
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