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Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 12/9/2008 5:58 PM (GMT -7)   
I should have recieved my Disablity but apparantly they did not submit my approval to the proper people so the process has not even been started, also no referrel to a pain clinic has been made as of yet either that was suppose to take place within three weeks of seeing my family doc last which was back in Sept maybe there really busy and not many in the area I'm in but i wish that something postive would happen. Anyway and of course being in pain just applifies the little things ya know take care LPD to everyone talk later Bye for now Twiggy2. Silly question I would like to post my condition(s) but instead of doing each post is there a way i can attach it along with every post like i see some people do. It alot easier than having to type it over and over again. Thanks in advance .

Post Edited (Twiggy2) : 12/9/2008 6:10:43 PM (GMT-7)


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 12/9/2008 7:28 PM (GMT -7)   
Hi, Twiggy,
I'm so sorry to hear of the struggle with disability. I'll be in the crowd struggling with you soon. And you're so right, pain just amplifies things. Know that I and many other are thinking of you and here to listen.

As far as posting your condition I think if you go to your profile in the Control Panel you can add it so it appears with every post. The Help menu is also useful.

PaLady

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 12/9/2008 7:40 PM (GMT -7)   
Hi Twiggy. I too am fighting with disability having now been denied for the 2nd time and now going through round three of my appeal. It is not fun to have to tell these people over and over why you think you deserve to get money for being hurt. Why do we have to prove we are disabled? Can't they see it in our faces, the way we stand, sit and look? I mean come on its ridiculous that we have to jump through so many hoops just to be able to get disability as well as many things that us CPers need.

Anyway good luck with your disability. I'll be praying for you. Wishing you a pain free night

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13471
   Posted 12/9/2008 10:47 PM (GMT -7)   
Twiggy did I read your post correctly that you have been waiting since Sept for a ref to a pain dr. I am sorry but busy, few drs whatever, thats just not acceptable. Who is suppose to be making this referral for you? I would be going to someone's office and demanding an answer. This is not something I would handle with a phone call, not after its been this long.

I am so sorry that your paperwork got messed up. Oh, I know how you need the funds. Keep fter them do not let them let you fall the cracks like you have on seeing a PM dr. Hugs, Susie


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 12/10/2008 4:52 PM (GMT -7)   
Twiggy, the ladt who works in my drs office used to work for the gvt with disability claims. She flat out told me (as we know) the back pain is hard to get approved- but proving a history of depression ranks over back pain. Don't ask me why. She told me to use that & really lay it on thick. I have only seen one professional & it was one session, but my new attack plan involves a new plan of concentration. I just thought I would pass on the advice. I don't know if you have any depression issues... but if you do it you may want to seriously consider it as important as your chronic pain treatment. I know this sounds bad & in no means do I want to dismiss depression, I have suffered from it for years. It is a very real thing to deal with, but I never considered it a trump card over not being able to physically walk or get out of bed some days. Just thought I would pass the info along. And if anyone gets upset by what I just said, please don't I do not mean it to be hurtful, only stating what advice was passed along to me. Good Luck Twiggy...... I will let you know what happens.
RX's: Oxycontin 80 MG 2x's daily; Dilaudid 8 MG 4xs daily; Zanaflex 4mg 3x's daily; Restoril 15mg 1x; Soma 3x's daily; Lyrica 100 MG 3x's daily (pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x (chronic pain); Cymbalta 60mg 2x's daily (pain from fibro); Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


deb in indiana
Regular Member


Date Joined Aug 2005
Total Posts : 387
   Posted 12/10/2008 6:39 PM (GMT -7)   
ktnn i was just wondering why you are on soma ,zanflex both and why are you on lyrica and cymbalta my pain dr. told me you can't take the two toghter just wondering thanks Deb

Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 12/11/2008 3:17 PM (GMT -7)   

Thanks for all the replies greatly welcomed, i have been waiting since sept 27th for my disablity check. since october i think for my pain clinic i will give a couple more days then go right to my family doc office this is who is reffering me to PM, This is a brief of my history

 

Chonic Back Pain: 8-10 proturuding discs pinching nerves, flattening of the disc and degenerative facet joints and disc disease.\

Dpression, Anxiety, PTSD, Panic Disorder,

Mild Arthitis in the Knees.

At the time i applied for disablity i explained about the depression, anxiety etc my back pain which at the time was not diagnosed well enough and my knees, anyway i guess it wasn;t good enough for them, until i went to the tribunal. What ever the decison they based it on i'm glad they did. To all people who are going through the process it's hard but don;t give up. Take care I'm here if anyone has questions maybe i can help take care Twiggy2


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 12/11/2008 4:09 PM (GMT -7)   
Kittn ... It's amazing that Depression trumps Chronic Pain when one needs
Disability. if one is carrying PAIN all the time and if it is intractible, I can't imagine
how one could not be Depressed. And with Depression comes Anxiety. The
inability to perform daily tasks due to profound Depression causes Anxiety.
You just kinda lay there with work to perform and no way to do it. I think it
should be called CHRONIC PAIN SYNDROME.
If I was giving Disability, I'd look for Intractible Pain, Depression, and Anxiety.
With all that stuff going on in your body, something else may go wrong because
of lack of exercise and inability to prepare healthful foods.
My spine shows all sorts of problems from MRI. (I guess that's a good thing
if I ever needed to go for disability.)
I have heard you need to apply three times before they take action. (This is not
reliable information but just some words that passed over my eyes)
Stay warm,
Pamela

Post Edited (Pamela Neckpain) : 12/11/2008 4:14:48 PM (GMT-7)


mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 12/11/2008 9:32 PM (GMT -7)   
Disability is diffrent in every state and who is your case monitor.The more you have wrong with you the better your chances,How much schooling you have (less is better),Most people do have to apply more then once but not always.I received mine on tje first try and alot of other people who post on the ostomy sit have also.GOOD LUCK.
Lost half of my small intestineJan.2008.Ilieostomy for 5 months then reverst in June 2008,Nerve damage to right leg,part of my right hip bone removed Jan. 2008,Cronic pain,hernia,infection in my back called discites,and depression.Gallbladder removed Nov,2008.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


lakewinds
Regular Member


Date Joined Feb 2008
Total Posts : 60
   Posted 12/12/2008 4:51 AM (GMT -7)   
It took me 3 or 4 no's from Social security disability judge go ok me, and it wasn't the chronic pain,mental issues, that disabled me. It was all the narcoticsand other drugs I had to take because of the side evvects of the pain patches, ect, that i was perscribedafter getting radiated and having surgery for cancer. in 1990
that made me not be able to work and meet quotas or drive around for that matter. I was on a huge amount of medication. So Now I'm off it all but they still think im disabled because of their own reasons I don't even know what they are. But I have always been honest with them as well as embarrassed and ashamed of getting a handout check from the government especially when you cannot see that there is one thing wrong with me. wish someone would tell me how to get a signature that automaticly goes on our posts with our diognosis' and meds ect. So Hopefully someone will say how to do that in this thread.
SIncerely,
Knitwit= a person who likes to KNIT and has been told she has a quick wit thus the name KNITWIT lol

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 12/12/2008 12:38 PM (GMT -7)   
Deb, my dr only gives me a 2 week supply of soma since the FDA black boxed it. I only use it when the spasms are uncontrolable. As for the lyrica & cymbalta, I don't know why your dr won't give you both. There are several people on this forum who are using both. I had done some reading on the John Hopkins website talking about the drug & how it helps with fibro pain, so I mentioned it to my dr & we decided to try it. It helps a lot. I am sorry your dr won't let you do both, I have felt a huge change since taking them. There is actually a post going on about cymbalta. Its not for everyone, maybe your dr has reasons for not letting you take it. If I had to choose between the two I would for sure stay with lyrica, I think its a wonder drug.
RX's: Oxycontin 80 MG 2x's daily; Dilaudid 8 MG 4xs daily; Zanaflex 4mg 3x's daily; Restoril 15mg 1x; Soma 3x's daily; Lyrica 100 MG 3x's daily (pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x (chronic pain); Cymbalta 60mg 2x's daily (pain from fibro); Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 12/15/2008 5:18 PM (GMT -7)   
Still hanging in. I hope and wish that it was more easy for people to get disablity. I know that some people have waited 3 yrs sometimes so me only waiting a year and a bit isn;t so bad anyway don;t give up and if anyone has questions maybe i'll be able able to help Twiggy2.
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