Kansas City, MO pain centers?

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Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 12/10/2008 9:50 PM (GMT -7)   
I don't know if my pain is comparable at all to yours. I've tried tramadol, vicodin, percocet, and at this point, screaming is all there is. It feels like a raw nerve in my left hand/thumb/forefinger. This is the only pain I can feel if I take a percocet. Without that, its all back, ankles, knees, hips (oh so much in the hips). I prefer percocet for two reasons, 1.) it works mostly and 2.) the narcotic helps cut my Crohns related potty visits down to half or less the twenty or so times a day.

Are there local pain centers? How do you qualify pain? I haven't been without pain since February. It was controlled with the percocet until the screaming agony of my thumb. Can't touch the pad without biting my lips, cheeks, or tongue to keep from screaming. My forefinger is slightly less bad but it aches so consistently in the joints that I could scream. Tried arthritis rubs and was on prednisone. Not much change beyond the whole arm to now only the hand.

I'd really appreciate your thoughts. I'm a frequent visitor to the Crohns threads on the forum and have wondered over here so often b/c I don't know how I should go about with a pain management center. Do I need insurance? I don't have it til January. Is there one near Liberty, MO? Anything you all could share, I'd appreciate.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Dx'd: February 2008.
Pentasa (and much mental screaming)


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 12/11/2008 1:38 AM (GMT -7)   
Hi, Joie,
Like with most doctors, I doubt you'll find a pain doctor that would take you without insurance, although maybe you'll qualify for government insurance? The only possibility I can think of is a pain management cliniic associated with a charitable hospital. You might get some care, but you'd have to call around first. Probably would need to go to the ER, which you can do for severe pain.

Once you get insurance in January check your telephone book, and ask around, look for teaching hospitals, Pain Management doctors and/or clinics and then call them and ask if they accept your insurance. Also, ask if they're comprehensive clinics or do their doctors just do the injections and high tech procedures. Many doctors are do only those procedures and don't prescribe medications. The best is a board certified pain mangement doctor who does everything. You might need a referral from your PCP; again, it all depends on your insurance and your doctor's policy.

Maybe some others here live in your area and can provide more specific infor. Good luck.

PaLady

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 12/11/2008 2:19 AM (GMT -7)   
Hi Joie,
Try calling the Emergency Room of your local hospital and telling them your symptoms.
Better yet, have someone take you there.
I believe hospitals have to take people who are ill or in severe pain.
It would be good if you could go there because you could meet the hospital
doctor and he could refer you to an internist or a GP.
Those doctors could refer you to a clinic if that's where you would do best.
If it's a true emergency, they can act fast.
Can you call the doctor who prescribed the Percoset.
I went to a pain clinic but it was after several years of being treated by a GP.
It sounds like you're really in a lot of pain. I do feel for you.
Pamela

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 12/11/2008 9:32 PM (GMT -7)   
Thanks for the thoughts. I have gone to the ER. They didn't listen when I said I'd taken a percocet an hour earlier and tried to give me a vicodin on top of it (this combo actually made me sick when another doc tried it in a hospital). I'd been crying and this was when my arm pain began...in the elbow. It traveled up my back to my shoulder blade for awhile and now is centered in my hand. It's slightly more swollen then the right hand. As for the percoset, it was prescribed in Feb. when I lived in another state. I moved to this state and two days later got a resection (but I thought I only had gallbladder disease). Honestly, I've been to doctors and ERs for the pain and I'm just plain exhausted with trying to get the idiots to fix the problem and stop giving me the pain meds. As soon as the insurance goes through...hehe, my personal mantra.

Oh...as for teaching hospitals. I'm planning on going to KUMed. When I was sick five years ago with undiagnosed Crohns, they were good about pain management as well as not sending me home half healed only to return to a new hospital two weeks later with even more problems. It's a teaching hospital. State funded too.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Currently trying to figure out hip and knee joint pain.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa (and much mental screaming)

Trying to hang in there until January so I'll have some insurance and can visit a rheumy, neuro, GI, primary, pain control, and possibly a shrink so I could stop crying and living in my own lil pity party. :-P

Post Edited (Joie1) : 12/11/2008 9:35:28 PM (GMT-7)

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