OMG, my jaw was dropped as I was reading your post. I am so sorry you are suffering so much and I am in disbelief that no one is helping you. Where do you live? In the US or another country? You sound almost like me, as I had severe spinal stenosis. I felt fine and exercised regularly, was thin, etc..until I was 33 or 34. Suddenly I started getting back pains and spasms on and off. I took this med and that med, blah, blah. In 3 1/2 years my condition progressed to almost where you are. I never lost complete control of my bladder, but I did (and still do) have bladder problems. I could no longer walk upright and when I tried to walk, I could only shuffle about 20-30 feet and I, too, would have to collapse. So I know exactly what you are going through and just how excruciating it is. I did still work though, because I had to and I had insurace. My insurance did cover my surgery completely, though. I am much better off now, but I still have problems. I just can't believe that no one is helping you.
And do you know how the insurance came up with this as a pre-existing condition? Did they say you had treatment for it before you got that insurance?
Ohhh...and another thing, with your losing bladder control combined with your stenosis and all nerve compression, etc...I am not a doctor, but it sure sounds to me like Cauda Equina syndrome, which is an emergency. I can't believe the ER didn't think of this!?!? It's really awful the way you are being treated. I am not sure what else you can do, except try a different ER or call your local Social Services Department. Maybe they can direct you to different programs that might be able to help.
I had also tried tramadol and it did zilch for me. No pain killer really helped me. I tried many different meds plus epidural injections of steroids. The injections did help some of my nerve pains, but only for a few weeks. I don't know what is causing your stenosis, but mine was caused by bone overgrowth, ligament thickening & buckling into my canal, and disk herniations. So the only thing that might help was to have surgery to remove the bone, ligament, and disks.
I'm sorry, I am just still in disbelief and you've been suffering since a teenager. The way you are progressing, I hate to say this, it's possible you may end up with unrepairable nerve damage. I wish I could tell you what else to do, except to go somewhere else.
Hi Lolcashment and welcome to Healing Well. At least by finding us you will find people that have the same problems as you, chronic pain and you certainly are not in that boat alone.
First have you tried to get Medicaid. Medicaid is for people with limited funds and not working. If you have not contacted them, please do so. Have you checked with all of the hospitals in your area to see if they have an indigent type program for people like you, no money, no job and unable to work? I know a couple of hospitals here where I live have such a program, in fact usually a case worker at the hospital will help get you on Medicaid. I think you said you had filed your SSD so keep up on that deal.
The urinating on yourself does not sound good. It sounds your like situation has got a whole lot worse. about the scoliosis, as a child I know they go by it being ou so many degrees befire you are a surgical candidate. Were you at that point when younger? I know St. Judes and another hospital did free surgery on young children for the scolosis.
According to what you wrote about your MRI results, your disc problems are a little higher up in the back. The most common level with problems for people is the very bottom disc called L5/S1. The L numbers get smaller as you go up your back such s where your problems are showing.
Have you considered contacting your local congress person to see if they can get you in the right direction you need to be for medical help? I what one of the other members said & take the wet clothing to ER with me.
I am going to try to think of some other options about your situation and see if there is anything else you can do. Keep posting & letting us know how you are. Susie
Post Edited (Pamela Neckpain) : 12/11/2008 2:10:04 PM (GMT-7)
I'm so sorry for what you are going through. It sounds absolutely horrible. I can't really add anything to everyone else's advice because I don't know too much about back problems or bladder problems since my chronic pain is in a completely different area, but it does sound serious. But I think you got some good advice & I agree with everyone else that you should go back to the ER and have them take another look at you.
Well, I basically just wanted to welcome you to HW & let you know that we are all here to offer you support. This is a great group of people. It is unfortunate that we all have to be here because of pain. I hope you can get back into the ER & get some answers. Keep us posted on how everything goes.
spinal stenosis,degenerative disc disease,bilateral neuropothy.
lamenectomy L3,L4..spinal fusion L4-S1
Post Edited (Pamela Neckpain) : 12/14/2008 1:46:33 PM (GMT-7)
Hysterectomy at 25
4 laproscopic surgeries since 24
Cervical stenosis in C3 & C4
Meds - percocet 3x day : nexium : xanax :
Supplements : calcium : magenesium :potassium : milk thistle : fish oil : B complex : vit E
In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz