Any advice, help, thought, anything will be greatly appreicated

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ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 12/13/2008 1:32 PM (GMT -7)   
first off howdy everyone,
 i don't spell very good and spell worse now than ever.
Here is my story, and i am in need of help PLEASE. Around Oct 23, 2002, I was unloading a fence line mower that was banded in a crate. It was in the back of my pickup truck, I was a maintence and or everything else person a rurul k-12 school, being the only male out there I pulled the crate far out enough to ease it to the ground, and then I was going to walk it down, so I could un crate it! about 3/4th the way down the bands that was holding it in place in the crate broke, letting the mover slam to the bottom of the crate, with the most of the weight to the right side, when that happen, it felt like some one had just ran a hot steel rod down my low back down to my foot. so after a few minutes of the numbness went away, i went into the secretary office and told her that i had just hurt my self, and i might of hurt my self bad, she told to go to the doctor, it was close to quiting time so I told her i would be okay. This was on a friday. So when I got home, I took a Shower, had supper and went and laid down in bed, all weekend the pain got worse, so monday morning I went to the Doctor, e did a examine then a xray, gave me some muscle relaxerand some vicoden, but wanted me to take some time off, I mentioed that most likely wouldn't set good with my Boss (something to long to go into) so the next day O went to work, doing my job as if nothing was wrong, eating vicoden and advil and anything else I coild get my hands on. To keep this from being 6 pages long, i will skip a lot, every month the pain got worse and we started more test sonagram, MRI, neorsurgen, he wanted a disc o gram!! I will never ever have another one of them!!! The disc o gram showed L3, L4,L5, we torn. This is where some one got some cash. I went back to the Surgeon, and he walked in and told me and the wife, he had good news, and bad news, He told us, that I needed tri fusion done and I was a perfect canidate for it, because I wasn't over wieght and had good musle tone, the bad news was, he was taking his practice back to his home area, and that he is the only one around that can do a tri fusion! I can't tell youwhat happen betwwen Him talking to my wife and myself and the letter that he wrote to my Doctor saying I needed agressive P.T. Before P.T. I could sit in a recliner and watch TV, after P.T. I cannot! I never missed work unless I had a appointment out of town. I made all my local Dr. appoinments after work. sometime in 2004 my Attroney tells me that I wasn't gpoing to get anymore test, all the surgeon I saw said that tri fusion is a no go!! So i settle for peanuts, but leave my back injury open. In the summer of 2006 the head man decides he has waited long enough, and he changes Work Comp co. July 1, 2006 , on or around late July 3 new marker boards were deliveredto my school, for me and a 98lbs 14 year old boy to hang these, the big board weight was 439lbs, according to my work contract if I refuse to do this I can be let go for no reason, so me and the boy put them up 1 a week, because after putting one up om monday I would lay on the floor paint the Base boards. Come Friday night, I would shower and would not get out of the untill time to go to work Monday moring. In Nov. of 06 we had a big snow, I tought care of 7 acre school. On Dec 18th 06 I fell down going to thr trash dumpster. When I got up I went strait to the docor, where I was taken of work for good, so here we go again, about a year ago I got put on the Fentanyl pain patch, we worked up to the 100mg patch and i was hurting very much, after 2 months, my wife my son, my brother, my dad, all told me that I was going to have to get reduce down on this stuff because I was acting crazy, so we went 75mg. 6 months ago I went to KU med center to see a surgeon, he said nothing could be down except, pain magamnent, KU is 4hrs, Joplin is 38mins, so i told my Doc that I wanted to go to Joplin. He got me a apoitment, and the day before Work comp cancelled it and cut my pay off, back to court W.C. said I was Doctoring myself, my Attroney explained and I got a court order to go to Joplin.The day I got my court order, I took it over to my Doctor office, and had them give it ti the lady how takes care of that. Within hours she called me and said she would get right on it! 3 weeks I had not heard anything, except my wife shouting at me to call over there every morning, so I called, This gal said That I was to make the appointment, and I said, i can't make the appointment, then se said I was on top of the stack, so I said i was confused, you have told me 2 different stories in10 mines. Then she said you are the only one I have to scheudle things for, I was ujp set and said let me talk t the head nurse, within 15 mins, I got a call back with my appointment time!
The next day, I get a registered letter from the Doctor office, saying that they would no longer provide me with medical treament, Now I went to court to get him a my Doc.So I ate crow wrote appolige letters, no luck, so i caught him and told him, I could just go get a Doctor and I couldn't quit the patches, he said you right, so he seen me for 3 more months, but didn't reduce the oatches, one time he up it, so I had to wait to get that fixed, I get a letter last week stated that I have had enough time to get a Doc, I don't think he can just stop precribing the meds, untill he gets me off of it>
Do you? The pamplet says DO NOT JUST STOP USING THIS PATCH, THAT DEATH COULS ACCOUR??
 
 
HELP ME PLEASE
Ace Lungger

ekkorose
Regular Member


Date Joined Jul 2008
Total Posts : 329
   Posted 12/13/2008 6:05 PM (GMT -7)   
Why exactly is he stopping your care? I did not understand. Also, what have you done to find another doctor since you were warned that this was going to happen and how long until you can see them?

Sarrah

Hysterectomy at 25

4 laproscopic surgeries since 24

Cervical stenosis in C3 & C4

_____________________________________________

 

Meds - percocet  3x day : nexium : xanax :

Supplements : calcium : magenesium :potassium : milk thistle : fish oil : B complex : vit E

____________________________________________

In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/13/2008 8:23 PM (GMT -7)   
IMHO
NO you should not be taken off the patch cold turkey

Have you looked for another doc and
did your old doc give you reason for firing you as his patiient
I would think that 3 percocets a ay arte not helping much
BTW who RX them for you if you dont mind me asking.......

Sorry for what you r going thru but there has to e a reason your doc quit you ........
DO you know what it is .....
..........LYN
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
    CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            ~ FIGHT the FIGHT with all YOU HAVE ~
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
..........LYN


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 12/13/2008 9:01 PM (GMT -7)   
He is stopping seeing me, because I up set the lady that was to schudel my appointment! In Kansas unless you want to pay for the Doctor visits your self you have to go in front of a judge, to get a new Doctor, and that has to be done threw mt attoney, and can take up to 9 weeks!
All my Doctor would give me for the first 5 years was vicodin, If a surgeon hadn't told him I need something stronger, he wouldn't of give me the patch. In 1993 I got a uclerated colon, went to a specailest at tulsa, and he told this same doctor, that I was a very nerous person, and that I needed to be on xanax for life, after about 6 months he told me i was doing good and didn't need them any more, because he could get introuble for prescibing me those narcotics! This Doctor was at one time, one of my best friends, untill he sold his practise to a big corp.
I am going to call my attroney again Monday, to see where I stand! I allways told every Doctor surgeon what ever, all I what is to be out of pain, and go back to work. I know I can never go back to work, but, what kind of life do I have lying in bed all the time. He told me last year he was the highest paid practicioner that this big company had.
I think the real truth, he is using this little deal with the secetray as a excuse, so he won't have to go to trail.
If any one can advise me, or tell me something, I would be very great full.
Thanks ACE

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 12/14/2008 2:10 AM (GMT -7)   
Ace,
I've tried to read your letter but it's 1 am and my eyes are crossing.
You are really having some problems.
If your pain is really bad, you could go to the ER and the doctor on call
could advise you what to do. He could possibly even direct you to a doctor
in town or nearby.
You know what the pamphlet says. You know you could get very sick or
worse.
ER will help you.
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 12/14/2008 5:22 AM (GMT -7)   
Pamelon, Thanks, untill i completely run out of the patches in 8 days, i will tuff it out. If I cannot get a Doctor by that time, i will have to go to a er. But What I want more than anything is to be in less pain and off the dope, but I cannot see myself living in the bed the rest of my life!
i still cannot belive some one out there can't help me some how. It seems that Work comp gives everyone such a bad time, no one wants to mess with you, they claim Kansas is the worst state!
Thanks For the Advice!
ACE

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 12/14/2008 11:35 AM (GMT -7)   
We ALL want to be free of pain. None of want to take medication. Please don't
ever call the medication that keeps me alive "dope"
Pamela

ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 12/14/2008 3:00 PM (GMT -7)   
Pamela, I apoligies for my mis use of our pain killers. Is there any doctors that realy care anymore? My ex Doc or what ever, all he wants is the money, but he never went out of his way to help me. I read hear last year there was a doctor in Germany who has made whole new disc, and they are using them in the Us now for about a year, but only if you need one level surgery! The Doctor in Germany is doing lots of multi levels, but He is the only one smart enough to do the proceedure!
If anyone out there has a back like mine, has anyone tried that device that you lock your feet in and till your self up side down? i think they are $250.00. And I would go borrow the money if I knew it would help, they put me in traction one time, it was 4 days before I could walk! I have run out of options, a person can not live on pain meds for ever, and do they give you any kind of life?
I am allways open, to any new information.
ACE

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 12/14/2008 6:10 PM (GMT -7)   
Yes, people can live on pain meds forever. They have to be very careful. I have
no choice at this point of medical inventions. I do believe things will change in the
next ten years ... so hang in there, ace lungger!

People cannot live in intense pain forever.

I've seen that hanging upside down thing. Looks dangerous blood for pressure and
other organs. I sure wouldn't try it unless my doctor said, "It's the best thing
for your pain."

Pamela Neckpain

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 12/14/2008 11:40 PM (GMT -7)   
Ace, welcome. I can't comment on why your dr would fire you over the receptionist... but I would ask him to at least help you detox off the medications you are on. If he still won't help maybe consideryour family dr or the ER for last resorts. Just explain to them what is happening. You should also tell the next person you decide to go to for your new appt that you are currently under care & that you will be having withdrawls before your new appt, is there anyway someone could get you in quicker, or if someone canels could you take their spot? Like I said, consider the ER if push comes to shove, you can at least get some methadone from them. I know I have had to go there when I missed my pain specialist appt (CVS lost my rx on a friday night, so the after hours nurse told me to go to the ER & explain what happened & get enough pills to get me through until I could see my dr) so there might be a way to get the patches through the ER. Or methadone. Keep us posted! -Shannon
RX's: Oxycontin 80 MG 2x's daily; Dilaudid 8 MG 4xs daily; Zanaflex 4mg 3x's daily; Restoril 15mg 1x; Soma 3x's daily; Lyrica 100 MG 3x's daily (pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x (chronic pain); Cymbalta 60mg 2x's daily (pain from fibro); Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 12/15/2008 2:13 AM (GMT -7)   
kttn:
Did Methadone help you through withdrawls?
It took me two weeks to even feel Methadone.
We're all different.
Pamela
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 12/15/2008 7:25 AM (GMT -7)   

The best way to explain, why my Doctor and EX life long friend has turned agaisnt me, is I think he is afraid that he would have to go to trial! This has been over a 6 year work comp case, invovling to Work Comp Co.

  I can not think of any other reason why he has done this! He claims that it is a St. John's no tolerance policy, that is the big Corp he works for! But I don't believe that! Anyone that has waited 3 weeks to get someone to call and make you a a court ordered apointment? And in this phone call, I used NO Foul lanague!!

 It doesn't add up, other than what I have mentioned above! He makes his clinic $1100.00 per hour. He is so busy that I have had to tell him what dosage of meds I take!

At this time, I am, like a lot of you folks, I will have to live on pain meds. But the only pain meds that he has ever gave me, is Vicoden, and then this patch system. He has had 3 months to cut me down to detox, but he was to busy to think about it, since he wasn't cutting the dosage down, I thought he might have decided to keep me, and then BAM, a new letter!!

 i am great full for the help that you all have be giving me! I think it is the stress of trying to cut back by my self and not knowing when I will get a new Doctor.

Maybe I have not explained this, If I go to another Doctor I will have to pay out of my pocket, untill we get a court date and get a Doctor asigned to me! Thats hard to do, on $229.00 a week! Then on top of that, work comp can stop my payment, claiming I am Doctoring myself, because they did this 5 months ago, and that is what started this all! I went to a surgeon in K.C. 4 hr drive one way, he said thatnothing can be done, except go to a pain clinic, ok i said, but I can't afford to go to K.C., so I would do it at Joplin pain clinic.Work comp stopped that appointment, stopped my pay, and it was 9 weeks to get a hearing!

Maybe this has helped clear up where I am comong from!

I am still open for any and all help, or and advice.

thanks ACE


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 12/15/2008 8:59 AM (GMT -7)   
Ace,
It sounds like you've found you're self in quite a quandry. I tried to follow along and understand what's going on but it ain't easy. I know you're upset and rightfully so but you have to calm down and try to get all your ducks in a row. My suggestion is to try to find some free legal assistance or talk to a "No pay no win" lawer. If you are being miniplulated by the Dr. & the system as you say you are, it's not right. I would think if you told any lawer what you told us, his eyes would light up w/ dollar signs. I know Kansas is probably alot different than Florida where I live but right is right. You can't fight these people by yourself, you have tried and look how far you have got!!! Like I said, get your ducks in a row, any and all papperwork and write down everything before you see an lawer so you don't forget anything. What do you have to lose at this point? As far as the meds, like the others said, DO NOT try to get off those patches alone, you are just asking for trouble! If your doc will not help, call around and find someone who will. If you have to pay, them pay, it's not worth dying over and w/ the right legal assistance you will probably get your $$$ back and then some from them cutting you loose the way they did. Doctors are terified of a lawer and a malpractice suits!
Good luck Brother, no one deserves to be treated like that.
Your friend,
Pete
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. Fighting to stay upbeat daily. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive!!! Feel free to pray for me, I can use all the help I can get!!!


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 12/15/2008 2:57 PM (GMT -7)   

hi Pete,

 I have a attroney, he is the busiess Work Comp Attorney in this area, it is our court system. Back loaded?? 9 weeks. I think they only have 4 W.C. Judges in the state? I had 4 nerves fried 3 weeks ago, and although I am still in pain, my hip pain and leg pain had quiet hurry untilll this ice storm came in last night, and we went from 66 degrees at noon to 7 degrees this morning at 5am.

 I have another question for who ever, I want off the patches because, when I put a new one on, When it kicks in I feel okay, but then I don't sleep, the next day don't feel as could as the first day! I have had my wife look at the patches after being on for 48hrs and they are empty! And so the 3 day I am in bed in pain. I was on vicoden for 5 1/2 years and they were like taking candy, is there any pill I can take, when I get up, take the proper dosage, and wear off about bed time!  If I get in bed relaxed most the time, i have no problem sleeping, except, since I have been on the patch. Some people would say why don't you just stay in bed if you are not in pain, I did that for 4 months,and about lost my mind!

Still looking for help PLEASE.

Ace


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 12/15/2008 5:57 PM (GMT -7)   
Ace; First off I would like to welcome you to the HW boards. It is sad to see that someone else has to join us with CP but remember you are not alone. I too had (had being the key word there) herniation's at S1-L5, L4-L5 and a slight herniation at L4-L3. The first two S1-L5, L5 and L4 they did a two level fusion in 2000. I had good results with this procedure and the pain in my legs went away. Well everything was fine until in 2002 I was transplanting my strawberries from the back of the yard to the front of the yard (doc had given me a clear bill of health with the warning to listen to my back and stop when it began to bother me). My back was feeling fine no problems at all until I felt a sharp pain down my left leg for no reason and I immediately called my doctor and he made an appointment for that very next week and a discogram was preformed where they discovered that L4-L3 had decided to herniate. So again I went through another fusion and they took out the hardware from the previous surgery. But this time something was not right because when I woke up from the surgery my left leg still had lots of pain running down it and the right leg too was having sharp pain down it as well. When I explained this to my neuro he told me this was normal and that with time it would go away. But it didn't and within 6 months I was back in the OR undergoing another surgery as the last surgery did not take and the bone failed to heal as well as one screw came undone. After that surgery things progressed rapidly to where I am today. I am back the way I was before the first surgery with pain down both legs, on Morphine, Percocet and a bunch of other medications to help with muscle spasms, sleeping and depression and no end in sight.

Unfortunately there is no cure for our pain. Each of us would like there to be, but there is not a doctor out there that will tell you that there is one. But I wish you well and hope that you are able to find a doctor that understands and can help. I too am in KS but I just moved here. I have WC of WY for my ins. and I have heard many stories of KS WC not being fair to their patients. I don't understand why you are not able to choose your own doctor. Under the WC rules in Wyoming we as the patient are able to choose our own doctors and I believe that is how it should be.

Anyway, I've talked to much here so I will sign off.

Hope to hear from you soon,

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 12/15/2008 6:41 PM (GMT -7)   
Scarred,
 thank you much for your kind words of keeping the faith!
I am sorry that I did come on here sounding like I have it worse than anyone, when I never intened for it to sound that away! At least those of you on here know my pain if not more! is there life living in pain? nothing that I used to do for pleasure can I do now! I am 53 years old, and I still want to make love to my wife, which I can't, I know I will never ride my Harley again, finily decided to sell it. I would just like to smile again!
I don't know what meds I will be put on, if and when I get a new Doctor.
I want to thank all of you for the kind words!
ACE

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 12/16/2008 1:35 AM (GMT -7)   
ace lungger,
I'm on your side. I'm hoping for the best for you. I don't know what you should
do ~ no clue.
I too have given up a lot because of pain. A whole lot! However, almost everybody
who posts here has pain similar to mine and yours.
We help each other. We're glad you're here.
Keep posting.
Sincerely,
Pamela :-)

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 12/16/2008 5:09 AM (GMT -7)   
Ace,
Yes you have it bad, no one will argue that and you have lost alot too, but take it from someone who has been there and back again. You can't look at what you've lost, you have to look at what you still have! I am a twice cancer survivor who thanks God every day that I'm still here to enjoy my loving family and all my friends. I am in constant pain that I try to control w/ meds and keeping my mind busy, I constantly fight the "why me syndrome" and feeling sorry for myself. My bestfriend's wife just lost a miserable battle w/ cancer and I look at the pain he is going through and it makes my problems look like diddley! I'm sorry if I sound unsimpathetic twards you, I'm not. All I'm saying is that you can't give up no matter how bad it gets. There is always light at the end of the tunnel if you fight hard enough! Hang in there brother, You can beat this!
Pete
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. Fighting to stay upbeat daily. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive!!! Feel free to pray for me, I can use all the help I can get!!!


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 12/16/2008 8:51 AM (GMT -7)   

hi all, I will have to agree with all of you! All a person has to do is look around, and there are people that have it a lot worst that me. and there isn't any magic out there to make our likes easier, we have to do that on our own. I just don't think that a person should get less help because it is a Work Comp case, than if you had medical ins. Some how, some way, i will get a new Doctor!

thanks for all the kind words.

ACE


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 12/16/2008 10:16 AM (GMT -7)   
Unfortunately Ace I was at that mind set and still struggle with it from time to time. The "why me" syndrome rears its ugly head and I have to remember that life with pain is part of my life now and I have to learn to deal with all the tough times that are ahead. Alike to you I too have to deal with a bunch of hoops and bull from Worker's Comp and it makes me wonder if there is even a chance for any end to the madness that is now my life. But I am reminded day in and day out that I have on thing that they cannot take away from me and that is....my very breath! I wake each morning and thank God that I am alive. Pain is just one thing that lets me know that I am alive and though I hate and despise it I find ways to keep my mind busy. Which is probably part of the reason I am glad I found this site. Everyone on here has been very supportive of me through some pretty tough times in the past few months as I have taken some pretty big steps in my life (the move to name one). I appreciate each day and even though I know each morning I will wake up in pain I know that some day....just maybe......it will all go away and they will find some treatment that will help all of us CPers to take away our pain.

Until then all's we can do is hope. That's all we have and they cannot take that away from us. Anyway hope this helps.

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 12/16/2008 12:21 PM (GMT -7)   

Scarred, Thanks for the support, and that is what helps keepong me going, is that someday we will all have some sort of life back!

 I have a question to ask to any of you folks that have tried and done the detox off of moriphine, or this that I am on (Fentanyl) Every since I have steched it out another day, the fourth day, the pain is BAD, sick at my stomach, on the pot a lot, very nervous and no food on any of the days taste good or sound good, except sweets!

 Is it just me? or is this normal?

Thanks ACE


mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 12/16/2008 10:25 PM (GMT -7)   
Ace I also use the same kind of patch as you except mine is a 50.Alot of days I am still in alot of pain but I dont want to go up higher Because at this strangth I do not feel weird(Like you do when your meds are to strong).I do not feel as good on the 3 day as the first just like you so I use more Tylanol and Ibuprofin.Thay help a little because you can take both at the same time because thay are not the same drug and work diffrent.I also have to take very hot baths but you have to be careful with this because it can cause your patch to give you more meds. then it is supost to if you get to hot.My DR. told me that your bath water can not be more then 105 degrees.Try to move around some even on your real bad days.If you are like me if I lay around in bed to much it makes me hurt more.I am just starting to get over a bad cold and when I get sick since I got hurt it makes me so tired that I just cant wake up so I have been hurting real bad for the last 4 days.I hope that some of this can help you.I do not know what to tell you about your DR. it all sounds like it stinks.One more thing I would like to say to you is that most people who deal with CP. also have to deal with depression.If you do ask your DR. about some medication for it some anti-depressents even help for some pain it might help you a little. smhair
Lost half of my small intestineJan.2008.Ilieostomy for 5 months then reverst in June 2008,Nerve damage to right leg,part of my right hip bone removed Jan. 2008,Cronic pain,hernia,infection in my back called discites,and depression.Gallbladder removed Nov,2008.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 12/17/2008 3:41 AM (GMT -7)   

Thanks Mom,

 I know excalty where you are coming from! My Doc. took me up to the 100mg. and for the 2 months I was on the 100mg my pain was very liveable for me, but not for my family! They said I was crazy! So I got th Doc. to take me back to the 75mg. And like you are on the 50mg, It is liveable but I am still in pain! The only reason, I am getting off of the patch, is because in this stupid state, dealing with attroney's and work comp, I might not get a Hearing to get approval for another Doctor, untill late Jan.2009. and i don't have the cash to pay for me one out of my own pocket at this time.

 Mom, I hope that someday soon you can get some more relief to make your like better. Almost forgot to tell you, I have been on anti depession meds for years, and since I got hurt, they have tryed at least 8 different ones. they even tryed bi polelor meds.

Thanks for the kind words and advice, it really helps having someone to talk to.ACE


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 12/17/2008 1:33 PM (GMT -7)   
Hi Ace, I too would like to welcome you to HW. I have read your posts and it just makes me sick. I am an old paralegal in Tx that did alot of w/c claims, I worked for an atty that did comp. Of course, our laws changed here too and its pretty much now that you are at the mercy of an ins company to get to see a dr. They took that right away from people in Tx. And of course, each state is different with their laws. Here you pick from an approved list to see a dr then have to be approved to see that dr, just a bunch of BS.
 
I think you are absolutely right. Your dr does not want to pull himself away from his practice to go to trial. It would cost too much money for him to do that. Money is what makes those guys tick. But, if he went to trial on your behalf and did a lousy job testifying on your behalf, then he would hurt your claim more than helping it.So, it may be best he is out of the picture.
 
But the main problem here is, you cannot stop the patches cold turkey-no way. Take the letter you got from him and go to an ER and try to get an ER dr to script you enough meds until you can see a new dr. In the meantime, I would have to make a call to the medical board and turn this guy in and file a complaint against him. I would then call my atty and insist he step in and assist you in any way possible. You need to let him know about the narcotics being discontinued with no notice. You must do this.
 
Please keep posting, the people here will give you as much moral support as possible. Good luck & hugs, Susie


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 12/17/2008 4:14 PM (GMT -7)   

Straydog, your right and i do have plans on that part, but I am going to let this play threw, i think I found a doc. that I can go see, and show here my last scripts and pay here $54.00 a month untill I can get a Doctor appionted to me. That is what W.C. wants, they have there doc's that say how high, when they say jump! The crappy thing, about all of this is, they want to evaluate you on your injury and pay that percent!! Lets say they determiter you are 25% disabled in your back! Thats BULL, your whole body depends on your low back, it supports everything! Without balance, what can you do? If you cannot stand, what can you do, if you cannot set in one place over 15 mins, what can you do? If you can't walk over 100 yards with out wanting to scream out in pain, what can you do? If a work comp doc tells me I am 25% disabled, I am going to look him in the eye, and say, I hope you have your mal practise ins. paid! $ spine doctors have stated, there is no surgery that can help my back! the last work comp Doc I had, when I hurt my back the first time, told me that I needed agressive P.T., that is the only thing that could get me out of pain, and he said, I hhate to say this, but there is only one P.T person that can do the job, and that is my wife! I went 3 times a week before work, when she would get threw with me each time I could of bite nails into, so I can to go buy street vicoden so I could keep working, after the friday work day was over, I came home bathed and went to bed for the weekend!After 2 weeks, i wrote up a legal affadavit stating that work Comp is demanding me to go threw this, but I want to go on record stating it was making me worse, and I ask the P.T. to sign it, see left for a mintue and came back and said that her boss would not let her sign it> And I said bye! What I would like to know, is, if you were a 53 year old male 5'10" 153lbs, and you no longer can make love to your wife because of the pain! how much is your life worth?

Thanks ACE

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