Pain pump advise

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denkat05
New Member


Date Joined Dec 2008
Total Posts : 4
   Posted 12/19/2008 5:50 AM (GMT -7)   
Thanks Straydog on your advise. I did find some earlier post on the pump. I have 5 degenerated disk and 3 herniated. I'm 62 years old and have several pain problems. I have been on pain killers for 10 years and suffer from severe constipation. I take 3 Dulcolax tablets every 3 days for the past 4 years. I was wondering how uncomfortable the pump is as I like sleeping on my stomach? Guess that would be a small price to pay considering all the pain I have been through. Also is another question and that is I do suffer from migraine headaches and was wondering how it affects those? I did read where some had spinal headaches from the pump. I had vein replacement last year and has left me with severe pain in my right leg. My walking distance is down to 20 feet now.
Thanks again
Denkat

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 12/19/2008 12:32 PM (GMT -7)   
Hi Den, man with a back like yours how in the world do you sleep on your stomach?,lol. They say we shouldn't ya know if we have back problems. I have had my pump now a little over 3 yrs and I sleep on the side my pump is on with no problems, so I feel certain you can sleep on your stomach without any problems. That is once you have healed up good from the surgery. As time goes by Den, you start forgetting about the pump, only if you bump something with it. My pump is on the right side of my stomach above the waist line.
 
My problem with CP stems from my back too, although I do have pain in other areas. The pump is designed to slowly drip the medical in the intrathecal space where the pain receptors are located in our backs and send the pain signal to the brain. Your back will be what your pump is actually going to relieve pain from. It will do little good for pain in other parts of your body. Such as if you get a migraine h/a your pump will not take care of it. My dr gives oral meds for BT pain and please be sure your dr does the same, along with a good muscle relaxer. Word of caution, there are many drs who believe BT meds are not needed with a pump and that my friend is pure BS. I rarely take oral pain meds because I wanted off that bandwagon of clock watching and rely on my pump 99.9 per cent of the time. Now, if I fall or something like that then I will take a pain pill. Most of my pain now can be managed with a muscle relaxer. You are not pain free with a pump, its just to help us get the pain down to a more tolerable level and get us functioning again. Believe it or not, you are on much less meds with a pump than what you take orally. Mainly because the pump meds are concentrated whereas pill form its not that way.  
 
I have a long history of migraines and passed them on to both of my children. My poor son has them really bad and has since he was 8 yrs old. He goes thru the projectile vomitting the whole bit. I have not had any spinal h/a associated with the pump placement at all. I read on here one lady's horrible experience with the trial and she is the first one I know of that had any problems, but I am not saying it can't happen either. I think alot of it goes back to the person's previous history on things like that. I am sure thats one of the possible side effects. But you keep in mind, when this stuff is still being tested before being out on the market, if one person complains of a h/a or whatever, the FDA forces the companies to list this as a potential side effect.
 
I can only tell you, I had reached the end of the road with oral pain meds and had only one good choice left and it was the pump. I do not regret making that choice either. It has given me much of my life back, something no pain pill could do for me. Oh, I have my goods & bad days, its not all roses, but, much, much better than what I had before, well worth it. It sounds like you are about at the end of the line too, so hopefully the pump will help you. I know many people w/constipation did better after the pump. I can drive my car, go to the grocery store, run errands, but I may space this out over a couple of days as to not wear myself out. Last night I did some shopping at Walmart in the toy depart and spent 2 hrs doing that, that was unheard of for me before. Today I will do some Christmas shopping as well for a couple of hours. I do walk with a cane and                                                                                                    whenever in a store I do use one of their carts, mainly so I have something good and stable to hold onto while walking. I also have a 3 yr old grandson that keeps his Granny very busy and I am able to play with him and enjoy things with him. He & I rode a train for an hour one day and I did fine. His Pawpaw dropped us at the train depot then drove to the next stop and picked us up. That little guy was walking on air.lol. He loves trains.
 
I have a slight bulge on the side where my pump is, but with a shirt hanging out no one has a clue I have pump in me. Over time you just get use to it and do not ralize you have one in. If you think of any other questions, please post and I will answer you if I can. Susie
 
 


denkat05
New Member


Date Joined Dec 2008
Total Posts : 4
   Posted 12/20/2008 1:18 PM (GMT -7)   
Thank you very much Straydog. This has been most helpful in my decision to get the pump. I figured it would not help me in other areas of pain as my other half was being considered for a pain pump also for nerve pain in her face do to a surgery she had. Most all of the doctors she talked to said it would not help that. If I could get just 50% pain relief and get rid of this constipation problem I would be happy. The biggest problem with the constipation came after surgery to the colon to remove diverticulitis protrusions that were bleeding. They took out 6" of the colon and put in a plastic ring. I had problems before but never this bad. I spent many months with the GI doctor trying all kinds of different medicines to help. He finally dismissed it as a lazy colon. Another doctor said that is what they say when they don't have a clue to what is going on. As for migraine headaches I have given up on that after spending 1.2 million of my health insurance money and 2 years in the hospitals. It is a very long long story. This is where I went on disability in 1988. Since then I have had two heart attacks and a triple by pass. Not going to bore you with all my health problems, besides it would be like writing a book LOL.
Will let you know how this turns out in a few weeks.
Thanks again for the info.
Dennis

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 12/20/2008 4:02 PM (GMT -7)   
Hi Dennis,
 
Glad to be of help any time. OMG 1.2 mil for treatment & hospitalizations for migraines. Man you could have had a lobotomy cheaper than that,lol. WOW, still sitting here letting that one soak in.
 
I forgot to ask you, have you had the trial for the pump yet or is that in the works? When I had my trial, I truly thought I had died and gone to heaven, no pain, none, nada. But, when you have the pump put in you don't feel that way at all when you wake up, not even close to it. They will start you at a low dose in the pump and give you increases until you are at a level that both you and the dr agree on. Ask your dr if he/she give increases in the beginning every two weeks. My dr did and that way you are left hung out to dry if you are having a lot of pain. My dr normally increases the pump 20% on each visit, however, due to other health issues, he would only give me 10% increases. I was fast approaching a yr into my pump and really not doing that great and I finally told him on a visit that maybe I had made a mistake having the pump put in because I did feel my progress had been all that great. That was the magic words I guess, next thing I knew my pump is being increased 20% and every two weeks he increased it more. Once we got the doseage taken care of it made all the difference in the world.   
 
Please keeo posting and let us know how you are doing. Susie


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 12/21/2008 12:42 AM (GMT -7)   
susie, how bad is the surgery? is it an overnight deal? in a hospital or oupatient? denkat, i suffer from diverticulitis as well. i know how expensive it can be. the first time i was in for a week & it was a $30,000 bill. between the catscans, gi, meds & chicken broth. lol. it can be painful. i have major constipation as well, and i know it dosen't help at all. i still catch myself everytime i want to eat strawberries or popcorn. i miss those things so much.
RX's: Oxycontin 80 MG 2x's daily; Dilaudid 8 MG 4xs daily; Zanaflex 4mg 3x's daily; Restoril 15mg 1x; Soma 3x's daily; Lyrica 100 MG 3x's daily (pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x (chronic pain); Cymbalta 60mg 2x's daily (pain from fibro); Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


popsie
Regular Member


Date Joined Aug 2008
Total Posts : 271
   Posted 12/21/2008 11:25 PM (GMT -7)   
Hi guys,
I have MS and had pain everywhere. Could not lie,sit, walk or stand without 10/10 pain. The worst was pain on surface of skin beyond 10/10. But the pump with just baclofen fixed it all even the skin pain which the drs said that it wouldnt fix. I have now had it a year & best of al it has continued to fix other longstanding pain that it was not expected to fix so that now I am totally pain free. It has been positively miraculous for me. Here I spent a week in hospital, & had no headache.

Took a while but now I can lie on left side where it is though I mostly lie on my back. Wish you every success & no more pain. Happy holidays smilewinkgrin smilewinkgrin
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995.
Row, row, row your boat gently down the stream
Merrily , merrily, merrily, life is but a dream


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 12/23/2008 12:38 PM (GMT -7)   
Kttn the surgery is not that bad its like any other surgery as far I am concerned, but then I have had several,lol. Mine was done as an out-patient, I am not sure about it being an inpatient procedure, probably depends on your insurance. Because of my crohns medications it affects my healing abilities, I do not heal like a normal person. I think they give the overall six weeks recovery time. Of course, the longer you have the pump the less you notice it. Most of the time I forget abut mine unless I hit it getting something out of the washing machine. I am short and my machine is deep and I have to tippy toe getting stuff out of the bottom of the washer. Susie


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 12/23/2008 1:02 PM (GMT -7)   
I am 5'1 so I understand being short.. everything is reached with thongs! :) I appreciate all the info you have answered for me about this topic. I know you have spent a long time with my questions & answered many others as well. I wish we had kept our original post running! Thanks again..... hope you are having a better day today!
RX's: Oxycontin 80 MG 2x's daily; Dilaudid 8 MG 4xs daily; Zanaflex 4mg 3x's daily; Restoril 15mg 1x; Soma 3x's daily; Lyrica 100 MG 3x's daily (pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x (chronic pain); Cymbalta 60mg 2x's daily (pain from fibro); Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil

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