Nerve Pain In Both Legs Getting Unbearable...Depressed

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drjimmy
Regular Member


Date Joined Dec 2008
Total Posts : 110
   Posted 12/28/2008 11:56 PM (GMT -7)   
I am SO tired of this crap! I can't stand it all day/all night every day, no break, no relief. I'm a 39 year old male, with herniated disks, stenosis, upper and lower neuropathies for which I have had 23 operations (11 of the surgeries were for my knee). I'm already on 130 mg MS Contin and Percocet 10 MG 4 times a day, but nothing is touching my pain. Now the latest thing is I wake up numerous times per night with real bad pain in my buttock/hip/thigh area. If I was sleeping on my right side, I am awakened with the pain on my right side. So I roll over to my left side, only to be awakened shortly after with the same pain on that side. So I try laying on my back, but that just causes other pains (Low back and down the legs to the calf). Throw in my almost constant nerve pain in my groin and both testicles, running down my inner thigh. I'm running out of sides to lay on! My dr wanted me on Oxycontin and Percocet, but my insurance co. wouldn't pay for it. So they made me try MS Contin first and then if that didn't work (Which it hasn't) I'm to move on to the Fentynyl patch. If that doesn't work, then they will approve the Oxycontin. I just love jumping through hoops for the insurance company, just to get the darn pills my dr wants me on. I've always been told I'm a fighter and that I always overcome the pain. But it's gotten real tired and old. I don't want to fight all day every day anymore. I only do it for my wife. I love her with everything that I am and she's the only reason for me to wake up at all each day. She is my strength and my soul. She is also disabled with multiple herniated disks, stenosis, radiculopathy, diabetes, etc. She is in a wheelchair for anything more than a few steps. I'm her only caregiver. She depends on me for everything. I don't know where I would be or what I would do without my beloved wife. Sorry to rant so much, but I'm up late in pain and have nothing else to do. Thanks for listening.

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 12/29/2008 2:51 AM (GMT -7)   
drjimmy,
I have lots of pain too. It has increased terribly just lately. My husband and I are
retired and the stock market problems just wiped us out so we have to move. We're
in the middle of a nightmare house move.
It's so cold out. Our new place is all tile floors ~ so cold. cold. So cold.
I've been carrying my pain for 6 years.
It sounds like neither of us is doing too well with our medications. The Methadone and
Morphine Sulfate are getting me no place.
My husband of 38 years is what is keeping me here and watching my meds carefully.
After all those years love changes but it doesn't get weaker. Not real love.
Your wife will keep you fighting. I'm fighting because I do not want to leave my
husband and he does not want me to leave.
I tried Oxycontin three years ago. It didn't help! Even though it didn't help it was
Hell going off of. So with that warning ...
I've heard a lot about the pain pump. God, it would be so difficult for you to adjust
to one. I sure can't do it now. Actually, I'm so afraid of them I may never make
it to the procedure.
Look at your wife. See the love. Carry on.
I will look at my husband. See the love. And carry on.
We have to.
I will look at your pages tomorrow. I'd love to find out more about that.
A little tiny bit of extra did make me sleepy. Maybe I'll sleep tonight.
Maybe I'll be still long enough not to bother him.
e-mail if you like. IM same address.
Pamela
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 12/29/2008 4:31 AM (GMT -7)   
Dear drjimmy; I can feel for you hun for I too have all the symptoms that you have described. Cannot get comfortable on any side as I lay on one side for awhile and I get terrible pain down one leg then I switch to the other side and within minutes it begins to hurt as well. If I roll to my back both sides of my legs hurt usually down the sides of the legs but sometimes down the groin clear to the inner thigh into the knee. I too have a supportive spouse that has stood by me for the last 8 years through this horrible situation and he has been very understanding through the years. Two days after I messed up my back he herniated his back (or so the doctors told him) and had to stay home for many days in excruciating pain. But with him his pain healed and at times I found myself hating him for that very fact but since then I have gotten over that fact and am ok with it now and feel a bit foolish for being so selfish.

Anyway, I am on several medications for my pain and I wish that I did not have this horrible pain twisting my life into a wasted shrinking mess. I take the same amount of Percocet as you and it does not touch my pain either. My Kadian (morphine ER) does quite well with at least knocking the edge off and I wish that I could bring my pain down many many degrees then what it is.. Anyway, sorry I am whining on about me...I am up at 3:30 am and this seems to be a daily event lately.

I commend you for taking care of your wife with your pain being so horrible and keeping your faith in check. It is refreshing to know that there are people out there that help others even though their in pain and that your wife has you around to look after her. She is very lucky to have you around. Keep leaning on one another when you are both having bad days and I truly hope you fine the answers that you seek.

Many best wishes.

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Temazapim, Lunista, and Robaxin.


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 12/29/2008 5:33 AM (GMT -7)   
Scarred.
Somehow it helps just a little bit to know that there are others out there
in the world who aren't buying champagne & chocolate covered strawberries.
We won't all be dancing the two-step in our tinseled mini dresses with
our hair flying free about our face. We won't all be clinging to the arm
of Prince Charming.
It's 4:30. am. I've actually been SLEEPING. But now the pain is back. I'll make
some coffee and watch TV and with some luck get a little more sleep before
the AM.
This seems to be the winter of pain for many of us.
We're lucky to have one another. I think.
Pamela Neckpain

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 12/29/2008 8:56 AM (GMT -7)   
Yes Pamela you are not alone hun. My days and nights are totally messed up because of my pain. It irks me that we have to suffer every winter with the pain my friends but what are we to do? We cannot just lay down and give up. So we must muddle through once again. I would love to get one single night of uninterrupted sleep but I just don't see that happening for not only is the pain bothering me but I am also struggling through "The Change of Life!!" Yes apparently dearest mommy did not tell me how horrible this affliction was. So on top of my current pain concerns I am dealing with Menopause which I will have to deal with for the next 10 years if it lasts in me as long as it did in my mother.

*sigh*

Well.....so much for 2008! ha ha ha ha

Scarreedddddddd
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Slight herniation at L2-3 but Neurosurgeons will not operate because of previous failed surgeries. Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Lunista, Topamax and Robaxin.


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 12/29/2008 9:02 AM (GMT -7)   

drjimmy, Bud, you are not alone, even though every day you think you are. I am 53, and feel blessed that I am not 39, I got hurt when I was 47,  I feel your pain!! Living 24/7 in pain is the worst thing I think any of us go threw!! I wished I had answers for you, but I don't!! I did get rid of some of my leg pain by going to a pain clinic and having 4 nevres fryed on my right side! I am not going to go into my problems, for to long a story, you can go back 3 pages and read my story if you want? I like you, live for my wife! There are no magic fixes!! The only way I got any relieve was the Fentanyl system and had to go to the 100mg patch to get there! But there were complications! My pain was a lot less, but my family couldn't stand me, they claimed I was cazy and no doubt I was!! Although I could not see it, all I can tell you is I wasn't in pain! But how long would that of lasted?? That as big as they make, as far as I know? I cut back to the 75mg and had 2 of the 3 days with liveable amount of pain with the help of some other meds, I still couldn't injoy life, couldn't do anything!I had a mishap and lost my doctor over it, and at least he is helping detoxic off the Fentanyl system! I will tell you it isn't any fun! Any narcotic you take you will allways need more. I myself only get out of bed to do things I have to do!! It has helped me on my smoking, we don't smoke in the main part of the house, we only smoke in the wash room, and I am in so much pain, i would rather lay in bed than to get up and smoke!! I have smoked for over 40 years!

I wished I could give you advice, but I don't have any for you! Hang in there, and do as I do, pray that they can come up with something that will help  all of us that live in pain!!!

ACE


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 12/29/2008 12:06 PM (GMT -7)   
Ace; the doctors are doing a radiofrequency nerve ablation? How often are they doing this and is it working well? The reason I ask is because when I went in for mine they told me that they could only do this twice a year tops because it can cause nerve damage if done to many times in a year. Unfortunately the procedure did not work for me and if they would have put a cath in and fed me the numbing medicine through the cath I would have had no pain at all down my legs or in my back. I got maybe two hours of relief until the numbing medicine wore off and then the pain returned to a screaming.

Hope you had better results.

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Slight herniation at L2-3 but Neurosurgeons will not operate because of previous failed surgeries. Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Lunista, Topamax and Robaxin.


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 12/29/2008 2:18 PM (GMT -7)   
Scarred, that is what they told me, the steriod shots didn't help a bit, I had that done 3 weeks before this other. when they did the right side i ak them to go ahead and do the left side also, but laugh and said they couldn't , but that Doctor wanted me to so see another nerosurgeon, but with my sistuation with loosing my Doc. i am going down the river the wrong way and no paddles!!
It is a 50/50 split for me, April threw Sept I get 2 out of every 4 days 3 hours aday out side maybe in the shop sitting doing leather work, I mowed my lawn last year but i won't be able to this year! From around the first of Oct. untill the first of march I won't get out of the house 30 times and that will be to go to the Doc or tretment or some type of buiness I need to do. The biggest problem for me is that my case is Work Comp, so there isn't a doctor that will stand up and say, we need to do a malo gram to see if there is anything else we can find wrong and maybe fix! 6 years, 69 days ago, a malo gram was ordered and turned down. Attroneys don't like to go to trail, takes to much of there special time, but i have made up my mine that there has never been enough testing done to properly evaluate my proplem! So i want to go to trail if I come with zero, what does it matter, they have done proved that they can do anything they want and get away with it!
Later ACE

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 12/29/2008 3:57 PM (GMT -7)   
So you had one done on the left and then three weeks later they did the right? That sounds reasonable for them to do that. I was just worried that they had done the same side more then once every 6 months. I was told that this is not feasible to do as it will cause problems. I have heard that KS WC is the worst in the US. It is well for you that you have an Attorney to help you with your case though and I would speak with him about the Mylogram as this is wrong for them to deny you access to this test for nerve damage. It might be that you will have to take them to court to get the procedure done and IMHO I think it is worth the added steps to get the procedure done because they might find something that would explain your pain and maybe be able to fix it. Or at least re evaluate your current medications and put you on the right ones to decrease your pain.

Anyway there is my opinion hun. Hope you have a lessen pain night.

Scarred

P.S. I was not trying to make you upset Ace and I hope that you do not feel that way. I just do not understand some of these states and their WC rules. I just moved to KS and have heard some pretty horrible horror stories about your WC around here. It appalls me to think that CPers have to go through so much just to get some kind of relief from their pain in this state. So I am on your side and if there is anything I can do to help you let me know and I'll try to help. What is really weird to me is the fact that KS WC requires its patients to go to doctors that they say they can go to. Whereas in Wyoming we are allowed to choose the doctor that we want to see. In fact I placed a post somewhere around here where I said that our WC was being revamped. I have spoken with the state Senator that is heading up this project via email and told her my situation and she has assured me that they are going to be changing the laws in Wyoming to where I might get a better shot at the Stimulator then I would have without these rules that are in affect right now. So we will see how things go.
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Slight herniation at L2-3 but Neurosurgeons will not operate because of previous failed surgeries. Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Lunista, Topamax and Robaxin.

Post Edited (Scarred_for_life) : 12/29/2008 4:07:32 PM (GMT-7)


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 12/29/2008 5:21 PM (GMT -7)   
No problem Scarred, But to put the record strait, the first time, all they did was steriods shots, that didn't help a bit! they only fryed the right side!
Later
ACE

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 12/29/2008 5:41 PM (GMT -7)   
Ah, now I understand. The steroid shots never did work on me either.

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Slight herniation at L2-3 but Neurosurgeons will not operate because of previous failed surgeries. Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Lunista, Topamax and Robaxin.


drjimmy
Regular Member


Date Joined Dec 2008
Total Posts : 110
   Posted 12/30/2008 2:35 PM (GMT -7)   
Hey, sorry it took me so long to respond. I thought I had the setting where they would email me if anyone responds to my thread and I got no emails. Today I decided to check out the page and I found many replies.
Pamela, Scarred & Ace, it's great that we each have spouses that love us unconditionally and are there every step of the way. Without this, I would REALLY be lost. I tried Methadone about a year and a half ago and I too became an angry mess. My wife and family tell me that I looked stung out, was quick to anger, etc. Plus it wasn't helping the pain much, although I didn't give it enough of a chance because of the nasty side-effects. I've heard people swear by Methadone as the only med that really helps the pain. Maybe I'll try it again sometime. My next step is to try the Fentynyl patch along with my Percocet 10 MG 4 times daily. If that doesn't work, then I'm onto Oxycontin and Percocet. I want my pain doc to do the radio frequency on my nerves, but he wants to try these other meds first. Pamela, yes let us both continue to lean on our spouses for love and support. In a way we are truly blessed. Scarred, I wonder what the difference is between MS Contin and Kadian? Both are extended release Morphine, right? Is one stronger than the other? Thank you for your comments about how I take care of my wife. We take care of each other and that's the only way to go. I love taking care of her...It makes me feel I have some purpose in life. Other than that, I feel pretty useless and a waste of space. My wife gives my life meaning. Sounds like you too have a greatspouse who is supportive. That's great! Ace, even though I wish that no one had to live with pain the way that I do, it's somehow comforting to know that I'm not alone. That there are many others that are going through what I'm going through and that hopefully we can all be there to support one another, like a support group. I'll read your post about your situation as soon as I can. Anyway, thanks again Pamela, Scarred & Ace. Let's all hang in there and beat this thing! Byeeeeeeeeeeee Eric

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 12/30/2008 4:29 PM (GMT -7)   
drjimmy; it was great hearing from you. I am so glad your doing well and that you are holding on as best as you can. The Kadian and the MS Contin is pretty much the same as far as having the same kind of morphine to it. The Contin I had a allergic reaction to don't know why and got a bad rash so they put me on the Kadian which I must say is working quite well taking a bit of the edge off (or at least a bit of it). Its quite nice that my husband takes care of me unconditionally without any asking. I have never asked him once to do anything for me but yet he has always been the one that took the lead and made sure I have been taken care of and I love him very much for that. Anyway, hope you have a LPN.

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Slight herniation at L2-3 but Neurosurgeons will not operate because of previous failed surgeries. Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Lunista, Topamax and Robaxin.


drjimmy
Regular Member


Date Joined Dec 2008
Total Posts : 110
   Posted 12/30/2008 5:01 PM (GMT -7)   
What's a LPN?

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 12/30/2008 5:19 PM (GMT -7)   
lpn = low pain night

drjimmy
Regular Member


Date Joined Dec 2008
Total Posts : 110
   Posted 12/30/2008 5:46 PM (GMT -7)   
lpn = low pain night
AHHHHHHH!! Yes that sounds like an AWESOME term! Thank you Skeye for the definition and thank you Scarred. Hope you and everyone likewise have a lpn.

Damaged
New Member


Date Joined Jun 2009
Total Posts : 1
   Posted 6/21/2009 3:52 PM (GMT -7)   
Hi, I am a 26 yr old male, I am in soooo much pain, I don't know what to do with myself... I have been injured twice at my current job, they are "supposed" to work with me when I return, but they won't. My manager put me in another position that hurt me worse than the first time. I have been out this time since March 11, 2009 and not seeing very good results. I cannot sleep at night, I have tried sooo many different positions, even got a new bed, nothing seems to work. The only way that I can sleep is if I drug myself, but then I feel even worse when I get up! My MRI portrayed quite a mess, L4/L5 tear: stenosis: DDD, herniation and others. I have received two shots with terrible results, the first one seemed to help a little bit, that was my first injury back in July of '08, but the doc I was seeing sent me back to work right away and here I am, much worse off, anyhow I received my second shot on April 26, the doc that administered the shot hit a nerve, my body went into shock, they almost lost me on the table. The doc and his staff assured me that this is "normal?" I don't think so, after that I have been in much worse pain, the nerve pain, oi vey! My left foot feels like it's on fire, spasms, pins and needles, shooting pain down left leg into my groin, cramping, loss of control, and at times I can't feel my leg nor can I wiggle my toes, very scary! I am scheduled to go in for an EMG tomorrow then a hip MRI. My insurance comapany(s) purchased an EMPI unit for me, doesn't seem to help, I'm on Percocet, helps my back pain but not the nerve pain. My doc wanted to put me on Nerontin, hell no!! That's what I told him, my previous episode, my doc put me on that stuff and I had a terrible allergic reaction, ended up in the ER, so now what??? I can't walk, can't stand up straight, can't sleep, ***!!!!!
I am sooo depressed, angry, and wiped out. My wife is very understanding, but she is quite stressed as she was recently laid off, I am being well compensated, but as the saying goes, "all good things must end." I don't know what were going to do if my job decides to "medically lay me off." If the doc that gave me the shot is responsible for permanent nerve damage, I'm gonna sue him for pain and suffering, what an ordeal. I'm soo tired.

~Damaged

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 6/22/2009 6:58 AM (GMT -7)   
Damaged welcome to HW... You can start your own thread if you like thisone is pretty old. Then you will get alot of support and advice from other who deal with pain on a daily basis. Everything you posted most of us has been through if not all.

Chronic pain can and will cause some sort of depression. Just having to deal with pain everyday can fray someones nerves to shredds.

I also have nerve pain and its something that drives me up the wall. Even on my current pain meds they dont' seem to work on that pain. So please post a threat in Chronic Pain forum and you will be welcomed into our family. You will recieve support from all over any issues even off topic.

Laurie
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/22/2009 10:57 AM (GMT -7)   
Hi Damaged,
 
     Welcome to healing Well Community *huggs* It is very very nice to meet you. I do hope you decide to stay and hang out, I think, you will find, that most of us have similar problems. I think all of use have nerve pain, the major nerves that run down the leggs are a very hard area to get under control.
 
My MRI portrayed quite a mess, L4/L5 tear: stenosis: DDD, herniation and others.
     
 
    Most of us use/have used,  Pain Management Doctors. Mine in is also spine specialist. he takes ever so good care of me. I too get injections.. but I get them on a regular basis and they are part of a very detailed pain management programm as I am so young. My "start-up" took a lil over 3months (we tried many diffeant types/area injections.. took a while) , and my "whole life" treatment took a lil over 6months. Not as easy as you would think, to re define yourself... AND! Depression is very very common. Completly normal, and your pain management doctor will know exactly what to do when you mention it to him.
 
If the doc that gave me the shot is responsible for permanent nerve damage, I'm gonna sue him for pain and suffering, what an ordeal. I'm soo tired.

  Im not sure about nerve damage from shots? Ive heard of partial burns on those whole qualify to try / use nerve ablation. Not on shots thou. I bet someone knows what your talking about thou whis place is a wealth of knowladge. I myself have had a reaction like you described.. but I was in labor getting an epidural.. she missed, i was mad at time but later we find out ive got a nice case of levoscoliosis *shruggs*
 
     How long have you had sleepless nights? are you awake whole time or sleeping and waking? Seems to me that another common aspect we all have is sleeplessness, thou all in differant ways. Some stay up all night, some toss and turn, some wake and sleep in intervals... but everyone seems to share the same burdon. If you brought that up, I bet your doc could help? Hopefully.
 
     *huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood

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