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justme1403
Regular Member


Date Joined Jan 2009
Total Posts : 22
   Posted 1/2/2009 1:40 PM (GMT -7)   
Hi,
i am 19 yrs old. i have been ill the last yr! :( at first i had tonsillitis for a month last december and it i felt terrible for ages. then a month later during a run i felt like i couldnt breathe properly and was struggling to breathe in fully. the following months i had central chest pain and was making me feel tired all time with no energy and no pain killer was helping. i saw my gp who said i had costochondritis, and was given painkillers which didnt really help that much. i went back to see my gp in april who said i had a fever, chest pain, high blood pressure, high resting HR of 115bpm, i was referred straight away to hospital where they did chest x-ray, blood test/pressure, ecg's. no problems, but was referred to see a cardiologist. the cardiologist told me to have an echocardiogram, exercise stress test and pulmonary function test. these showed that i had pericarditis. in september i went back in and was told all results were normal and the pericarditis has gone! however i was still experiencng gradual sternal pain and my left lower ribs are tender and i get sharp pain there every now and again, and was then told i had post viral syndrome!
 
has any one got any ideas why iam still getting pain?
is the tonsillitis, costochondritis, pericarditis and post viral syndrome related? and why the pain just wont go?

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/2/2009 4:24 PM (GMT -7)   
Hi justme,

Welcome to HW, this is a really great place to come for support & ideas. Unfortunately, I don't have any experience with your conditions, although there have been a fair amount of post about costo recently. I'm not a doctor (in fact I'm just a couple years older than you), but I don't see why everything you have gone through can't be related. Even though we know a lot about the body & medicine, we certainly don't know everything. There are a fair amount of us on here who suffer from pain that was initially started by an injury, etc, but the pain has continued on & the doctor's can't give us a specific diagnosis, they just give us theories at best (unfortunately, I'm one of those people) because either we don't know enough or our instruments aren't sensitive enough to register the problem. There are other people who have completely unexplained pain & no one knows why. Have you talked to your doctor about these conditions possibly being related? I don't know if there are any tests that you could look into that could explain all or some of the things that you have gone through, but it might be worth looking into.

I wish I could take your pain away, take all of our pain away, but unfortunately it isn't that easy. cry Pain is a pretty complex thing. It would be so much easier if everyone's pain was the same & everyone's pain responded the same! Have you looked into seeing a pain management doctor (PM)? They not only prescribe meds (although from what I've learned, some don't), but they do procedures like nerve blocks & injections for pain relief. Maybe something like this would be helpful to you. These docs also tend to know a lot more about pain & treating pain than pcp's do (although that isn't always the case).

I know how frustrating it can be not to have an answer & how horrible it is to live with constant pain! I wish I could help more, but as I said, I don't know any specifics about your conditions. Hopefully someone with some more experience that me will come along and respond to you. I hope you are able to find some answers & get some relief. Keep posting.

Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/2/2009 4:47 PM (GMT -7)   
Hello, Justme,
I wanted to welcome you to our forum, but unfortunately I don't have much more to add to skeye's thoughts. You have so much going on. I would just encourage you to keep seeking answers from your doctors. I've heard things about a virus that gets lodged in a strange area of the body, and that it can take a long time to heal, but I don't know if this is the case for you.

Have you tried going to a teaching hospital where they specialize in complex cases? I don't know if that would help or not.

Wish I could be more helpful, but we sure can be here for support.

PaLady

justme1403
Regular Member


Date Joined Jan 2009
Total Posts : 22
   Posted 1/3/2009 7:49 AM (GMT -7)   

Hi guys thanks for your support and suggestions!!!

i have an appointment with my doc next week, so hopefully ill get some more answers! i also have physio aswell to try and find out more out the pain, aswell as rehab, because i havent been aloud to do any form of exercise incase it triggers something. but with the rehab ill hopefully get back into a regime, however at the same time its painful and hard to take deep breathes. (this is partially coz of being unfit and tired, but also because of bad posture as i was a national swimmer in which i have broad shoulders and back muscles) lol 

ill keep you updated and hopefully ill start to improve this yr!!!

x


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 1/3/2009 8:38 AM (GMT -7)   
Welcome JustMe to the chronic pain forum of Healing Well. So glad you found us and that you have posted.

Sorry to hear what you have gone through. Seems to me that the pericarditis has left you with this viral syndrome, which takes its time sometimes. But I feel certain that the pain will dissipate in time. It is very hard to be in such pain for someone so young as well. Please hang in there and keep positive. I don't think this will last forever.

Gentle Hugs,

Lindaloo  :-)
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


justme1403
Regular Member


Date Joined Jan 2009
Total Posts : 22
   Posted 1/3/2009 11:48 AM (GMT -7)   
Yh i hope it goes soon.
 
i feel like i cant pick myself up sometimes, specially having all these problems in one go!
 
do you think it is a underlying cause, because of what iam still experiencing or do you think its just my body working overtime to fight everything at once!
the pain i get seems to be exactly what i got from the costochondritis and the pericarditis because of the position? but because pericarditis was ruled out, could i still have costochondritis? how long does it last for?
 
i have tried paracetamol, diclofenac, cocodamol, ibruprofen , naproxen, plenty of times throughout the yr, any other ideas that can relieve pain?
 
x

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/3/2009 5:00 PM (GMT -7)   
justme,

That is interesting that you were a swimmer. I used to swim at the senior national level (until I destroyed my shoulders).

Skeye

justme1403
Regular Member


Date Joined Jan 2009
Total Posts : 22
   Posted 1/4/2009 3:56 AM (GMT -7)   
Skeye,

wow, how long did you swim for? how did you destroy your shoulders?

i was a swimmer for 12 yrs and national standard for 6 yrs! i had to stop coz my mum was ill.

Justme x

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/4/2009 10:09 PM (GMT -7)   
Hi justme,

I swam USS from 5 to 15, when I tore my labrum in one of my shoulders. That forced me to stop USS (which was devastating, since I would have loved to keep going & have gone to Olympic Trials this past year, I wasn't all that far off from it when I had my first injury & I hadn't reached my peak yet -- although if I made it to trials, I'm sure there would have be about a 1% of actually making the team, but it would have been a lot of fun just to go to the meet). I was stubborn & decided to just swim for my high school & ended up pretty much destroying the ligaments in both of my shoulders. I stretched them out so much that they barely held the joint in place anymore, so I ended up having to have both of my shoulders tied into the joint & I quit everything after the 3rd surgery at the end of my senior year in HS because I had a lot of trouble with my shoulders healing properly after all my surgeries. Although they are in pretty good shape now, I still can't swim much more than a 100 at one time. I still regret never being able to decide to stop, and rather having been forced to stop. I miss it all the time! I'm sorry that you were forced to stop too. But I guess it is out of our control.

Skeye

nathon
New Member


Date Joined Dec 2008
Total Posts : 10
   Posted 1/5/2009 12:09 AM (GMT -7)   
I hope you are able to find some answers & get some relief

justme1403
Regular Member


Date Joined Jan 2009
Total Posts : 22
   Posted 1/5/2009 9:51 AM (GMT -7)   
Hi Skeye,

I managed to get to the final of the Commonwealth trials in 2004, and there was a gd chance of getting on the GB Team as my mates have, even rebecca adlington who won goldx2, as i use to race against her.
i do miss it, and i have lost alot of fitness coz of stopping and illness.

Just me

PS. thx nathon for comment!

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/5/2009 9:02 PM (GMT -7)   
Oh neat! Congrats! It's too bad that we both had to stop. It's a wonderful sport. And I agree, I'm nowhere near being in the shape that I was when I swam & I doubt I ever will be b/c of the same reasons as you.

I take it your, from Great Britain then? I'm from the USA. I've known some Olympians as well (my sister used to be best friends with a girl who swam on one of the US Olympic relay teams in Sydney & won gold), but she wasn't as good as Rebecca Adlington! She never made it individually (although she was a sprinter, not distance). But most of the people who I used to race who were at that level, came close to making the team, but just missed it by a couple of spots. What did you used to swim? I was a distance freestlyer, although I morphed into a sprinter during my final years in high school, since I could no longer swim distance (not that any of the US high school events are really true distance events, maybe the 500 (yd), but that's as long as the races get in HS -- don't know if it's the same in the UK).

Good luck with figuring out what's going on with you! I know how frustrating it can be not to have a definitive answer about what is wrong!!! Keep us posted. And any time you want to talk swimming, I'm around. I miss it so much, so it's always nice to have someone to talk to (esp since we have to through similar situations, in terms of being forced to quit).

Skeye

justme1403
Regular Member


Date Joined Jan 2009
Total Posts : 22
   Posted 1/6/2009 10:42 AM (GMT -7)   
Hi Skeye,

Yh iam from England! wow your the person i have chatted to from USA! lol

I mainly swam middle distance, 200m freestyle, 400m freestyle, 200 IM and 400 IM. but i was a bit of an all'rounder as i did short middle and long distance and all strokes! However i never really enjoy long distance as i got bored easily!

Your HS is different to ours here, as its all different ages! Do you do races in Yds or Mts? Iam glad we can have these chats online as it is good to share experiences with someone who understands! I came 6th in the Commonwealth Trials here in England and i had to come in top 2 to get on GB Team! (Same as you) May I ask how old are you? Iam 20 in March!

I should find some more answers out this week, as i have physio tomorrow (Wed) then doctor on (Thu).Which is handy for me as i am in the Royal Air Force iam far from anybody to see on Base!

How are you now? hope you back to health and are making a recovery! x

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/6/2009 7:06 PM (GMT -7)   
Oh wow, that is awesome! You came really close! I raced in both yards and meters. United States Swimming has two seasons; yards is in the fall/winter (it's referred to as "short course" & you race in a 25 yd pool), and meters is in the spring/summer (it's generally an olympic size pool, although every once in a while you'll race in a pool that is 25 meters, so this season is called "long course" after the 50m pool). High school swimming is all in yards. I was lucky enough to swim for a team for a long time that had a moveable bulkhead in the pool, so the pool could be easily converted from meters to yards. The 400 IM is a fun event! I used to swim that a lot too. I was pretty all around as well, although distance was my favorite -- you just have to "get into it" or it can be a boring race. It sounds like I'm only a year older than you.

My shoulders are okay now. They definitely have limitations (and I can't swim much anymore), but as long as I am careful with lifting, etc., I am okay. The CP that I am suffering is actually eye pain. I had a pretty traumatic injury several years ago to one of my eyes & I have since developed a very rare inflammatory condition behind my eye (or so we think, like you, I actually don't have a concrete answer since nothing really shows up on MRI's, etc) that is next to impossible to treat. Thanks for the well wishes, I certainly need them! I hope your appointments this week go well!

Skeye

Post Edited (skeye) : 1/6/2009 7:09:25 PM (GMT-7)


justme1403
Regular Member


Date Joined Jan 2009
Total Posts : 22
   Posted 1/7/2009 10:34 AM (GMT -7)   

Here we always swim in meters, and use both 25m and 50m pools all year round! Glad to here that your shoulders are okay now! sounds like you have had alot to deal with, especially your eye. I had my physio appointment today, and apparently the top of my back is stiff and doesnt have much movement (mainly because of swimming and having broad back, also been sitting with bad posture which doesnt help. So i have to do exercises with hurts my chest more! lol.

 


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/7/2009 3:30 PM (GMT -7)   
I can relate to the bad posture. That contributed to my shoulder problems & took me several years to (mostly) correct (I still have a bad habit of slouching sometimes). I'm sorry to hear that your back exercises hurt your chest, but hopefully if you stick with them for a little while, they will loosen up your back & may even help your chest by opening it up thanks to the increased mobility of your back.

Skeye

justme1403
Regular Member


Date Joined Jan 2009
Total Posts : 22
   Posted 1/7/2009 4:31 PM (GMT -7)   
Yh thats they hope for! Well im seeing doctor tomorrow(Thu) for a check up, might get some more info! However with the posture because i had pericarditis i had to slouch forward and lean on my legs with arms to relieve pain, but thats obviously bad for posture. so i either choose between pain and position!
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