Kudos to Skeye!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/6/2009 12:44 AM (GMT -7)   
Skeye,
I just want to send you cheers for going to the conference, and working with your medications so you can do you work there. Please tell us about the presentation when you get back! I think you could inspire a lot of us by sharing how you motivated yourself to go, and managed your pain so you kept following your dream! yeah

PaLady

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/6/2009 6:10 AM (GMT -7)   
You go for it Skeye, YOU DA MAN!
Pete
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on a ship in the Atlantic and the other on a ship in the Pacific!!! I am one proud PaPa!!!!! 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 1/6/2009 10:27 AM (GMT -7)   
WooHoo for ya Skeye, we'll be awaiting your return...
Soft Hugz to get you through....
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/6/2009 6:50 PM (GMT -7)   
Thanks guys! It's nice to know you're all thinking of me! smilewinkgrin I'm back! Got back this afternoon (just in time to see my ophthalmologist, groan). The conference went very well! I had a wonderful time. I'm really glad that I decided to go. My poster presentation went well too (although I had a scare at first when I couldn't find my poster anywhere! It turns out that they re-organized all the posters after we put our's up the night before we presented & so they had moved it halfway across the room). It was especially fun to present to & meet all these scientists who's work is really important in my field & I really respect. And it's nice to now have a face associated with all the names of these people. I got introduced to a lot of people, since the prof I work for is really highly respected in our field (although it is a small field). I did end up taking less meds while I was at the conference because I was scared of being foggy-headed when I was presenting. I felt like it was better to be safe that sorry, since first impressions do mean a lot & I didn't want to blow it because my meds made me sleepy or made it harder to think clearly. I did pay for it later on, but it was worth it.

Saw my ophthalmologist when I got back today. I've been dreading going lately because it's really frustrating. My "good" eye has gotten worse, but not much else has changed. He's talking about doing retrobulbar steroid injections (injections underneath & behind the eyeball), which sound like a whole lot of fun. But we are going to wait until I see this other neuroophthalmologist (kind of like a neurosurgeon for eyes) next week. I guess this guy is supposed to be really good, especially with rare & abstract cases like me. I'm hoping he'll give me some answers, but I'm not counting on it. He also mentioned something about handheld readers that scan the pages of books, etc & then read them aloud to you! I'm going to look into this, as I could see something like this being very useful in school, since I'm reading at a horrific rate right now, although I have a feeling that they are going to be way out of my price range. I'm having a very busy week, as I also see my pcp (who does my pain management) tomorrow. It's not going to be fun though, since I have to have a serious conversation with him about possibly (but hopefully not!) dropping out of school next semester.

Skeye

Post Edited (skeye) : 1/6/2009 6:53:13 PM (GMT-7)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 1/6/2009 6:54 PM (GMT -7)   
Aw skeye, perpahs this scanner thing is something your insurance may pay for. Don't give up any hopes of any kind yet. I think its awesome you went to the conference. It obviously was a very good thing for you, you can tell it in your writing the enjoyment you had by attending. Hugs, Susie


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/6/2009 7:47 PM (GMT -7)   
Thanks Susie! I really did have a wonderful time! If it ends up looking like I might get one of the readers, then I'll check with my insurance. We just changed plans, so we are paying much more out of pocket these days, so I'm not sure if they would cover it, but it would be worth a try. I just have to find one first. I just skimmed the internet quickly, but I'll have to do some extensive research into this thing.

Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/6/2009 8:33 PM (GMT -7)   
Skeye,
It's wonderful you went to the presentation - and I knew it would be worth it for you! If you feel comfortable sometime, what is the area of science you're studying? If it's so small that it would identify you in some way, I understand not sharing.

As far as devices, etc., since you're seeing all your doctors right now, I'd ask each of them about whether they'd write a prescrition for such a thing and/or whether they have any connections with reps from the companies that make them. They might be able to get you one. Also, the college might be able to help out. I think someone mentioned awhile back about disability issues, and although you might not want to tell so many people, there may be a support center that works with students with disabilities and sometimes they can be forced to purchase such items, or have them available for you to use. And since you do so well, I would think the college would want to help you out. So ask around. Ask ask ask. And these specialists you're seeing may have knowledge of even other cutting edge devices.

You go girl! yeah

PaLady

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 1/6/2009 8:45 PM (GMT -7)   
What area of science are you in? kinda sounds interesting...
I was at wal-mart the other day and back uped just in time from getting my whole faced sprayed,
by a customer spraying one of those air freseners in the air, my bad eye has been hurting since
and I used an at home eye wash as soon as we got home, which we left right after I got sprayed,
she did mean it, sure wish people would be more careful. Sure hope this new Doctor your seeing next week
can help you out more and becareful when doing grocery shopping...ok...(didn't help my back either as I
almost ended up on floor backing up...
Lots of soft hugz to you...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/7/2009 3:13 PM (GMT -7)   
Thanks for the suggestion about the prescription, PAlady. That is a good idea. I thought about talking to the school, but the only trouble there is that if they said yes, I'd probably have to return the reader when I graduate & I might want to keep it. But I'll probably talk to them anyway if it looks like this sort of thing is feasible & may help.

Char, ouch! That spay in the face must have really hurt your eyes! I can only imagine... I hope your eye is doing better now! I'll definitely have to be on the look out for crazy people grocery shopping turn.

In very general terms, the field that I'm working in is evolutionary & developmental biology. I work with snakes & lizards. I do various forms of microscopy (which is of course the worst technique for my eye!) & study the structure and function of reproductive tissues. It is a lot fun & quite interesting (at least to me smilewinkgrin)

Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/7/2009 3:50 PM (GMT -7)   
Skeye,
Please, please forgive me, but at the moment I am ROFL. Snakes and lizards I didn't expect. You really got me there, girl! Wouldn't have guessed it for a million bucks!

I'm glad you find it interesting. Seriously, I'm sure it is. I never thought much about that type of research in relation to those creatures, but you've given me something to ponder! And I seriously bet there's a lot to be learned.

Re: the device. I'll bet if you had to borrow one and then wanted one for yourself there's a way to do that, especially for someone as talented as you are (I'm serious). And by the time you graduate the devices will probably will have been upgraded in some way.

PaLady
BYW thanks so much for your support on the other thread. It really does mean a lot! yeah

Post Edited (PAlady) : 1/7/2009 4:22:04 PM (GMT-7)


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/7/2009 4:02 PM (GMT -7)   
Haha! Yeah, good old snakes & lizards! smilewinkgrin There is a lot that we can learn. There is so much that we don't know (about everything)! It's always neat when you discover something new!

Skeye

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/7/2009 4:31 PM (GMT -7)   
Skeye,
Snakes & Lizards! Very cool> I love them! I live in S.E.Fla. and they are everywhere. I sit out on my front porch and watch the geckos come out from behind my wall light to grab the moths & bugs in the light, have done it for years and even started naming them. We have anoles & skinks all day and tree frogs & geckos all night. There are also all kinds of exotics around here and I'm sure you've heard about the pythons & boas taking over the Everglades and surounding suburbs. I live 5 miles as the crow flys from the Glades! Last winter we had the coldest night in a couple of years and in the morning there were two big iguanas lying under my tree dazed frome the cold. They were living up in my tree and I didn't even know it!
OK sorry everyone for being off topic. Skeye, congrads on your great poster presentation! Its such a wonderful thing when you enjoy what you are or will be doing in the future. Is it your job or are you in school studying this stuff? Anyway good luck w/ your doc and w/ the eyewear things. Remember good things come to good people> KARMA, I'm a firm believer!
Your bud,
Pete
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on a ship in the Atlantic and the other on a ship in the Pacific!!! I am one proud PaPa!!!!! 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 1/7/2009 6:33 PM (GMT -7)   
Oh wow Skeye, sure sounds very interesting, working with the snakes,
Do you also, milk them for the venon? or are you working with non venonious?
I used an old (from last year) antibotic eye drop and wow did it ever help,
Yes be very careful when in certain aisles at the stores...
Thanks and lots of soft hugz back...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/7/2009 8:48 PM (GMT -7)   
Hi Pete,

I'm envious of all those lizards down in FL! I wasn't too interested in reptiles before I started working in the lab. In fact, I had never even held a snake, and now I have a pet corn snake (used to have two, but I had to give the second one away, long story) that came from the lab. A few of the talks that I went to at the conference were about research being done on anoles. They are cute little lizards! Iguana's are neat too. Just a random fact that is interesting: the scientific name for green iguanas is iguana iguana! And supposedly the casual name "iguana" only refers to the female of the species, there is a different name for the male (at least in spanish speaking countries). Okay, enough with random facts. I work as a research assistant in a lab at my school, so during the school year I do it for fun (unpaid), and in the summer, I usually get a grant & get paid a stipend.

--------------
Hi Char,

Glad your eye is feeling better! It's horrible, but I still use eye drops from several years ago sometimes. I don't use them often enough to warrant a new prescription, although I'm sure my doc would write me one. I do actually have another drop that does the same thing that is much newer, but I like the old one better. They both dilate your eyes & the old one only dilates them for a few days, whereas the newer one dilates them for a few weeks & that's usually longer than I'd like, since it's even harder to read with dilated eyes.

I don't work with any venomous snakes. They are too hard to house & too much of a liability for the lab. The only possibility of working with them would be if someone else provided us with the tissues & not the actual snakes. Plus, I think I'd be a little too scared to touch them! It's bad enough when you get an angry "domesticated" snake! Lizards are easier to work with in that respect -- no teeth (at least not the species I work with)! So they don't hurt when they bite :-).

Skeye

ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 1/7/2009 9:34 PM (GMT -7)   
Skeye:

I have only read the first part of this thread, and then skimmed the rest, so forgive me for not yet knowing the whole story... I do have plans to come back later and carefully read the rest in detail because I am keenly interested in what everyone has to say on this topic, but I am just not feeling great right now and decided I wanted to stop reading and use what was left of my energy to post something. smilewinkgrin I am guessing you (and everyone else here) will understand.

I just want to tell you that I am so PROUD of you. That might sound a little silly, since I'm not your mother tongue, but in some ways I feel like you just hit a home run for the whole HW CP community. We so often feel deeply buried within our pain and suffering, struggling mightily just to pull our way to the surface so we can breathe a bit, and in those moments it seems as those being a CP sufferer means the mandatory loss of all the things that make us individuals... as if achievement and accomplishment is a thing for "normal" people, just one more thing we have to let go of.

But look at what you have accomplished! And we know that you have been suffering lately, perhaps even more than usual. We have been cheering on the sidelines as you have struggled to hang on to your dreams despite the intense pain and even despite the fact that your studies often cause your eye to hurt even worse. And even in the face of those trials, you have managed to be published! As an undergrad! Phenomenal!

Even now as I write this I am fighting back tears of utter joy and pride for you. (Yeah, you didn't know I was mushy, did ya? rolleyes LOL) And hope for the rest of us, too. It's a reminder that even though we have all lost so much there are pieces of us that still make us individuals, pieces that still make us count. I think we forget that sometimes.

Great work, Skeye. And thanks, PAlady, for making sure we took the time to acknowledge it.
Ry

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/7/2009 10:07 PM (GMT -7)   
Aw Ry,

I actually got tears in MY eyes reading your post! Thank you so much!! This was a really big deal for me & I'm proud of myself as well for having gone and having made the best of the situation and having had really enjoyed it. I know that for everyone with CP, it is so hard to hang on to everything that we love in our lives. We definitely have to make sacrifices, sometimes huge ones. It is a very hard realization to come to. I know I still don't completely accept & embrace it. I wish everyday, that things would go back to the way that they were, but they aren't going to.

I really can credit all the wonderful people here with helping me to hang on & keep going. I've definitely been struggling, fighting pain, depression, and a myriad of other symptoms and side effects. I know that feeling of being deeply buried & not being about to breathe all too well. We all do. On multiple occasions I have come very close to calling everything that I love & have worked for quits, but coming to HW & reading everyone's stories and advice and support has really helped me to keep fighting. I really look forward to coming here every day, where everyone understands! CP is such a lonely affliction. Everyone here has become like family. I have learned so much here & felt so loved. I really wouldn't be doing as well as I am today without everyone here! I'm doing my best to try to hang on & to fight, and not to let this thing control every part of me. I just take it one hour at a time. That's all you can do. The minute we give up all hope and stop fighting, is the moment we truly forfeit our lives.

So thank you to you Ry, PAlady, and everyone else here, for helping to keep me going every day!

Skeye

And Ry, I can certainly understand not having enough energy to read an entire thread! How are you doing? I was thinking of you the other day when I hadn't seen you post in a while.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 2:50 AM (GMT -7)
There are a total of 2,731,994 posts in 300,980 threads.
View Active Threads


Who's Online
This forum has 151146 registered members. Please welcome our newest member, LadyCapricorn.
223 Guest(s), 1 Registered Member(s) are currently online.  Details
LindaOZ


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer