Can it get any worse?

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Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 1/6/2009 12:56 AM (GMT -7)   
I swear if life does not get any better.....

Here it is 1:46 am in the morning and I am up once again in horrible pain...the worst yet! My left leg feels like someone is taking a knife and twisting it inside the nerve and the constant foot pins and needle feeling just is driving me insane to say the least! I do not think I am asking for much.... just one night of peaceful sleep. Is that to much to ask for? This is driving me crazy and that ain't a far trip from where I am at right now. The only place I can get relief is in a tub filled with the hottest water I can stand and I can't lay in the tub for the rest of my life.

Gotta talk to doc next time I see her on the 19th. See if she can do something about this whole thing,

Anyway thanks for letting me vent. Hope you had a pain free nigh and slept well.

Your in pain, can't sleep, ticked off, seeing double friend.

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Slight herniation at L2-3 but Neurosurgeons will not operate because of previous failed surgeries. Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Lunista, Topamax and Robaxin.


kara487
Veteran Member


Date Joined Mar 2008
Total Posts : 637
   Posted 1/6/2009 5:49 AM (GMT -7)   
Scarred, I am sorry you could not sleep and is in pain. I know how you feel I ask the same questions is a good night sleep to ask for. I will be in your boat tonight because I will be out of pain meds and phenegran which helps me sleep. I cant go to the dr's til thursday and dont even know if he will refill my pain meds. I hope you can get some rest today. Im not feeling well today . I hope your pain lessens and you have a LPD.
Lortab,ambien,elavil,reglan , neurontin,zyrtec and soma.
 
spinal conditions: Scolosis,herniated discs,spinal blockage,Spinal stenosis,bursitis ,Fibro,and arthritis


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 1/6/2009 12:42 PM (GMT -7)   
Thank you kara my friend. I just wish I could have a few nights of sleep. Won't be seeing doc until the 19th so I'll have to suck this up for awhile then I will see what she can do to ease this up a bit. The BT pain is getting worse and worse and I am really tired of it. I just wish we all had a magic fix for our pain.

hugs

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Slight herniation at L2-3 but Neurosurgeons will not operate because of previous failed surgeries. Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Lunista, Topamax and Robaxin.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/6/2009 1:43 PM (GMT -7)   
Scarred,
I am wondering if possibly all the activity with the move has made something worse for you. These darn nerves of ours; can't live with 'em, but can't live without 'em either! The thing is nerve damage may not stay static. It may continue to slowly worsen. Plus you did a lot of driving/sitting and that had to have put pressure on your spine.

Please tell your doc about the pins and needles. I wonder if you wiil end up needing something like a lot of us take - either neutontin or lyrica. If you have a choice, the lyrica is the newer version (more expensive) but it supposed to have fewer side effects. But these are the primary meds. used for the nerve pain. I take neurontin and I know it has affected my stamina and mental clarity, and I had to start at very low doses (even 100mg which my doc thought was nuts but it worked) but now I'm up to 1600mg/day which is only a mid-level dose. It has side effects, but definitely helps the nerve pain. The other thing that helped me was cymbalta, which is an anti-depressant, but I had to stop it because it interfered with another medical condition. But it might be worth a try for you.

Do you have a TENS unit or something similar? That can help some, too.

Hugs,
PaLady

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/6/2009 7:28 PM (GMT -7)   
Hi Scarred,

I'm so sorry to hear that you were up all night again & are having increased pain! I hope it will let up for you soon, or your doctor will be able to help you. I've also been on neurontin. I got up to 1900mg a day before calling it quits (it never helped me much). But I can relate to what PAlady said about side effects & reducing her mental clarity! That is definitely one med that you have to increase very slowly! So if you end up starting it, be careful. Even when you increase it slowly it can effect you. I usually felt significant side effects (especially dizziness/sleepiness & a mental fog) for several days every time that we increased it.

I hope you manage to get some sleep tonight & you are feeling a little better today. I think you husband definitely ought to buy you that hot tub you want! smilewinkgrin

Skeye

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 1/6/2009 7:53 PM (GMT -7)   
Scarred is there a particular reason you have to wait until the 19th to see your doctor? I know you moved and all, so is this for the initial visit with a new dr? I am going to make a suggestion on this nerve pain. I know with the move and all you did alot of activity more than usual, then you had a drive on top of that. I can only imagine the mess your back is in, tons & tons of inflammation going on. Back in the late 80's & early 90's, steroid injections IM and Medrol Dose Packs were given alot for what you are going thru with good results, it calmed down the inflammation. I could not take an NSAID so this is what my neurologist did. He gave me Im shots of Decadron. I cannot tell you the relief the steroids gave me, but I can tell you the destruction of long term use. But, an occassional steroid injection or a script for a Medrol Dose Pack can go a long way in terms of relief and will not affect your health in any way. Ask for either one, if I were you I would ask to try a Medrol Dose Pack. You take so many pills the 1st day, then less each day for 5 days. You have absolutely nothing to lose and unless you have problems tolerating steroids you may have alot to gain. My sister hurt her back three yrs ago and over time she has become increasingly worse. She was to the point of heading to the neurosurgeon & getting ready for surgery. This is a gal that never took anything except BC pills, then later hormone pills,lol. Honest, never ill a day in her life. Three days before Xmas she got very ill w/peumonia, was put on a Medrol Dose Pack for her inflammation in her lungs-the burning has stopped in her legs & back-no pain. The steroids did the trick on the inflammation, FYI she is a surgical candidate for a severe pinched nerve and lots of stenosis and a bulging disc. She had a relapse with the peumonia and got terribly ill, worse than before but she says she does not care, she has no pain, first time in 2 yrs. Susie


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 1/7/2009 1:20 AM (GMT -7)   
Hey everyone thanks for all the advice and well wishes. Unfortunately I am allergic to the Medrol steroid pack so that is not an option. I am on Celebrex which is an anti-inflammatory medication. This has just started in the last few weeks with the pins and needles in the feet and I am not sure what it causing it but I know it has something to do with my back. I can't get back into my doc until the 19th as she is on vacation until then and all the other docs are full and the waiting list is horrendous. My appt is not far away and I am just doing very little to aggravate the nerves and muscles until I can see her until then. It would not surprise me to learn that all the moving and driving did not aggravate this new problem and that my little move did not cause some unseen problem that is going to be a pain in the butt for me in the future. Sorry if I am not making any sense I am in gobs of pain and I'm waiting for my pain meds to kick in so that I can get some sleep.

Anyway, thanks for all the advice. Hugs to you all and I hope you are all doing well and having a pain free night.

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Slight herniation at L2-3 but Neurosurgeons will not operate because of previous failed surgeries. Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Lunista, Topamax and Robaxin.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/7/2009 1:29 AM (GMT -7)   
Hi, Scarred,
I signed on to write you a note that you weren't alone and I see you're having a bad night, too. ARGHHHHH!!!

I haven't said much on the board but I'm getting a little nervous that other levels of my spine are starting to worsen. I know this can happen after a fusion, but I've had neck problems for so many years I can usually work it out. But for about a week now my neck and even middle (thoracic) spine is hurting and I'm doing stretches and trying different cervical pillows at night plus TENS, meds, heat and all the things that usually work, but the improvement doesn't last. I really need regular massages but can't afford them. The muscle relaxants make me so groggy but guess I've got no choice if I want to sleep. I think some of it is also such a low activity level yet we can't do activity because it makes things worse. Catch 22 over and over again.

Sorry, I'm just rambling. Waiting for my meds to kick in too!.

Hugs,
PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 1/7/2009 7:21 AM (GMT -7)   
Its awful not being able to sleep at night for sure. I have my days & night mixed up and its no picnic. I have had this happen before and it takes some doing to get things turned back around. I have been doing some things in the house that is a little on the heavy side, most likely my dr would say don't do it. Well, you know what, the good fairy is not going to come in here and do it so its left up to me. I get aggravated because it takes me so long to complete one stinking project. But, then I remind myself at least I am getting it done. Took me 3 days to take down a stinking tree, but took a week to get it decorated, something wrong with that picure,lol. I guess I am rambling too cause I am really tired.

Aw Scarred ss to hear you cannot take steroids. I have big major happpenings with steroids so I understand. Susie


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 1/7/2009 10:55 AM (GMT -7)   
awwww PA I noticed that you were logged on last night and I was going to hollar at you but my eyes were finally getting heavy so I logged off after posting my last post and slept for a couple of hours. I swear I am getting more and more like a cat with my sleeping taking cat naps all day and night (next thing you know I'll be growing fur!). I hate the fact that both of us are not getting any sleep and its frustrating to see that my friends are online at such an early hour of the morning.

I'm sorry that you are in so much pain. From what I am gathering from your symptoms it sounds like you are possibly having problems with another disc. This is disturbing news hun and I hope that it is not true, but if it is I know you are scared. Hard to think about going through any more surgeries knowing what we all know. I think it was a relief to me when the last Neuro told me that he would not recommend any further surgeries even if another disc were to herniate. I don't think I could chose to go through another surgery after what I have been through already. Its just to much for me to handle.

Anyway, hugs to you and I hope you get to feeling better.

Stray: I sure wish that mr sandman would visit us all and give us a good night sleep. Wouldn't that be so nice? Oh goodness now I'm humming "Mr. Sandman" hahaha. It took you three days to take down your tree??? Goodness sakes girl! It only took me 1/2 an hour to get mine torn down and put away LOL. Took longer to put the darn thing up ha ha. Hubby decided that since the pre-lite tree was old that it was time for a new one so after the holidays he bought us a 7 foot pre-lite colorado pine that I am looking forward to decorating next year. My old one was a 6 1/2 foot and the new one is a 7 foot so I am excited to see what it looks like when it is decorated.

Anyway, hope you have a great day and a LPN.

Hugssss

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Slight herniation at L2-3 but Neurosurgeons will not operate because of previous failed surgeries. Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Lunista, Topamax and Robaxin.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 1/7/2009 2:43 PM (GMT -7)   
Yes, it took me that long. I bought a real Noble Fir again this year, so pretty again this year. I have bought my trees 2 yrs in a row at Home Depot and they have been just awesome trees, just perfectly shaped and they last long enough. Very little needles dropping. Mine was a 7 ft one gain. I have a very nice 7 ft artifical upstairs that is standing in the play room with lights on it. My son carried it up there 3 yrs ago and left the light s on. Well, the lights got messed around being moved up & down a couple yrs in a row. I did not have the energy to take off 1200 lights and restring them back on it. I like many, many lights on the trees. I want it to glow,lol. Actually, they claim if you load them with lights you can get by with less ornaments and its true, my daughter has a much bigger tree than me and never puts the amt of ornaments on hers that I do. Her tree always looks like a pro did it, same with my daughter-in-law.

I live in a 2 story and my dream has always been a 12 ft tree. In my living room the ceiling is open to the 2nd floor. I would have to start decorating it in the summer as slow as I have gotten. I can remember taking down a tree, stripping the walls, changing out a bathroom in one day and putting everything back. Every yr when trees go on sale, I am so tempted to buy that 12 fter,lol. Send sandman my way please. Hugs, Susie


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/7/2009 3:48 PM (GMT -7)   
I was right up with all of you last night. It was pretty awful since we also had no power thanks to a nasty ice storm. I'm hoping we don't lose power again tonight because it has still been icing all day!

PAlady,

I'm sorry to hear that your back is getting worse! I hope nothing too bad is happening!! I'll keep you in my thoughts & prayers. Maybe that will help. :-)

Skeye

Baybreeze
Regular Member


Date Joined Oct 2005
Total Posts : 315
   Posted 1/8/2009 12:52 PM (GMT -7)   

I'm truly sorry as I know exactly what you're going through. I've been through the same myself in the past. I've had such horrific sciatica that no position gave me any relief. I couldn't sit, stand, or lay down. I got minimal sleep as I maybe fell asleep for an hour at a time for a total of maybe 203 hours increments through the night. And it went on for a couple months. The only thing that lessened the pain slightly was to have my left knee bent and kind of pulled up. So I even contemplated stuffing a bunch of pillows in a small closet and trying to sleep standing up leaning on my pillows. I felt like I had to climb up a tree and hang upside down or something. The pain was unbearable. It felt as if my leg from my rear all the way down to my ankle was cut open and someone was pouring rubbing alcohol into it 24/7. I tried everything I could think of to no avail. I was really getting desperate so I know how you feel. The worst was that my surgeon was out of the country for a couple months doing teaching of spine surgery in other countries. His group first gave me an appt. with another of their spine surgeons, but then sent me a letter cancelling that appt. b/c that doc was no longer practicing in my state. (Their main office is in another state). So I called back again telling them I could no longer handle this pain and they set me up with my surgeon's PA. I didn't care who I saw at that time. When I saw her, she was quite concerned and they actually got me an MRI approved within about 2 hours! I had no reflexes and no use of my left foot. My surgeon was to return the following week anyway, so they set me up with the first appt. availalbe upon his return. After seeing him, withing a few days, I also got my approval for a nerve block the same week. I had never had insurance approvals done so quickly before. Thank GOD the nerve block really helped my pain!!!! I seem to have good luck with nerve blocks and ESI's helping my nerve pains. Had this not happened, I was starting to go insane and had thoughts of amputating my leg! Turned out I had scar tissue problems and some stuck in a small area where the nerve ran through. I also had more herniations and bulges, plus evidence of more bone overgrowth in some areas, including facet hypertrophy.

I think you have to call the doc and really make it known that you cannot handle the pain... you can no longer deal with it and need something done quickly. At least my MRI realy showed evidence of nerve compression..it wasn't like I was making it up or exagerating. But I don't know what to say regarding how to get you some sleep. Not getting good sleep just makes things worse. It makes the pain worse and also messes up work and daily activities. It's not right for someone to have to suffer through that pain day in and day out with no relief. It literally is torture. I felt as if I was being tortured. You really have to let your doctor know how horribly it is affecting your life. I was even given painkillers while I waited for my surgeon, but painkillers don't seem to do anything for nerve pain. However, more recently, I had another bad nerve pain spell. I called my PM b/c I had a job interview in several days and couldn't imagine going there in such pain and tears. I left them a message about it all and asked for them to call in some steroids for me, since steroids seem to be the only thing that calms my nerves. Thankfully they quickly called it in and taking them did calm it down some, though not fully. Since then, though, I went back to my PM and he worked with me and I've been on Lyrica, tramadol, and SOMA since Feb or March. All three meds together do seem to help a lot, though I still get exacerbations. But it really is torturous on one's being to have that pain 24/7 when there is no relief.


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 1/9/2009 2:34 AM (GMT -7)   
I think I can wait the ten days out. Its impossible to get into my doc on such short notice anyway (really booked) and it would really screw with my original appt anyway. I am getting some sleep about 4-5 hours a night steady so that is something and I will live through the pain until I see her on the 19th. I called yesterday to let the nurse know that my pain has increased so that she could let my doctor know and she told me that she would relay the message. Doc was in a meeting all day so I don't suppose she got the message until late last yesterday afternoon. I am going to have her either boost me on the Lunesta if that is possible or put me on something stronger so that I can sleep at night. The leg pain I am hoping that they have started the paperwork for the Stimulator and that this is already in the plans for the year. But I am not counting on it and I will see if doc can up something or change my long acting meds around so that it will take the edge off my leg pain a bit.

Anyway that's the plan.

Have a LPN.

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Slight herniation at L2-3 but Neurosurgeons will not operate because of previous failed surgeries. Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Lunista, Topamax and Robaxin.


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 1/9/2009 2:35 AM (GMT -7)   
I think I can wait the ten days out. Its impossible to get into my doc on such short notice anyway (really booked) and it would really screw with my original appt anyway. I am getting some sleep about 4-5 hours a night steady so that is something and I will live through the pain until I see her on the 19th. I called yesterday to let the nurse know that my pain has increased so that she could let my doctor know and she told me that she would relay the message. Doc was in a meeting all day so I don't suppose she got the message until late last yesterday afternoon. I am going to have her either boost me on the Lunesta if that is possible or put me on something stronger so that I can sleep at night. The leg pain I am hoping that they have started the paperwork for the Stimulator and that this is already in the plans for the year. But I am not counting on it and I will see if doc can up something or change my long acting meds around so that it will take the edge off my leg pain a bit.

Anyway that's the plan.

Have a LPN.

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Slight herniation at L2-3 but Neurosurgeons will not operate because of previous failed surgeries. Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Lunista, Topamax and Robaxin.


kara487
Veteran Member


Date Joined Mar 2008
Total Posts : 637
   Posted 1/9/2009 2:52 AM (GMT -7)   
Scarred im sorry your having such a rough time. I hope you hear from your doctor soon. My doctor put me back on ambien so I took it last night and got seven hours of sleep. I hope you have a LPD.
Lortab,ambien,elavil,reglan , neurontin,zyrtec and soma.
 
spinal conditions: Scolosis,herniated discs,spinal blockage,Spinal stenosis,bursitis ,Fibro,and arthritis

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