Anyone have Fibromyalgia?

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kAyLa1771
New Member


Date Joined Jan 2009
Total Posts : 17
   Posted 1/6/2009 12:23 PM (GMT -7)   
Does anyone have fibromyalgia? I would like do know how it feels and how you are dealing with it.

I'm 16 and have a child's version called Amplified Pain Syndrome. So, i just have some questions for people that have it.

1. What kind of treatment are you getting?
2. What medications are you on? Are the working?
3. Where exactly is the pain?
4. What makes the pain feels better?
5. How old are you?

Thanks! :)

ekkorose
Regular Member


Date Joined Jul 2008
Total Posts : 329
   Posted 1/6/2009 12:27 PM (GMT -7)   
Kalya,

There is a whole board on here dedicated to Fibro. You can use the forum quick job to go to it. That would be a great place to meet and connect with other people who have your condition.

Take care,
Sarrah

Hysterectomy at 25

4 laproscopic surgeries since 24

Cervical stenosis in C3 & C4

_____________________________________________

 

Meds - percocet  3x day : nexium : xanax :

Supplements : calcium : magenesium :potassium : milk thistle : fish oil : B complex : vit E

____________________________________________

In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz 


completlylost
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/6/2009 12:34 PM (GMT -7)   
sure do me my mom and my brother i keep praying my son doesnt get it

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 1/6/2009 8:15 PM (GMT -7)   
Hi KAyLa. My name is Linda and I have fibromyalgia and have had it since i was 28. I'm now 57. I'm so sorry that you feel you have been affected by this illness. It's very uncomfortable and painful at times. I have it very badly and take narcotics for my pain, but a lot of people do not and can get by with other therapeutic treatments. You can find out about these by going to the fibromyalgia forum here at healing well.

But I wanted to welcome you here and tell you that you are welcome to come here any time you want to. There are a lot of wonderful people here and we all care very much about each other, so thanks for checking in. Do check out the fibro room and come back here also if you would like. Also we have a chat component to healing well where you can talk live to others , many of whom have fibromyalgia as well. There is one other teenager that comes on very frequently. So give it a try as well

God bless and Gentle Hugs!!

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/6/2009 11:07 PM (GMT -7)   
Hi KAyLa and welcome to the chronic pain forum.

Many people with fibromyalgia who post both here and on the fibro forum. Feel free to enjoy any forums you like. As for the pain....depending on the day my pain can range from light aching in my neck/shoulder area to feeling like I've literally been run over by a truck. Most of the time it's closer to the truck feeling, especially in winter or when stress builds.

I'm old enough to be your grandma....and my doctor helps keep me as comfortable as he can but all the pain meds in the world won't totally take away all of the pain of fibro. If it does your brain will be so out of it or you'll be zonked out! That's no way to live. I've tried all of the meds that might be helpful for pain relief and nothing but narcotic pain meds have helped me, BUT...don't ever let that stop you from trying something your doc prescribes. Every one of us reacts differently to medications and you don't want to miss a chance on something that could work for you.

Glad you've joined us!
Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)

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