Post Edited (kara487) : 1/9/2009 2:07:48 PM (GMT-7)
PAlady, you hit the nail on the head with the loss of control. I've had some things happen that are directly due to being ill and on disability that absolutely frustrated the bejebe's out of me! Something that I had worked very hard on and because of my situation I can't do anything about it. At least it seems to me with policy changes and the like and you are so right, I also feel so out of control, like I no longer have a say in the things that are happening to me.
I'm glad your script came, but sorry you have to mess with all the pharmacy stuff.
PALady, like Ryand I want to scream for you!! I've been there and know how frustrating it is. Also, when you are so stressed out over whether/when you can get pain pills, it causes more pain. You are doing just what I've done in those situations: Heating pads, OTC pain meds, Neurontin (I don't take anymore, though), Flexeryl...whatever would help me get through. I get my pain Rx from my primary care doc and it has taken me 10 years to "train" her. It took her that long to realize that I don't abuse my meds and to give me 2 refills on my Lortab. For years, she would only give me a 30-day supply (and hey! There are 31 days in some months!) and I was getting my Rxs filled at the hospital pharmacy for free under a city contract. The pharmacy is closed on weekends and after 4:30, and would not fill an Rx the day before...had to be ON the day it ran out. So you can imagine that I spent some horrific weekends and holidays. My doc also had a habit of going on vacation and not notifying her patients. So when I would call for a refill and she wouldn't be there, no other doctor would want to prescribe a narcotic. I don't think my PMD is very good, but I don't want to have to go through this all over again with a new doctor. And now that I have Medicare, I can at least get my scripts filled at any pharmacy.
You mentioned that you will be applying for disability soon. Why not now? It takes so darned long to get it, usually. If you do get it, you will have to wait 2 years to be eligible for Medicare....or 2 yrs. minus the months/years it took you to get approved. Since it took them over 2 years to finally approve my claim, my Medicare kicked in right away, plus I got a nice fat check for 2 yrs. of back payments.
You are always such a supportive voice on this forum. I hope now we can offer YOU some support and understanding. I think all of us have been in your shoes at least once.
My prayers are with you for minimal pain. If you do go out, drive carefully.
Did you figure it out, or are you like me guessing your way through to the next day? Heating pads, warm thermo wraps, medications out the ying-yang, and man o man if it weren't for HOT water baths (Up to 105 degrees according to my little rubber ducky used for my children 20 years ago) sometimes I think I'm losing my sanity! I now sleep in a chair = less heating pads = smaller electrical bill = NOT LOL! Had my son install a punching bag in my basement 3 years ago, so I could go lean on a pole and vent, if you will, I ruptured L-4 and herniated S-1 wound up in the hospital for an extended stay = NOT LOL!
Told my wife maybe a PC would be a safer way to vent. I had lost my job due to serious injuries, filed for SSDI, while fighting a nasty workers compensation case, borrowing money from every Tom Dick and Mary to pay for medical care. I had doctors out the kazoo backing my claim (s) and received the denial letter from the SSA after working 35 years paying taxes and living by "their" rules. Anyhow no money, life in shambles and some high society judge questioning my credibility, hell thats all I had left! It took 3 years to PROVE that my doctors nor myself ever uttered a single mis-truth. During this time my shiny new PC my wife purchased for me to vent on said FATAL ERROR. (Just needed to hit system restore.) Quietly walked out to the garage, grabbed an old rusty hammer, didn't want to hurt the new 20$ one I was unable to use anyway, swung as hard as my body would let me and put it through the computer. Wow now that was venting and I felt GREAT!!!!!
My wife, when she returned from vacation, informed me how inexpensive it will be to simply replace the monitor and hit system restore/recovery. OOPS, the trash man had taken the new venting machine away 3 days ago, tower, monitor, mouse, all but the mouse pad I still have (Approximate value 1500$)
PAlady, moral of the story, please, please teach me how to vent. It's been a long, long expensive road....1 step forward and 2 steps back, I've been snowbound ever since.
Hurtzallot, it wasn't funny at the time, I'm sure, but it sure is now--your venting on the "shiny new machine."
I take it you finally got SSD? It took them 2 yrs. to approve my claim. That lump sum back payment is nice, though, isn't it? You just go through hell while waiting. My aunt helped me out for 1 1/2 yrs., plus I got food stamps. If it weren't for that, I don't know what I would have done.
PALady, I think you did the right thing to try to tough it out until Mon. The thing about running out of pain meds, though, is that it is so hard to get back on track with controlling the pain after your body being w/o them. Sometimes, when you start again, it seems like they aren't even working. You just have to continue taking them until a therapeutic dose builds up in your body. Try to stay out of the snow today! For me, cold is my pain's worst enemy. Cold and damp is even worse. I'm in NE FL, but we have our chilly spells (going down in the 20s this week!) I just try to stay inside with the heat on as much as possible. At least we have no snow to deal with!
PALady, well that's smart. I thought you were w/o any Percs at all and really doing well, if that were the case. I know about "stretching them out," though, and it's just not the same but better than nothing! Since I stopped working, I've been able to reduce my Lortab from 3 a day to 2, six days out of seven. I also take Flexeryl at night, but lately have been taking melatonin instead...or sometimes in addition to a Flexeryl.
And I HAVE a port-a-potty! LOL! I haven't let go of any of the equipment I had from my hip surgeries, as I know I will need it again down the road.