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Snickerdoodle
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 1/10/2009 2:31 AM (GMT -7)   
Hi all-
I just had to vent about an experience I had this week at work. I felt so bad for this patient and was on the verge of tears on the way home the other night just thinking about this poor guy! It really makes healthcare professionals look bad and I know alot of people have problems with them with pain problems. I love most of the nurses I work with and I think I lost respect for some of them after this experience. I supose the majority of it is due to lack of knowledge. So maybe thats a lesson for everyone to educate your nurses and other docs about your disease! It is so hard to know all of them and I am hoping that this was the case with this patient.
 
Anyhow this was a 27 year old patient who was admitted a few days prior b.c he fell at home. He has some spinal stenosis and another related diagnosis I forget. The patient was getting 2 mg of diaudid every 2 hours. He kept complaining of pain about an hour after each dose. Instead of getting another pain med for the guy everyone complained about how hes a drug seeker and hes addicted! I tried to stay nice and just said things to the nurses like, "Oh wow. Spinal stenosis is really painful." and "Dilaudid doesnt work for everyone." Mind you I am still in nursing school and have worked at the hospital for the past 5 years but this is really all I can do in this situation. I have no control, but I felt terrible for this guy. Anyhow about 11pm the pt. ends up falling on the way to the bathroom. I went in there with the another CNA and the nurse to get him up. The nurse is in the hallway complaining about how he refuses to use the urinal and bedpan. And the patient is almost in tears on the floor shaking and he feels like hes about 110 degrees because his heart rate is in the 160s and he is clearly both embarrased and in pain. He is 27 years old and doesnt want to use a freaking bedpan! The poor kid is trying to retain some independence and getting chewed out for it. Granted he most definately should have called for help but I cant say I would want half those people helping me with the way they were acting. It was the end of my shift and I went home, but this poor guy..... And even if he is addicted to pain meds its clear to see why with the way everyone who is really in pain has to fight for them. But he was clearly in pain and was consistantly being told he wasnt. This is why I dont even tell people about my health and drugs I take. I keep thinking I want to continue school and work as a NP under an rhematologist, but maybe I will be a pain specialist.
Sorry this is so long but I know that this will touch alot of people who have felt this way. I would just like to apologize to anyone who has had a similar experience as this patient!
Melissa
Dx: UCTD vs autoimmune spondyloarthropathy vs psoriatic arthritis (ie Limbo x5 yrs) Raynaud's, proteinuria
Rx: Plaquenil 400mg, Ultram PRN, Sulfasalazine 2 gram


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/10/2009 7:11 AM (GMT -7)   
Hi Melissa,
I had a similar experiance about 20 years ago. I believe I had ruptured a disc while golfing as like many of you know, I couldn't move at all w/o excruciating pain. My two friend helped me into the golf cart, off the course and to the hospital. When I finally got in to see someone in the EM room, it was a short round male nurse w/ a Nepolian complex. I could tell right away he didn't like anyone taller than himself. He told me I was faking and just wanted to get narcotics as he sees guys like me all the time. Mind you, I couldn't move a muscle w/o screaming in pain. He said the only thing he could give me was some non narcotic shot and too bad for me, I hasn't going to get a fix on his shift! So he takes this large needle and jams it into my lower back so hard I almost jumped out of the bed! It didn't help at all, actually made it worse! After an hour or two, a doc finally came in. He took one look at me and knew right away I wasn't faking. He said OMG you really have it bad and told the A-H-nurse to get him some demerol right away. When he left I told him what the guy had done to me and I got lectured by the doc about all the junkies that are constantly coming in looking for a fix. I replied that I understand BUT, come on, you knew right away I was in agony why couldn't he? With that he said that the nurse had problems w/ guys in the ER before and I said, with big guys? He didn't answer me but by his looks I could tell he knew what I was talking about and the answer was yes. I wasn't taking any pain meds at the time even though I was already having problems. As it turned out, after a MRI, I did tear / rupture my first disc. The next time it happened, at least I knew exactly what it was. I haven't let anyone treat me like that again and never will! Yes, there are some bad nurses out there but more good ones!!!
Your friend,
Pete
PS> the next day I had a black & blue spot the size of a softball where he gave me the shot!
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on a ship in the Atlantic and the other on a ship in the Pacific!!! I am one proud PaPa!!!!! 


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 1/10/2009 7:12 AM (GMT -7)   
Melissa:

You are just the person who does need to be a pain specialist. We have far too many who treat people the way those nurses did. I've been treated this way in the hospital and by doctors, and I know I'm not the only one here who has. I still remember one of the last few times I was hospitalized for a serious pain flare, and I was unable to move from the position of lying on my back with my knees bent. Physically unable to move. Yet after being admitted, they seemed to think that I (a female) should be able to use a bedpan when I needed to go to the bathroom. Seriously. Someone explain the physics of this to me - how on earth I was supposed to make that work! And even if I could figure out a way to try, just think how humiliating that process would be - and how humiliating the cleanup would be! Finally, after I was in tears and in even more extreme pain because of the pressure from a full bladder on top of the back pain, the nurse relented and started a catheter. No patient should have to endure something like that.

Ry

J_Rene
Regular Member


Date Joined Oct 2005
Total Posts : 279
   Posted 1/10/2009 11:24 AM (GMT -7)   
I hate going to ER. I know that doctors don't know the person coming in, but its job to evaluate the patient and give them the proper care. But as you and I know, that rarely happens. I'd rather die than go to the ER. I've had several bad experience where the doctor tells me that " A few fractored disk and DDD with moderate arthritis isnt that bad".  I guess they think b/c you're young you should be able to " DEAL" with pain.  Its not fair the label that younger CP'ers get, that we're automatically drug seekers.
 
I fear that the stipulations are only going to get worse.... its sad that there are SOO many people suffering b/c they won't go to the ER , fearing the treatment they will recieve.
 
 
Ps....
 
Keep Patrick Sawyze in your prayers. He's battling a deadly cancer and is in the hospital with pneumonia.
 
 
 ~ Jessica
tongue  
 

Major car accident 07/02

On going back and leg problems

DX with fibromyalgia 10/05

Goal in life:

To go bra less as much as I can!


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/10/2009 12:55 PM (GMT -7)   
Melissa,
I have to echo Ryand's thoughts that you're exactly who needs to become a pain specialist - or at least as you go through your education and gain more power in your role you can help educate other professionals. I know you couldn't have done much as a student, and I don't know if there's anyway for you to anonymously make a report without it having consequences for you, but at least you can be one of the ones who goes in to those patients, talks with them briefly and lets them know you understand.

When i was in the hospital last year for nearly a week (was supposed to have been for 2-3 days) after my lumbar fusion I had one nurse who came in and she was just starting the night shift and really, really took the time to listen to me as she asked how I was doing, etc. That meant the world. I still remember her. I also remember the aide who, when I was reaching for her on the way back from the bathroom, stepped BACK and almost let me fall. She grinned at me, like for some reason I was faking it. I wish I would have had the energy to complain but as assertive as I am I realize you're at their mercy when you're in the hospital an it's scary. My cousin was with me a lot, but she had to work. People can't have an advocate with them 24/7 unless you've got money to pay for one.

Sorry for rambling but I just want you to know that even as a student a small gesture on your part could mean a lot to a patient. And perhaps you can find a doctor's ear who will pay a bit of attention while the others are on their power trip.

Pete - my mouth dropped open as I read the description of the needle in your spine. 'nuff said.

Jessica - I feel for Patrick Swayze or anyone who's ill but I watched his interview with Barbara Walters the other night and he admitted he was still smoking even though he knew it could have helped cause his cancer. And he was just admitted to the hospital for pneumonia. i'm sad for him, but sad for his wife because if the pneumonia is what ends his life the smoking definitely played a role. But I'm not going to get off on that as an ex-smoker myself. I hope he makes it through this and that he stops smoking as a result.

PaLady

ekkorose
Regular Member


Date Joined Jul 2008
Total Posts : 329
   Posted 1/10/2009 5:04 PM (GMT -7)   
Just the other day my husbands doc told him that if he was older doctors would be more then willing to help him with pain managment but because of his age, no one will. The medical world needs more people like you who can empathize with those in need.

Take care,

Hysterectomy at 25

4 laproscopic surgeries since 24

Cervical stenosis in C3 & C4

_____________________________________________

 

Meds - percocet  3x day : nexium : xanax :

Supplements : calcium : magenesium :potassium : milk thistle : fish oil : B complex : vit E

____________________________________________

In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz 


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 1/10/2009 6:03 PM (GMT -7)   
Well I just went to the ER today because my throat was so sore I couldn't even take sips of water without wanting to scream. They did a strep test but that came back negative so the doctor told me it was probably just viral so he said he could help me with the pain but I told him I could't take any narcotics and he looked at me like I was crazy, he said "well that doesnt give us much of a choice", so he asked me if I was okay with naproxen and I said yes, so he gave me that with a lidocaine wash. Even the nurse that came in first to take my vitals was being very silly trying to make me laugh, he was singing along with the beeping noise from the blood pressure machine, and told me how his wife wont let him bring his shoes in the house cause they're covered in vomit, aand how nothing feels worse than warmvomit in your shoes. So I was just glad I had a good expereince today, which is very rare.
I have Migraines, Pancreatic Divisum, Severe lower back pain, Fibromyalgia, Asthma from Chronic Bronchitis
Meds: Suboxone 8mg 3xday, Cymbalta 60mg @ night,
Zanaflex 2-4 mg @ night as needed, Treximet as needed,
Ventolin Albuterol Inhaler as needed which seems to be everyday.
Been on Diability since I was 22 for Migraines and chronic Pancreatitas(started the processes when I was 19, I'm 25 now) but am working to get off of it ASAP,I want to be a nurse and work at a Impatient rehab with people with addictions of all kinds


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/10/2009 6:48 PM (GMT -7)   
Melissa,

As the others have said, you are definitely what we need in pain management! It is so different when you know or can truly relate to what someone is going through. There are way too many health care professionals out there who just don't understand. It's not easy to find good ones. Overall, I've had much more luck with some of my docs than many others here have, but I have certainly had experiences where docs did not treat me well because I was in pain & they didn't understand, or even try to understand (partly because of my age). Reading stories like this experience of yours & those of others here makes me so sad. It is so unfair that we all are treated like addicts, just because we are in pain, whereas the majority of chronic pain suffers never become addicted to, or abuse their medication. Keep going with your studies so that you can advocate for us!

Skeye

Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 1/11/2009 12:36 AM (GMT -7)   
I took a blow to my head but nothing showed up but I was havig signs of nerve pain , it was unbearable and no one would beleive me, it took two years but now I see a pain spec who cares that one shouldnt be in pain more than addictions but obviously he keeps an eye on things, but he was the first who didnt hesistate and the only one who didnt treat me like a junkie which I am not.  I went to hospital when it first happened because of the pain and was put on phyc list and told I was depressed it was a long a hard fight to get to the stage of being treated.  I suffer nerve pain down neck, shoulder  upper sppine and have arthritus.  sue2z

Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica


Snickerdoodle
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 1/11/2009 1:35 AM (GMT -7)   
Thanks all for your input! There are some terrible stories that you all talked about. I hope I made the patient feel a little better. I told him I could tell he was in pain, and got him a bedside commode to use since he kept falling. (Who really wants to use a bedpan right??) I also heard the patient's doctor and nurse talking about this guy today. It seemed like the doctor understood what was going on with him and so did this particular nurse. The doc did say he would have to monitor his pain meds, but he sent him home with what seems like adequate releif. So atleast his doc has some knowledge and wasnt withholding meds. I understand him having to monitor the meds. I have seen patients go to several different docs for several meds, have a family member call to get pain meds, etc. So there has to be some trust between everyone (ie You give me meds, I will be responsible with them.) We had another woman who came in tonight who comes to the hospital off and on and again with the eyes rolling when they heard her name. Although last time she was here she did try to break into her PCA pump to get more dilaudid, but there may have been a reason for that like LACK OF PAIN CONTROL! I just dont get it the complete lack of compassion! She was on like 6 different pain meds at home dx of addisons, fibro, hypothyroid, degenerative disc disease, etc. hello all painful!! So again folks educate your caregivers. I think I would appreciate a handout sometimes from people with pain diagnosis/not so common diseases. It might help if they were put in the chart, and the staff could glance over it. You would never tell a cancer patient he wasnt having pain because everyone knows cancer. And you are so right about age playing a difference. Maybe thats how I can advocate for some of these people. I could print out articles from WebMd. I might be onto something with that........
Heres another thing that irratates me is that my sed rate is consistantly over 30 and I have to fight to get Tramadol. Freaking ULTRAM! I clearly have immflammation causing pain, and take tylenol/motrin around the clock with my tramadol (my poor liver and kidneys!!). And some of these people come in with scripts for like 10 different meds from different docs....... I think thats where all this stems from. You cant feel someone elses pain, so some people abuse that. Its a shame for us all who are really suffering.
Anyhow thank you all for your input!
Melissa
Dx: UCTD vs autoimmune spondyloarthropathy vs psoriatic arthritis (ie Limbo x5 yrs) Raynaud's, proteinuria
Rx: Plaquenil 400mg, Ultram PRN, Sulfasalazine 2 gram


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 1/13/2009 2:32 AM (GMT -7)   
I think that some medical people go into that line of work because they want to
help people to feel better.
Others go into the medical field because they have a very mean streak.
If you went into Pain Management your heart would break. You'd probably find
out you could not prescribe the Opiods that you knew your patients need.
The dear DEA would be watching you.
Pamela
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


Jules22871
Regular Member


Date Joined Jan 2006
Total Posts : 142
   Posted 1/15/2009 6:51 PM (GMT -7)   
One week after my motorcycle accident where we were hit by an SUV so hard that I landed 88 feet from the point of impact, laying there with all sorts of external fixators from my hip to my toes, a nurse actually had the nerve to tell me the pain was all in my head. Yeah, she wasn't my nurse for long,lol I told her to get out of my room and not come back. When the charge nurse came in and asked what the problem was and I told her she wrote the other nurse up and sent her home for 3 days without pay! The next surgery I had was 2 months later. When I was taken to my room that same nurse walked in. All I did was point to the door and she left,lol

We need more nurses like Melissa that see a patient, not a problem.
Motorcycle wreck 08/2004: 119 fx, 13 surgeries with one more to go, including 5 bone grafts, 2 skin grafts, pelvic reconstruction x2. Right leg is 1.5" shorter than left. Have to wear knee brace for life and also AFO brace for drop foot. Nerve damage from hip down to toes, no feeling in lower leg. Spinal fusion. Will be on crutches the rest of my life. Pain level never below 5 even on pain meds. Since August 2007 I have been diagnosed with chronic atelactesis, tachycardia, high blood pressure, borderline personality disorder, depression and Delayed sleep phase syndrome


jwladytiger
New Member


Date Joined May 2008
Total Posts : 1
   Posted 1/16/2009 1:34 PM (GMT -7)   
When I read this I litterally cried. No one seems to be willing to acknowledge that this happens. So if its happening to you .....you feel alone, misunderstood, and helpless. I had my ovaries removed two years ago....and they accidentally  left a piece...that is now wrapped up in scar tissue which is also  wrapped around my intestines. They say they cant remove it because I could end up with a colostomy bag. So they are planning on doing radiation. They think if they can stop the piece of the ovary functioning it will stop the pain. Mean while.......I have medicaid and can not find a pain management doctor to take me. My regular doctors make me beg and beg for pain meds. Even if they give me any its never very much. I try to stretch it as far as it will go. Im so tired of hurting. I just cant understand how they can leave me this way. Im no drug seeker. Im as straight laced as they come. I mean my gosh Ive never had a speading ticket. I just want out of pain....Ive tried some herbal things......over the counter meds. I cant sleep. I cant do anything. Sometimes I dont even wanna live anymore because I just want out of my body. I wanna scream......but theres no one to scream to. What difference will it make? Something has to change in the medical profession!!!!!!!!

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/16/2009 1:59 PM (GMT -7)   
Dear Jwladytiger,
I'm so sorry to hear what is happening to you, but you have found a place you can scream to, and sometimes it helps to vent (we all do it here at one time or another).

I do want to welcome you to the chronic pain forum of HW, but wish you didn't need to be here. It sounds like one of the main problems you have is due to insurance, although even with insurance many of us have problems - as this thread and many others indicate.

If you want, you can start a new thread and introduce yourself to the other members of the forum. One thing that's great here is the support you will receive, although we're not doctors and can't give medical advice.

Sorry I can't go on much more but m wrists are hurting at the moment, but welcome!

PaLady

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 1/17/2009 2:20 PM (GMT -7)   
Jwladytiger,
Please get a second, third, even eighth opinion before you have radiation. I know it's tough with medicaid but check around. I know a woman that had a problem that sounds very similar and she eventually found out that the doctors could do the surgery but they wouldn't. They wouldn't do it because her surgery would be complicated and take longer that usual and medicaid would not reimburse them enough for their time. She eventually found a caring surgeon that operated and fixed her problem.


Your best option may be the radiation, but make sure you check out all of your options first.

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/17/2009 10:32 PM (GMT -7)   
Hi Jwladytiger,

I also would like to welcome you to HW. Like Palady said, we're always happy to have new members, but sorry that everyone has to be here because of something so awful as pain. You'll find that this is a great place to find support & understanding. Feel free to jump in on the other threads, like you did here, or start a new one to introduce yourself. Not everyone reads every thread, so it might not be a bad idea to create a new one, so people can more easily get to know you!

I'd also like to second what Dagger said. One of my docs has been pushing me to do radiation therapy for the past 8 months or so. I refuse to go that route (although it doesn't stop him for mentioning it every time I see him), because there are just too many unknowns in my present circumstance, and frankly radiation terrifies me, no matter how pin-pointed the docs claim it to be. But I won't bore you with all my feelings & thoughts about it pertaining to my particular circumstance. I'm not giving you any medical advice & I really don't know your situation at all, but I would urge you to get some more opinions from doctors, or at least as much information about it as you can before you go down that route. You may want to set up an appointment with one of the radiation oncologists at the hospital that you would go to if you were to do radiation, just to talk with him/her about your particular case & the risks and benefits of doing radiation, and exactly what it would entail. Also, perhaps other docs could offer you some different suggestions of treatments. Unfortunately, I know how hard it can be to find something that works, I still haven't had much luck myself, but many minds are better than one, and different docs think differently! It's too bad that you haven't been able to find a pain specialist who will take medicaid, but keep looking! There has got to be some out there & PM docs have a lot of different treatment options to offer patients, in addition to medication. I know you mentioned trying herbs, have you tried other alternative therapies? If you can afford it, it might be worth looking in to trying something like acupuncture or homeopathy. Some people have very good results with these types of treatments, or find that are good supplements to their current routine. Don't give up! There is bound to be something out there that can help you at least reduce the pain enough to have a better quality of life, it's just a matter of finding it (I know this is much easier said than done!!)! Keep fighting & keep posting!

Skeye

odel
New Member


Date Joined Dec 2008
Total Posts : 9
   Posted 1/19/2009 6:02 PM (GMT -7)   

 

myself and I know for a fact other chronic pain patients are very undertreated for their pain, as with myself they must have all documented medical evidence and specialist reports agreeing with a DX of pain before they would ever get opiod med s perscribed this seem s to be the common protocole here in Canada

 

For myself I have been taking opiod med s for my pain since 1992 and it seems that I received pretty adaquate meds in proper amount s years ago when I first started taking them than I have been receiving in the past few years seems Doctors are cutting back on the amount of opiod med s they script for myself and other s I know a definate pattern for the past few years personally I have never ever have asked for a increase in my med s I just answer the Dr question about my pain honestly and the Doctor has increased the dosage this also seems to have stopped

I have always felt very sorry for some people I have met that either do not have the medical evidence to support a Dr treatment with opiate med s either due to the insane amount of time here it takes to see a specialist or get Mri etc or they have severe pain from a medical condition that either has or has not been made by a Dr but no definative medical test exists to prove this dx  here Dr are VERY hesitant about scripting pain med s without evidence supporting their claim and proving their medical justification in using them people in this situation I feel for and honestly wish I could help them but obviously can not

Here in Canada most of our medical costs are pain by the provincal goverment and the goverment tell our Dr s how much they get paid per patient I discovered that in 2008 a GP Dr in Ontario Canada gets $17.oo

per patient with a cap on the number they can bill for per day this I couldn t believe so their really is no financial insentive for a Dr to see and treat a chronic pain patient and for the Dr to be subjected to all the gov t interference and law s and rules for scripting opiate pain med s I mean why would a Dr see and treat me which at the present stage of my medical condition after all the treatment s and surgeries I have had the only treatment they give is basically perscribing med s  and pain med s in particular which put s our Dr on the Gov t radare so why would a Dr treate me and other chronic pain patients when he can make the same amount of money for treating someone with a cold or flue etc and these type of patients are less work and gov t worry for them sounds bad but it is a fact here

Dr s due to abuse of our pain med s by drug abusing people and all the legal and Govermental rules involved with the scripting opiate med s don t really want to treat people like me or other s and finding a Dr to treat a chronic pain patient even with all the proof for the need of pain med s is extremely extremely difficult to find in Ontario Canada also when one is found  that will take new patients the word seems to get out and around that he will treat pain patients and will perscribe pain meds he gets a huge influx of pain patients wanting him to treat them and this seems to draw attention to the Dr by the Gov t

Terrible situation here and is just getting worse and worse and alot of this is caused because the abuse and diversion of the Medications we need and must take and the interferance of Gov t and law enforcement  in the treatment of us also add s to this personally I get just furious when I read or hear about the illegal sale or obtaining and mainly abuse of the medications I take Oxycontin in particular by people selling it for profit or abusing it this in my opinion is the main reason us Chronic Pain patients can not be treated medically properly just cause of the nature of the medication we NEED to take if I had to take for example insulin myself and other s would have no trouble finding a Dr to help us or being able tol obtain insulin from any Dr

 

And I fear nothing is going to get better for us in the near future and in fact I feel it will get much much worse for us in the year s to come

 

cheer s

 

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