Mysterious Condition?

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Helpmeplease111
New Member


Date Joined Jan 2009
Total Posts : 12
   Posted 1/11/2009 8:05 PM (GMT -7)   
Hello guys, I have a condition that the doctors and nurses somehow cannot diagnose. I'm fed up and I have no where else to turn, no one seems to know what's going on with me. In grade 7, that's about 6 years ago, I started to have pain in my legs, one week my left leg would be OBVIOUSLY longer than my right and after a couple weeks my right leg would me longer than my left. Doctors thought nothing of it, thought it was growing pains but I still have the pain now. The pain is on my left butt cheek right where it curves to connect to my thighs and there is also pain right below the dimples of my lower back (left side aswell). It also hurts on my hamstring area, the pain feels like I sprained it or it's being pinched, I usually walk with a limp. Furthermore, my back, lower lumbar, the tailbone and the middle of my spine around the T spine hurts when someone touches it. It feels like it's bruised when someone pushes on my upper spine. The doctors gave me pain killers but when u don't take them, the pain comes back and I start to feel cold and I start feeling like i'm getting sick, until I take the meds. What the hell is wrong with me!?!? And now I'm having chest pain. I can't trust my doctors because they don't know why they're doing apparently. Please help thanks.

Helpmeplease111
New Member


Date Joined Jan 2009
Total Posts : 12
   Posted 1/11/2009 8:08 PM (GMT -7)   
I forgot to mention that I also have plantar fascitis

hep93
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Date Joined Jul 2005
Total Posts : 12014
   Posted 1/11/2009 9:22 PM (GMT -7)   

Helpmeplease, I assume you've had pelvic and spinal x-rays, but have you had an MRI with contrast?  That would be your best bet of finding out definitively what is going on.  We are not doctors and cannot diagnose you, but I will tell you that the pain in your "butt" (literally) sounds like your hip.  People think the hips are on the sides, but that is the pelvis.  The hip is actually the femoral head and the joint (acetabulum) that it fits into.  Pain from various hip conditions will be felt in the behind and sometimes down the groin.

Try to get an orthopedic referral and then an MRI.


hep93
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Ides
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   Posted 1/11/2009 9:33 PM (GMT -7)   
I suggest you see a rheumatolotgist. Plantar fasciitis combined with "pain right below the dimples of my lower back" suggests that the doctor should be looking at one of the spondyloarthropathy diseases such as Ankylosing spondylitis.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 1/11/2009 10:46 PM (GMT -7)   
Dear Helpmeplease,
I'm so sorry you have so much going on at such a young age. I'm not sure what doctors you've seen - if it's only been your family doctor, but as the others have suggested I think you need to see specialists, although I myself am not sure which one. Perhaps a teaching hospital, if you have one near you, where you could get a thorough evaluation by docttors from more than one specialty. This seems to have been something that started when you were fairly young, and I think whoever you see needs to know your history as well as all your current symptoms. Keep asking questions of your doctors, and don't stop looking until you get some answers! Sometimes medicine can't give us a precise diagnosis, but you should be able to get some idea of the possibilities. Plus, you want to see if you can prevent it from worsening, which it seems to be doing.

Like someone said, we're not doctors, but can be here to provide you with support.

PaLady

Chutz
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Date Joined Jan 2005
Total Posts : 9090
   Posted 1/11/2009 11:00 PM (GMT -7)   
Hi Help...and welcome!

Great ideas above. I too would suggest a rheumatologist. The reason I would is to consider Fibromyalgia. It's wide spread body pain. There are other muscular conditions similar to fibro also that it could be. Feel free to come over to the fibromyalgia forum as see what you think. Also talk to your doc about several of these other conditions and a referral to a rheumy.

Keep in touch,
Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


odel
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Date Joined Dec 2008
Total Posts : 9
   Posted 1/12/2009 5:39 AM (GMT -7)   

 

hi

Myself I agree with the other posts MRI with contrast seems to be the best diagnostic at this stage I gave gad 2 and they are n0thing to worry about pain wise etc MUCH better than the Mylogram

Sorta sounds a little like the spinal Stenosis I had my surgery for years back but as said we are not Dr s if you are not getting the answers from your present Dr  see another but this should be investigated could be a number of thing s

 

cheer s


Helpmeplease111
New Member


Date Joined Jan 2009
Total Posts : 12
   Posted 1/12/2009 6:05 AM (GMT -7)   
Thank you all for your support, I wanted to get an MRI but one of the doctors said I didn't need one, I also went to see a rheumatologist and he gave me the heel inject and diagnosed me with that ankylosing spondylitis I don't know how to spell it, but he gave me anti-inflamatory pills which seem to work but never really fixed the hip as someone said so I'm going to push for an MRI is it called a MRI with contrast?

Thanks again everyone

ekkorose
Regular Member


Date Joined Jul 2008
Total Posts : 329
   Posted 1/12/2009 6:58 AM (GMT -7)   
I have one suggestion for your next appointment. As your doctor how they would treat a 60 year old that came in with the same complaints. A lot of doctors refuse to think young people can get ailments that older people get and this little question sometimes makes them see past your age.

Take care,
Sarrah

Hysterectomy at 25

4 laproscopic surgeries since 24

Cervical stenosis in C3 & C4

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Helpmeplease111
New Member


Date Joined Jan 2009
Total Posts : 12
   Posted 1/12/2009 7:05 AM (GMT -7)   
THank you Sarah i will ask them

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/12/2009 1:25 PM (GMT -7)   

Helpme, you spelled it correctly.  If you were diagnosed with ankylosing spondylitis/spondylosis (a very painful bone disease), you should continue on that track to confirm (or dispel) that diagnosis.  An MRI with contrast is useful if one wants to look at specific organs, but in your case just a regular MRI should work to figure out exactly what is going on.  I don't believe a rheumatologist or orthopedic surgeon would tell you you don't need an MRI.  If you are in an HMO, sometimes the primary care doc is just trying to save money.  They are discouraged from making specialist referrals and ordering expensive tests.  It's a shame, but often times the bottom line is money when it comes to medical care.  Do make it clear that you have had some symptoms since you were a child.

Hang in there and don't give up on getting proper care!

 



hep93
Forum moderator - Hepatitis

Post Edited (hep93) : 1/12/2009 9:15:31 PM (GMT-7)


Helpmeplease111
New Member


Date Joined Jan 2009
Total Posts : 12
   Posted 1/12/2009 9:06 PM (GMT -7)   
Thank you I'm gunna do my best, as for A.S I don't know if it's really A.S he diagnosed me with I know it started with an A but the thing he said was that I have permanent inflamation on my spine which causes pain to my hips or seomthing. But if I do have A.S I can still do physical activities while on the medication right?

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/12/2009 9:21 PM (GMT -7)   

"itis" means inflammation, while "osis" means disease or condition.  Ankylosing is rheumatic.  Ankylosising spondylosis is progressive and there really is no cure.  The spine gets bent forward so much that eventually the patient is unable to breathe.  Therefore, it is really important to get a correct diagnosis.  Only then can your diagnosing physician address such issues as medication and activity.

Hope this helps.  wink


hep93
Forum moderator - Hepatitis


Helpmeplease111
New Member


Date Joined Jan 2009
Total Posts : 12
   Posted 1/15/2009 5:18 PM (GMT -7)   
Hey guys, I was doing research on AS and I agree I do have some of the symptoms of AS and the rheumatologist said I do have AS but the lower back doesnt hurt as much as the upper back and the middle, is it just me or is the thing I have close to AS but not exactly AS maybe a herniated disc? and also for some reason, when I run sorry for the poor language, my groin area under the sac kind of starts to hurt...do I have a hernia? which in turn affects posture and affects the spine? I do have plantar fascitis but thank GOD that it's slowly going away with exercise. I just want to get to the bottom of this. I'm young and I've got my dream set on being a Police Officer. This wont stop me, I guarantee you.
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